[mat780]

People,

When I said that it is very unlikely that medical insurance will investigate POIS, I didn’t mean that doctors won’t make you all the tests needed, even if each test cost a fortune! I live in Argentina (hope I’m not infringing any forum rule saying that  []), and if you have a good medical insurance they won’t stop you or ask you for another cent to make you those tests prescribed by your doctor. What I meant is that researchers, at least here, don’t have much relation with medical insurance companies. Medical insurance companies pay for doctors and tests, but I understand they won’t pay anyone to investigate a new strange illness.
I believe we should focus on people that do serious research as a living (universities and foundations), and try to diffuse information about POIS as much as we can.

In the case we finally decide to create a POIS website, you can count on me to make the Spanish translation of it.

Thanks to all of you for the welcome!  []

[EDS]

I had nothing to say except that this is my 2,000th post on POIS!     []





                         

Congratulations on the 2000th posts Demo! You do a great job as moderator!!

Count me in for a contribution toward research. I would gladly pay $1000 for serious scientific analysis on this malady.

[martin88]

In the case we finally decide to create a POIS website, you can count on me to make the Spanish translation of it.

Very nice proposition Mat! Thank you. This could be also useful for the Wikipedia articles.

John,B_Jim,Going crazy,
You all convinced me to start blueberries,cranberries,probiotic diet!
Maybe this can help: if the antioxydant is the active ingredient it seems that wild blueberries are better according to this table :
http://en.wikipedia.org/wiki/Oxygen_radical_absorbance_capacity#Food_Sources

There is a study linking social phobia with antioxydant (in humans!) (I'm not sure however if they say that SP will be helped with increased intake of antioxydants.):
http://www.ncbi.nlm.nih.gov/pubmed/18339429

[mat780]

Martin,
You can count on me for the Wikipedia article too!
Please, bear in mind that I’ve never written anything on the Wikipedia, and I don’t know much about scientific or medical vocabulary. Anyway, if you want me to do it, I’ll give it a try  []

[Limejuice]

Gotcha Mat.

Strange, I did a google search on Lactobacillus casei and the first result mentioned candida in the description.  I wasn't even searching for candida.  I thought Lactobacillus casei did something completely different than effect candida.  Just thought I'd mention it.

[GoingCrazy]

Gotcha Mat.

Strange, I did a google search on Lactobacillus casei and the first result mentioned candida in the description.  I wasn't even searching for candida.  I thought Lactobacillus casei did something completely different than effect candida.  Just thought I'd mention it.

Thats why Im taking Threelac

[demografx]

Thanks Demo.

I've had over 10 doctor visits, over 10 blood draws, and over 30 hormone tests all for POIS.  And I've paid maybe $100 because of insurance.  As long as the doctor orders the tests with a diagnosis - it doesn't need to be called POIS, it can be called severe brain fog, or intense apathy or whatever because your sick and that what matters for insurance - insurance will likely cover the expense.  That's what it is there for and why we can use it.

Exactly! I'm being treated for hypogonadism, which is true!

Who knows where hypogonadism and POIS intercept?

Another important point, I think, is that a diagnosis of "POIS" for labwork would halt progress immediately I'm sure!

[demografx]

Congratulations on the 2000th posts Demo! You do a great job as moderator!!

Count me in for a contribution toward research. I would gladly pay $1000 for serious scientific analysis on this malady.

EDS, thank you so much for both items!

We're rich!! I'm sure if we approached Dr. Waldinger with this as a beginning, he would at least respond to my emails!!  []

EDS, it's great to have your feedback about moderating. Most people do understand my actions and thinking, or at least I would like to think so.  []

And you, EDS, as one active forum participant (for which I thank you very much), do seem to understand that everything I say or do is only for the benefit of wiping that filthy scourge called POIS right off the planet Earth! (and if POIS is on other galaxies, that, too [])

And I am certainly not into "personality", "ego", "agenda", as a very very few have insinuated.

This is a teriffic group!!!

[demografx]

There is a study linking social phobia with antioxydants (in humans!) http://www.ncbi.nlm.nih.gov/pubmed/18339429

Martin, but what if I come back reincarnated as a rat and want to socialize?  []

[demografx]

In the case we finally decide to create a POIS website, you can count on me to make the Spanish translation of it.

Thanks to all of you for the welcome!  []

Thanks for your thanks to the group!

We have discussed a website many times. Great idea! But it seems we don't have the volunteers needed to create it and run it. This Naked Science forum has a dedicated infrastructure that we could not possibly duplicate with the resources we have.

It has been a big struggle, at least for me, to continually keep this forum alive, considering how few POIS sufferers there are in the world. And once people visit, only a very few dedicated ones stay and contribute. And we also have 350,000 page views, representing a large "lurking" visitor population. I hope they all benefit, but not many step forward to take the next step. We also have other priorities: outreach, funding, awareness, wikipedia, not to mention our own POIS treatments, as well as the exploration of POIS theories, remedies, and mutual support!

We are completely open to it, though. It would advance our cause quite a bit!

Someone, anyone, please correct me if I'm wrong about volunteers and resources necessary to develop and maintain our own website!

[John21 (OP)]

B_Jim,

John21 and Goingcrazy :
Did you just add yogurts, not other changes in diet ?
I'm sceptic about probiotic yogurts because you have good effects so quickly! A study show probiotics can decrease anxiety for CFS sufferers but after 2 or 3 months! So probiotics is something serious. I think the culture is important, not all probiotics have the same effects (Lactobacillus casei in the study). Maybe counter effect of Pois on immune system ?
About blueberries/cranberries : good idea too.I tried blueberries during 2 months (supposed to help dopamine according a study... for rats ). No effects for me.
I wait next reports and I hope it will work again

I have been eating the same type of yogurt daily with blueberries for about 9 months. A few months ago I added cranberries to the mix. I haven't made any other significant dietary changes. My recent success has happened within about the last month. I am surprised that GoingCrazy is reporting success with yogurt so quickly as well. Looking back I had a symptomatic episode in March after consuming yogurt daily for over 4 months. But perhaps somehow it is the yogurt.... hopefully we are on to something.

[demografx]

Looking back I had a symptomatic episode in March after consuming yogurt daily for over 4 months.

Hi John, would you hazard a wild guess as to how that could happen if yogurt is still potentially a winner?

This whole probiotic/blueberry/yogurt thing is fascinating.

[mat780]

Dear Demo,

Regarding the website… maybe we can start with something like the one Google gives us for free.

Follow the link:
http://www.google.com/sites/help/intl/en/overview.html [nofollow]

To create a website you need to have a Google account or need to create a new one.

[Finally]

2 points:

1. I think a few people confused Martin's  response to my test results with mine
and got them intertwined.

2.  I have had a vegetatarian diet( I eat milk' cheese Egg etc.) for 4 years and POIS for 32 so that cause-effect doesn't explain my condition.  You can't jump to conclusions w/o full information.   

[martin88]

2 points:

1. I think a few people confused Martin's  response to my test results with mine
and got them intertwined.

2.  I have had a vegetatarian diet( I eat milk' cheese Egg etc.) for 4 years and POIS for 32 so that cause-effect doesn't explain my condition.  You can't jump to conclusions w/o full information.   

Good to say Finally!

[martin88]

To All:
You can go on this page to enter email addresses:
http://pois.vndv.com/email_list.php
All you have to do is to collect and enter as much addresses as you can and we'll contact them as soon as possible.
Thank you Demo for your help with english and suggestions(ex add phone number) and for the 3 email addresses you already entered!

[demografx]

Martin, thank you, this is an important project. It will streamline our outreach and fundraising!

[Dean93]

I believe I'm in the same boat as John21 now.  Today I O'd and experienced no POIS symptoms.  To make myself a believer I did it 2 more subsequent times and I am still experiencing no POIS symptoms.  I followed his plan for eating yogurt, I've been doing it for 2 weeks now, and just recently I ordered Threelac.  I've took about 7-8 packets of threelac up to date and all I can say is I feel like I finally beat POIS.  Usually I am in POIS immediately after orgasm... I just hope this feeling lasts.


*** make that 4 times...lol

So goingcrazy, are you sure which of the two helped? Both?

[demografx]

Dear Demo,

Regarding the website… maybe we can start with something like the one Google gives us for free.

Follow the link:
http://www.google.com/sites/help/intl/en/overview.html

To create a website you need to have a Google account or need to create a new one.

Thank you, mat! This looks good, Google accounts are free.

At first, I thought it's complex to create a forum within a website. But maybe we can simply have a link from the website to this forum: I would imagine a forum posting capability like ours here is not as easy to create.

Any other thoughts?

[John21 (OP)]

Demo,

Quote from: John21 on Today at 16:22:09

Looking back I had a symptomatic episode in March after consuming yogurt daily for over 4 months.

Hi John, would you hazard a wild guess as to how that could happen if yogurt is still potentially a winner?
This whole probiotic/blueberry/yogurt thing is fascinating

If yogurt has helped me it took a long time(over 6 months eating it once daily) to do it's thing. That was the reason I was speculating on the cranberries, because it was started more recently. But if yogurt will help our condition why did GC respond so quickly? I don't know, could his system be responding to the "treatment" quicker? Is his method better (with the Threelac)? It will take his extended success and that of others to convince me that we are on to something.