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  1. Naked Science Forum
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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline valtak2610

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13960 on: 09/07/2011 19:09:35 »
With regard to migraines, I have headaches that are similar to a migraine headache in POIS. Indomethacin does help me to some extent - and that must mean something, because
indomethacin works on alleviating a certain class of headaches. But haven't figured out
what this class is and how it relates to POIS.
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Offline Animus

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« Reply #13961 on: 09/07/2011 19:22:20 »
Quote from: Habibou on 08/07/2011 22:23:45

for a doctor ... a little bit more contact with the main forum dealing with it would have been a minimum.

I would agree with that... However we do have Vandemolen and demo as trusted liasons. And maintaining trust is the most important thing.

Quote from: demografx on 08/07/2011 23:27:41

Sad, but we take what is good from this and build strength.

I agree!
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Offline Habibou

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13962 on: 09/07/2011 19:38:56 »
Yes, we don't have choice anyways !
Demo, when was the last time you got Prof Waldinger through the phone?  [:)]
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Offline Starsky

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13963 on: 09/07/2011 21:11:18 »
Quote from: connor on 09/07/2011 04:57:05
Quote from: Hoping on 24/06/2011 20:58:11
Quote from: connor on 24/06/2011 05:11:55
Quote from: spence23 on 23/06/2011 07:49:05
Quote from: connor on 23/06/2011 05:06:15
Quote from: spence23 on 22/06/2011 22:00:20


The main symptoms i'm experiancing are a complete lack of motivation and energy to the point where i stopped working and dropped any and all of my hobbies.  I've been attempting to do some digging and it seems that those 3 fit fairly well with low testosterone which i know some people here have had issues with as well but my blood tests have all come back normal so my doctor disregarded my concern.

over the past 3 years i've attempted about 6 different types of anti-depressants as well as many different types of therapy and seen many psychologists but nothing has helped even in the slightest.  I've been given a clean mental bill of health multiple times and am concerned its a physical/hormone issue but my family doctor has pretty much given up at this point

about 3 times in the last 3 years i've had complete relief from these new symptoms but its only been for 24 hours and i can never find a connection, any suggestions would be be greatly appreciated, thanks.

what antidepressants have you tried? wellbutrin is the closests i've gotten to curing this nightmare. i've tried all the ssris pretty much and they made things worse. i think my problem stems from low dopamine

I'd have to check my exact list but the 4 i can remember now are Pristiq(desvenlafaxine),  paroxetine, Prozzac and Wellbrutrin.  The first day or 2 of trying the welbutrin gave me complete relief of those new symptoms, i felt 100% better, was a night to day comparison.  Unfortunately that left after 24 hours and never came back in my next 10 weeks on the drug regardless of doubling and 2.5x the dose.  

Honestly i'm no expert but after trying these various anti depressants for over a year i've convinced myself its not standard depression, i've had depression in the past many years ago and this just doesn't feel the same.  Not only that but from i understand about antidepressants is they work over a period of time so for me to be relieved 100% within an hour or so of taking it makes me feel it was more likely some sort of other chemical reaction unrelated to depression.

were you on wellbutrin by itself? or was it anadjunct to another antidepressant?

I just wanted to chime in that I've been taking 150mg wellbutrin for the past two or three years. This is a fairly low dosage. I feel like I have more energy while on the drug. I feel like my "lows" aren't quite as low. POIS-induced depression and mood swings are still a big problem for me, but the wellbutrin may have lessend them -- it's difficult to remember my pre-wellbutrin self.
Connor and Spence --> what dosage did you try?

i'm on 200. i think it's helping. i seem to recover faster at least.

Dopamine works supresive on the cytokines so it could make POIS easier to live with.
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13964 on: 09/07/2011 21:40:05 »



Quote from: Habibou on 09/07/2011 19:38:56

Demo, when was the last time you got Prof Waldinger through the phone?  [:)]


About one month ago.


« Last Edit: 10/07/2011 05:38:12 by demografx »
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Offline John21 (OP)

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13965 on: 09/07/2011 22:47:44 »
Victor I hope you don't get disgusted and leave us. I also welcome your input.
« Last Edit: 09/07/2011 22:51:44 by John21 »
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Offline victor.kons

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« Reply #13966 on: 09/07/2011 22:58:18 »
Quote from: Animus on 09/07/2011 19:38:04
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13967 on: 10/07/2011 00:34:33 »
Quote from: John21 on 09/07/2011 22:47:44

Victor I hope you don't get disgusted and leave us. I also welcome your input.


Thank you, John.

And thank you, Victor.
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Offline Animus

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13968 on: 10/07/2011 01:40:30 »
Quote from: victor.kons on 09/07/2011 22:58:18
Quote from: Animus on 09/07/2011 19:38:04
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor

OK, welcome to the forum. I hope you can shed some light on the benefits of XM & your experience. thanks
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Offline silverandcol

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13969 on: 10/07/2011 03:52:00 »
Yea lets not hate on Victor with zero evidence of anything lol. ^^
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Offline Animus

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13970 on: 10/07/2011 04:14:19 »
Quote from: demografx on 10/07/2011 02:34:43
Quote from: Animus on 10/07/2011 01:40:30
Quote from: victor.kons on 09/07/2011 22:58:18
Quote from: Animus on 09/07/2011 19:38:04
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor

OK, welcome to the forum. I hope you can shed some light on the benefits of XM & your experience. thanks


I also look forward to hearing about all your experiences. Sorry that the timing was bad with all the Dmitry confusion.

It seems that you have much to share of interest with us, Victor.

Thank you!

Yes, It's really just the last part of what I initially wrote which went a little too far. But thanks to Victor for responding to it anyway and showing his staying power.
I'm still a hard boiled skeptic, but I don't want to ban you! Sorry, Victor!
« Last Edit: 10/07/2011 04:21:29 by Animus »
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Offline demografx

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« Reply #13971 on: 10/07/2011 04:42:04 »

Thank you, silverandcol and Animus! Welcome again, Victor [:)]
« Last Edit: 10/07/2011 05:25:12 by demografx »
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Offline demografx

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« Reply #13972 on: 10/07/2011 05:58:47 »


Quote from: POIS-SUFFERER on 09/07/2011 01:39:11

My 2 cents worth :-)

XN seems to be very B3 related (Niacin), and my DR after much talking of my condition had stated that I should try taking B3. There are 2 kinds, one will make you very flush and one will not, he said to find the non-flush type.....

I had read someone talking about the Niacin and 5 hour energy giving someone an allergic reaction, this was not allergies, this is what the one form of Niacin does....

Anyway thought it was an interesting coincidence.

I am going to start taking my B3 and see....

PS.

mod edit - Niacin bold-enlarged-emphasis above is mine, demo






Holy Moly! After re-reading POIS-SUFFERER's post above, it suddenly hit me: my POIS has strangely but dramatically improved recently - 90% to 100% POIS relief, over my usual 80% relief with testosterone replacement therapy (TRT)...

At the same time, I also was recently put on NIASPANŽ (niacin extended-release tablets), 500 mg daily, for my cholesterol!

I hope this is real and not just a happy interlude!

Stay tuned!

Wow.

I was warned of a "flushing" side effect, and was advised to take uncoated 325 mg. aspirin 30 minutes before taking the NIASPANŽ, for the first few days so the body gets accustomed to it. I was told that many people quit this niacin therapy because of the flushing and possibly other adverse side-effects. Following my physician's directions, I tolerate it very well.

This is NOT a recommendation for you to try it, though I really hope this helps the forum's research! And - as always - work closely with your physician, and keep in mind that we are all different! What works for one person might not work for someone else. And could even be harmful.

« Last Edit: 10/07/2011 17:08:47 by demografx »
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Offline jivetalk

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« Reply #13973 on: 10/07/2011 06:49:26 »
Demo, That is Way to much of a coincidene.

It sounds like this niacin theory needs to be looked at further! I am very cautiously optimistic.

Thanks for sharing this lightbulb moment.
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Offline victor.kons

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13974 on: 10/07/2011 07:10:12 »
Quote from: Animus on 10/07/2011 01:40:30
OK, welcome to the forum. I hope you can shed some light on the benefits of XM & your experience. thanks

Thanks. I've posted my experience to the thread dedicated to XN here:
http://poiscenter.com/forums/index.php?topic=174.0

Victor
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Offline POIS-SUFFERER

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« Reply #13975 on: 10/07/2011 07:22:17 »
Quote from: demografx on 10/07/2011 05:58:47




Holy Moly! After re-reading POIS-SUFFERER's post above, it suddenly hit me: my POIS has strangely but dramatically improved recently - 90% to 100% POIS relief, over my usual 80% relief with testosterone replacement therapy (TRT)...

At the same time, I also was recently put on NIASPANŽ (niacin extended-release tablets), 500 mg daily, for my cholesterol!

I hope this is real and not just a happy interlude!

Stay tuned!



I wish I could remember why Niacin was told to me to try from DR, but it has something to do with bad digestion, stomach acid, she said I had a DAMP CORE? She is a holistic DR. From all my symptoms I gave her.... which are very much the same as many others on here.

PS.
« Last Edit: 10/07/2011 07:23:38 by demografx »
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Offline demografx

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« Reply #13976 on: 10/07/2011 07:33:29 »
Quote from: jivetalk on 10/07/2011 06:49:26

Demo, That is Way to much of a coincidene.

It sounds like this niacin theory needs to be looked at further! I am very cautiously optimistic.

Thanks for sharing this lightbulb moment.


Very exciting, JT!!
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Offline gabin

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« Reply #13977 on: 10/07/2011 09:35:57 »
Some time before POIS I was keen on boxing (6 trainings per week as a minimum) and for overall body support used this sports nutrition http://www.vitaminexpress.net/en/mineral-drinks/fit-active-l-carnitine-beutel/prod8479.html#productcontent vitamin supplement. It's rich in vitamins and minerals, and as I found recently (as I had no specific reason to pay attention to it before), contains ... niacin. I stopped using it about 2 months before POIS developed.
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Offline victor.kons

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« Reply #13978 on: 10/07/2011 10:05:20 »
Hi Gabin,

Quote from: gabin on 10/07/2011 09:35:57
Some time before POIS I was keen on boxing (6 trainings per week as a minimum) and for overall body support used this sports nutrition http://www.vitaminexpress.net/en/mineral-drinks/fit-active-l-carnitine-beutel/prod8479.html#productcontent vitamin supplement. It's rich in vitamins and minerals, and as I found recently (as I had no specific reason to pay attention to it before), contains ... niacin. I stopped using it about 2 months before POIS developed.

You wrote in the Syndrom-X blog that you've tried niacin acid and that it didn't have effect on POIS symptoms for you. Did you mean niacin acid in pills? And what was your doze?

Btw, nice to see you here :)

Victor
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Offline jivetalk

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« Reply #13979 on: 10/07/2011 10:20:12 »
Wow. Could our POIS be alleviated simply by taking a Niacin B3 Supplement?

Very exciting stuff. Thank you Victor and Gabin for adding your knowledge to these forums.
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