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I've just been to my Doctor and told him about the reports Dr W has released, he would'nt even entertain it, shook his head with a smile on his face "you havent got that, don't believe everything you read on the internet" were his words.Feel like banging my head up a brick wall, it's fantastic what Dr W has done but what are you meant to do if other Doctors won't recognise or acknowledge his work ?I can appreciate his position (my Doctor), if you worked in the medical proffesion and your patient came to you with news of an unknown illness he found on the internet what would you do, I'd be very dubious but I'd take the patient seriously and look into it for them but to completley disregard it with a smirk on your face as nonesence and not even look into it !!!!!I'm so angry right now I'm having trouble typing, I felt like putting his head through the desk
Quote from: daveman on 19/01/2011 15:39:04Quote from: nick2k22 on 19/01/2011 02:31:00Quote from: daveman on 18/01/2011 22:16:11I wonder if you had sex once a week for three years, that your system would finally find an anti-body?I don't suppose there's anybody that could do that!I was thinking about that today. Why can't we just have an O once a week? Why does it have to be diluted? And if we are taking the diluted stuff will it hurt the treatment if we accidentally have an O?I don't know if I or anyone could go 5 years without an O.Something just kind of doesnt add up to me. Also, what about that article where the guy was cured by progesterone? I personally am not going to close the door on this even though I really want Dr. Waldinger to be right. More research is still needed. I still am interested in the hormonal theories because there's drastic hormone reactions during and after O.I may be barking up the wrong tree but until I've actually spoken with people that the cure has worked for I am not going to put all my eggs in one basket. I think (just my limited understanding), that the idea in desensitization is that one can expose the system to the offending "footprint", while minimizing the negative effects (dilution), and the anti-bodies react and are generated anyways. So, pinprick the arm with a mild solution to stimulate anti-bodies without the greater suffering.However the question still remains, why doesn't full strength regularly work as well to sensitize. My thought was that in most cases, nobody is willing or able to suffer long enough at full strength to generate the required anti-bodies.Spring time allergies for intance are temporal. Most aren't willing to have orgasms once per week steadily for 3 to 5 years, etc. etc.Hi Daveman, I think you may be misunderstanding the process of the hyposensitization. We don't want to be generating antibodies--the generation of antibodies is what causes the allergic symptoms. To say that POIS is caused by allergy to semen means that the body reacts to the semen as a 'foreign invader' in the body, and so produces antibodies to try to combat that 'invader', which then produces the negative symptoms as the antibodies 'fight the invader'. So, having a full-strength orgasm regularly isn't going to help--it will just keep generating the antibodies and the allergic reaction.Instead, the hyposensitization technique starts off by injecting a very diluted amount of the offending substance--so it is at too low a level to set off the allergic reaction. After doing it at this level for a while the body has become more accustomed to the substance, and doesn't treat it as an invader. Then, you raise the level a little bit, and do it at that level for a while, until the body gets used to that. And so on, until the body has learned to tolerate the substance at its regular, non-diluted level. So then, when semen is released in orgasm, it will no longer set off the reaction. Does this make sense? Does it also explain why the 'once a week regular orgasm' would not be helpful?(I'm still left with the question--if someone is doing a hyposensitization sequence, and they have a regular orgasm in the midst of it, does that screw up the 'little by little' accustomization process?)
Quote from: nick2k22 on 19/01/2011 02:31:00Quote from: daveman on 18/01/2011 22:16:11I wonder if you had sex once a week for three years, that your system would finally find an anti-body?I don't suppose there's anybody that could do that!I was thinking about that today. Why can't we just have an O once a week? Why does it have to be diluted? And if we are taking the diluted stuff will it hurt the treatment if we accidentally have an O?I don't know if I or anyone could go 5 years without an O.Something just kind of doesnt add up to me. Also, what about that article where the guy was cured by progesterone? I personally am not going to close the door on this even though I really want Dr. Waldinger to be right. More research is still needed. I still am interested in the hormonal theories because there's drastic hormone reactions during and after O.I may be barking up the wrong tree but until I've actually spoken with people that the cure has worked for I am not going to put all my eggs in one basket. I think (just my limited understanding), that the idea in desensitization is that one can expose the system to the offending "footprint", while minimizing the negative effects (dilution), and the anti-bodies react and are generated anyways. So, pinprick the arm with a mild solution to stimulate anti-bodies without the greater suffering.However the question still remains, why doesn't full strength regularly work as well to sensitize. My thought was that in most cases, nobody is willing or able to suffer long enough at full strength to generate the required anti-bodies.Spring time allergies for intance are temporal. Most aren't willing to have orgasms once per week steadily for 3 to 5 years, etc. etc.
Quote from: daveman on 18/01/2011 22:16:11I wonder if you had sex once a week for three years, that your system would finally find an anti-body?I don't suppose there's anybody that could do that!I was thinking about that today. Why can't we just have an O once a week? Why does it have to be diluted? And if we are taking the diluted stuff will it hurt the treatment if we accidentally have an O?I don't know if I or anyone could go 5 years without an O.Something just kind of doesnt add up to me. Also, what about that article where the guy was cured by progesterone? I personally am not going to close the door on this even though I really want Dr. Waldinger to be right. More research is still needed. I still am interested in the hormonal theories because there's drastic hormone reactions during and after O.I may be barking up the wrong tree but until I've actually spoken with people that the cure has worked for I am not going to put all my eggs in one basket.
I wonder if you had sex once a week for three years, that your system would finally find an anti-body?I don't suppose there's anybody that could do that!
With hyposensitisation it's a little bit of semen. But it's injected directly in the blood. So it will have a big effect on the immune system. I think you can get O.'s during the hyposensitisation proces. Because there are also POIS-patients who have PE. With hyposensitisation they start with a big dose on a weekly basis and then 2 weeks, once a month. With other hyposensitisation like for dust allergy or pollen allergy the injection don't give the full allergy symptoms. I think this will be the same with the semen injections. You will not have full POIS, but a little bit.
Quote from: Guthrie on 20/01/2011 00:17:37(I'm still left with the question--if someone is doing a hyposensitization sequence, and they have a regular orgasm in the midst of it, does that screw up the 'little by little' accustomization process?)I wondered about this too... I'm sure this is a common enough question and situation that there is an answer out there somewhere (at least in the general context of 'how does taking a full dose of X affect hyposensitisation for X?', where X could be peanuts for example). In fact before Waldinger's articles I had wondered about hyposensitisation for my peanut allergy.
(I'm still left with the question--if someone is doing a hyposensitization sequence, and they have a regular orgasm in the midst of it, does that screw up the 'little by little' accustomization process?)
Counterpoint, I feel relieved that you've experienced physical symptoms with your test. Like you I experience mostly cognitive POIS symptoms, and question if Dr.W's articles pertain to me.Thank you.
Quote from: nick2k22 on 20/01/2011 02:27:29If indeed hyposensitization is the treatment, what is our next step?If it's going to be years I want to get this started asap.Allergist/immunologist are the one who usually do hyposerilization therapy and on the aol article they also suggest allergis/immunologist and urologist but what is a urologist going to do i have been to two with no avail.
If indeed hyposensitization is the treatment, what is our next step?If it's going to be years I want to get this started asap.
Quote from: demografx on 20/01/2011 06:54:28POIS news just popped on MSNBC.com!http://bodyodd.msnbc.msn.com/_news/2011/01/19/5880559-allergic-to-orgasms-mans-sad-story-has-happy-endingThe MSNBC story is also a lot more thorough than a lot of the others have been.Also, it has this interesting quote:QuoteScientists aren’t sure, but they believe that a gap in the seminal plumbing somehow allows the semen to contact immune cells called T-lymphocytes which, in turn, sets off immune system alarm bells. With repeated exposure, the reaction becomes intense.Is it possible that part of our plumbing may still be damaged by a gap, and so there continues to be contact between semen and immune cells?Or, is it more likely that the plumbing was damaged at one point in time, and that produced the allergic sensitivity, which then continued to stay in place even after the plumbing-damage had healed?
POIS news just popped on MSNBC.com!
Scientists aren’t sure, but they believe that a gap in the seminal plumbing somehow allows the semen to contact immune cells called T-lymphocytes which, in turn, sets off immune system alarm bells. With repeated exposure, the reaction becomes intense.
Quote from: kristy on 20/01/2011 09:29:40I've just been to my Doctor and told him about the reports Dr W has released, he would'nt even entertain it, shook his head with a smile on his face "you havent got that, don't believe everything you read on the internet" were his words.Feel like banging my head up a brick wall, it's fantastic what Dr W has done but what are you meant to do if other Doctors won't recognise or acknowledge his work ?I can appreciate his position (my Doctor), if you worked in the medical proffesion and your patient came to you with news of an unknown illness he found on the internet what would you do, I'd be very dubious but I'd take the patient seriously and look into it for them but to completley disregard it with a smirk on your face as nonesence and not even look into it !!!!!I'm so angry right now I'm having trouble typing, I felt like putting his head through the desk Welcome to POIS!
How does the peanut alergy feel relative to POIS symptoms?
I have a theory in my head, of how this crazy, bizarre and destructive disease had been developed....May sound little weird, but I believe this thing had been created deliberately, to reduce the world population, like the famous HIV. How this crap infected us.....I would pay to have the answer....maybe through the Internet, subliminary messages, pornography, who knows....
Thanks Guthrie.... I remember I had seen the word anti-bodies in the second of Prof. Dr. Waldinger's reports, related to response by desensitization. So I went back to have a closer look. We're sort of both right I think. One can't just copy and paste from PDF, but the desensitization program builds "blocking anti-bodies". It says that these antibodies "combine preferencially with the allergen", which I think has the effect of disabling its aggression.So most likely, as you say, the "body get's used to the invader" by producing these "blocking anti-bodies". I suppose it takes time to "build up an adequate force" in these new anti-bodies.So full strength attacks are too strong for the building defenses. Not sure why the defenses don't eventually reach a level capable of full defense without the desensitization.... other than the fact that the desensitization is more organized, consistant and complete. (and of course doesn't hurt as much).If it were so, then I'd bet that full strength interventions (like sex) wouldn't adversely affect the desensitization program, which should assure consistant excersize of the "blocking anti-body" building program.