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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8180 on: 04/07/2010 13:03:23 »
Quote from: demografx on 04/07/2010 12:50:22

What I find wrong with "Doctor" Lin's diagnosis - actually, I find it quite disturbing - is that it's not based on any credible, peer-reviewed, scientifically conducted and journal-publishable study and follow up of Postorgasmic Illness Syndrome sufferers.

do we know this for sure?
I wonder how he got his results?
He must have either done his own tests or referred to existing theories.

most of it doesnt sound too contradictory to what is talked about here in terms of E2 & prolactin going up, testosterone going down.
The norepinephrine side of things maybe worth looking into.
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8181 on: 04/07/2010 13:25:11 »
Quote from: demografx on 04/07/2010 13:21:24

Unless you can post some credible references for this quack's so-called factual statements, please refrain from further posting at this thread about "Doctor" Lin or actionlove. Feel free, though, to start your own thread at NSF, but since this is a Science Forum founded by a highly regarded Oxford physician, you can expect to be challenged again. Thank you very much.

ok, ok, I was just interested if anybody had done any tests which directly contradicted his theory about E2, norepinephrine etc.

The trouble is I/we havent got much else to go on, so its good to bring everything to the table to talk about.
 
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8182 on: 04/07/2010 13:35:13 »
Quote from: horizon on 04/07/2010 13:03:23
quote author=demografx link=topic=6576.msg314628#msg314628 date=1278244222]

do we know this for sure?
I wonder how he got his results?
He must have either done his own tests or referred to existing theories.


If you can cite any credible references, I would be happy to retract what I wrote. Several of us continue to look for credible data on POIS. We have found Waldinger, NY Times, Robinson, British Medical Journal and such. We'd love to have more!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8183 on: 04/07/2010 13:38:29 »
Quote from: horizon on 04/07/2010 13:25:11
Quote from: demografx on 04/07/2010 13:21:24

Unless you can post some credible references for this quack's so-called factual statements, please refrain from further posting at this thread about "Doctor" Lin or actionlove. Feel free, though, to start your own thread at NSF, but since this is a Science Forum founded by a highly regarded Oxford physician, you can expect to be challenged again. Thank you very much.

ok, ok, I was just interested if anybody had done any tests which directly contradicted his theory about E2, norepinephrine etc.

The trouble is I/we havent got much else to go on, so its good to bring everything to the table to talk about.
 


I agree with everything you just wrote except for the word "everything."
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8184 on: 04/07/2010 13:45:02 »
Quote from: demografx on 04/07/2010 13:35:13
Quote from: horizon on 04/07/2010 13:03:23
quote author=demografx link=topic=6576.msg314628#msg314628 date=1278244222]

do we know this for sure?
I wonder how he got his results?
He must have either done his own tests or referred to existing theories.


If you can cite any credible references, I would be happy to retract what I wrote. Several of us continue to look for credible data on POIS. We have found Waldinger, NY Times, Robinson, British Medical Journal and such. We'd love to have more!

Thats was I was apart of what I was asking, I wasnt posting it as something I necessarily agreed with or not, I asking what has been found here and whats specifically is wrong with it.
It seemed in line with
http://cure-erectile-dysfunction.org/symptoms-of-sexual-exhaustion
Who Dr.Richards is... I dont know either?

Im asking these questions because Im thinking about what next set of things to get tested cos im sick of being ill and trying to find some answers.
(someone suggested my E2 maybe high with me as my SHBG is high,
prolactin is ok out-of-pois, on wiki it says it goes up during orgasm, so that may not be my problem,
it may cost me a fair amount of money to get norepinephrine, E2 etc. tested which is why Im asking if you have found it to irrelevant or not for pois).
« Last Edit: 04/07/2010 13:53:18 by horizon »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8185 on: 04/07/2010 14:10:37 »

Horizon, sad to say, we just don't know. We've all been guinea pigs!
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8186 on: 04/07/2010 14:24:35 »
Quote from: demografx on 04/07/2010 14:10:37

Horizon, sad to say, we just don't know. We've all been guinea pigs!

yeah, whats the bettings "dr".richards is another lin!

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Offline Green

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8187 on: 04/07/2010 14:28:00 »
Another day, another POIS suffering beckons, this time because of a NE last night :(

I've had dealings with Dr.Lin dating back to 2004 where as a desperate teenager plagued with this had no-one else to turn to, but back then I couldn't really make any sense of his reply. With the promise of his products apparently curing this problem I immediately sought to purchase them with a credit card taken without the consent of my Father, based on his advice I took these supplements.

I bought 3-4 months worth of supply and took them at the intervals which he suggested, the biggest let down was not the fact it did absolutely nothing to reduce my symptoms but the fact I had placed all my beliefs in a product that would cure me, this is tainted my opinion of Dr.Lin, on one hand he has found where the problem lies and then he is marketing a product which says will cure or reduce to an extent which doesn't work, ironic? Yes.

But having said that I can relate to the above post where it's mentioned that testosterone is lowered and E2 and Prolactin is elevated, this exactly resembles my case, I'm awaiting the results ordered my an Endocrinologist I'm seeing here, the only problem is that everything happens at snail pace here in the UK, from the time to get the appointment to see the GP, to the time which you endlessly plea for a referral to the time which you actually get to a specialist, in my case it's been 10 years since I first made my case of this malady to my GP about feeling extremely debilitated after masturbation.

I've learnt a lot about the general approach needed to get further treatment and taken seriously, I always used to mention that I would feel better after not masturbating or abstaining from sex, the accompanying symptoms would pass and I would start to feel better, this simply isn't the case with POIS, in my case, out of POIS (if that's ejaculating voluntarily) means a wait of ATLEAST a month before cognitive functioning starts to return to a state prior to POIS depending on the episode, I think based on that GP's would focus their attention primarily on the psychological side of things where the roots of POIS lie physiologically, no matter what external conditions I can subject myself to albeit, stress free environment, eliminated all beliefs of even the existence of POIS etc... Nothing ever worked and these were valiant attempts, the problem with POIS is that it doesn't distinguish itself from lots of other similar medical problems, which in turn forces the GP to choose from elimination rather than a unique approach. For me this is chronic, POIS symptoms are always there in one form or another as all mental symptoms stem from this. The best way to get treatment if you have a genuine belief that you do have problems with blood work, address this as a chronic issue, saying I 'I feel weak after masturbation' or 'I'm exhausted after sex' didn't get me anywhere apart from sitting in front of an overgrown buffoon who was a Psychosexual Doctor this was after POIS in general one of the worst situations in my life ONLY focusing on this POIS as a somatic disorder I was subjected to many many anti psychotic drugs due to his frustration of not even being able to touch upon this as none of them worked in any sense of their purpose, close to being sectioned for suicidal tendencies I just spoon fed the answers to him in order to get discharged, this led to problems with my GP then saying the only treatment he has for this is happy pills as such, word of warning to those of you who might be considering to take them they've left me in a poorer state of health than imaginable and have exacerbated POIS beyond belief .

When you make sacrifices such as totally abstaining from sex and masturbation, not only just limited to that, but have a mindset for months at a time of not even allowing sexual thoughts to enter in the hope of this to supplement a living that almost everyone around you alone has to be a reason for a researcher somewhere trace the roots of this.

I'm in a fairly unique position right now where I have access to medical supplies but don't have the appropriate wealth of knowledge, I'm thinking of changing from an Engineering degree to a degree in Medicine, but I fear I lack in intelligence, aptitude and real interest for the subject, for the sole reason of getting somewhere with this. I am willing to sacrifice myself as a guinea pig if it means we can get the real footprints of this.
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8188 on: 04/07/2010 14:39:10 »
yeah, i definitely wasn't trying to re-start the "do herbs work for pois" discussion!!
« Last Edit: 04/07/2010 14:40:44 by horizon »
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8189 on: 04/07/2010 15:45:24 »
one simple cheap semi-remedy i have used before, is to munch on a Centrum complete vitamin in the days following a NE. You just take a lil bite off the pill (1 pill should = 6 bites) throughout the day and for w/e reason it seems to help a bit with the mental fogginess. you do this every day for however long symptoms last.

i only know this works because this is how i take my multivitamin normally, and after a super super rare (like 1 in 3 years) NE I noticed it helped with the mental symptoms. realized i hadnt mentioned it before =/
« Last Edit: 04/07/2010 16:04:49 by Defsync »
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Offline strawberryman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8190 on: 04/07/2010 17:15:30 »
I take 1 mg lorazepam before sex, and it helps reduce my panic attack after orgasm . . . Has anyone had this same experience ?
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8191 on: 04/07/2010 17:20:51 »
Quote from: demografx on 04/07/2010 12:50:22
What I find wrong with "Doctor" Lin's diagnosis - actually, I find it quite disturbing - is that it's not based on any credible, peer-reviewed, scientifically conducted and journal-publishable study and follow up of Postorgasmic Illness Syndrome sufferers.

Sorry to continue the Lin discussion...I can't really speak to his theory.
But I had difficulty communicating with him in English, when I called him years ago.

I also tried one of dr. Lin's remedies back then...didn't help me.
But I agree with demo's point about his credibility.
« Last Edit: 04/07/2010 17:47:00 by Animus »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8192 on: 04/07/2010 17:27:52 »
Quote from: green on 04/07/2010 14:28:00
Another day, another POIS suffering beckons, this time because of a NE last night :(

I've had dealings with Dr.Lin dating back to 2004 where as a desperate teenager plagued with this had no-one else to turn to, but back then I couldn't really make any sense of his reply. With the promise of his products apparently curing this problem I immediately sought to purchase them with a credit card taken without the consent of my Father, based on his advice I took these supplements.

I bought 3-4 months worth of supply and took them at the intervals which he suggested, the biggest let down was not the fact it did absolutely nothing to reduce my symptoms but the fact I had placed all my beliefs in a product that would cure me, this is tainted my opinion of Dr.Lin, on one hand he has found where the problem lies and then he is marketing a product which says will cure or reduce to an extent which doesn't work, ironic? Yes.

But having said that I can relate to the above post where it's mentioned that testosterone is lowered and E2 and Prolactin is elevated, this exactly resembles my case, I'm awaiting the results ordered my an Endocrinologist I'm seeing here, the only problem is that everything happens at snail pace here in the UK, from the time to get the appointment to see the GP, to the time which you endlessly plea for a referral to the time which you actually get to a specialist, in my case it's been 10 years since I first made my case of this malady to my GP about feeling extremely debilitated after masturbation.

I've learnt a lot about the general approach needed to get further treatment and taken seriously, I always used to mention that I would feel better after not masturbating or abstaining from sex, the accompanying symptoms would pass and I would start to feel better, this simply isn't the case with POIS, in my case, out of POIS (if that's ejaculating voluntarily) means a wait of ATLEAST a month before cognitive functioning starts to return to a state prior to POIS depending on the episode, I think based on that GP's would focus their attention primarily on the psychological side of things where the roots of POIS lie physiologically, no matter what external conditions I can subject myself to albeit, stress free environment, eliminated all beliefs of even the existence of POIS etc... Nothing ever worked and these were valiant attempts, the problem with POIS is that it doesn't distinguish itself from lots of other similar medical problems, which in turn forces the GP to choose from elimination rather than a unique approach. For me this is chronic, POIS symptoms are always there in one form or another as all mental symptoms stem from this. The best way to get treatment if you have a genuine belief that you do have problems with blood work, address this as a chronic issue, saying I 'I feel weak after masturbation' or 'I'm exhausted after sex' didn't get me anywhere apart from sitting in front of an overgrown buffoon who was a Psychosexual Doctor this was after POIS in general one of the worst situations in my life ONLY focusing on this POIS as a somatic disorder I was subjected to many many anti psychotic drugs due to his frustration of not even being able to touch upon this as none of them worked in any sense of their purpose, close to being sectioned for suicidal tendencies I just spoon fed the answers to him in order to get discharged, this led to problems with my GP then saying the only treatment he has for this is happy pills as such, word of warning to those of you who might be considering to take them they've left me in a poorer state of health than imaginable and have exacerbated POIS beyond belief .

When you make sacrifices such as totally abstaining from sex and masturbation, not only just limited to that, but have a mindset for months at a time of not even allowing sexual thoughts to enter in the hope of this to supplement a living that almost everyone around you alone has to be a reason for a researcher somewhere trace the roots of this.

I'm in a fairly unique position right now where I have access to medical supplies but don't have the appropriate wealth of knowledge, I'm thinking of changing from an Engineering degree to a degree in Medicine, but I fear I lack in intelligence, aptitude and real interest for the subject, for the sole reason of getting somewhere with this. I am willing to sacrifice myself as a guinea pig if it means we can get the real footprints of this.


Green, many thanks for this inspirational post. As once said, if we want to see POIS research go into the fast lane, let's find a physician with POIS!
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Offline strawberryman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8193 on: 04/07/2010 17:38:20 »
Has anyone suffered panic attacks or heart attacks after orgasm ?
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8194 on: 04/07/2010 18:12:16 »
hi demo,
can you email me that waldinger study?
thanks
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8195 on: 04/07/2010 18:14:37 »
demographx, do you have a letter which you send to potential POIS researchers? I once sent out about 50 letters to urologists in New York, and I got one response referring me to a specialist. I am going to start up this process again.
Also, has someone compiled the survey data into a short form? Like a summary?
In a way we've done a lot of our own research and testing, and it would be good to document it. I am interested in doing that, will get started right away.
« Last Edit: 04/07/2010 18:28:24 by Animus »
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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8196 on: 04/07/2010 18:49:36 »
I have a hunch there would be a lot of people interested in POIS on the west coast because this is where a lot of the "sex/porn industry" is. I have a hunch a lot of these porn stars suffer from POIS. If I could I would even run an ad for a study just to see how big the response is.
My particular angle on this is that I developed POIS after prolonged use of herbal sexual stimulants which changed my anatomy and hormone balance. There are different ways of getting POIS, and there is a spectrum of severity to the symptoms.
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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8197 on: 04/07/2010 19:10:01 »
Quote from: Animus on 04/07/2010 18:49:36
I have a hunch a lot of these porn stars suffer from POIS.

I have a hunch there must be alot of pensioners with POIS.
Most dont know how to use the internet to sign up to Nakedscientists!

On wikipedia it says Refractory Periods are about 20mins for 20 year olds,
but 20HOURS for 70 year olds!
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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8198 on: 04/07/2010 21:42:37 »
Quote from: Animus on 04/07/2010 18:49:36
I have a hunch there would be a lot of people interested in POIS on the west coast because this is where a lot of the "sex/porn industry" is. I have a hunch a lot of these porn stars suffer from POIS. If I could I would even run an ad for a study just to see how big the response is.

I agree. My guess is that POIS is more prevalent with male pornstars than their female counterparts.
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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #8199 on: 04/07/2010 22:15:00 »
I have not used this forum previously, so I don't know if this post will go through properly.  I have read parts of this forum over the past 6 months, and it is obvious to me that I am a POIS sufferer. From the information that I read on this forum, I had my testosterone levels checked some months ago, and the results indicated that I had low levels.  I began to use Androderm patches several months ago - 10mg/day - and felt much better in terms of POIS and mood.  However, after a few months of this TRT the positive effects declined a fair bit.  I have read that as one continues on TRT, estrogen levels go up, canceling some of the effect of the increase in testosterone, and that the drug Amiridex (anastrozole)inhibits the production of estrogen.  My family doctor indicates that in Canada one cannot be tested for estrogen levels, although I am not sure that this is correct. Does anyone have any thoughts on this?   
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