[demografx]

According to the dailymail.co.uk, the Who recognizes adrenal fatigue as a real condition. But I don't find nothing on the Who site.

And I cannot find POIS on the WHO site

[kurtosis]

Hi,

Today I got my report of CT SCAN of BRAIN.  I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal.  Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist.  Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. 

Further, in our country, Niacin tablets is not available.  I find B.complex tablet which is of following composition.
Each Capsule contain:
Vitamin B1 10mg
Vitamin B2 10mg
Vitamin B6 3mg
Nicotinamide 50mg
Folic acid 1000mcg
calcium pantothenate 20mg
L-lysine mono hydrochloride 150 mg
Vitamin B12 5 mcg.

Whether this tablet is appropriate and does it contain Flushing effect? Please help...

That tablet is not going to make you flush as it contains Nicotinamide. I wouldn't worry about your doctor's comments that it isn't physical. The idea that every illness which produces cognitive impairment would have results that show up in a CT scan is ridiculous. It's not like your doctor can compare your brain development with/without POIS so he can only look for tissue damage such as lesions and signs of degeneration. Severe inflammation would show up but I don't think anybody has had those results. There are a few people on here who have had MRI's (me included) and as far as I know nobody has found physical damage.
You might need a new doctor

Somebody else mentioned porn addiction. Doesn't affect me. I've little interest in it. I just don't buy any of this psychosomatic rubbish. Bearing in mind that almost all of us who have seen our GP's about POIS have been told it's anxiety/psychomatic it's surprising that not one person claims to have gotten better with the drugs or treatment normally prescribed for that. The simple fact is that having an O is not supposed to make you stupid for a few days. If it's an immunological problem / allergic reaction then a GP or psychiatrist will be worse than useless in treating this. They'll take your money and make you feel like an even bigger idiot because it's "all in your head".

I take some P5P every night with zinc and magnesium. I find this works better than either niacin or ordinary b6. I've wondered if this means that, for whatever reason, I don't produce sufficient amounts of  pyridoxal kinase to convert b6 into its active form (p5p) which is required to create both dopamine and GABA. Or that POIS leads to fluctuations in these neuro-chemicals such that I need to help replenish them. 
I also get a lot of spirulina (high in tyrosine), chlorella and fish oils.

[John21 (OP)]

Vincent Marcus, have you tried niacin? garlic? fenureek? Just curious. I will also mention that I am proof that complete chastity (outside of NEs) is possible to achive, even though it can seem otherwise. PM me or just ask here if you want tips on how to achive chastity. 

[Stef]

Hello All (and a Special Hello to Vincent Marcus),

I’m going out on on a limb here by weighing in on the psychiatric diagnoses made by so many doctors whom many of you have encountered – the ones who have told you that POIS is a psychiatric condition, that it's psychiatric in origin.

I think that this statement by any physician regarding POIS should ALWAYS serve as a “red flag”.  High-tail it out of there and don’t look back!

POIS obviously can cause major depression and anxiety, as can any on-going, life-altering condition, rare or not. POIS may also cause other psychiatric symptoms –  OCD-type symptoms, maybe even delusions.

But emotional/psychiatric issues do not cause POIS. They also don’t cause severe and obvious eye inflammation, incapacitating knee pain, burning skin, etc.

I think you all need to firmly agree (if you don't, already) – hands down, no exceptions – that whether it’s a “top POIS expert” (there are none, FYI) or a loving, well-meaning but very worried parent –  POIS IS NOT A PSYCHIATRIC ILLNESS -- despite the horrendous psychiatric symptoms that it can cause.

It is a SAD BUT TRUE FACT that with an unusual disorder that has not been researched  -- when the “experts” can’t make a diagnosis -- the person is inevitably advised that it’s a psychiatric problem.   Psych meds frequently are prescribed, and the person frequently feels even worse from those meds! I'm basing this on what I hear from people who contact NORD, day after day.

(Psych meds can save lives – I don’t want to sound anti-psychiatric medication!)

I have an absolutely favorite story to share with you about one patient who contacted NORD around three years ago -- Robin Akbar.

(Her story has appeared on NORD's website, on television for the Mystery Diagnosis show that we referred her to, and in a few magazine articles also. So I am not breaching patient confidentiality with a story that has already gone very public.)
 
Just like Demografx contacting NORD, this wonderful woman, Robin Akbar, was PERSISTENT!  SHE WOULD NOT TAKE "NO"FOR AN ANSWER. (You can probably google her if any of you wants to read her story.)

I've become quite close with Robin through NORD – honestly, I wish she lived nearby, as this is someone who I'd really like to get together with!  She is as strong and as persistent as one can be, and is a lot of fun also!

Robin developed severe pulmonary problems – out of the blue.  She went from doctor to doctor over a six-year period (she worked in hospital administration -- so she heard about all the TOP DOCS in her city -- a large metropolitan city with big teaching hospitals). The TOP DOC OF PULMONARY DOCS in her city decided she had chronic bronchitis and asthma, and treated her over and over for this --for six years! 

Robin's symptoms became so debilitating and unmanageable that she had to give custody of her young son to her ex-husband because she was too sick to care for him. She lost her job and home due to her “asthma”, was taken in-- out of kindness -- to the home of a church member, and felt – literally -- like she was dying.

Robin was dying.

The night before Christmas, her TOP DOC told her there was nothing more he could do for her, it was obviously an emotionally-induced problem, and that she should see a psychiatrist.  He wouldn't even re-fill the meds that were barely keeping her alive!

Long story short, her church friends took up a major collection and sent her to the best pulmonary hospital in the US (she is from the USA).  In this case the hospital was Jewish National Hospital in Denver, Colorado – an internationally known pulmonary research hospital.

Her friends also found a terrific, local “average” internist who examined her, knew immediately that this was not all in her head, re-filled those prescriptions, and sent some of her own medical notes on to Jewish National Hospital.

Ten days at Jewish National led to her true diagnosis.  She had a rare and very serious autoimmune disorder called Churge-Strauss syndrome – which causes severe inflammation of the blood vessels (vasculitis) in the lungs.  It is a vascular disorder, not a lung disorder. It is also not psychiatric, nor would asthma or bronchitis meds help in the slightest.

They told Robin that in another three months she would have been dead. The pressure in her pulmonary artery was so high that it would have been irreversible and rapidly fatal.

I'm happy -- very happy!!! -- to report that Robin survived her six-year odyssey of physician ignorance and egotism. She is doing wonderfully on the right medications!!! :-) 

In fact, Robin has since re-married and has her son back. He is determined to go to medical school (entering college in about one year) and is planning to go into the field of medical research -- because of the nightmare that his mom went through!!

If you were to ask Robin how she survived her horrific ordeal and what kept her moving forward – she would tell you --

"YOU KNOW WHEN SOMETHING IS WRONG."
 
She would tell all of you –
"DON'T ACCEPT DIAGNOSES THAT DON'T RING TRUE."
 
More than anything (this was a direct quote in our website article) – Robin would TELL YOU --

“Be READY TO DISAGREE WITH THE EXPERTS – AND NEVER ACCEPT “I ”DON'T KNOW" or “IT'S ALL IN YOUR HEAD” as an answer!”

Vincent Marcus – you’re going to have to fight this demon like Robin Akbar fought hers.  I’m going to PM you in a short while, but for now – do nothing  drastic and forget about trying to make plans! The depression won't allow you to think logically.

Don't stop the Klonopin on your own -- absolutely don't go cold turkey.  You need medical guidance from your doc about that -- if you want to stop the Klonopin.

This awful depression is temporary, and – I think I’ve written this here before – a wild libido is NORMAL in a young man!!!  The human species wouldn’t survive without it! 

The "problem" with your libido is that you have to constantly fight it because of POIS.

You men need to get the research started – the real, basic, scientific research!  It’s up to you.

I don’t want to get your hopes up. But – there is a chance – a very, very small -- but possible chance – that NORD will be doing a second grant cycle around July or August.  We do this only when there are a few other funds that have reached the minimum goal.

Keep that in mind – and keep your eyes on the prize! Even if NORD doesn't issue a second grant cycle in July/August -- act as if it's a done deal anyway!

POIS is still a complete mystery. There are no POIS experts. There is no major research that I'm aware of.  Like all other groups with rare disorders -- YOU are going to have to make the research happen. 

Money (aka funding) is needed.  Sell your stuff on Ebay, do another reddit-type campaign, donate $10/month automatically (or more!). 

All of you are responsible and you can do it!

Stef 

 





 

[Vincent M]

Thank you for the kind words everyone. I had only taken the klonopin for two months since I needed it to go to work. I didn't notice any negative effects from klonopin, in fact, I only noticed positive effects, but I now believe the pain-killing effect of the drug enabled me to work past my body's limits thus potentially contributing to my now damaged knees. I stopped taking the effexor after I noticed all the damage it was causing to my body and the same with betaine hcl. I now realize that POIS has weakened my body in a way that makes me abnormally susceptible to the side effects most synthetic drugs, however I do just fine with herbals and antihistamines. The pain in my knees is what scares me the most and is the thing that is driving my current despair and desperation. I don't think I could lose my ability to walk and still stay sane.

In any case the knee pain hasn't been getting worse so I believe I still have months, maybe years to decide what my decision will be.

John21. Niacin, garlic, and fenugreek are all very effective for me and I still take fenugreek every day, but this new knee pain doesn't respond enough to them. I've put a great deal of effort into attempting chastity previously and still failed so I doubt there's anything new you could tell me, but I'll welcome any tips you may have for me. I achieved 5 months without masturbating years ago, but I only was able to do it with a vegan diet, a very cold house with bad heating, driving to college classes most days, and this sheer will power consisting of the need to survive. I not only avoided all sexual images, but also television, videogames and all other electronic entertainment. However my strength has decreased a lot since then and along with the loss of my energy and cognitive function I have also lost my will power.

[demografx]

BEAUTIFUL post, nordnurse!

Thank you very much.

demo

[demografx]

VINCENT MARCUS, best wishes!!!!!!!!!!!!!!!!!!!!!!!

[Stef]

Thank you for the kind words everyone. I had only taken the klonopin for two months since I needed it to go to work. I didn't notice any negative effects from klonopin, in fact, I only noticed positive effects, but I now believe the pain-killing effect of the drug enabled me to work past my body's limits thus potentially contributing to my now damaged knees. I stopped taking the effexor after I noticed all the damage it was causing to my body and the same with betaine hcl. I now realize that POIS has weakened my body in a way that makes me abnormally susceptible to the side effects most synthetic drugs, however I do just fine with herbals and antihistamines. The pain in my knees is what scares me the most and is the thing that is driving my current despair and desperation. I don't think I could lose my ability to walk and still stay sane.

In any case the knee pain hasn't been getting worse so I believe I still have months, maybe years to decide what my decision will be.

John21. Niacin, garlic, and fenugreek are all very effective for me and I still take fenugreek every day, but this new knee pain doesn't respond enough to them. I've put a great deal of effort into attempting chastity previously and still failed so I doubt there's anything new you could tell me, but I'll welcome any tips you may have for me. I achieved 5 months without masturbating years ago, but I only was able to do it with a vegan diet, a very cold house with bad heating, driving to college classes most days, and this sheer will power consisting of the need to survive. I not only avoided all sexual images, but also television, videogames and all other electronic entertainment. However my strength has decreased a lot since then and along with the loss of my energy and cognitive function I have also lost my will power.

Vincent Marcus (and everyone else) --

I keep meaning to say this as a general statement, and have finally remembered to do so --

Try not to assume that every symptom is related to POIS.

The knee pain may be independent of POIS, and needs to be fully evaluated by a good physician (orthopedic or rheumatologist). You don't need a "POIS expert" for severe knee pain (or even mild knee pain).

Your doc needs to come up either with a solution to this knee pain -- or a referral to knee specialist (NOT A REFERRAL TO A PSYCHIATRIST!!!!!).



Stef

[POISon]

Hey Vincent Marcus I usually don't recommend people to get off of anti-depressants even though they have done nothing good for me. I have been on Effexor and that is the only antidepressant(tried 7 to see if they'd actually do anything) besides Paxil's  anhedonia effect that I felt anything and it was a horrible experience!. I felt initially a little more energetic and outgoing,but then I started experiencing horrible side effects.I experienced intense agitation and rage,something I had never experienced before. That drug made me highly impulsive and overreact to everything.Trust me I know . I put two loaded 22 rifles and a shotgun to my head while on that drug and came very close to pulling the triggers of these firearms with the safeties off and killing myself.I've never felt mania before until I was on  Effexor and I've never taken any steps even close to killing myself before this drug or since I've been off it over 10 years ago,and I've experienced a lot worse that what I was experiencing at the time.I would talk to your psychiatrist about other options if you start feeling like you need to take drastic measures(ie castrating yourself).Effexor from what I have read has been known to create strong bipolar symptoms in certain people who never even manifested  biploar symptoms before.It also from at least my experience brutally hard o get off of because of the discontinuation syndrome.I had the worst(negligent) psychiatrist as he kept upping the dose when I told him I was experience horrible  symptoms which were related to Effexor, and that's when I nearly killed myself.Hopefully you have a competent psychiatrist who can adjust your dose or help you get off Effexor altogether.

Hang in there buddy we are all going through this together. Your'e still young with you're whole life ahead of you, and at least you have this forum with supportive people who understand what your going through with Pois since we all are going through it together.I wish I had this forum when I was younger it would have made things a lot easier knowing I wasn't going through this alone and there are supplements I can take to reduce my symptoms.

[Vincent M]

Thanks for the advice. I'll keep it in mind.

[demografx]

But not sex!

(hee hee)

[demografx]

Try not to assume that every symptom is related to POIS.

Excellent point, Stef. Thanks!

[demografx]

Try not to assume that every symptom is related to POIS.

Excellent point, Stef. Thanks!

[demografx]

Or to have sex without ejaculation, for those men who can do it (heroes for me).

I really wonder if they can, B_Jim?

[nathan123]

Hi finally i got xantinol nicotinate tablet in my area. One tablet is 150mg. How many tablets i require to take. At what time . And in empty stomach or with food. Please help. Further yesterday i told that i was refered  by my physician to a psychologist. I met him yesterday. After reading the case reports of pois and this forum he advised me to purchase and listen dialy an hypnosis mp3 called "allergy free". He shown me many cases where auto immune disease, allergy to pollen/sea foods resolved after listening to this hyponsis mp3 for 15 to 20 days daily once. Further he mentioned that if pois is because of semen allergy, auto immune disease it will be cured in this mp3. I want to share this mp3 here. So that everyone can try it. As per  purchase agreement with the online vendor, i can download max of 5times within 5 days from their website and ishould not share download link elsewhere or upload mp3 in any website/forum and if did it wil lead to violation of copyright. So i wil send the download link to any one of you (may be moderator or senior member) in private message and they can download and share the mp3 directly in this forum. Further 5 years back i was suffer from asthama. At that time  i used hypnosis tracks designed for asthama and is also cured 100% in just one month

[Vincent M]

I know that the knee pain is caused by POIS, because one time I performed an experiment in which I thought exercising immediately after I ejaculated would somehow ease my symptoms, but instead what happened is I developed a very gruesome feeling of pain in both areas of my knees that felt as if whatever tendons or ligaments in that area or I guess connective tissues were beginning to tear. It terrified me so much that ever since then I made sure I got at least 1 to 2 hrs bed rest after every ejaculation. Within a few days my knees were back to normal. This is the same feeling I get in my knees now all the time, but to a somewhat lesser degree.

Before and after that experiment, which was during a time I had no treatments available, every time I ejaculated and for some reason had to walk perhaps to do some chore I remember my knees would always hurt, but not quite as badly as they do now. When I found the treatments from this forum my knee pain went away completely.

Now not only has my knee pain returned despite continuing the same treatement regimen, but all of my POIS symptoms have gotten worse as well. It's possible that the effexor, the betaine hcl, and the klonopin had something to do with this worsening of my symptoms or it's possible that my POIS is getting worse by itself over time.

I will mention the knee pain to my doctor, but I'm sure he won't find anything even if he orders an MRI, because I have the same kind of pain in my back from POIS and it is still there despite going to doctors about it and getting an MRI and X-Ray that showed nothing. I'm pretty sure the damage to my knees is connective tissue damage like in my back, which doesn't show up on tests. I know my back pain is from POIS too, because when I was at college and accidently had an ejaculation before I had a class the pain in my upper back from sitting in a chair was excruciating. It felt like whichever muscles or ligaments that were attached to my spine were being torn away from my spine just by sitting in a chair. If I managed to go a week without an ejaculation I would have no back pain at all.

I do agree that it is a good thing to do to think carefully about whether a symptom is caused by POIS or not so as to treat it properly.

[nathan123]

Hi, 

As per my doctor suggestion, (one of the experiment for POIS by My doctor ) Today, I listen for the first time "Hypnosis MP3 for allergy cure".  I wanted to listen this under worst POIS condition and wanted to know how my body reacts to it.  So, before 8 hours, I had  "O" for two times in hour and after 8 hours of "O", my POIS condition was worst and all the nerves in my head are blasting.  At this time, I listen the hypnotic track for allergy cure.  This session is about 1 hour and require to either lay down on the bed or sitting in chair with comfortable and our eyes should be closed through out the session.  After end of the session, when I opened my eyes, my head was calm and I can say 50 to 60% of POIS symptoms (both physical and Mental) are relieved in just one hour.  Now I am feeling like I am in 4 th or 5th day of POIS. Today, I am not used any other remedies like Garlic, Fenugreek, B.complex tablet, Niacin. Today I bought Niacin tablet after searching from long days in my area and I require your help about the dosage and schedule of taking it.  Now, One thing is sured for me know that this Hypnosis track can be used for recover from POIS symptoms quickly.  Further, the main benefit as per given in the website where I have purchased this  is it will remove Allergy, auto Immune diseases, Over Sensitivity of the body in just 20 to 30 days.  We require to listen this daily once preferably when we going to bed at night.  Presently, I am confident that if POIS is because of Allergic to Semen / Oversensitivity of the body / Auto immune disease there will be a solution in this.

From my purchase account, the Mp3 track can be downloaded still 2 to 3 times.  I just send the link to Daveman in private message.  After downloading from website, it is left to him how to share the mp3 track to all our forum members.  It is my request to all of you try this.  Earlier I have tried many treatments, but none of them worked for me (other than garlic, B.complex tablet).  But, after experienced for the first time, i have the good faith in it for solving the problem if POIS is a Allergy / Oversensitivity / related to auto immune disease. 

Thanking you,

[Vasian1980]

I am sorry, for my PROMT. At me symptoms are shown for the morning even after strong to excitement without the ending.
And everything began 2 years ago after quinsy which developed within 1 hour, after treatment Asthenic conditions started to appear, there was a confusion of thought and to it to everything fears and panic attacks increased.

[napkynbass]

who thinks that can be an allergic reaction to semen?

anyone had Waldinger study?

i live with that pain for so long and i wanna try everything :/

thank's for your help

[kurtosis]

Hey guys. Hope you are all doing well in your endeavors.

Niacin has helped me a great de over the past few months. And with the additions or spirinula, vitamin c, vma and a few minerals I have been able to grt back to work. My POIs is constant and worst within the first few days, but eith these supplements I have been able to work even the day after orgasm. I need about 400 mg niacin to feel a flush without food, I take about 1000 mg of spirulina and 1000 mg of chlorella, and 1000 of vitamin c right after orgasm and the next day.I have been capable of working and working hard for the past few months. Recently, though, I feel as though the symptoms are coming back. The supplements seem to have become less and less effective over time even though I am hardly having an orgasm once a week. The fatigue, confusion, and hot flashes are coming back and I'm not sure what to do. I don't know hownpossible it is to have built a tolerance to these medications. Really having a difficult time. I would be willing to hear any suggestions you guys may have.

Thanks,

Jon.

Hi Jon, You might need to schedule some time off and have a dumb-ass supplement-free week
Another thing I noticed. I'm not sure I can handle all the pyroxidine form b6 in ZMA. Too much b6 and you can't effectively convert it to p5p and the build-up can actually lead to POIS like symptoms. I've cut it out in favour of taking specific zinc, magnesium and p5p supplements every second day. Some extra manganese is useful too.