[Habibou]

I read an interesting article about the links between stress/food/neurotransmitters lack/auto immu illnesses/CSF...
http://jeanzin.fr/ecorevo/sciences/nutritio.htm (in french unfortunatly) I will ask a doctor and update about it 

[B_Daniel]

So, I have an appointment at the Johns Hopkins Headache Center in a few months.  I've been told it's among the best.  I'll be sure to provide an update on my treatment and any progress made.  Best of luck to all of you and we will find a cure soon! 

Good going Pharaoh! The more specialists we see the better

[Omen 30]

I have this strange feeling about morning orgasms,cardio exercise and pois....I started having morning orgasms which helped me a lot...on day 3 after morning orgasms I used to recover from pois...but since a week I have experienced this strange phenomenom I have started cardio exercise which makes my heart beat stronger...this cardio exercise has changed my recovery time after morning orgasms from 2 days to immediate...as soon as I orgasm I recover from pois...pls use this information in treating pois...I take no supplemnts no medicines...just normal food and a sedentary life...

[demografx]

POIS thread at Celiac Foundation:
(Our POIS video embedded)
http://blog.celiacdiseaseprevention.com/symptoms-of-celiac-disease/post-orgasmic-illness-syndrome/

[Pharaoh]

I'm curious as to how effective hyposensitization treatment has been for any of our fellow forum members. 

Habibou,
Didn't you have a skin ***** test?  Anything come out of that? 

[Habibou]

I stopped the SLIT because it was not effective (I guess because the semen was frozen and the protein I am allergic to dies during the processus...) So I will try Injections for desensibilisation because it has to be fresh semen. That is my explanation for this fail ...

N.B : I reacted to the skin p... test when it was fresh and I did not when it was frozen !

[ophicus1213]

I strongly suggest that anyone who gains some control over the condition with niacin, like myself and many others, invests time into researching Vitamin B-2 (Riboflavin).  End Game.  Riboflavin converts B6 into P5P, the active form.  It facilitates conversion of niacin from tryptophan, and the folate cycle requires riboflavin.  The creation of vital brain neurotransmitters rely on a healthy supply of bio-available active forms of vitamins naturally converted by the body. http://lpi.oregonstate.edu/infocenter/vitamins/fa/fadiag1.html [nofollow]

[ophicus1213]

And for those who are not familiar with NADPH and NADP they are coenzymes of Niacin.  http://www.google.com/imgres?um=1&hl=en&safe=off&biw=1024&bih=677&tbm=isch&tbnid=ihsFRpUqSUxSOM:&imgrefurl=http://www.autismpedia.org/wiki/index.php%3Ftitle%3DMethylationHypothesis&docid=A_qJs03Xrn1o4M&imgurl=http://www.autismpedia.org/wiki/images/d/da/Methylation-cycle.jpg&w=800&h=566&ei=JptET4bZOOH30gHY49z9Aw&zoom=1&iact=rc&dur=395&sig=101030000970512797821&page=1&tbnh=135&tbnw=191&start=0&ndsp=16&ved=0CFUQrQMwAw&tx=91&ty=94 [nofollow]

[demografx]

We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

Thank you, everyone!

[CertainlyPOIS]

We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

 that is a long time.
Congratulations everyone, lets keep working.

[Omen 30]

Morning orgasms used to work for me...they used to give me the needed spike in my system...but now it has stopped working for more than 2-3 days...after 2-3 days I again get the brain fog and lethargy...somebody please explain me why its happening...

[kurtosis]

We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.

[EDS]

Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.

How right you are, kurtosis.
We have the world's POIS symptom experts here!
Now let's put all of this knowledge to work for us with a world renowned scientific institution like NORD.
For all of us, but especially the younger members... think about how much more earning potential you will enjoy over a lifetime if we can beat this malady.

Everyone! Please pledge or donate to OUR FUND with NORD today!!

[demografx]

Everyone! Please pledge or donate to OUR FUND with NORD today!! CLICK HERE!

Thank you, EDS! We still have time to make 2012 count!

[demografx]

We just passed February 18, our

5th Year Anniversary
Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.

Thank you, kurtosis!

[demografx]

Click here for Stefanie's ("nordnurse" at POIS forums) article on Rare Disease Day!

http://www.amylinbuildingblocks.com/index.php/2012/rare-disease-day-2012-a-time-to-reflect-on-how-far-weve-come/

[Vincent M]

In the past weeks I've done two experiments with treatments discussed in the past on this forum.
One was with nutmeg(know that nutmeg can cause death if too much is eaten)
and one was with phosphatidylserine. Neither treatment proved to be optimal and
since I ceased my other treatments and since I wanted to find out exactly how long each dose would last
I unfortunately had to endure some of my past unpleasant POIS symptoms. But it was worth it as I
discovered that both of these treatments are able to relieve some of my symptoms in a way that will
be useful to me in the future.

I discovered that taking 1/2 a teaspoon of ground nutmeg in the morning protects me from much of my
physical POIS symptoms for 2-3 days even if I have more than one "o" per day, but the nutmeg leaves
me sort of cognitively sedated which makes complex thinking more difficult and it also seems to make me
less motivated to do anything requiring any thinking at all. In the future I'll try taking a smaller dose to see
if I can get the physical symptom reduction without the mental sedation. Of course keep in mind that
nutmeg is dangerous in higher doses such as those exceeding about 30 grams. Originally I was testing
nutmeg for any anxiolytic effect it may have and I ate 3 whole nutmegs which I guessed was around
20 to 25 grams and it just made me pretty nauseous for the afternoon into the night. Again,
remember that nutmeg can be fatal in higher doses:http://nutmeghigh.com/?p=858

In my experiment with phosphatidylserine I used a single 500mg Source Naturals brand capsule taken at
night. I found that this supplement relieved more of my cognitive POIS than any other of my treatments
has and it enhanced my cognitive ability in such a way that I was able to think much more quickly and the
act of thinking itself ceased to become difficult and actually became enjoyable. I've taken maybe 10
capsules so far and have found that unfortunately they don't protect me from enough physical POIS to
replace my other treatments. The benefit they provide lasts for about 3 days with multiple "o"s per day.

I'm still in sort of a POIS haze right now as I've temporarily lost my sleep schedule and discipline to avoid
masturbation due to allowing full blown POIS to come back for a bit so I'll likely elaborate upon this post
in the coming days and weeks when I'm back on track.

I'll definitely be adding phosphatidylserine to my other current treatments and will report back on how
I feel with everything put together.

[demografx]

Thanks very much for the caveats about nutmeg, Vincent Marcus!

[Pharaoh]

demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.

[kurtosis]

Re. Phosphatidyl Serine. In terms of efficacy on cognitive function, bovine would probably be the highest concentration but there are health risks associated with this. Fish like herring and mackerel contain high amounts of it. AFAIK there's some in Krill oil capsules too as its naturally occurring in KO and the astaxanthin prevents the oil from going rancid. I'm unsure about levels in triglyceride form fish oils.
But fish sourced PS seems to be just as good as bovine sourced. http://www.ncbi.nlm.nih.gov/pubmed/20677367
Is anyone else trying Krill Oil as the smoothie+KO combination is really working for me?