[girlwind]

I was taking a plant, "fucus vesiculosis" for iodine (each cap between 150 and 300mcg).They say on the box to take this only for a short period . It's normally to lose weight (i'm thin), i was taking it for energy. Yes i'm very sensitive to all..

Martin 88
You might want to check to see if you're iodine deficient. If you have a strong reaction like that, maybe you're
getting too high a dose. I found a simple test for that on the Mercola.com site.  Check out my post #195193.
Also, this supplement I'm currently taking is a much lower dose of iodine per capsule (approx. 16 mcg). Perhaps
that might be easier for you to handle. ??

[John21 (OP)]

Martin88,

Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm?

Yes that is indeed the case. The pois is not pronounced, but I noticed a mental shift. Whether garlic was a red herring or not I can't say at this time.

[demografx]

Martin88,

Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm?

Yes that is indeed the case. The pois is not pronounced, but I noticed a mental shift. Whether garlic was a red herring or not I can't say at this time.

From my experience, I see no difference between NE and orgasm. My POIS was just as bad with either one. What do you think might be the difference?

[demografx]

I have his number and it works but am contemplating because it seems weird for me to just call him out of nowhere.

Just call, you have nothing to lose, and he has impressive credentials. I once called a top urologist "out of nowhere" who was on CNN and through his secretary's referral I found out about the POIS work by Dr Waldinger, which was a major relief to see that somewhere in this world someone understood my problem (POIS) and even had a name for it! You never know what will happen until you just take the action, put your concerns aside, and...just call! Good luck!

[John21 (OP)]

CCconfucius,

Have you tried doubling the amount of garlic and eating garlic before and after.

Actually yes this time I ate lots of it, three raw cloves that day, and a couple the next. I am somewhat mystified by my state of mind, it isn't full blown POIS with anxiety and memory problems, but something lighter.... I feel like my mind is not so quick.

Demografx, normally that is the case for me too, NE = orgasm. I am stumped as to what is going on here, sorry I have no answers, perhaps we will know in time.

[demografx]

CCconfucius,

Have you tried doubling the amount of garlic and eating garlic before and after.

Actually yes this time I ate lots of it, three raw cloves that day, and a couple the next. I am somewhat mystified by my state of mind, it isn't full blown POIS with anxiety and memory problems, but something lighter.... I feel like my mind is not so quick.

Demografx, normally that is the case for me too, NE = orgasm. I am stumped as to what is going on here, sorry I have no answers, perhaps we will know in time.

John21, I really admire your honesty and persistence. I'm confident that we will eventually find out what is going on. We're the first explorers on the Moon. Meanwhile, _something_ has worked for you and me and others. But I can certainly say that for the many, many previous years for all of us, there was absolutely no progress, no learning.

John, your very first post here 1 and 1/2 years ago, (which created the POIS Forum!) was a historical event. To me, it was like the astronaut Neil Armstrong's Moon landing: "that's one small step for man, one giant leap for mankind"

[hurray]

POIS FIRST STUDY 2002: CAN WE GET HELP FROM THE CO-AUTHOR?

The first study of POIS, which is available through pyropeach, shows that Dr Waldinger's co-author is a DR DAVE H SCHWEITZER who may still be associated somehow with Leyenburg Hospital in The Netherlands, where the first POIS patients were studied.

Interestingly, when he co-wrote the POIS Study, Dr Schweitzer was shown to be with another health organization in the Department of Internal Medicine and ENDOCRINOLOGY.

I tried to find him through Google, didn't have much luck. Maybe someone else here knows a way to contact Dr Schweitzer? With a rare background as a pioneering POIS MD-researcher who works with endocrinologists, he may be helpful to us!

Several of us have tried contacting Dr Waldinger, the lead researcher, but he has become too difficult to reach and/or unresponsive.

A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".

No email address sadly, but the Dutch speak excellent English if you want to give the hospital switchboard a try. Alternatively, I'm sure a letter addressed to Dr Dave Schweitzer at the hospital address would get to him.

[tacabrighe]

Hello everybody,

I’m new here. I’ve been having POIS for at least 15 years and I experience most of the symptoms you described.

I am 39 now and I’d like to join the group (I live in Italy).

In my experience, as happens to Coreman, only at least 30 to 40 minutes of running just after the release can control and mitigate the symptoms framework. Evening sex should be followed by an early morning running session. It really helps me recover enough power to restart a new day.

See you soon, I’ll keep in touch with the group.

Best wishes,

Tacabrighe

[John21 (OP)]

Deomgrafx,

John21, I really admire your honesty and persistence. I'm confident that we will eventually find out what is going on. We're the first explorers on the Moon. Meanwhile, _something_ has worked for you and me and others. But I can certainly say that for the many, many previous years for all of us, there was absolutely no progress, no learning.

John, your very first post here 1 and 1/2 years ago, (which created the POIS Forum!) was a historical event. To me, it was like the astronaut Neil Armstrong's Moon landing: "that's one small step for man, one giant leap for mankind"

I really appreciate the support, thanks.

[demografx]

A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".

HURRAY, very helpful! Thank you! His 2002 paper showed Reinier de Graaf so I thought he might have moved on. Terrific.

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

[demografx]

Tacabrighe, welcome to The POIS Forum! 15 years is a long time. Mine is over 30, and I can't even remember how far back this lifetime of misery started for me []

You can catch girlwind's POIS video at

[girlwind]

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

AMAZING!  WOW! How cool is that! Thanks Demografx for taking the initative on this.

[demografx]

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

AMAZING!  WOW! How cool is that! Thanks Demografx for taking the initative on this.

Many thanks, girlwind. This is most exciting!

[demografx]

TODAY'S EMAILED LETTER TO DR. SCHWEITZER

Dear Dr. Schweitzer,

It was indeed an honor and a privilege to speak with you today!

I am the Moderator (my username is "demografx") of an internet POIS Forum, whose objective is to build on the fine work that you and Dr Marcel Waldinger have pioneered:
http://www.thenakedscientists.com/forum/index.php?topic=6576.new#new

We also have a video created by "girlwind", one of our active Members

"Counterpoints", another active Member, has created a website to capture many Forum members' POIS details in survey form:
http://pois.olympe-network.com

As I mentioned on the telephone, the Forum has had over 100 people posting about their experience with POIS, with 116,000 viewers from all over the world. Almost everyone posting has expressed gratitude to find us, and as you know from working with POIS patients, most people here have met with unbelievable frustration with medical/healthcare professionals who do not understand the malady/illness at all.

Our prime objective is to find a cure! We have had some moderate success so far, by no means perfect or comprehensive and this has not been arrived at scientifically, with endocrinology studies, research, etc. This is where we hope that you and Dr Waldinger can help us.

I'm sorry that I interrupted your busy Hospital schedule today, but as you suggested, I look forward to our talking this weekend when it is less hectic. My home telephone and private cell phone is listed below.

My very best regards,

[pyropeach]

A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".

HURRAY, very helpful! Thank you! His 2002 paper showed Reinier de Graaf so I thought he might have moved on. Terrific.

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

Dude....NICE, VERY NICE.  Maybe there is hope after all   Thank you demografx!

[demografx]

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

Dude....NICE, VERY NICE.  Maybe there is hope after all   Thank you demografx!

Thank you, pyropeach, and thank you for making the Waldinger-Schweitzer paper available. Reminder to all: send a Private Message to pyropeach with your email address and he will send you the paper!

pyropeach, every time I wanted to give up ("no hope") I forced myself to take the next step. Even if it was stupid. We just need to " keep on truckin' " as the old expression goes.

[demografx]

Fantastic job demografx

Thank you, B_Jim! You have always been a terrific asset to POIS Forum!  []

[demografx]

I deleted "Joe Anthony"'s post since it was advertising.

[hurray]

Good work in contacting Dr Schweitzer demografx!

It would certainly be very exciting to have Dr Schweitzer looking further into POIS. A great number of people could benefit from potential POIS treatments!

[Counterpoints]

Thanks so much Demografx.  In fact, I have been in contact with Dr. Waldinger.  He said a couple months ago that he would have another paper in 6 months (according to him there is hope and that we have to remain patient); I didn't explicitly mention his name because I didn't want to unfairly raise hopes.  He knows about this thread; a second outside reminder would probably be a good thing though!  There is also another MD PhD who "definitely" wants to study our case. He also said he would be willing to take on a graduate student for this, if anyone is interested. I intend on showing them our survey results.

Great work everyone.