[Vandemolen3]

The plaque is caused by a dry mouth. And a dry mouth is caused because of the allergy/POIS. It's very important to brush the teeth and use toothpicks. And drink a lot and chew gum.

[CertainlyPOIS]

someone asked for pharmaceticuls to try.
there is diclofenac sodium used in jane ashby's paper for one and helped 80%
easy to get this through doctor and cheap to.
there is dapoxetine used by some one here with good results.

[Green]

I had a very strange bout of POIS this week, after O there was no brainfog or fatigue, some degredation of cognitive functions but very little POIS initially, but then after two days I started having extreme joint pains and headaches and then the brain fog and slight fatigue came on. I recently started messing around with the dosages of my HRT meds, on the whole it appears that tweaking hormones, atleast getting the testosterone levels in the upper range (most of my other hormones are pretty good) goes a long way with helping POIS.

Testosterone also stimulates the growth of RBC's my recent blood test shows I have high normal RBC and the ratio of RBC to WBC has increased since taking test, so maybe there are less WBC/antibodies attacking when I have POIS?

[Green]

Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report,  I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.

Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.uk
It took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out.

I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already.

Good luck!

Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.

[daveman]

I had a very strange bout of POIS this week, after O there was no brainfog or fatigue, some degredation of cognitive functions but very little POIS initially, but then after two days I started having extreme joint pains and headaches and then the brain fog and slight fatigue came on. I recently started messing around with the dosages of my HRT meds, on the whole it appears that tweaking hormones, atleast getting the testosterone levels in the upper range (most of my other hormones are pretty good) goes a long way with helping POIS.

Testosterone also stimulates the growth of RBC's my recent blood test shows I have high normal RBC and the ratio of RBC to WBC has increased since taking test, so maybe there are less WBC/antibodies attacking when I have POIS?

Just a mention, keep in mind weather fronts when it comes to joint pains. It's still summer here and I'm tons better in summer than in winter as far as joint pains. (summer NO weather fronts here). It's a given that POIS affects the joints, but weather can make them worse or not, and sometimes this can fool with the treatment/symptom reactions. The same with most of the inflamatory aspects.

Also, I'd like to follow what your saying in regard to the subtle differences mentioned, but I don't know what all the initials stand for....HRT, RBC, WBS, NBS, THC, TLC, ABC... Like I was a newbie!! Sorry.

I'm quite interested in the Testosterone treatment and results so I feel lost, like it's not working.

[daveman]

Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report,  I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.

Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.uk
It took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out.

I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already.

Good luck!

Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.

In an ongoing effort to form a centralized entity to unite experts with patients and their local doctors, I wrote to Dr. Goldmeier after mellivora's post. Not only did he indicate that he would be happy to see local UK patients personaly, but that he would be more than happy to help connect us to "friendly doctors" in our areas.

He is VERY busy. Any Email should not contain more than two sentences, telegraph style. Contact him at the above EMail address, use a clear and and concise theme "Need POIS support in Nebraska - HELP" and a short and concise message body.

This man is very generous and caring, and is really willing to help. Treat him with ALL due respect.

Thx

[Vincent M]

I think RBC = red blood cells

 and WBC = white blood cells

[apostate801]

I had a very strange bout of POIS this week, after O there was no brainfog or fatigue, some degredation of cognitive functions but very little POIS initially, but then after two days I started having extreme joint pains and headaches and then the brain fog and slight fatigue came on. I recently started messing around with the dosages of my HRT meds, on the whole it appears that tweaking hormones, atleast getting the testosterone levels in the upper range (most of my other hormones are pretty good) goes a long way with helping POIS.

Testosterone also stimulates the growth of RBC's my recent blood test shows I have high normal RBC and the ratio of RBC to WBC has increased since taking test, so maybe there are less WBC/antibodies attacking when I have POIS?

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

[Green]

I'm quite interested in the Testosterone treatment and results so I feel lost, like it's not working.

All things considered, it's been a god send and helped thorougly overall, in summary POIS doesn't last as long and the magnitude of the symptoms are much less. The problem is POIS is still there and sometimes an ejaculation after a long abstinence, say 3-4 leaves me incredibly horny afterwards which leads to further ejaculations in a short time and POIS gets pretty bad.

I think in a few months time I'll be able to report back and say it's possible to keep an ejaculation frequency of 1x week almost POIS free, when I work out and reduce my bodyfat I've found POIS to last about a day or two.

Also I have learned, HCG of 250-500iu 30 mins before ejaclation means a brain fog free POIS episode, it's been a steep learning curve but test is the next best thing till a more recognised treatment is available here.

[Green]

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.

[Green]

I think RBC = red blood cells

 and WBC = white blood cells

Thats right, I got lazy sorry about the confusion.

[demografx]

Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report,  I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.

Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.uk
It took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out.

I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already.

Good luck!

Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.

In an ongoing effort to form a centralized entity to unite experts with patients and their local doctors, I wrote to Dr. Goldmeier after mellivora's post. Not only did he indicate that he would be happy to see local UK patients personaly, but that he would be more than happy to help connect us to "friendly doctors" in our areas.

He is VERY busy. Any Email should not contain more than two sentences, telegraph style. Contact him at the above EMail address, use a clear and and concise theme "Need POIS support in Nebraska - HELP" and a short and concise message body.

This man is very generous and caring, and is really willing to help. Treat him with ALL due respect.

Thx

Excellent, Dave, thank you! We are really zooming ahead with POIS medical help now!!!

[apostate801]

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.

I don't have very many pictures either and get annoyed when people take them.  I don't know why. 

[Hoping]

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.

I don't have very many pictures either and get annoyed when people take them.  I don't know why. 

Very interesting. I should clarify that "photophobia" is hypersensitivity to light, not hypersensitivity to photographs.
I've noticed that I have extreme cases of photophobia while in POIS. I can hardly open my eyes on a sunny day. It's even true on somewhat cloudy days. It's literally painful.
I believe Waldinger also mentions acousticophobia, or hypersensitivity to noise. This also happens while I'm in POIS. Hearing my cellphone beep or ring makes me want to smash it with a hammer. I get very angry very quickly, which NEVER happens while I'm out of POIS.

[CertainlyPOIS]

alright guys, i tried dicoflenac and nsaid antiinflammatory drug in one of the research papers, i used it at night so i can go right to sleep i woke up the next day no fatigue. My prove i went to work about two hrs early on about only 5 hrs of sleep. Usually am rushing so every minute counts and usually about to be late to work.
Since it works so great the first night time i tried it again on the second night and still no fatigue next day 8,30hrs of sleep. In normal pois i should have paid dearly for it. The nextime i try it i will try two big O's back to back(that is a killer).
if this drug keeps working i am going to be convinced pois is all immune system.

[CertainlyPOIS]

a word of advise for those looking for allergy doctors, If you have mainly cognition and fatigue symptoms, without the rash and hives, just tell the doctors you also have rash and hives because alot of them dont assosiate allergies to  brain fog and fatigue they want to know you skin looks like ploka dots, so tell them what they want to hear until you show them dr waldingers paper.

[demografx]

Brand new experiment

It's Day Zero: I just tripled my normal testosterone dose, and also increasing stimulant dose.

Will report back!

[Green]

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.

I don't have very many pictures either and get annoyed when people take them.  I don't know why. 

Very interesting. I should clarify that "photophobia" is hypersensitivity to light, not hypersensitivity to photographs.
I've noticed that I have extreme cases of photophobia while in POIS. I can hardly open my eyes on a sunny day. It's even true on somewhat cloudy days. It's literally painful.
I believe Waldinger also mentions acousticophobia, or hypersensitivity to noise. This also happens while I'm in POIS. Hearing my cellphone beep or ring makes me want to smash it with a hammer. I get very angry very quickly, which NEVER happens while I'm out of POIS.

Very true for me also, whenever I'm out of POIS, I love music, it helps me concentrate and focus a little better when I'm doing work and whilst driving it's a must. The other week whilst in a heavy bout of POIS the phone rang pretty loud and I started a panic attack where my heart was pounding and fluttering, it's very hard to tolerate high noise levels in POIS, that's a symptoms that isn't hightlighted but seems to be common in quite a few of us.

[Green]

Brand new experiment

It's Day Zero: I just tripled my normal testosterone dose, and also increasing stimulant dose.

Will report back!

Good luck with that! I'm getting quite far with treating POIS with testosterone also, today is POIS day 1 and apart from some neck pain and just a little bit of brainfog there isn't much, I have every hope to continue to some extent my daily routine later on this week.

Are you keeping an eye on e2 levels? it can ruin testosterone treatment if it's very high, I'm not sure if you know but adding testosterone means aromatase has more to convert into e2, if you're like me an have overactive aromatase enzymes and consequently high e2 levels they can bring about symptoms similar to POIS but not to the same extent, this is why back in nov/dec I was feeling pretty dreadful on a fairly high dose of testosterone, now I'm on a lower dose and I'm temporarily taking Arimidex I can really feel the testosterone working.

[Vincent M]

I also get very sensitive to light and sound while in pois in addition to being more vain and concerned about my physical appearance. Recently I've begun to think that the physical symptoms of pois might be related to how the penis becomes hypersensitive to touch immediately after ejaculation except with pois all the body's senses become elevated.

CCconfucious it's cool Diclofenac seems to be helping. I've tried naproxen, an nsaid that I was on for back pain but I used it for about a week with no effect.