[girlwind]

Girlwind, have you noticed anything that helps your POIS but not CFS?

No, if something helps my POIS, it helps my CFS. And for now that something is adrenal and thyroid
boosting supplements and foods. As well as a high protein low carb diet.

My level of energy and stamina always determines how well I respond to exertion and stress. (And I
definitely consider orgasm exertion and expenditure of a LOT of energy.) Whatever maintains or builds my
overall energy, and alleviates the fatigue, the chronic infections, and the hormonal imbalances seems to
help both CFS and POIS.

[Counterpoints]

I agree with B_Jim that if cortisol is a factor for some of us, we are probably experiencing significant cortisol fluctuations, rather than chronically high levels.  If we had chronically high cortisol, I think many of us would have developed signs of Cushing's syndrome: http://en.wikipedia.org/wiki/Cushing%27s_syndrome

[Counterpoints]

Thanks to everyone who has filled out the form at http://pois.olympe-network.com.  We are now developing quite a large database of information that will be easily accessible to researchers!

[Counterpoints]

tarkington, thanks for your responses. If you could remember to comment on your progress in a couple of months from now, that would be really helpful.

[demografx]

Thanks to everyone who has filled out the form at http://pois.olympe-network.com.  We are now developing quite a large database of information that will be easily accessible to researchers!

I saw the importance of the database today when I spoke with a major local university endocrinology research group. It's not easy to get our case taken on as a clinical trial, but the database helps.

[martin88]

The database is too small for now and is growing too slowly. To all readers: Please fill the form!

[martin88]

I saw the importance of the database today when I spoke with a major local university endocrinology research group. It's not easy to get our case taken on as a clinical trial, but the database helps.

Thanks Demografx for your determination. What was their answer ?

[CertainlyPOIS]

http://www.lactationconsultant.info/jaundice.html
http://www.ehealthmd.com/library/hypothyroidismchildren/HYC_symptoms.html
http://www.umm.edu/patiented/articles/what_symptoms_of_hypothyroidism_000038_3.htm

I was browsing on hypothyroidism since it has symptoms similar to pois and girlwind is showing evidence that is one the things adding to her cfs.   While i was browsing i saw that a symptom for babies with hypothroidism is Jaundice and I had jaundice when i was baby, am just wondering who here had jaundice.

[Limejuice]

No jaundice here.  Also, no hypothyroidism.

[Limejuice]

Reuniting - interesting thought.  The fenugreek is still working wonders.  However, I appear to be developing a dependancy for it.  Fenugreek allowed me to relax and sleep easy at night.  I stopped taking the herb two days ago and have slept horrible since. 

I want to learn more about prolactin.

EDIT* - who wrote this article.... http://www.nature.com/ijir/journal/v14/n2/full/3900823a.html

Hi Demografx - what are these endocrine specialists saying?

Limejuice [MessageID: 204675] Your post about fenugreek decreasing both the intensity of your orgasm and the POIS hangover was fascinating. My curious husband quickly found that fenugreek may increase prolactin (or act like prolactin). That is, it increases lactation...AND likely suppresses dopamine. (Prolactin is released after orgasm, and its function is to hold dopamine down for a while. It acts as a "sexual satiation" hormone.) Your results make perfect sense. The fenugreek would be suppressing dopamine from the start.

He said he would be concerned that depressing dopamine with an herb might be bad for someone with depression or social anxiety disorder (both tied to low dopamine).

[demografx]

Thanks Demografx for your determination. What was their [university endocrine specialists] answer ?

Hi Demografx - what are these endocrine specialists saying?

Martin, Limejuice, it's like coming in through the back door. Normally they get a grant from Govt. or a pharmaceutical or a large donor to study something, e.g., brain cancer. Then they look for volunteers. I said "we're doing it backwards", i.e., we have the volunteers and the malady - and even some remedies to test - that WE want studied. So it's a bit awkward. They suggested to see if we could hop on to an existing clinical trial, perhaps to become a subgroup. So I searched their database for "orgasm" and "postorgasmic". Nothing came up.

I also searched the database my HIV-biophysicist friend suggested for rare disease at National Institute of Health. Nothing came up.

Maybe we should look for different keywords?

I tried to contact a major benefactor at the University whom I knew years back, no reply yet. And I will keep trying different ideas. I contacted Dr. Waldinger to see what he thinks of relora and cortisol, haven't heard back yet.

Sorry I don't have any astonishing news to share yet. But what this forum seems to be doing on its own steam is indeed astonishing. Thanks everyone!

[Limejuice]

Reuniting is on to something with prolactin.  Prolactin is released after orgasm and begins a recovery period for the body.  Well...I never need a recover period, (this gets personal) I never get limp after orgasm, I can keep it up for hours and hours.  So it would appear I have low prolactin or my doesn't recover very fast.

Wikipedia prolactin

Guys - personal question, does your body behave the same?  Do POIS suffers ever get a recovery period with prolactin?

[demografx]

PROLACTIN

POIS Forum messages which contain prolactin:
http://www.google.com/search?hl=en&q=prolactin+site%3Ahttp%3A%2F%2Fwww.thenakedscientists.com&aq=f&oq=

NOTE: The POIS Forum Message # ("MessageID") appears with the url in the search result.

[John21 (OP)]

Limejuice, that is quite amazing and very unusual I'm sure, I certainly isn't my condition, my body has the typical refractory period.

[martin88]

Maybe we should look for different keywords?

I didn't know about these words:
http://en.wikipedia.org/wiki/Post-coital_tristesse
http://www.msnbc.msn.com/id/22875051/

[Finally]

I just found this. I'm not sure if this has been referenced before here.  Alcohol also gives me similar effects as Pois

http://www.actionlove.com/extra/headache.htm

[demografx]

Maybe we should look for different keywords?

I didn't know about these words:
http://en.wikipedia.org/wiki/Post-coital_tristesse
http://www.msnbc.msn.com/id/22875051/

Martin, very interesting! And in your 2nd link, the author points to skyrocketing prolactin!

[demografx]

  While i was browsing i saw that a symptom for babies with hypothroidism is Jaundice and I had jaundice when i was baby, am just wondering who here had jaundice.

I have a little chronicle jaundice and after an important stress i become as yellow as this smiley :  [] 

B_Jim, your smiley should be  []happy not  []sad! After all, you have created a fantastic ongoing summary of The POIS Forum on Page 11! (Thank you for that!)

[demografx]

LOCAL UNIVERSITY ENDOCRINOLOGISTS

Continuing my discussion about yesterday's talk with the local major University endocrinologists on behalf of the POIS Forum, maybe the best back-door I can take is to sign up as a patient! I will call them this morning and hope they won't be too expensive for my first visit.

[demografx]

...Well...I never need a recovery period...

Maybe we could submit you to the Guinness Book Of World Records and raise some money for the Forum?  []