[coul]

"where is all the money going??
 
newbielink:http://www.mannarelief.org/icws217w3/index.cfm?ID=819B0DC7-37C8-458B-B5C05675B48DD815 [nonactive]
Program Overview

MannaMissions assists in delivering nutritional supplements to orphans on every continent. With your help, we've already reached 42,000 orphans in 300 orphanages in 72 countries.

What do we do?
When we visit the orphanages we will be delivering products and educating the caretakers. The team will have opportunities to play with the children, pass out toys, share Bible stories, and perform skits and puppet songs. We may help paint, or with assist in a construction project, or help with administration in an office; any practical ways we can bless the missionaries that we go to serve. Most definitely we will be giving out lots of hugs and smiles!

Eligibility
Anyone 16 years and older is eligible to join us on a MannaMissions trip. Children younger than 16 years of age have joined our teams, but only when a parent is accompanying them.

Funding
Each individual is responsible to raise their own funding for the trips. Financial sponsors can come from friends, family, church, local businesses, charities or fundraising events. Donations may be made by check, credit card or electronic bank withdrawal. Donations are tax deductible. Donors in US and Canada (see special instructions to make cheques payable to MannaRelief/ FLOCS) will receive a tax donation receipt. All funds should have participant’s name and “missions” on donations in order for the funds to be designated for their trip.

Application for Missions Trips are available in the following formats:

Download an Application
Call our office (817.557.8700)
If God has planted a seed in your heart to go on a missions trip, pray about joining us! If it is God’s timing, He will provide.

Here is a testimony of God’s provision. Going to Africa seems so surreal for someone who has never been out of the country but, I knew God was telling me to go. I had less than six weeks to get this huge project of raising $2500, getting my passport and getting my shots. I have four little girls and a husband on disability, so I knew I needed help. I was able to raise half of the money from a good friend, but I still needed $1,250. I sent out my support letters and prayed over the letter itself, and each person that was going to receive my letter. The next day, five people contacted me and said they wanted to support me financially. And the day after that, a couple approached me and said they are going to pay for the rest of my trip! Still today, someone contacted me and said they would like to support me as well, and I didn’t even send them a letter! Praise God!

--- Rebecca
"Undeniable Destiny" by Linda Castor (wife of Mannatech CEO, Sam Castor)


It's a story of the undeniable way God will use ordinary people to impact the world. It's a story of the undeniable consequence that follows disobedience to God's will."


On a continent where mothers are literally fighting to save the limbs and the lives of their children from machetes and their babies from the ravages of HIV/AIDS, I find it incredulous that Mannatech would spend "sponsors" time and money on bibles and bottles filled with suger water for babies who are "malnourished" in countries that could first use food and perhaps even condoms to help them reduce the orphan population in those countries. But whatever...apparently prayer puts food on the tables of African orphans and Mannatech will be there to supplement the meal with bible stories and bottles of sugar..yippee! We're all saved!

So, my advice is, forget about food for orphans....and by all means, spend your money on the Texas Mannatechies...you look great!

[upton]

According to the site statistics, this is the most widely read thread. So, I thought i would pop over to take a look. Very interesting and I can see there has been some drama here too.

~~~I can't think of a signature~~~

[ittsy_bittsy]

Ok I'm new here... I was up until 5:30am the other night reading this thread right through, after watching the Mannatech DVD about glyconutrition.

I just have to say THANK YOU so much to Duane!!!!!!! Your insights have been incredibly helpful, mostly due I would say, to your not receiving any remuneration from the company.

And now a question for you: Whilst you still agree that the glyconutrients work, what I have gathered is that they supposedly work by stimulating the immune system, by making it think there may be disease cells in the digestive system, when it realises they are not diseased, it can then use this heightened state to go find and fight other areas that are really diseased that it may have been overlooking.

If I have this wrong then please correct me.

As such I'm not sure if there would be benefit for my Dad and I, who both have Auto-Immune problems.  

My Dad has Rheumatoid Arthritis - which is basically where the immune system goes psycho and fights healthy cells. In this case stimulating the immune system, it seems to me, would only make the problem worse. Just as taking glucosamine does, as it helps with the repair of certain tissues, which then give the rouge immune system more healthy cells to feed off.

We are greatly looking forward to where this technology may lead, if they are able to narrow down how to improve the cell - cell communication for shutting down the immune system once it has complete its real work, as that seems to be where the issue is for this disease.

My own auto-immune problem is an Antiphospholipid Antibody Syndrome, where my immune system is creating antibodies to attack cells that form part of the blood coagulation chain, which in turn is making my blood clot too easily.

I am nervous about taking something that will incite my immune system to fight, as it may just fight the wrong cells, and this may then alter the effectiveness of my Warfarin dose.

I would love any input/insight you may have Duane, feel free to set me straight if I'm off base.

I would also love input from any others who have a scientific viewpoint on any of the issues I have raised, as opposed people who are Mannatech robots and quote only the Mannatech speal and case stories.

Much appreciated,
Desiree



~~ Maintain a roll of damp toilet paper for your visitors, leaving them to ponder whether it fell into the toilet... ~~

[ah_non_e_mus_x]

I just ran into a "doctor" who initially came off as this nice guy who just wanted to talk to me about brain chemistry.  My degree is in psychology with an emphasis in neurochemistry of the brain, so I was fascinated with what this man was telling me.

I watched the videos with interest, and the case studies tug at your heart strings.  Well of course, being me, I liked what I was hearing...but when he got to the "becoming a sales associate so that I could buy the product factory direct" I balked.  I have never liked multi level marking; always felt it was a scam.

I did a Google search for glyconutrients and found this site. I wanted to thank everyone for sharing their knowledge. A special thank you goes out to Duane.

Duane, thank you for the "make it yourself recipe" -- that is a great idea.  Why buy it when I can make it myself? I have enjoyed reading all of your other posts as well.

[loweduane]

I am glad that my previous posts were helpful.  

You are partially right about the glyconutrients and the immune system, but it is actually a little more complicated than that, and actually is working by several mechanism.  However, there is something important about the immune system, allergies and autoimmune syndromes that you need to understand.

A normally functioning mature immune system does not "over-react" and it does not attack itself (auto-immune).  It is when your immune system is not functioning normally that it mistakenly attacks the various tissue in your body, or hyper-reacts to benign environmental stimuli (allergies).  You are correct that if you increase the "activity" of a dysfunctional immune response, your symptoms would get worse.  However, this is not the same as "Stimulating your immune system" with glyconutrients (or various other nutrients).  

For example, if you raise mice with zero bacteria in their colon, they have a limited immune system, and are more likely to develop allergies and sicknesses. In other words, without certain common types of environmental stimulation (in this case normal bacteria in the intestines) immune system doesn't learn to regulate itself correctly. If you kill the bacteria in rats, you increase their preponderance to develop respiratory allergies.  The type and amount of bacteria in our intestines have a major influence in the "maturity" of our immune system.  They are also finding that certain types of "fiber" also stimulates receptors in our intestine that stimulate "maturity" of the immune system, not just making it more active, but more efficient.  (look up articles on the "hygiene hypothesis" for more background in this area and related topics).

Multiple studies are being done right now on the ability of improving symptoms of immune dysfunctional syndromes (allergies, RA, etc) by improving the number and type of good bacteria in the gut.  For example:
------------
Scand J Rheumatol. 2003;32(4):211-5.

Effects of probiotic therapy on the activity and activation of mild rheumatoid arthritis--a pilot study.

Hatakka K, Martio J, Korpela M, Herranen M, Poussa T, Laasanen T, Saxelin M, Vapaatalo H, Moilanen E, Korpela R.

Rheumatism Foundation Hospital, Heinola.

OBJECTIVE: To study the effects of Lactobacillus rhamnosus GG (LGG) on rheumatoid arthritis (RA). METHODS: Twenty-one RA patients were randomised to receive 2 capsules of LGG or a placebo twice daily in double-blind fashion for 12 months. Arthritis activity was evaluated by clinical examination, HAQ index, and laboratory tests (e.g. ESR, CRP, pro- and anti-inflammatory cytokines). RESULTS: There were no statistical differences in the clinical parameters, biochemical variables and HAQ index between the study groups over the intervention period. The mean number of tender and swollen joints decreased from 8.3 to 4.6 in the Lactobacillus group and from 5.5 to 4.8 in the placebo group (p = 0.41). According to the global assessment the RA activity was reduced in 71% (LGG group) vs. 30% (controls) (p = 0.15). Serum IL-1 beta increased slightly in the LGG group (p = 0.07), but no differences were seen in IL-6, TNF-alpha, MPO, IL-10 or 1L-12. CONCLUSIONS: Although there were no statistical significant differences in the activity of RA, more subjects in the LGG group reported subjective well being. More studies on the effects of probiotic bacteria in RA are needed.
----------------------
Recognize that this study use a "Probiotic" (a orally taken bacteria to improve the number of bacteria in the colon).  Probiotics are beneficial to an extent, but they are limited because many of the bacteria don't make it though the stomach and small intestine, and they have to compete with the billions of bacteria that already live in your colon.  "PREBIOTICS" however are long chains of non-digestible sugars that you cannot digest so they pass into the large intestine where they are eaten by certain bacteria in your colon.  The good news is that the GOOD bacteria - bifidus, lactobacillus - that stimulate normal immune function thrive on these substances, while many of the BAD or opportunistic bacteria (e.coli, klebsiella, etc) either cannot use these substances, or only like them a little bit.  In one study just taking Inulin (a long chain of mostly fructose) bifidus bacteria went from 20% of the total bacteria to 60% of the total bacteria in the colon in just 2 weeks.  That is much higher levels than a person could attain just taking bifidus pills alone.  

There are a few studies that show that different combinations of probiotics, made of different sugars, may have additive effects than taking them separately.  Also, there are benefits to taking probiotics and prebiotics together.  This is called a "Synbiotic" (Google that term and see what you get).  This is also why Mannatech has a probiotic supplement they recommend to enhance the benefits of their glyconutrients, (though it is also overpriced for something you can get much cheaper at a good health food store.)

There are several medical articles on this topic but you can find some detailed recent information at:  

http://www.ajcn.org/cgi/content/full/73/2/444S?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1=salminen&searchid=1&FIRSTINDEX=0&sortspec=relevance&resourcetype=HWCIT

(American Journal of Clinical Nutrition's 2001 article on Probiotics and Immunity).

or:

http://gut.bmjjournals.com/cgi/content/full/54/3/317

(Microbes, immunoregulation, and the gut. Gut. 2005 Mar;54(3):317-20. Review.)

Your problem, as well as your father's problem is that you both have immune systems that lack the normal regulation.  Nutritional substances that improve activity of your immune system, actually improve the regulation and efficiency of your immune system.  When your immune system is fully mature and functioning, it doesn't attack itself.  

Other factors that are being found to have benefits in this area are "essential fatty acids" (e.g. Essential fatty acids in health and disease. J Assoc Physicians India. 1999 Sep;47(9):906-11. Review.) and also thymus extract (such as Thymulin by Enzymatic Therapy) because of the importance of T-cells in immune self-recognition.

More research is being done in all of these areas, but I have not found any studies that would suggest any patients with auto-immune diseases or allergies got worse with pro or prebiotics.  With the number of studies that have been done, that is significant.

Recognize however that if you increase the bifidus and lactobacillus in your colon, you will kill off many other bacteria such as clostridium, klebiella, e.coli, etc.  These "bad" bacteria contain something called an "endotoxin" in their cell well.  When the bacteria dies, this endotoxin is a becomes a free poison and can effect your liver, intestines, and overall health.  This is what is meant by the "detoxyfying" reaction that some people experience.  Those who have more "bad" bacteria in their intestines will have a more severe reaction.  In which case you just need to add probiotics/glyconutrients (prebiotics) in less amounts so that the growth of the good bacteria and the dying off of bad bacteria is slower and not so dramatic.  

I know this was a little detailed, but I tried to simplify much of it.  Let me know if that helps understand a little better.

Duane

[seeking]

loweduane, you gave a formula for Ambrotose, my son has brain injury and someone told me about Mannatech's Ambrotose and so I got some but they are having him use the whole 150 grams in a month so to save some money I need to try and put it together myself. Did you get those percentages off the patent or is it your best guess as to the formula?
Seeking

[doc77]

Pilotlight has a good home made stuff on Curezone.com along with trapper. You might down load the Ambrotose. It has all kinds of jewels in it to makle your own.

With such a serious problem with your son you might get your doctor to look up the Mannatech products in his PDR.
q
Because I too suffered for years with several major problems and had brain damage(.nerve condition and a minor form of Epilepsy) I found relief in a major way after 2-3 years. Because of financial problems I was not always able to keep up the dosages. I used their Immno Start and Plus big time along with that great 'bug juice' Ambrotose.

Also their is a Fisher Institute where a Dr. McDaniels works. He is the man who found that with glyco suppliments his stuff created stem cells. Look him up because the Institute helps pay for Ambrotose I have been told.

Take care and please let us know how things are going!

Your servant, Doc.

[ittsy_bittsy]

Thank you so much Duane! Yes that was very helpful and I understand it. I will look into those links and check it all out.

Not sure if I will give it a try as yet, but if I do and get any results I'll post again and let everyone know.

Desiree


~~ Maintain a roll of damp toilet paper for your visitors, leaving them to ponder whether it fell into the toilet... ~~

[drjoker69]

newbielink:http://www.healingcancernaturally.com/glyconutrients-food-sources.html [nonactive]

This Ambrotose stuff is expensive with a capital E. However, you don't have to buy this stuff to get all your essential glyconutrients. The above link is to a webpage that lists each glyconutrient and all the foods that contain the most of each glyconutrient. As long as you eat these foods, you'll do fine.

Incidentally, several foods that contain some of these glyconutrients are not on any western menu. For example, seaweed, shiitake mushrooms, shark cartilage (shark fin soup), and bovine cartilage (beef tendon/carrtilage soup), etc. Maybe, that's why the life expectancy of Asian-Americans and wealthy Japanese is 90-100 years old while the life expectancy of the average American is 70-80 years old. None of this stuff is on any American's dinner plate. Therefore, to be healthier, eat Asian food (the real deal, not the cheapo buffet crap they serve in restaurants) or take the Ambrotose.

Except for the shark fins (endangered species?), I eat everything else on this list. I only have to hurt my wallet for the Ambrotose when I did not have time to make the beef cartilage/tendon soup to drink that day. I drink a soup and eat a special jam I made that contains all 8 essential sugars. I also grow my own aloe vera.

[Greg Smith]

quote:Originally posted by drjoker69

 
Incidentally, several foods that contain some of these glyconutrients are not on any western menu. For example, seaweed, shiitake mushrooms, shark cartilage (shark fin soup), and bovine cartilage (beef tendon/carrtilage soup), etc. Maybe, that's why the life expectancy of Asian-Americans and wealthy Japanese is 90-100 years old while the life expectancy of the average American is 70-80 years old.

 That's a possibility, but other factors may be more important. Things like genetics, accessibility to health care, a tradition of caring for the elderly and a diet lower in animal fat come to mind. And who knows exactly what this specific group of people is eating?

quote:
None of this stuff is on any American's dinner plate. Therefore, to be healthier, eat Asian food (the real deal, not the cheapo buffet crap they serve in restaurants) or take the Ambrotose.

 No offense, but I think you are jumping to conclusions with this statement. According to the statistics on this web page (http://www.arthurhu.com/index/lifeexpe.htm [nofollow]) Mormons (86 years, average) live almost as long as Asian Americans (92 years, average). Do you think it's because they are eating Asian food as well? Is there any evidence that they are consuming foods rich in "glyconutrients"? I believe the answer as to why certain ethnic groups tend to live longer than others is more complex than the origin of their cuisine and amount of "glyconutrients" in their diet.

Greg

[Chootik]

Hi Everyone.

I just found this site today and it's been really interesting reading all the posts and the discussion regarding Glyconutrients.

I basically have a question for Duane or anyone else who has CREDIBLE proof that it is OK to take Glyconutrients if one has Autoimmune Disease?

I presonally have Hashimotos Thyroditis but am very carefull about taking Immune Supplementing products. I'm doing a lot of research and it is such a complicated and not completely understood area that it's hard to understand what is GOOD or BAD to take as supplements.

So if you have REAL info, please share, I would love to hear from you guys.

Health and Happiness to All!
Maryam

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

My husband and I had migranes for years. We had a mold problem at our work. We eliminated ALL foods in our diet containing MSG and abated the mold problem. If I sneak a dorito I get a headache. MSG is everywhere. Be dilligent in removing it. Maybe the sugars react like the glutamate in your system. (?)

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

My husband and I had migranes for years. We had a mold problem at our work. We eliminated ALL foods in our diet containing MSG and abated the mold problem. If I sneak a dorito I get a headache. MSG is everywhere. Be dilligent in removing it. Maybe the sugars react like the glutamate in your system. (?)

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

[lizi]

quote:Originally posted by artvandyck

I am a new poster to this forum. I have been busy today reading all the discussion re: glconutrients etc. My wife and i have been using Mannatech products for approximately 1 month. I use Ambrotose plus some of the other recommended products, my wife has been using only the Ambrotose. My wife suffers from cluster migraines, most of which are triggered by various food allergies but can also be triggered by perfumes, stress, cigarette smoke, even changes in air pressure. For many months now she has been taking therapeutic doses of quercetin and other similar products on the advice of her naturopath doctor in order to heal what is presumed to be a pretty compromised digestive system and hence a defective immune system. We are desperate to find a solution to the migraines. Anyone who has ever had these or watched a loved one in agony during an episode will understand the desperation. So Ambrotose is the latest attempt. After one month she is stopping the use of Ambrotose. In the last few weeks she has had a record number of migraines and the only reason we can come up with is the use of Ambrotose. We don't know what it is about the product that may be causing this but would be interested to hear from anyone out there who may have had similar experiences. Also if Duane of some of the other more thoughtful posters might have some insight as to why that would be greatly appreciated. We will continue to search for something that will give her immune system and digestive system a healing boost without making her sick like the Ambrotose has. Maybe we'll try the Limu Moui drink next.
Art

My husband and I had migranes for years. We had a mold problem at our work. We eliminated ALL foods in our diet containing MSG and abated the mold problem. If I sneak a dorito I get a headache. MSG is everywhere. Be dilligent in removing it. Maybe the sugars react like the glutamate in your system. (?)

[nevusmom]

I'm a first time poster to this forum, and appreciate all I have read regarding glyconutrients.  I am going to be starting my 10 year-old daughter, Megan, on a regime of these products, and will keep you all posted of her progress (or lack thereof).  Megan has multiple health issues, including very mild partial-focal seizures that occur aprx. once a week.  Her neurologist wants to start her on Trileptal, but for some reason, my gut is screaming "NO!"  I have learned to listen to my gut when it comes to Megan, so in researching possible alternatives, I came up with glyconutrients.  I'm not anti traditional medicine at all, please understand this.  And I will definitely start the Trileptal if there is no improvement on the glyconutrients.  

What can I do to make this as scientific as possible?  My desire, by posting, is that somehow we will ALL learn from this experiment.  Suggestions?

BTW, I purchased these products directly from the company; not a salesperson.  I have NO financial stake in this company at all, nor do I want one.

Best to everybody,

Kathy S.

[Greg Smith]

quote:Originally posted by nevusmom

I'm a first time poster to this forum, and appreciate all I have read regarding glyconutrients.  I am going to be starting my 10 year-old daughter, Megan, on a regime of these products, and will keep you all posted of her progress (or lack thereof).  Megan has multiple health issues, including very mild partial-focal seizures that occur aprx. once a week.  Her neurologist wants to start her on Trileptal, but for some reason, my gut is screaming "NO!"  I have learned to listen to my gut when it comes to Megan, so in researching possible alternatives, I came up with glyconutrients.  I'm not anti traditional medicine at all, please understand this.  And I will definitely start the Trileptal if there is no improvement on the glyconutrients.  

What can I do to make this as scientific as possible?  My desire, by posting, is that somehow we will ALL learn from this experiment.  Suggestions?

BTW, I purchased these products directly from the company; not a salesperson.  I have NO financial stake in this company at all, nor do I want one.

Best to everybody,

Kathy S.

 I don't know what you can do to make your experience in trying "glyconutrients" on your daughter more "scientific". You are doing your own clinical trial as a party of one. The most useful scientific studies use a control group. Whether "glyconutrients" seem to help with her medical problems or not, yours will be another "testimonial" should you decide to post about it. However, I'd be curious to hear either way.

Greg Smith

[jackieA]

HI, first i would like to say that my family, and friends who have tried glyco's have had fantastic results. But.... a few of us, had some return of symptoms after the company changed from advanced ambrotose to the "New and Improved" adv. ambrotose. then we went on the first "ambrotose" and did ok, but didnt feel near as good as when they made the 2nd powder, adv. ambrotose. just wondering is anyone has had similar results and if so, what did you do about it since they no longer make the 2nd powder "adv. ambrotose"  my dad is 79 yrs old and was feeling like he was 60 again. now that he ran out of reg. adv. ambrotose, he is having a lot of pain again in his back, pain from a 37yr old crushed ankle with a lot of hardware has returned,and he is getting tired again (had gone thru cemo before the start of glycos for CLL)  I am going to buy all of the ingredients and make our own, and hopefully that will help.  any suggestions are welcome. thanks, Jackie