[post-chronic]

I appreciate your compliments, girlwind and demografx. As for demografx's question about a scientific background; no, I've only had a long term laypersons interest in the relevant issues, so I've gradually picked up hints over the years. The argument about "psychological" vs "physical" depends not only on definitions but also individual philosophy. Also, it's obvious that both psychiatrists and naturopaths could be biased about what they are offering or selling, not just for financial reasons, but ideological too.

Do most people here experience a total absence of any symptoms once a POIS episode is over? Some people have mentioned being anxious or agitated even after recovering from an episode; however, since most healthy people seem to get agitated and frustrated without regular sexual release, and many people suffering POIS try to limit such release, this should be considered before answering. Thanks in advance.

[girlwind]

Do most people here experience a total absence of any symptoms once a POIS episode is over? Some people have mentioned being anxious or agitated even after recovering from an episode; however, since most healthy people seem to get agitated and frustrated without regular sexual release, and many people suffering POIS try to limit such release, this should be considered before answering. Thanks in advance.

Because of the CFS, I experience symptoms regularly, to a greater or lesser degree. When I'm having more viral activity in my
system, I feel restless agitation and a sort of low level anxiety from that. My POIS symptoms are a bit more exaggerated than
the viral symptoms but don't last as long. Also I had some improvement of the POIS symptoms last week, after beginning a
seaweed supplement for thyroid.

[Counterpoints]

Thanks, glad to be here! I'm going to try a few of the ideas detailed on this forum on myself, and I will be more than happy to post the results!

Good video, sums up PIOS really well.

Hello hurray.
Also, please see: http://pois.olympe-network.com

Best

[demografx]

Just want to put this out there: in Waldinger's research paper (which I was able to access through my school) there is a sentence suggesting oxytocin may inhibit cognition.  

I quote from his paper: "However, oxytocine has been suggested to negatively interfere with cognition (Geenen et al., 1988)."

Has anyone else investigated the references of his paper? They may lead to other related research that could reveal valuable pieces to this puzzle.  Also, does anyone know how to determine if other papers have cited Waldinger's paper?  Web of Knowledge does this, but I don't have access...

pyropeach, this was a fascinating post. Sorry that I can't help. Maybe someone else here can access Web of Knowledge?

[demografx]

Demografx: I removed the word "sexual" from the tags.  So far the video has gotten about 500 hits.
But no comments after the first week. We'll see what happens next.

girlwind, that's terrific, thanks to your YouTube video, 500 more people have been exposed to the reality of POIS and to our POIS Forum

[martin88]

I don't know if there is an interest in chinese medicine to treat pois. Maybe i am because about five years ago I saw a documentary film about a clinic located in Germany, supposedly classified as a german hospital, where tcm practitioners are working with german occidental doctors. I have just found the link of this clinic. Unfortunately i'm living in America, but this can be a link between pois (tcm believe in this) and occidental doctors.
http://www.tcm-klinik-koetzting.de/website_eng/frameset.html
http://www.tcm-klinik-koetzting.de/website_eng/kurzprofil_unten.html
http://www.tcm-klinik-koetzting.de/website_eng/mablauf_unten.html

I'll write them to know if i can buy herbs there and if they are interested to give us suggestions (probably i'll have to pay for this). Maybe one of you will be able to help me with english or if someone want to add content to the letter, tell me.

Girlwind: Just a note to give you a feedback about my trial with betaine HCL. Unfortunately it wasn't effective. I think i have enough stomach acid because only 325mg 2 times/day for 4 days with first and second meal gave me pain in the stomach (i know exactly where it's located now !) Sorry for this, maybe others will be more lucky. About iodine deficiency i can say iodine helps to recover from pois. The effects for me are : i'm most able to speak to people, i'm more active, orgasm is more intense, more energy, sleep is better if taken in the morning. But as usual with me the bad effects are: palpitations (cured with hawthorn), more exhaustion after orgasm (more fluid loss ?), iodine force me to have an orgasm (very aphrodisiac). 

[demografx]

Just want to put this out there: in Waldinger's research paper (which I was able to access through my school) there is a sentence suggesting oxytocin may inhibit cognition.  

I quote from his paper: "However, oxytocine has been suggested to negatively interfere with cognition (Geenen et al., 1988)."

Has anyone else investigated the references of his paper? They may lead to other related research that could reveal valuable pieces to this puzzle.  Also, does anyone know how to determine if other papers have cited Waldinger's paper?  Web of Knowledge does this, but I don't have access...

pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?

[pyropeach]

pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?

There's a copyright warning that explicitly says not to post the paper on a listserv or email it to multiple sites.  I can email it to anyone here who wants it.  I think this paper would be crucial in backing up our claims when if one day we finally find people willing to research this illness.

[girlwind]

I don't know if there is an interest in chinese medicine to treat pois. Maybe i am because about five years ago I saw a documentary film about a clinic located in Germany, supposedly classified as a german hospital, where tcm practitioners are working with german occidental doctors. I have just found the link of this clinic. Unfortunately i'm living in America, but this can be a link between pois (tcm believe in this) and occidental doctors.
http://www.tcm-klinik-koetzting.de/website_eng/frameset.html
http://www.tcm-klinik-koetzting.de/website_eng/kurzprofil_unten.html
http://www.tcm-klinik-koetzting.de/website_eng/mablauf_unten.html

I'll write them to know if i can buy herbs there and if they are interested to give us suggestions (probably i'll have to pay for this). Maybe one of you will be able to help me with english or if someone want to add content to the letter, tell me.

Girlwind: Just a note to give you a feedback about my trial with betaine HCL. Unfortunately it wasn't effective. I think i have enough stomach acid because only 325mg 2 times/day for 4 days with first and second meal gave me pain in the stomach (i know exactly where it's located now !) Sorry for this, maybe others will be more lucky. About iodine deficiency i can say iodine helps to recover from pois. The effects for me are : i'm most able to speak to people, i'm more active, orgasm is more intense, more energy, sleep is better if taken in the morning. But as usual with me the bad effects are: palpitations (cured with hawthorn), more exhaustion after orgasm (more fluid loss ?), iodine force me to have an orgasm (very aphrodisiac). 

Hello Martin 88--I would be willing to help you with your letter. I think it's great that there's a clinic where TCM and
Western medicine are working together. It's about time that happened!

I'm sorry that the Betaine HCL did not work for you and gave you stomach pain. I've been taking it daily for about 10
years and have experienced ONLY positive results. As you know, it dramatically changed my digestion and absorption for
the better. (Another example of how different we all are!) And the iodine, also (from a brown seaweed supplement called
Modifilan), has been giving me positive results. Within just 3 days after I began taking it, my energy had improved, and
this weird uncomfortable pressure in my throat began to disappear. I have not experienced it to be an aphrodisiac, just a
gentle energy support. The amount of iodine in it is very small--the dose I've been taking has only 200 mcg. of iodine.
But that has been enough for me to see changes quickly. Perhaps your dose is higher or you are more sensitive to the
iodine.

[demografx]

pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?

There's a copyright warning that explicitly says not to post the paper on a listserv or email it to multiple sites.  I can email it to anyone here who wants it.  I think this paper would be crucial in backing up our claims when if one day we finally find people willing to research this illness.

pyropeach, that is most generous of you to email to people here at POIS Forum! TO ALL: if you want the POIS research paper, you can reach pyropeach by clicking on the icon below his name that reads "Personal Message" and send him your email address outside this Forum. Dr. Waldinger's paper is the very first written on POIS, based on POIS sufferers whom he encountered at his hospital.

[MattJ]

Wow, so glad to of found this post.

I'm almost 19, and have been experiencing this problem deffinately since I could orgasm, I've gone to multiple doctors for hypoglycemia and low blood pressure and all of them kind of shrugged me off saying I should drink more caffeine. My second last year in high school, I spent mostly sleeping through classes because I was extremely tired all the time.

What I'd like to add is that I also experience A LOT of anxiety/paranoia/OCD type symptoms, but (I'm not 100% sure) I think that if I was to go orgasm free for a week I would definately feel a lot better. I have skimmed as much as I could in this thread but I feel better just asking, so far what have most of you done to counter this effect?

I have another problem, which is my girlfriend. We have sex once or maybe twice a week and I think the reason I overly masturbate is because I don't want to be so excited when I have sex, so I could last longer. But this is kind of counter intuitive. What I noticed once is that the longer I go from masturbating, the longer I lasted during sex. Can anyone else relate in this situation? Do others who suffer from POIS go the same way?

[John21 (OP)]

I have bad news. I have fallen from my chastedom, and garlic is not saving me. It is not extreme, but I am definitely zoned out somewhat. I am so surprised, I thought I was out of the woods. Aaaaahhh! I'm not sure what to make of this....

[demografx]

I have bad news. I have fallen from my chastedom, and garlic is not saving me. It is not extreme, but I am definitely zoned out somewhat. I am so surprised, I thought I was out of the woods. Aaaaahhh! I'm not sure what to make of this....

John21, so sorry to hear. But didn't you have 4-5 solid experiences? Maybe this is just an erratic glitch?

[demografx]

CIALIS VS. LEVITRA

If anyone here can help find out what the difference is between the 2 ED drugs, maybe we'll learn something about what works for POIS. Although they both do the same thing (Cialis is longerlasting), only Levitra works on my POIS, and very well. Cialis doesn't help one tiny bit.

[demografx]

MattJ, welcome to The POIS Forum! Read through the posts and you'll find different relief startegies from different people. Pick someone's experience who comes closest to yours. Looking forward to your future contributions here.

[demografx]

POIS FIRST STUDY 2002: CAN WE GET HELP FROM THE CO-AUTHOR?

The first study of POIS, which is available through pyropeach, shows that Dr Waldinger's co-author is a DR DAVE H SCHWEITZER who may still be associated somehow with Leyenburg Hospital in The Netherlands, where the first POIS patients were studied.

Interestingly, when he co-wrote the POIS Study, Dr Schweitzer was shown to be with another health organization in the Department of Internal Medicine and ENDOCRINOLOGY.

I tried to find him through Google, didn't have much luck. Maybe someone else here knows a way to contact Dr Schweitzer? With a rare background as a pioneering POIS MD-researcher who works with endocrinologists, he may be helpful to us!

Several of us have tried contacting Dr Waldinger, the lead researcher, but he has become too difficult to reach and/or unresponsive.

[demografx]

Has anybody talked to Dr. Muhall.
I saw his name on that ISSM website.

Who is he? What does he do?

[martin88]

This is great Girlwind ! I'll contact you after i write something. This concept of clinic must be very rare and that's why reporters have made a 1h film on tv about it. I was taking a plant, "fucus vesiculosis" for iodine (each cap between 150 and 300mcg).They say on the box to take this only for a short period . It's normally to lose weight (i'm thin), i was taking it for energy. Yes i'm very sensitive to all..

Thank you Pyropeach. I want one if possible.(my email is not hidden)

John, it's some bad news.
Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm? 

[martin88]

Demografx: It's a good idea, i hope we'll be able to contact Dr Schweitzer. We have to be more active to find researchers.

[demografx]

Demografx: It's a good idea, i hope we'll be able to contact Dr Schweitzer. We have to be more active to find researchers.

martin88, thanks a bunch. It's not easy for us to find outside researchers without our having a budget. But people like Dr Schweitzer - who understand/believe the POIS problem - are more likely prospects for now I think.

And perhaps we'll also find "friends of the POIS Forum list" - but we all need to be more proactive in that direction. People here would need to call your local research hospital or endocrinologist.

If someone here is from Europe's time zone(e.g., B_Jim?) maybe he can call Leyenburg Hospital (I think the Hospital merged and is now called HagaZiekenhuis) in the Netherlands to see how to locate Dr Schweitzer? Thank you whoever can initiate that! (I'm on West Coast time so it's difficult with the time zones)

Dept of Neuropsychology
(070) 2102072  telephone
The Hague
Netherlands
http://www.hagaziekenhuis.nl/nl/contact.php

ps - I just sent the Hospital an email hoping they will respond to our looking for Dr Schweitzer.