[demografx]

In my case POIS only begins on the second day. I feel just fine on the first day.

Pablo, we have found this to be very common here.

[Limejuice]

If were talking goals, in 2010 I'd like to find the route cause of POIS. Another goal is to cure, say, 25% of forum members and readers.

[martin88]

Demo, your letter to NORD is great, this gives me some hope. Thanks!

B_Jim, I thought initially that endorphins remained high during a long time after orgasm and that only the weaning from endorphins was causing POIS. That's why I asked this question.
But maybe the withdrawal symptoms start immediately after orgasm because endorphins are released during orgasm and not after.
I have read a bit on opium effects :
-4h euphoria,lassitude,stupor (I'd like to understand why)
-a 7 to 10 days weaning occurs with big symptoms, high anxiety etc.. and 6 months to be fully normal.

 

In my case POIS only begins on the second day. I feel just fine on the first day.

I do not feel fine the first day but I'm aggravated a lot the second day.  Demo is right, a lot of POIS sufferers have this and this is to me one of the better indication that POIS is not psychological, with the fact that 97% of the POIS sufferers are men. I agree also with you when you said that stronger orgasms cause more POIS.

[demografx]

If we're talking goals, in 2010 I'd like to find the root cause of POIS. Another goal is to cure, say, 25% of forum members and readers.

Thanks, LJ! Very noble goals, indeed.

[demografx]

Who else...

1. has really bad nightmares on Days 2, 3 and 4 after O?
2. has a dry mouth for 4 or 5 days after O?
3. has a drop in eyesight quality and lots of eye floaters after O?
4. has a much weaker digestion for 5 to 7 days after O?
5. feels shortness of breath for 5 days after O as if gasping for air?

Has any of these symptoms become better for anyone?

I believe POIS nightmares come from our inner depths "screaming" to be back to normal.

Dry fingertips instead of dry mouth. This symptom drives me CRAZY!

Drop in vision quality, yes.

Some shortness of breath.

All my symptoms improved dramatically over the last year with my testosterone treatment.

[demografx]

Demo, your letter to NORD is great, this gives me some hope. Thanks!

Wonderful, Martin. Thank you! And thank you very much for your help with the project!

[demografx]

I'd like to ask you how to go about increasing free testosterone ...
My doctor is not very keen on giving me testosterone supplementation because he considers my free testosterone is not low enough for it (but it is quite lower than normal still) and even then testosterone patches or injections wouldn't really help free testosterone for long...
So what could I try ? (hopefully something that wont cost me a bundle)

mister_z, below, from an older post of mine, are the results of some free-T results after wearing T-patches for 6 weeks. I have more recent results, which to me aren't important because the patches are working very nicely on my POIS. But if you'd like, I can dig them up for you.


SOME TESTOSTERONE TESTING

Someone here asked me privately for my "free testosterone" testing results (much more was tested), so I thought I'd post it in case anyone else is interested:


Before POIS treatment:
(December 2, '08)
                                    reference range

%FREE T            1.47 %           1.5 - 2.2
FREE T             24.4 pg/mL        35 - 155


After POIS treatment:
(March 2, '09 after about 6 weeks of wearing T-patches)


%FREE T             1.45 %             1.5 - 2.2
FREE T              37.0 pg/mL          35 - 155


Free T jumped 50%, from 24.4 to 37.0.

Endocrinologist expects the numbers to keep increasing through June. If they don't, he'll switch me from Androderm T-patches 10mg daily to a pump gel to increase my testosterone.

mister_z, your doctor says that your free-T is not "low enough" to augment. My endo, who has a very good reputation in the field, agreed with my theory, that even when the T-patches brought me into normal T range and I saw improvement, a 50% increase in T-patches would help POIS dramatically and it did.

I would suggest getting a second opinion.

[Pablo445]

A bad POIS day today.

Do you ever feel it is "indescribable"? A feeling of anxiety, lack of air, panicky, as if I was stuck in a giant spider web and not succeeding to get out of it. There is no words or metaphor I know for it in any of the 3 languages I pretend to speak. Maybe just plain miserable. The only good thing about it is the fact that it does not last. I always get through it. But while "in it" it really feels miserable. What a waste of time - what a waste of life.

OK I just wanted to rant a little. Nothing positive to contribute right now. Thank you for listening.

[mister_z]

Before POIS treatment:
(December 2, '08)
                                    reference range
%FREE T            1.47 %           1.5 - 2.2
FREE T             24.4 pg/mL        35 - 155

I have my free testosterone results here; but they are in ng/mL since I am in europe and I don't know how to convert to pg/mL.
So, my results are:
0.89 ng/mL   reference range 1.00 - 3.7
3.09 nmol/L

[Limejuice]

My free T was also under the reference range in the two T blood tests I took.

Regular T was within the reference range so the doctor would not prescribe a T prescription.

[CertainlyPOIS]

not pertaning to pois but to the big "O", stroke after orgasm, this is nuts and extremely scary at the same time.
http://current.com/items/89310977_woman-suffers-orgasm-related-stroke-wtf.htm

[mister_z]

My free T was also under the reference range in the two T blood tests I took.

Regular T was within the reference range so the doctor would not prescribe a T prescription.

Exactly the same case as you...
That's why, since my doctor is being quite inflexible about it, I am looking to "brew my own" with supplements and what not...

[CertainlyPOIS]

My adavancement in testosterone.
I did a test while in hyper recovery stage.
testerone; 681ng/dl 175-821
FT  19pg/ml no range

Test after three days of orgasm
testosterone; 292ng/dl 241-800
FT         14.1 pg/ml no range.

I am totally confused, there is a big drop in total T and but not really in FT.

I am going to do one more test when supposedly normal hopefully  testerone is low as hell.

[demografx]

Regular T was within the reference range so the doctor would not prescribe a T prescription. [emphasis mine - demo]

I am going to do one more test when supposedly normal hopefully  testerone is low as hell.

That's why, since my doctor is being quite inflexible about it, I am looking to "brew my own" with supplements and what not...

At first, mine wouldn't prescribe testosterone either, but I insisted emphatically: "I need testosterone for POIS!".("Not for standard testosterone therapy!") In my arguments, I relied on my 'advisor', Petr Weiss, a well-known Czech sexuality researcher who I found through a Larry King CNN interviewee's (he was a sexuality expert/author) "referral to a referral" about POIS. After listening to my story, Weiss told me on the telephone that he firmly believed that MORE testosterone was the answer to my POIS. To my doctors, I also cited Dr Waldinger's study which just had recently been published. And I told them, truthfully, that I'd been suffering badly for decades and I desperately needed relief!

So the doctors both relented.

This was several years back, when I saw a GP and urologist, before my current T-patch treatment with an endo, which is as smooth and wonderful as I could ever hope for. Back then, the GP and urologist both agreed to my demand (no more "requesting"!!), but they insisted that I monitor PSA regularly and re-test T regularly. They stopped me when T went way too high, which was ok with me. They also made me buy the testosterone with the urologist's prescription, then the GP nurse injected me regularly. They put me through hoops, and it was crazy, but I got what I wanted!

NOTE: This is NOT medical advice for anyone to follow! I am not qualified to give medical advice: I am simply describing my own personal experience.

[Limejuice]

I understand.

I'm reluctant to push to try T for one reason - I don't want to jeopardize my natural production of T.  If supplemented T is not the answer to POIS for me, and in testing this disrupted the natural levels for the rest of my life, I would be....upset.

With only you, Demo, cured that risk is too high for me.  If most the forum was cured with T that’s a different story.

[demografx]

[if testosterone therapy] disrupted the natural levels for the rest of my life, I would be....upset.

Limejuice, I can't thank you enough for adding that extremely important cautionary note!

Testosterone therapy can, indeed, disrupt the natural production of testosterone. Not always. But enough to be a major concern.

Re-starting natural testosterone production is not guaranteed!

But I was, and am, desperate enough, and at the right age (I have had POIS for somewhere between 30 and 40 years!), where I just don't care: "I want relief and I want it now" was my attitude.

Also, I determined that it's unlikely that I will find another way to increase my insufficient manufacture of testosterone. If others can do it without testosterone replacement therapy (TRT), and have the patience to try different methods...my best wishes!!!

Yes, it is a very critical life decision to make!

[demografx]

A bad POIS day today.

Do you ever feel it is "indescribable"? A feeling of anxiety, lack of air, panicky, as if I was stuck in a giant spider web and not succeeding to get out of it. There is no words or metaphor I know for it in any of the 3 languages I pretend to speak. Maybe just plain miserable. The only good thing about it is the fact that it does not last. I always get through it. But while "in it" it really feels miserable. What a waste of time - what a waste of life.

OK I just wanted to rant a little. Nothing positive to contribute right now. Thank you for listening.

Pablo, please feel free to rant! This whole forum started with John21's rant! [] (John, forgive me, I'm a twisted man! Blame it on my lifetime of POIS!)

It is such an incredible waste of life. Excellent wording, Pablo.

The one consolation is that some disorders in life NEVER return to normal. Ours always does.

[mister_z]

Hi,
I managed to get some piracetam from my doctor. I'll try it and report.

[Dean93]

What a waste of time - what a waste of life.

Excellent wording, Pablo.

Agreed.

[GoingCrazy]

A bad POIS day today.

Do you ever feel it is "indescribable"? A feeling of anxiety, lack of air, panicky, as if I was stuck in a giant spider web and not succeeding to get out of it. There is no words or metaphor I know for it in any of the 3 languages I pretend to speak. Maybe just plain miserable. The only good thing about it is the fact that it does not last. I always get through it. But while "in it" it really feels miserable. What a waste of time - what a waste of life.

OK I just wanted to rant a little. Nothing positive to contribute right now. Thank you for listening.

Pablo, please feel free to rant! This whole forum started with John21's rant! [] (John, forgive me, I'm a twisted man! Blame it on my lifetime of POIS!)

It is such an incredible waste of life. Excellent wording, Pablo.

The one consolation is that some disorders in life NEVER return to normal. Ours always does.

Yeah I really don't think anyone should be interrogated for posting anything out of the ordinary or saying something insulting, dumb, crazy, depressing, hyper, ranting, because this is a mental disease and it affects how we act and say stuff... and it absolutely sucks to have,  especially wouldn't blame demo because 30 years is a long time, i've had it for two and dont even now how I've made it through alive.