[POIS-SUFFERER]

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

I usually take Ativan right now to make me feel better, and when it kicks in I just get the good old munchies! :-)

PS

[GoingCrazy]

POIS-SUFFERER

Burnt out adrenals was at first what I thought it was also.  I always felt like coffee somehow caused all of this.  It is still a pretty good theory if you ask me.  When I used to drink coffee it used to prevent me from dreaming at night, hence no deep sleep.  The previous night I went to bed before 12 and felt kind of "POIS" in my dream, and then felt very calm in an instant afterwards.  Maybe some neurotransmitter release, but that rarely happens to me.  I think it was because I went to bed before 12.  Gave my body a full deep rest.

[demografx]

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

only craving I get from POIS is for a week to pass by as quickly as possible =)

Haha! Best answer yet!

[demografx]

JonJen99, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS forum resources which may be helpful to you:

Our new POIS Information Website is here:
http://sites.google.com/site/poiswebsite/

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 350,000 page visits. Not bad for a rare malady!

[demografx]

JonJen99, this post might help you find information about POIS that we have already discussed, by tailoring a Google search to this POIS forum:


SEARCH POIS FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within POIS Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[JonJen99]

JonJen99 : Welcome, thanks for rodiola rosea.
Are you a Pois sufferer ?
Can you give more details ?

Jim, I've lurked here for some time. I don't feel comfortable discussing my condition, but yes -- I've had pois since college, and that was MANY years ago. I've had some relief from pharma, but mostly from herbs.

[lauracostis]

has anyone looked into "neurosteroids", they are converted in the brain from regular steroids such as testosterone, fsh, and lh, ect.  neurosteroids naturaly cause sedation and are synthesized now for the purposes of surgical sedation.  "17-Phenylandrostenol" - is an antagonist that blocks the effects of neuroactive steroids

[lauracostis]

anyone with medical background go to wickipedia and read about "neurosteroids" and then ("GABA a" receptors ).  neurosteroids that bind to "GABA a" receptors release cholride, causing hyperpolarization, which stops an action potential or signal from moving down the axons of a neuron.

[lauracostis]

on a similar note to posible problems with ions; a book i read about fibro myaglia, the doctor claimed that it was caused by a problem with sodium/potassium pumps in cells.  some how active transport of na/k in cells becomes inbalanced, causeing inproper difusion gradiant between inside and outside of cell.  the result would cause endless problems in the body of all kinds, responsible for the many signs and symtoms packaged together in the syndrom of fibro myalgia.  the easyist to detect were the cause of the painfull areas on the back that became chronically inflamed.  the theory being that the difusion imblanced caused the inside of the cell to become hypertonic, pulling in as much fluid as posible to equalize tonicity.  with active transport working improperly, compounds and ions continue to build in cell causeing more swelling fromm water entering cell from osmosis.

[demografx]

has anyone looked into "neurosteroids"

lauracostis, I'm not sure how you're relating that to POIS? And also your last 2 posts...

[demografx]

JonJen99 : Welcome, thanks for rodiola rosea.
Are you a Pois sufferer ?
Can you give more details ?

Jim, I've lurked here for some time. I don't feel comfortable discussing my condition, but yes -- I've had pois since college, and that was MANY years ago. I've had some relief from pharma, but mostly from herbs.

Can you say which herbs?

[lauracostis]

the last entry had to do with active transport and diffusion facilitated ions between the cell membrains which is similar to the hyperpolarization of axon membrains in neurons.  the two previous posts before that had to do with: gonadocorticoid steroids converting to neurosteroids, which act on gaba a receptors which cause benzo like effects such as tiredness, sleepyness, impaired cognition, weekness.
the hyperpolarization of neurons prevents signals from reaching axon terminals and releasing neurotransmiters like dopamine in to synapse.  for this reason it is likly why antidepressents do not work well for people suffering from syndroms like fibromyalgia and pois, it seems likely to me that the cause preceedes neurotransmiters release, and that low amounts of neurotramiters are a secondary outcome.

sorry demografx if i dont make any sence.  just trying to throw some ideas around to people with medical or biochem backgrounds.

[demografx]

Laurac, if not neurotransmitter release, do you have an idea what might be more primary in POIS? (I don't know if fibromyalgia has any parallel to POIS).

[JonJen99]

JonJen99 : Welcome, thanks for rodiola rosea.
Are you a Pois sufferer ?
Can you give more details ?

Jim, I've lurked here for some time. I don't feel comfortable discussing my condition, but yes -- I've had pois since college, and that was MANY years ago. I've had some relief from pharma, but mostly from herbs.

Can you say which herbs?

Hi, I've already mentioned that Rhodiola has been very important to me. Two other herbs that I've found that have successfully worked on my energy issues are Eleutherococcus and Schizandra. One is a root from Siberia and the other a berry. They were first given to me by a Naturopath when discussing POIS, in a formula where they were combined. I found them invigorating, but not stimulating. I don't do well with caffeine, but I can handle these. Still, the Rhodiola is my favorite. Once again, I used the higher priced products, typically from Verde Botanica, because I keep finding that the cheaper varieties all come from China and don't seem to do much. - J.

[lauracostis]

demografx, besides severe muscle pains, the core symptoms are: "debilitating fatigue, sleep disturbance, and joint stiffness. Some patients may also report difficulty with swallowing, bowel and bladder abnormalities, numbness and tingling (paresthesia), and cognitive dysfunction".  patientes who have no symptems of muscles pains are often thrown into the broad category of fibromyalgia because of the wide variety of symptems the syndrom encompases.  the symptems listed above in "" are copied and pasted with out any editing or manipulation from the discription of fibromyalgia symptoms   (http://en.wikipedia.org/wiki/Fibromyalgia).  these symptoms seem quite similar to those of pois sufferes.

[demografx]

Thanks, JonJen, that was really helpful.

[demografx]

laurac, but the genesis and/or triggers for POIS vs. fibromyalgia are different, aren't they? And the length of time in/out of the system (typically, POIS lasts a few days and then nonsymptomatic normalcy returns). Aren't fibromyalgia symptoms always there?

Or maybe orgasm, in some people, triggers a "temporary fibromyalgia"?

This discussion reminds me of my post about hypogonadism, i.e., is that what I have or POIS?
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg249794#msg249794

[tazdas]

To demografx

I was just trying to share information and no intention of spam or any product advertisement. That is why I said 'do our own research' and 'read' in my original post. I had reasonable results from one of his products so that's why I mentioned it in my post. Since every body's physiology is different so for some they may work and for some it wont..   

I still have my POIS issues so I am still doing research and that's how I landed up in this forum. To be honest I forgot to search this site thoroughly before posting and never realized Lin was discussed here...

[demografx]

To demografx

I was just trying to share information and no intention of spam or any product advertisement. That is why I said 'do our own research' and 'read' in my original post. I had reasonable results from one of his products so that's why I mentioned it in my post. Since every body's physiology is different so for some they may work and for some it wont..   

I still have my POIS issues so I am still doing research and that's how I landed up in this forum. To be honest I forgot to search this site thoroughly before posting and never realized Lin was discussed here...

tazdas, thank you for writing. I left the remainder of your post up because I realized that your actionlove.com recommendation was "borderline" as far as spam. First time posters who promote something and don't bother to first engage in some sort of dialogue or give-and-take are viewed suspiciously.

So, thank you very much for clarifying your post and I apologize for judging you too quickly. Please understand that many have been here before you, and the intent in jumping right into "the solution for POIS" was not always benign. Often, people come here and simply want to promote their own agenda and not engage in any form of discussion, which as you know, is not what a forum is all about. So, it's very hard to judge sometimes.

tazdas, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS forum resources which may be helpful to you:

Our new POIS Information Website is here:
http://sites.google.com/site/poiswebsite/

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 350,000 page visits. Not bad for a rare malady!

[demografx]

tazdas, this post might help you find information about POIS that we have already discussed, by tailoring a Google search to this POIS forum:


SEARCH POIS FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within POIS Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.