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Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness SyndromeA Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!
I had a very strange bout of POIS this week, after O there was no brainfog or fatigue, some degredation of cognitive functions but very little POIS initially, but then after two days I started having extreme joint pains and headaches and then the brain fog and slight fatigue came on. I recently started messing around with the dosages of my HRT meds, on the whole it appears that tweaking hormones, atleast getting the testosterone levels in the upper range (most of my other hormones are pretty good) goes a long way with helping POIS.Testosterone also stimulates the growth of RBC's my recent blood test shows I have high normal RBC and the ratio of RBC to WBC has increased since taking test, so maybe there are less WBC/antibodies attacking when I have POIS?
Quote from: mellivora on 27/02/2011 20:28:35Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.
Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!
I'm quite interested in the Testosterone treatment and results so I feel lost, like it's not working.
That's how my POIS comes about. It's delayed by a day or two. Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.
I think RBC = red blood cells and WBC = white blood cells
Quote from: Green on 04/03/2011 20:44:16Quote from: mellivora on 27/02/2011 20:28:35Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.In an ongoing effort to form a centralized entity to unite experts with patients and their local doctors, I wrote to Dr. Goldmeier after mellivora's post. Not only did he indicate that he would be happy to see local UK patients personaly, but that he would be more than happy to help connect us to "friendly doctors" in our areas.He is VERY busy. Any Email should not contain more than two sentences, telegraph style. Contact him at the above EMail address, use a clear and and concise theme "Need POIS support in Nebraska - HELP" and a short and concise message body.This man is very generous and caring, and is really willing to help. Treat him with ALL due respect.Thx
Quote from: mellivora on 27/02/2011 20:28:35Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!Thanks for posting that, I too have gone and seen him. I agree with you the more patients he gets to see the greater picture of POIS he gets. It was a great relief to finally talk to a medical professional looking at POIS objectively.
Dr David Goldmeier, co-author of one of the few papers on POIS, "Postorgasm Illness Syndrome—A Spectrum of Illnesses, Jane Ashby, MRCP, and David Goldmeier, MRCP" has suggested that I post a reminder on the forum that he is willing to see any UK POIS sufferers to investigate their condition further. This is a fantastic opportunity, please don't pass it up. I have recently been to see him. A few other forum members have also apparently been to see him. Although I have so far only had an introductory meeting with him, and so have not much I can report, I am encouraged by his methodical approach and willingness to investigate further. It is important for him to have as many POIS patients as possible in order to build up a picture of the illness and to gain significant results scientifically.Dr Goldmeier's email address is David.Goldmeier@imperial.nhs.ukIt took a long time for my initial appointment to come through after my first email to Dr Goldmeier, so I suggest you mail him as soon as possible to set the ball rolling. There are very few people investigating POIS. We need to facilitate their research by taking part. Dr Goldmeier and I were convinced there must be many more sufferers in the UK than the very few who have so far been to see him. I'm not sure how things would work if you are outside the UK and would like to take part in Dr Goldmeier's investigations - I suggest if you are in that position that you email him to find out. I have recently been to see another Sexual Health specialist more local to me as well - if for no other reason than to spread the word about POIS. She was aware of the illness and very grateful for the most recent POIS papers from Dr Waldinger which I gave her copies of. Please continue to raise awareness by contacting doctors local to you and distributing copies of the latest POIS research papers to them. I know many of you have done more than me in that regard already. Good luck!
Quote from: apostate801 on 04/03/2011 23:46:16That's how my POIS comes about. It's delayed by a day or two. Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.
Quote from: Green on 05/03/2011 00:59:41Quote from: apostate801 on 04/03/2011 23:46:16That's how my POIS comes about. It's delayed by a day or two. Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.I don't have very many pictures either and get annoyed when people take them. I don't know why.
Quote from: apostate801 on 05/03/2011 16:07:45Quote from: Green on 05/03/2011 00:59:41Quote from: apostate801 on 04/03/2011 23:46:16That's how my POIS comes about. It's delayed by a day or two. Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.I don't have very many pictures either and get annoyed when people take them. I don't know why. Very interesting. I should clarify that "photophobia" is hypersensitivity to light, not hypersensitivity to photographs. I've noticed that I have extreme cases of photophobia while in POIS. I can hardly open my eyes on a sunny day. It's even true on somewhat cloudy days. It's literally painful.I believe Waldinger also mentions acousticophobia, or hypersensitivity to noise. This also happens while I'm in POIS. Hearing my cellphone beep or ring makes me want to smash it with a hammer. I get very angry very quickly, which NEVER happens while I'm out of POIS.
Brand new experimentIt's Day Zero: I just tripled my normal testosterone dose, and also increasing stimulant dose.Will report back!