[CertainlyPOIS]

i was going to wait on response but this is too good.

message from pois sufferer who fixed problem sounds eerily similar to Demografx situation


Hi there,

Apologies for the delay in replying. Iam getting out and about these days

Yes I solved my POIS by reimbalancing my hormone profile as well as my
nuerotransmitter levels and also by amending diet.

I had the following through blood, urine and saliva test results:

Low morning, afternoon Cortisol+low Dhea = Adrenal fatigue

Treatment : Medrol/Hydrocortisone & Dhea cream/Sublingually

Low Cortisol levels/adrenal fatigue usually indicates Thyroid problems

Free T3 : below mid range

Treatment : Armour

Low testosterone levels

Treatments :

1st: Testosterone replacement (Bad approach)
2nd: Testosterone natural boosting supplements (Negative)
3rd: Hcg+Hmg+Toco-8 plus increase of protein and less carbs, more red meat, fish and lots of cruciferous vegetables ie broccoli (Successful)

High prolactin levels

Cabaser/Cabergoline/Dostinex at dose of 1-2mg E2d lowered Prolactin to
within the lower 1/4 range. High prolactin levels means lower testosterone levels.By reducing
ones high prolactin levels it will naturally increase testosterone levels.

My advice would be to have your 4x saliva cortisol levels, dhea, total test+free/bio test,
prolactin, Estradiol(E2), SHBG & FSH+LH levels checked either through your local gp/dr or through an independant lab like ZRT, Quest etc

I also reimbalanced my neurotransmitter levels and this helped with the anxiety and overall nervousness feeling after an orgasm.Both my serotonin and gaba levels were below the level range.

This is how I cured my POIS and it most likely will not work for everyone but at least you can ask your Dr for a hormone check up and request the hormones above to be checked. If doc asks you why then you can either lie or tell him/her the truth about POIS

Had to be quick so have missed out some any questions please ask.

Hope this is helpful,

[demografx]

The cortisol tests can show to a certain extent what level the adrenals are functioning at. You can do either spit, blood or urine tests.

Good. I'm taking a cortisol AM test in early March.

[demografx]

good job everyone for following up on Jane Ashby,she might be a big clue.
Demografx nice letter short and to the point.

Thanks, CCconfucius. Only problem is that we might have written to the wrong Jane Ashby. This one is a psychologist but has no "sex" at all in her CV. I emailed the Program Chair, hopefully he'll clarify. My email was sent to a Jane Ashby at U of Mass., if anyone can confirm/deny that she is the April speaker.

[mister_z]

hi, i am new here, i have been lurking for a while trying to find answers to my own problem.
my symptoms vary in severity after orgasm (and sometimes i am able to feel it coming on before orgasm) they include:
- sudden fatigue
- flu like feelings
- shivering (sometimes very strong)
- low blood pressure
- great difficulty standing up
- feeling sleepy
- digestive cramps usually followed by diarrhea
- shaking
- sometimes cold sweat
- heart rythm seems normal except it feels like it is "booming"
- stuffy ears and nose
- breathing can increase rythm dramatically
i asked my cardios (yes i have a couple of them) about this stuff but they doubt it is directly heart related or are unwilling to find some explanation for it.
lately i had a free testosterone test done and found out much to my surprise that it is very low. Ill have to do again to confirm it before i get testosterone supplements...
i tried boosting aminoacids (all of them) intake as well as proteins... not very conclusive...
i have also noticed that i tend to be more... "in the mood" when tired , strangely enough; it has come to the point where if i feel often in the mood for a few days ill know that i am actually physically or mentally exhausted... (or can be the reverse, i get exhausted as a result)
id like to avoid 5HTP or SSRIs as i noticed they tend to make me feel quite... jittery
i had some cortisol tests done but i consider them inconclusive as they were done with improper timing (they did it with the timing of someone who wakes up at 8am and so on whilst i wake up at noon usually)
this has been going on for years (since i was around like 15, first time it happened it really gave me a very big scare)

[Guthrie]

good job everyone for following up on Jane Ashby,she might be a big clue.
Demografx nice letter short and to the point.

Thanks, CCconfucius. Only problem is that we might have written to the wrong Jane Ashby. This one is a psychologist but has no "sex" at all in her CV. I emailed the Program Chair, hopefully he'll clarify. My email was sent to a Jane Ashby at U of Mass., if anyone can confirm/deny that she is the April speaker.

Yeah, I came across that Jane Ashby when I did my google search, but didn't mention her since she didn't seem like the right one.  Especially since she is a PhD, whereas the person giving the talk in April does not have PhD listed by her name on the program.  So I think we might still have to find out more from the conference organizers.

[girlwind]

message from pois sufferer who fixed problem sounds eerily similar to Demografx situation

I had the following through blood, urine and saliva test results:

Low morning, afternoon Cortisol+low Dhea = Adrenal fatigue

Treatment : Medrol/Hydrocortisone & Dhea cream/Sublingually

Low Cortisol levels/adrenal fatigue usually indicates Thyroid problems

Free T3 : below mid range

Treatment : Armour

Low testosterone levels

Treatments :

1st: Testosterone replacement (Bad approach)
2nd: Testosterone natural boosting supplements (Negative)
3rd: Hcg+Hmg+Toco-8 plus increase of protein and less carbs, more red meat, fish and lots of cruciferous vegetables ie broccoli (Successful)

High prolactin levels

Cabaser/Cabergoline/Dostinex at dose of 1-2mg E2d lowered Prolactin to
within the lower 1/4 range. High prolactin levels means lower testosterone levels.By reducing
ones high prolactin levels it will naturally increase testosterone levels.

My advice would be to have your 4x saliva cortisol levels, dhea, total test+free/bio test,
prolactin, Estradiol(E2), SHBG & FSH+LH levels checked either through your local gp/dr or through an independant lab like ZRT, Quest etc

I also reimbalanced my neurotransmitter levels and this helped with the anxiety and overall nervousness feeling after an orgasm.Both my serotonin and gaba levels were below the level range.

This is how I cured my POIS and it most likely will not work for everyone but at least you can ask your Dr for a hormone check up and request the hormones above to be checked. If doc asks you why then you can either lie or tell him/her the truth about POIS

EVERYBODY--Please take a good look at this.

This is from the same guy (ex-POIS forum member) who helped me get a clue as to how to begin dealing with my many
hormonal imbalances. What is significant is that he had MULTI hormonal imbalances, as I do, and as I suspect many
other POIS sufferers may have as well. By addressing ALL of them, he was cured of POIS.

[CertainlyPOIS]

good job everyone for following up on Jane Ashby,she might be a big clue.
Demografx nice letter short and to the point.

Thanks, CCconfucius. Only problem is that we might have written to the wrong Jane Ashby. This one is a psychologist but has no "sex" at all in her CV. I emailed the Program Chair, hopefully he'll clarify. My email was sent to a Jane Ashby at U of Mass., if anyone can confirm/deny that she is the April speaker.

I will see if the researcher has a way to contact jane ashby.

[demografx]

I will see if the researcher has a way to contact jane ashby.

Thanks, CCc! The program chair hasn't responded to me.

[demografx]

Demograpfx and  was wondering did you take your test during POIS or out of Pois.

The test was out-of-POIS, but only by a few days. It wasn't planned that way, it was just when I wanted to move forward and get the ball rolling.

[demografx]

Welcome, mister_z!

Here are some forum resources which may be helpful:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video: A first!

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".


mister_z, we're looking forward to more of your posts!

[deloun]

deloun--
My "theoretical inclinations" with respect to POIS somehwat parallel what you have indicated in your last post i.e. neurotransmitter imbalance/s. However, to reinforce my inclinations (and I repeat these are just inclinations), would you be so kind as to list your symptoms from major to minor. The reason I ask this is due the fact that there is a clear spectrum of symptoms that have been identified in this forum. I have more of an amped up, anxiety response (with moderate fatigue)with insomnia, somewhat different than the majority of sufferers. With respect to POIS, based upon the totality of responses in this forum, it wouldn't surprise me if there were needed many different therapies and strategies depending on the symptoms. In fact, there are different approaches being taken by different memebers now. Also, some members have other underlying medical conditions which may complicate their POIS.

Yes, I agree that there seem to be differences in causes and solutions needed.

The POIS symptoms I suffer from are:
- tension (physically and mentally)
- nervousness
- (social) anxiety
- depression
- low self-confidence
- lower cognitive function and memory
- concentration problems
- tiredness
- flu-like symptoms
- mild insomnia
- mild diarrhea

It's a bit difficult to list them all in the order of major to minor, but about the first eight I listed are major.

All of them disappear after a period of sexual abstinence.

[girlwind]

Girlwind thank you for highlighting that post and when you took your hormone test were they during POIS or out of it.

I could have not had all that blood drawn (fifteen tubes!) during a POIS episode. I felt dizzy afterwards, even on a good day.
I should also let you know that the doctor(s) I am seeing work with MANY HORMONAL problems and CFS as well. They're very
skilled at interpreting THE OPTIMAL LEVELS of what the various hormones should be for one's particular sex and age group.
OPTIMAL RANGES for hormones are very different from the STANDARD "NORMAL" ranges.  As I have read and heard,
over and over again from many patients with hormonal issues, many doctors have missed the mark with both diagnosis and
treatment of hormone problems (thyroid, adrenals, gonadal hormones, etc...) because they have been too entrenched in the
dogma of "normal ranges". Over all, the anti-aging doctors have a better track record with patients with hormonal complaints.

[demografx]

GW, what did you think of the article I posted that suggests a relationship between prolactin and CFS?

[girlwind]

GW, what did you think of the article I posted that suggests a relationship between prolactin and CFS?

I wasn't able to open it. Can you copy and paste it into email and send me a PM of it?

[John21 (OP)]

NE, day 1:

I am somewhat affected (with POIS) this time, as opposed to my previous NE episodes. What is different? I recently temporarily changed up my diet, giving up "goiterogenic" foods that I routinely eat: soy and broccoli. This could be relevant...but, soy is also high in choline....I just realized that fenugreek has choline in it.

I am wondering, has anyone tried choline as a supplement?

[Guthrie]

NE, day 1:

I am somewhat affected (with POIS) this time, as opposed to my previous NE episodes. What is different? I recently temporarily changed up my diet, giving up "goiterogenic" foods that I routinely eat: soy and broccoli. This could be relevant...but, soy is also high in choline....I just realized that fenugreek has choline in it.

I am wondering, has anyone tried choline as a supplement?

A couple of years ago, in my battle against POIS, I tried supplementing with soy lecithin, which contains choline as one of its maim components.  It didn't seem to help me very much.

[underwater]

deloun---
Thanks for your response. Tension, Nervousness (anxiety), Depression, Insomnia are also some of my main symptoms during POIS; different I think from the dominant symptoms of Extreme, Debilitating Fatigue and Major Inability to Focus/Concentrate. My anxiety disorder (when I have an active episode) creates the same symptoms as POIS, but it is never defined in a 3-4 day time frame as is POIS. Since my symptoms are the same, when I rid myself of "anxiety disorder" this time around (whenever the hell that is), I hope that my strategies can be applied to POIS. If my neurotransmitter focus fails, then I will have to refocus with more attention probably paid to hormones.  I'm very reticent to discuss specific experiments, because I don't think it's beneficial unless I can say with confidence that something helps me. In general, I'm experimenting with vitamins, minerals, amino acids, plant extracts, body hydration, exercise, breathing, and topical creams. 

[Finally]

NE, day 1:

I am somewhat affected (with POIS) this time, as opposed to my previous NE episodes. What is different? I recently temporarily changed up my diet, giving up "goiterogenic" foods that I routinely eat: soy and broccoli. This could be relevant...but, soy is also high in choline....I just realized that fenugreek has choline in it.

I am wondering, has anyone tried choline as a supplement?

I took Choline to improve brain function and memory.  I think it was choline Chloride. It helped mentally but It seemed to increase muscle stiffness similar to POIs for me,  So I stopped.

[mister_z]

3rd: Hcg+Hmg+Toco-8 plus increase of protein and less carbs, more red meat, fish and lots of cruciferous vegetables ie broccoli (Successful)

at the risk of sounding ignorant what are Hcg, Hmg, and Toco 8?

[demografx]

I wasn't able to open it. Can you copy and paste it into email and send me a PM of it?

Girlwind, the prolactin article link required simple registration, so rather than PM, I'm posting a new article link. Other CFS sufferers lurking here may benefit!

Girlwind, you said that you haven't tested for prolactin, but maybe it could help you?

This new article states, similarly to the one below, "We found that CFS subjects show a higher prolactin response than controls..."
http://www.iop.kcl.ac.uk/iop/prt/cfs.htm

my original post to you (first article):
PROLACTIN AND CFS

Girlwind and other CFS-affected individuals here: this seemed like an intriguing link. It requires only simple registration, but here is the Google description:

"Baseline prolactin levels were the same in all three groups, but rose much faster and higher in the patients with CFS than in the other two groups after ..."
http://general-medicine.jwatch.org/cgi/content/full/1992/512/6