[martin88]

certainly people in the U.S. of French ancestry or descent would search Google here and probably not Google.fr., even though the search terms might be in the French language.

I agree with this. I'm also using google.com frequently.

UC Berkeley's Wellness Letter has some serious cautionary advice about 5-HTP, concluding that "the potential dangers of 5-HTP outweigh any possible benefits."
http://www.wellnessletter.com/html/ds/ds5HTP.php

They're also saying :"there have been no confirmed cases of the illness from 5-HTP supplements". This will help those who have already taken this supplement.

I have an idea on spreading to different countries.
Am guessing other countries have blogs or like a yahoo question/answer.
We go to their yahooos ask/answer, ask and answer our questions on pois in their language and put a link to our website.

Good idea CC. We can also find places where the question is already asked. Links are importants for our ranking in the search engines too.

Very good for the authors of the book. I hope it will work.

[demografx]

Martin, once again you make excellent points above!

[demografx]

Our POIS thread at Naked Science Forum has now exceeded 300,000 views. Hopefully this means that many POIS sufferers worldwide are reading our posts and finding some strong measure of hope and/or symptomatic relief from our sustained efforts to bring this debilitating syndrome out into the open for a good fight. And we are winning!

[botbot]

I'm male, age 37, and have had POIS for at least 15 years.  I only see a doctor for serious issues, so I was disappointed when an endocrinologist essentially said that it's probably just in my head.  My POIS pattern is quite predictable.  Ejaculation at night (for example); become very talkative that night.  Day 1: a kind of artificial energy in the morning, followed by growing fatigue in the afternoon and night and an markedly increased appetite.  Day 2: intense fatigue, tired eyes (I wish I had a better description), irritability, not "feeling myself," difficulty concentrating, increased appetite (often sweets, which I typically don't care for).  Then on Day 3 I'm fine; it's as if my tank has been refueled.  FYI, I was recently diagnosed with hypothyroidism/Hashimoto's disease.

What helps?  I try to limit ejaculation to once a week.  I also find eating a lot on Day 2 helps as does intense exercise.  Of course, it's immensely challenging to exercise, but I do feel a lift, so I try.

Any other tips on how you effectively cope?  I think if we all contribute our tips, it may improve the quality of life for many of us.

[demografx]

botbot, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.
 
Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 300,000 page visits. Not bad for a rare malady!

[demografx]

Botbot, I showed my endocrinologist the POIS paper by Waldinger. The study's co-author is also an endocrinologist, so I pointed that out to my doctor and my sense is that the research paper increased credibility immediately with my endo. I think others here have had similar experiences.

[CertainlyPOIS]

That's terrific, CC!

What transpired in your discussions with the other two?

The lady author was more receptive
- I told her my symptoms
- she told the other author who wasnt to receptive
- he just asked about my symptoms and some questions and stop there.
- She recommneded that sex seminar that i told the group months ago.
- told me good luck and keep her informed.

I have emails if you want to talk to them.

[CertainlyPOIS]

How much does it generally cost to see the endo including lab.
am going to have to pay to see endo and i am trying to plan ahead.

[botbot]

Botbot, I showed my endocrinologist the POIS paper by Waldinger. The study's co-author is also an endocrinologist, so I pointed that out to my doctor and my sense is that the research paper increased credibility immediately with my endo. I think others here have had similar experiences.

Thank you, demografx.  I have an endo appointment in mid-June, so I plan to do the reading/viewing you suggest.  It's amazing to read posts that detail symptoms similar to my own.  I should have added that my eyes also tend to tear and my heart feels as though it's speeding up on the day after ejaculation.  Listing all these symptoms, I imagine some unfamiliar with POIS would see a hypochondriac.  Let me be clear, though: I see a doctor only for serious things and have mentioned my condition to only 3 people in my entire life.  Not that I wish POIS on anyone, but I'm glad there is a community for exchanging insights.  Thanks again. 
 

[demografx]

Botbot, we have all been ignored, ridiculed and shipped off to psychiatrists.

In my case, I have 30+ years of this, but just when I would throw in the towel I would once again renew my effort. Something good, albeit small, usually came out of the effort.

My endo even apologized for not having seen that NY Times article himself!

My conclusion is that we have to form partnerships with the medical world, even take a leadership role, but without stepping on egos! Tricky, tricky, tricky!!!

[demografx]

How much does it generally cost to see the endo including lab. Am going to have to pay to see endo and i am trying to plan ahead.

CC, it varies wildly by location and other factors. Best bet is to pick 1-2 likely candidates and just call the office and ask them for the average cost of (a) an initial consultation and (b) follow up visit(s) and (c) labwork - hormonal workup.

You might also inquire about payment terms, see if they can be stretched out.

[demografx]

That's terrific, CC!

What transpired in your discussions with the other two?

The lady author was more receptive
- I told her my symptoms
- she told the other author who wasnt to receptive
- he just asked about my symptoms and some questions and stop there.
- She recommneded that sex seminar that i told the group months ago.
- told me good luck and keep her informed.

I have emails if you want to talk to them.

That's excellent, CC! Would you know how to obtain the email of the 3rd co-author, Carlos Beyer-Flores, endocrinologist, head of the Laboratorio Tlaxcala in Mexico? Maybe the other 2 will give it to you if you remind them you chatted before?

[demografx]

Thank you, demografx.  I have an endo appointment in mid-June, so I plan to do the reading/viewing you suggest.

Terrific on both counts!!

[Pronobis]

welcome to the club, Botbot. What kind of irritability you have ?

300.000 hopes for our future glory!!!

[demografx]

I just wrote a letter to Mary Roach, author of "10 Things You Didn't Know About Orgasm" (her YouTube is at

I invited her to see our forum and asked her if she can make recommendations to us to further research our condition.

[demografx]

CCconfucius, I sent an email to an address in Mexico asking if this is how Dr. Carlos Beyer-Flores can be reached. But the address looks old, and applies to too many people. So if you can easily find it, thanks!

[demografx]

SEARCH POIS FORUM WITH GOOGLE

I just stumbled on this. As many of you know, the POIS forum  Search function is a work in progress. Can be frustrating.

So I searched Google to see how to better Google-search our POIS Forum. Why? Because we have an overwhelming amount of data: over 2 years' worth of posts from 130+ Forum members.

In the Google search box, type
whatever you're interested in finding[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within POIS Forum.

whenever I tried to use Google "as is" - without the way I described above - I would typically find only about two (2) results.

Google even provides you results with the Message# for each result.

Happy Googling!

Botbot, from last year, I thought it might be interesting to re-post this to help make it easier to search for previous POIS posts here, on an area of interest to you, e.g., specific symptoms, remedies, experiences, etc.

After you see the search results and click on a link of interest to you, it will take you to the page where that post is located. So it will help to then use Ctrl + F, using a keyword(s) from that post description, to zero in more quickly on the specific post you're interested in.

[demografx]

CC, when I called the endo's office before my first visit, I said the reason for the visit was to check for "hormonal imbalance".

[CertainlyPOIS]

Did you google the info or how did you get information.
I will send the author a message about it an inform her that co writter on dr waldingers paper is endocrinologist and that is why we want info.

I plan to exactly that, but instead of going through my doctor am going to go to a different hospital and say i dont have insurance and start all over. without mentioning orgasm.

[demografx]

CC, the Waldinger/endo angle to the co-author sounds good.

Yes, I did a lot of google searching to find the Mexican endo/author.

I agree, downplaying orgasm is a good idea.