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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5060 on: 27/07/2009 01:54:03 »
Thanks EDS - you've doubled our research fund already  [:)]

Deserved praise for our ubermod Demografx too - please keep up the good work, we all appreciate it  [:)]
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5061 on: 27/07/2009 02:12:33 »
Quote from: goingcrazy on 20/07/2009 02:02:03
Does anyone here experience some POIS symptoms just after mild sexual stimulation?

yes.. anytime the muscle at the base of my manhood contracts resulting in that "feelgood" release of endorphins. It doesnt necessarily have to be a full-on orgasm where fluid is released to cause my POIS symptoms. This is why I believe that this POIS business is directly involved with whatever chemicals are released that provide the "feelgood" feeling of an orgasm. Amazingly you can look all over the internet and not find a complete rundown of ALL of the biochemical processes that take place during an orgasm.
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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5062 on: 27/07/2009 02:18:28 »
Quote from: Defsync on 27/07/2009 02:12:33
Quote from: goingcrazy on 20/07/2009 02:02:03
Does anyone here experience some POIS symptoms just after mild sexual stimulation?

yes.. anytime the muscle at the base of my manhood contracts resulting in that "feelgood" release of endorphins. It doesnt necessarily have to be a full-on orgasm where fluid is released to cause my POIS symptoms. This is why I believe that this POIS business is directly involved with whatever chemicals are released that provide the "feelgood" feeling of an orgasm. Amazingly you can look all over the internet and not find a complete rundown of ALL of the biochemical processes that take place during an orgasm.

Yes, mild stimulation will often send me into a mini-POIS episode which can last for a day or two. Even waking up with an erection can cause one of these mini episodes - it can be very frustrating.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5063 on: 27/07/2009 02:27:05 »
Quote from: hurray on 27/07/2009 01:54:03

Deserved praise for our ubermod Demografx too - please keep up the good work, we all appreciate it  [:)]


Many thanks, hurray! Will work hard to keep deserving this lavish praise!
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5064 on: 27/07/2009 02:37:50 »
Market crashed, my old high paying job disappeared, now i'm making squat in a factory, but yeah I'd throw down $500 for research. I dont get to have sex with the beautiful females that walk this earth without my brain taking a vacation, so yeah half a grand seems like a small price to pay. You can be damned sure if I fell into a large sum of money it would go to finding a cure. I got 6 months at my new job until I can get insurance again to get all them tests done. I was planning on seeing an endocrinologist in January but I lost my insurance in October of last year, go figure =P I wish I had found this site years ago lol I'm fortunate tho my doc says as soon as I get insurance again he will send me to the Cleveland Clinic (if this new insurance company approves it, I am not to familiar with them).
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5065 on: 27/07/2009 02:45:09 »
                          


               hurray   and   EDS   and   Defsync


                                For your incredible show
                               of good faith and early support
                           towards funding POIS Research!!!
« Last Edit: 27/07/2009 22:47:08 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5066 on: 27/07/2009 02:55:12 »
Quote from: Defsync on 27/07/2009 02:37:50

...he will send me to the Cleveland Clinic


Impressive endocrinology unit!
http://my.clevelandclinic.org/endocrinology/default.aspx


Defsync, with all the mud falling on you, you're holding up really well. An inspiration! 10% of that would have me moaning on the couch 24/7!
« Last Edit: 27/07/2009 03:00:30 by demografx »
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5067 on: 27/07/2009 04:09:54 »
For a website, we could use an olympe-network, like we have for the survey.
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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5068 on: 27/07/2009 04:28:01 »
Quote from: Counterpoints on 27/07/2009 04:09:54
For a website, we could use an olympe-network, like we have for the survey.
Marnia would be responsible for the content, maybe too much for her ? However if you talk about an other account different than "pois", all were taken last time I tried. This is why I had to change (for the email form.)
« Last Edit: 27/07/2009 04:40:24 by martin88 »
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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5069 on: 27/07/2009 04:40:51 »
I just want to post something I think about and am thankful for that goes against the grain of this thread but should be acknowldged.  POIS has given something to me that's made me absolutely a better person and that is dicipline.  Straight faced, no blinking, up most honesty - dealing with POIS has straigthened my self control and character.

 I think it should be said for myself.
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5070 on: 27/07/2009 05:57:25 »
I was reading about endorphins on Wikipedia (http://en.wikipedia.org/wiki/Endorphin). 

Look at this:
"Endorphins are endogenous opioid polypeptide compounds. They are produced by the pituitary gland and the hypothalamus in vertebrates during strenuous exercise,[1] excitement, pain and orgasm,[2][3] and they resemble the opiates in their abilities to produce analgesia and a sense of well-being. Endorphins work as "natural pain relievers", whose effects may be enhanced by other medications."

An endorphin issue has long been suspected as a possible cause of POIS....  and we see the pituitary gland, orgasm, and endorphins are all connected.  This makes me wonder more about the pituitary adenomas...  (Just for reference: As far as I know, the best way to identify a pituitary adenoma is through a GAD contrast enhanced PITUITARY MRI (e.g. an MRI dedicated to the pituitary, not just a routine brain). ).

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5071 on: 27/07/2009 18:07:42 »
Quote from: martin88 on 27/07/2009 04:28:01
Quote from: Counterpoints on 27/07/2009 04:09:54
For a website, we could use an olympe-network, like we have for the survey.
Marnia would be responsible for the content, maybe too much for her ? However if you talk about an other account different than "pois", all were taken last time I tried. This is why I had to change (for the email form.)

This last weekend, Mat780 volunteered to build a website, and he has already begun. I am working with him on it and we'll ask for review and input soon.

Thanks, Mat!
« Last Edit: 27/07/2009 18:15:40 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5072 on: 27/07/2009 18:10:55 »

I just bought some blueberries and blackberries! Never done that before. This group is surely influential!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5073 on: 27/07/2009 18:27:42 »
Quote from: B_Jim on 27/07/2009 09:35:11

The problem for me is to find cranberries :/
 [:(] Only supplements, dehydrated fruit or juice. Very expensive ...


B_Jim:

"you can get cranberries in France. I'm sure you already know that they're called canneberge (sometimes called airelles des marais - although this is rare). You should be able to find them in your local Carrefour, or Eddy Lecelerc.
« Last Edit: 27/07/2009 19:19:19 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5074 on: 27/07/2009 18:31:41 »

B_Jim, that was from
http://www.bbcgoodfood.com/recipes/4968/chestnut-and-cranberry-roll
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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5075 on: 27/07/2009 18:38:09 »
Well I can pretty much orgasm frequently now without any bad mental effects.  The only thing that's still bothering me is the brain fog, but it doesn't seem to get worse after each O.  It seems like its slowly draining away.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5076 on: 27/07/2009 18:41:21 »
Quote from: Counterpoints on 27/07/2009 05:57:25
I was reading about endorphins on Wikipedia (http://en.wikipedia.org/wiki/Endorphin). 

Look at this:
"Endorphins are endogenous opioid polypeptide compounds. They are produced by the pituitary gland and the hypothalamus in vertebrates during strenuous exercise,[1] excitement, pain and orgasm,[2][3] and they resemble the opiates in their abilities to produce analgesia and a sense of well-being. Endorphins work as "natural pain relievers", whose effects may be enhanced by other medications."

An endorphin issue has long been suspected as a possible cause of POIS....  and we see the pituitary gland, orgasm, and endorphins are all connected.  This makes me wonder more about the pituitary adenomas...  (Just for reference: As far as I know, the best way to identify a pituitary adenoma is through a GAD contrast enhanced PITUITARY MRI (e.g. an MRI dedicated to the pituitary, not just a routine brain). ).



I did exactly that, an MRI focused on the pituitary, with AND without contrast. A partially empty sella was found, which  did not concern my endocrinologist.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5077 on: 27/07/2009 19:29:17 »
Quote from: Limejuice on 27/07/2009 04:40:51

I just want to post something I think about and am thankful for that goes against the grain of this thread but should be acknowldged.  POIS has given something to me that's made me absolutely a better person and that is dicipline.  Straight faced, no blinking, up most honesty - dealing with POIS has straigthened my self control and character.

I think it should be said for myself.


Limejuice, thank you!

I think those are much-needed words of wisdom!

This is proably the first post ever on the positive-aspect of POIS!

I have thought about positive aspects as well. One that often comes to mind for me about living with POIS:

"What does not kill me, makes me stronger."

That was from Friedrich Nietzsche, Twilight of the Idols, 1888. German philosopher (1844 - 1900).

The quote above was also continually repeated in his mind as a survival tool/way of thinking by Viktor Frankl, author-psychiatrist, during his internment at Auschwitz concentration (death) camp.

Frankl survived Auschwitz and derived meaning from the experience.

We can all learn from his idea!
« Last Edit: 27/07/2009 19:35:17 by demografx »
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5078 on: 27/07/2009 22:32:35 »
Quote from: Counterpoints on 27/07/2009 05:57:25
I was reading about endorphins on Wikipedia (http://en.wikipedia.org/wiki/Endorphin). 

Look at this:
"Endorphins are endogenous opioid polypeptide compounds. They are produced by the pituitary gland and the hypothalamus in vertebrates during strenuous exercise,[1] excitement, pain and orgasm,[2][3] and they resemble the opiates in their abilities to produce analgesia and a sense of well-being. Endorphins work as "natural pain relievers", whose effects may be enhanced by other medications."

An endorphin issue has long been suspected as a possible cause of POIS....  and we see the pituitary gland, orgasm, and endorphins are all connected.  This makes me wonder more about the pituitary adenomas...  (Just for reference: As far as I know, the best way to identify a pituitary adenoma is through a GAD contrast enhanced PITUITARY MRI (e.g. an MRI dedicated to the pituitary, not just a routine brain). ).



Funny you should mention that.... my neurologist thought it might have something to do with the pituitary gland as well, and as such I did manage to get a brain MRI specifically looking at the pituitary fossa...  (got 224mb of free space? lol) The results were:

>>>Findings: Two punctuate signal abnormalities are present in the periventricular white matter without mass effect or edema. The ventricles and cisternal spaces are normal in size and configuration. There is no evidence of shift of the midline indicators. Signal of the brain stem and cerebellum are normal.

The diffusion-weighted imaging demonstrates no evidence of acute restricted diffusion.

Imaging of the pituitary fossa is unremarkable with normal signal identified. The infundibulum is midline status-post contrast. There is no evidence of abnormal enhancement within the parenchyma of the brain. There is no evidence of abnormal enhancement withint the pituitary fossa.

Impression: No significant abnormalities are identified by MRI criteria related to the parenchyma of the brain or within the detailed imaging of the pituitary fossa.<<<

In other words, the doc didn't find anything.

And my POIS is about 1 orgasm = 5 days of significant cognitive and recall loss and severly impaired processing. It's bad enough that during the symptoms I'll rationalize things that dont make any sense, as well, even if I know all the facts and am familiar with the subject matter. Consequently, abstinence is my only way of life. Unfortunately, all the ex-girlfriends and the ex-wife have fallen by the wayside since, well, women like to get BUSY with their loved ones. And, I like keeping my job, so once again abstinence is the only choice. Yes, medical society, it is, and always has been, that bad. But hey, keep working on Erectile Dysfunction drugs, cause that's where the money's at!

Somedays I think I might as well join a monastery take a vow of chastity.
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5079 on: 27/07/2009 22:38:50 »
Quote from: Limejuice on 27/07/2009 04:40:51
I just want to post something I think about and am thankful for that goes against the grain of this thread but should be acknowldged.  POIS has given something to me that's made me absolutely a better person and that is dicipline.  Straight faced, no blinking, up most honesty - dealing with POIS has straigthened my self control and character.

 I think it should be said for myself.

Not me. It has driven me absolutely mad before and led to a lot of self destructive behavior earlier on in my life, mostly out of frustration with its existence and girlfriend's DISBELIEF in its existence. It took 15 years before my sanity was once again in control, and I only managed that through absolute abstinence.
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