[fidalgo]

I tried to contact [Waldinger], but was not successful.

A common complaint.

Could somebody send [Waldinger] papers to my email address?

Sent.

Could you sent to my email too?
Thanks

[observercenter]

Yesterday-night I took 150 mg of niacine 1 hour before 'O' by following the procedures described here.
I couldn't get back to sleep because of this burning feeling in my neck and upper back.
Does anyone experience this same burning feeling in the back which lasts a couple of hours after 'O'?

Wow! Couple of hours of flushing it is very rare, specially if we take into account that you have taken only 150 mg. I wonder if it was your first session with niacin? I suggest you to build up your tolerance to niacin; next time you should try a lower dose and then begin to build up from there.
Also, did the niacin prevented your POIS, or at least, did you notice an improvement?

[meteo74]

HI ALL
The reason of this Illness is related to hand masturbating,that was the reason for me, (I want to ask every sufferer that if he was doing hand masturbating and if he agree with me?).

If we tell this to doctors,then it will help them to solve this problem.
-nowadays if I have O. with my wife ,I will suffer from the symptoms.
but if I do hand masturbating then the symptoms will be violent and it will take
more days to go.

please,I want a reply ..

[littledragon]

Yesterday-night I took 150 mg of niacine 1 hour before 'O' by following the procedures described here.
I couldn't get back to sleep because of this burning feeling in my neck and upper back.
Does anyone experience this same burning feeling in the back which lasts a couple of hours after 'O'?

Wow! Couple of hours of flushing it is very rare, specially if we take into account that you have taken only 150 mg. I wonder if it was your first session with niacin? I suggest you to build up your tolerance to niacin; next time you should try a lower dose and then begin to build up from there.
Also, did the niacin prevented your POIS, or at least, did you notice an improvement?

It was my 2nd session with niacin and this burning feeling after 'O' felt different than when getting the flush with niacin.
With the flush I only experience warmth in my head like many of us do here.
Normally when I have an 'O' without niacin, I get the same burning feeling only much worse and through my entire body followed by extreme fatigue.
This time it felt like if my P.O.I.S. was partially blocked by the niacin and somehow got stuck at my back (I know, it sounds very silly) but I had no fatigue
The next day I felt like I only had 50% of P.O.I.S. so yes there was an improvement

I have to mention that I'm also having a burnout since October last year and my main symptoms are a very stiff neck and concentration problems

[boobay]

I masterbated EVERYDAY last week in order to test if the POIS-like symptoms show up again.
Fortunately, the answer is no.
All I feel is sleepy after ejaculation. But that's not a bad feeling.

My tips:
Don't feel stressful about the future and breath heavily while ejaculating.

I am 21 years old. I have POIS-like symptoms since puberty.

After discovering the term POIS last night, I also discovered the term Somatization Disorder.
I believe the symptoms of POIS and Somatization Disorder are similar.
I tried to solve Somatization Disorder, I ended up eliminate my POIS-like symptoms last night by doing two things.

(1) Physically: I breathe heavily while ejaculating.
(2) Mentally: I finished the first part of Mood Gym. newbielink:http://moodgym.anu.edu.au/welcome [nonactive]

Maybe you can try this.

[nathan123]

Hi any body has addicted to any long term drug before some time back before pois started. The question why i am asking is i seen information that if we addicted to excessive use of drug for long time , it wil decline the power of our nuero transmitter and the functions of brain. I was suffered from asthama from 15 to 20 years, i have taken excessive use of theo-asthlyn forte for 5 years. And pois start from 18 years. this drug has severe long term effects such as nervousness, nuerotransmitter imbalance and other weaken in brain problems. What are your views on this. Are you also has made excessive use of any drugs before pois started.

[Starsky]

HI ALL
The reason of this Illness is related to hand masturbating,that was the reason for me, (I want to ask every sufferer that if he was doing hand masturbating and if he agree with me?).

If we tell this to doctors,then it will help them to solve this problem.
-nowadays if I have O. with my wife ,I will suffer from the symptoms.
but if I do hand masturbating then the symptoms will be violent and it will take
more days to go.

please,I want a reply ..

Many of sufferers were talking about this. My theory is the histamine released during the orgasm works like a antidopamine agent. The more dopamine ( more pleasurable, more sattisfied sex ) you release while having sex the less impact on your body will have histamine.

[victor.kons]

Hi Starsky,

HI ALL
The reason of this Illness is related to hand masturbating,that was the reason for me, (I want to ask every sufferer that if he was doing hand masturbating and if he agree with me?).

If we tell this to doctors,then it will help them to solve this problem.
-nowadays if I have O. with my wife ,I will suffer from the symptoms.
but if I do hand masturbating then the symptoms will be violent and it will take
more days to go.

please,I want a reply ..

Many of sufferers were talking about this. My theory is the histamine released during the orgasm works like a antidopamine agent. The more dopamine ( more pleasurable, more sattisfied sex ) you release while having sex the less impact on your body will have histamine.

Your theory makes much sense to me. Because I have a relief not only with Niacin, but also had a relief with Eglonil too, which is a dopamine-blocker. I think the body of POIS sufferes releases too much histamine in response to dopamine. Thats why blocking histamine or blocking dopamine should generally result in relief!

Long abstinence results in less symptoms because sex is more pleasurable and the body releases much dopamine and hence there will be less free histamine after O. Sex without pleasure (dry ejaculation) results in virtually no dopamine release and hence no histamine release => no POIS symptoms. At the same time arousal might produce light symptoms, because dopamine is released (if it is released, I had POIS symptoms after arousal in my teens because it resulted in pleasurable feeling, but right now arousal is not as pleasurable and I have no POIS symptoms at all). Noctural emissions might produce light or heavy symptoms too - depending on how much dopamine is released, this might depend on the person, some could have virtually no symptoms, because little dopamine is released and some could have full blown POIS, because they had serious dopamine release.

This reasoning leads to another Paradox. POIS sufferers should generally respond well to strong anti-psychotic medications, because many of them are dopamine blockers. And hence psychosomatic theory, while being wrong, might look trustworthy, because the treatment can result in a relief!

Please do not try any of the listed medications on yourself without consulting with your doctor first. Eglonil is a med with huge side effects, it is really dangerous to take it without doctor's prescription.

Victor

[kurtosis]

Good Night people,
At first I want to ask sorry for my bad english... I am brasilian.

Yesterday I discover this Forum. You couldn't Know my happiness after that. I'm suffering about POIS about five years. When start I stay a lot of time in the internet looking for what could be because all the doctors said that what I have doesn't exist. And now I have the certainty that I'm not alone in the world.

I read some post in the Forum about what can be used to improve our POIS but I don't know if you are in a best ou worst position than me. My POIS start five years ago, when I was 20 years. My two first years I couldn't live. I stay all the time in my home and I always feel terrible and with the sensation I couldn't control my acts. Because the doctors said that my disease doesn't exist, I didn't explain my problem to the doctors. In some times even I think my problem must be other. So I went in a lot of throat specialistm because I have always sore throat because of POIS. And then, after I use a lot of anti-allergics, I found one that change my life. My POIS didn't over, I cotinue with a lot of sore throat, but the medicinal improve a lot my POIS. I ejaculate at the night, I use the medician, I have the symptoms of POSI, but in the next morning, after I get up, I have almost no symptoms.

The name the medicinal in Brasil is Nasonex (I don't Know if in other countries have the same name). The active substance is Mometasona.

I don't know if my improve in symptons is bigger than yours with other medicinal, but I think you must try.

Other thing: I want try other things with nasonex, because I always have sore throat, what do you think is the best you tried? I like the ideia of patches of testorene because it seem to me two tottally differents ways of improve symtoms e may be adittionals... What do you think?

Other time: Sorry for my english...

Hi, Did you have chronic sinusitis? Have you had allergy testing?
I have  a lot of allergies and nasonex is just one of several sinus medications I've tried. None has brought about total relief but they do make a difference.

But your allergis has relations with POIS? I had a little cronic sinusis but I only have symptoms after ejaculate. And I had never noticed nothing before POIS. I think some noise allergy and cronic sinusis has relations with POIS .. Allergies I just have some little ones...

I think POIS relates to allergies rather than the other way around. I believe POIS is an allergic reaction and just one of many that I experience. One of which is chronic sinusitis. I'm not sure why I suffer from these. I have some theories.

[GoingCrazy]

Hey guys, I don't want to sound like I found the cure for POIS (possibly), but I just wanted to let people know what has been helping me enormously the past couple of weeks.  I can say now that I have completely not suffered from POIS my past 3 sessions.  My last "session"   I O'd 7 times to see if I can feel the bad affects of POIS, but I have failed to feel any except peace, calmness and relaxation...  Something that I have not felt within the past 6 years.  This treatment has definitely been a breakthrough for me, I am not guaranteeing that it will work for anybody else, but I will still talk about it and am definitely not going to keep it in the dark.  I will explain what I have been doing the past couple of months to give you an overview of what I think has possibly cured my POIS.

About a few months ago I started taking claritin (just keep reading) 24 hour every day before I went to bed.  This has helped my POIS, but did not cure it, as I still definitely felt POIS, but to a tolerable degree.  It did help me sleep, about 50% better, but I obviously still didn't feel normal.  About a month into my treatment, I added vitamin C to the mix.  I started off taking 1500 milligrams each morning, but I later changed the dosage.  After taking Vitamin C (about 3 weeks into it), I noticed a strange headache that actually wasn't in my head, like it actually did not exist.  I used to always have a single ache or pressure in my head that would move around, day 1 of pois or day 9, it was always there.  One day while on this vitamin C treatment, about a month into the process, the pressure in my head suddenly vanished.  But this was not what I actually think cured my POIS  (I know, very very skeptical statement there as POIS is incurable right?)  My headache was gone, but I still had trouble sleeping, and the other psychological symptoms were still there.  I still had sort of a restless anxiety, or POIS anxiety due to nothing except this POIS disease.  Not a thought problem.  An "imbalance" problem.  I can say day by day my other symptoms of POIS have gotten a little bit better.  So I thought to myself, why is vitamin C working for you?  What does it do? Answering: boost the immune system.  So then I went on and on about how how I could possibly have some sort of disease or something in my brain...lol...that doesn't seem like a untruthful statement now.  After researching vitamin C and discovering that it has been known as a bactericide, fungicide, etc.  my rediculous self started researching about lyme disease because that is always in the back of my mind... thinking that I am infected with a disease that I don't even know.  So I decided to get rid of the claritin and keep the vitamin C, but add something to it.  That something is Sea salt.  My rediculous self decided to treat my rediculous self for "lyme disease" (POIS) with Vitamin C and Sea Salt...(The one-two punch for lyme = the one-two punch for POIS?)  I am not saying that I have lyme disease, I am saying that the same treatment people use for Lyme disease could possibly be the same thing to fight or even possibly cure my POIS.  Go to this webpage.

http://www.lymephotos.com/

It says to take about 3 grams of sea salt and 3,000 mg of vitamin C per dose, 4 doses every day.  I am having success 1/2 teaspoon of sea salt and 1,000 mg vitamin C per dose, twice a day.  The reason why I think that this has possibly cured my POIS is because all of my psychological symptoms are gone.  I felt this stuff get to work the 1st day I used it.  I also sleep sooo well without taking any sleeping pills or drugs or anything, literally the first day I used it I slept very well.  Like Leo said how he feels symptoms while playing video games, I used to have that but now that is totally gone.  I used to have a bad reaction to sugary foods, yesterday I had a whole BAG of starburst and felt literally great.  I also have not felt POIS after 7 O's (in one session), no psychological problems or anything.  I O'd those seven times yesterday night, stayed up until 2:30 am because I wanted to and today I had to work at 11:30 and felt completely normal and happy (Day 1 POIS, especially after O'ing 7 times used to be such a horrible experience)  Every single day I wake up feeling better and better.  I actually don't know about that statement because I don't think I can actually feel any better.

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out

[GoingCrazy]

I forgot to mention, if anybody does decide to do this, be sure to drink plenty of water.

P.S.  I just O'd again and no symptoms.  I did my 1/2 tsp sea salt with vitamin C protocol and didn't drink enough water.  I literally felt the salt in my saliva.  At least drink 3 glasses of water afterwards because it could really freak your body out.

[kurtosis]

Hey guys, I don't want to sound like I found the cure for POIS (possibly), but I just wanted to let people know what has been helping me enormously the past couple of weeks.  I can say now that I have completely not suffered from POIS my past 3 sessions.  My last "session"   I O'd 7 times to see if I can feel the bad affects of POIS, but I have failed to feel any except peace, calmness and relaxation...  Something that I have not felt within the past 6 years.  This treatment has definitely been a breakthrough for me, I am not guaranteeing that it will work for anybody else, but I will still talk about it and am definitely not going to keep it in the dark.  I will explain what I have been doing the past couple of months to give you an overview of what I think has possibly cured my POIS.

About a few months ago I started taking claritin (just keep reading) 24 hour every day before I went to bed.  This has helped my POIS, but did not cure it, as I still definitely felt POIS, but to a tolerable degree.  It did help me sleep, about 50% better, but I obviously still didn't feel normal.  About a month into my treatment, I added vitamin C to the mix.  I started off taking 1500 milligrams each morning, but I later changed the dosage.  After taking Vitamin C (about 3 weeks into it), I noticed a strange headache that actually wasn't in my head, like it actually did not exist.  I used to always have a single ache or pressure in my head that would move around, day 1 of pois or day 9, it was always there.  One day while on this vitamin C treatment, about a month into the process, the pressure in my head suddenly vanished.  But this was not what I actually think cured my POIS  (I know, very very skeptical statement there as POIS is incurable right?)  My headache was gone, but I still had trouble sleeping, and the other psychological symptoms were still there.  I still had sort of a restless anxiety, or POIS anxiety due to nothing except this POIS disease.  Not a thought problem.  An "imbalance" problem.  I can say day by day my other symptoms of POIS have gotten a little bit better.  So I thought to myself, why is vitamin C working for you?  What does it do? Answering: boost the immune system.  So then I went on and on about how how I could possibly have some sort of disease or something in my brain...lol...that doesn't seem like a untruthful statement now.  After researching vitamin C and discovering that it has been known as a bactericide, fungicide, etc.  my rediculous self started researching about lyme disease because that is always in the back of my mind... thinking that I am infected with a disease that I don't even know.  So I decided to get rid of the claritin and keep the vitamin C, but add something to it.  That something is Sea salt.  My rediculous self decided to treat my rediculous self for "lyme disease" (POIS) with Vitamin C and Sea Salt...(The one-two punch for lyme = the one-two punch for POIS?)  I am not saying that I have lyme disease, I am saying that the same treatment people use for Lyme disease could possibly be the same thing to fight or even possibly cure my POIS.  Go to this webpage.

http://www.lymephotos.com/

It says to take about 3 grams of sea salt and 3,000 mg of vitamin C per dose, 4 doses every day.  I am having success 1/2 teaspoon of sea salt and 1,000 mg vitamin C per dose, twice a day.  The reason why I think that this has possibly cured my POIS is because all of my psychological symptoms are gone.  I felt this stuff get to work the 1st day I used it.  I also sleep sooo well without taking any sleeping pills or drugs or anything, literally the first day I used it I slept very well.  Like Leo said how he feels symptoms while playing video games, I used to have that but now that is totally gone.  I used to have a bad reaction to sugary foods, yesterday I had a whole BAG of starburst and felt literally great.  I also have not felt POIS after 7 O's (in one session), no psychological problems or anything.  I O'd those seven times yesterday night, stayed up until 2:30 am because I wanted to and today I had to work at 11:30 and felt completely normal and happy (Day 1 POIS, especially after O'ing 7 times used to be such a horrible experience)  Every single day I wake up feeling better and better.  I actually don't know about that statement because I don't think I can actually feel any better.

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out

I can well believe it. Zinc, b6, electrolytes & vitamin C have helped me get over much of my POIS symptoms. I think JFerr has also had some success with these supplements also. Oddly enough, I found that the "power c" vitamin water was a good stop-gap when I was on holidays.

[observercenter]

I forgot to mention, if anybody does decide to do this, be sure to drink plenty of water.

P.S.  I just O'd again and no symptoms.  I did my 1/2 tsp sea salt with vitamin C protocol and didn't drink enough water.  I literally felt the salt in my saliva.  At least drink 3 glasses of water afterwards because it could really freak your body out.

You say very interesting things, GoingCrazy. I agree with you on the effect of sugary foods, they literally crippled my mind when i was on POIS(And shockingly, they could did it even 8-9 days after an ejaculation when i was feeling without POIS!!). I think i was obsessed with sugar foods after i discovered this forum and began to realize the devastating effect they were having on my mind. But with niacin this does not matter anymore. It doesn´t matter if i eat tons of sugar after an O., my mind would be okay, so maybe your treatment with Vitamin C and Sea Salt is blocking the POIS from occur in a similar fashion.

On the other hand, Do you really think that you could have Lyme disease? - But if that were the case, would your treatment help to get rid of this condition once for all or are you going to continue to take it every day?

 I have taken a look on this condition, which create symptoms that are very similar to POIS and i have found this:

http://www.healingwell.com/community/default.aspx?f=30&m=1255322 - One guy suffering from Lyme disease strongly recommends the use of niacin.

My conclusion from what i´ve read(take it with a grain of salt) is that these conditions are creating an auto-inmune response from the organism, and the crippling effects are very similar, so maybe they act in a similar way (POIS, lyme, candida and so on), though the etiology is completely different. Just food for thought ^^.

Edit: Links about sea salt being an anti-histamine :

http://www.health-benefit-of-water.com/sea-salt.html#axzz1sfyfSSd8

Edit 2: Well, this link is very interesting, as it talks about garlic, blueberries, fruits, vegetables, sweet potatoes, vitamin C, sea salt, essential fatty acids like Omega-3 ...as a method to combat allergies(anti-inflammatory activity, anti-histamine reaction). Probably this has been talked about, but i find it interesting as all of those remedies are effective against POIS symptoms.

http://www.mcvitamins.com/allergies.htm

[meteo74]

Hi GoingCrazy

1500mg or 3000mg of vitamine C per dose,it is so big ratio,isn't it ?.
have you ask doctors if it is safe to take this amount of vitamine c?
in the web I found that the safe amount of daily v. c is 100mg!
and I wanted to know how long (year)did you suffer from pois?
can I add the sea solt to the juice?
thank you..

[kurtosis]

Hi GoingCrazy

1500mg or 3000mg of vitamine C per dose,it is so big ratio,isn't it ?.
have you ask doctors if it is safe to take this amount of vitamine c?
in the web I found that the safe amount of daily v. c is 100mg!
and I wanted to know how long (year)did you suffer from pois?
can I add the sea solt to the juice?
thank you..

That's an Recommend Daily Allowance. That does not mean that it's "safe" or that more than that is not "safe". Actually, all it really means is that if your intake is less than that over a prolonged period you will develop scurvy, in the opinion of a committee of doctor's, health professional (and lobbyists ;-)). That's not the same as setting a safe upper limit on the consumption of vitamin C. There's also the popular "kidney stones" myth. This hasn't been verified by large sample study, in women anyway. See http://jasn.asnjournals.org/content/10/4/840.abstract

[Vasian1980]

Someone has candida?

[janiv]

Very interesting, well done GoingCrazy ! Hope you've found your cure to your POIS.

From my experience with POIS, I remember that whenever I was going to the beach while I was in POIS state, that environment always helped me to feel better mentaly and physically.
I tried to figure why, and I thought it is because the salty water, the sea water that may have the positive affect on POIS.
I do not know... but there might be something with salt.

Anyways, your results are encouraging, as you mentioned - the affect is immidiate,  Therefore, soon we'll see if there are more people who find that treatment succesful.

Again,  to whom that is willing to try it, please be cautious !

Good Luck !

[Vincent M]

I've actually been feeling better the past couple days as I've added some other treatments to my regimen and perhaps the couple weeks I spent off my feet helped as well. Last night I took 300mg of niacin, had a flush, had a good night's sleep and today I was able to do some hard exercise even a bit of sprinting. The hard exercise always lessens my symptoms if I'm in good enough shape to do it and so does getting outside in the sun and breathing fresh air. It's starting to look like I may be able to stabilize my POIS with my current treatment regimen, but I did still have some very minor knee pain later on today after my body had cooled down so I'm not sure if I'm out of the woods yet. Otherwise I'm feeling stable as of this moment.

The other treatments I've added include vitamin D3, ground tumeric powder, home grown cayenne peppers, honey, and SLIT every night with fresh semen slightly diluted with water. Also when I masturbate I now do it to women I have an actual love interest in instead of watching porn so that at the time of orgasm I'm feeling as much love as possible, which I hope may somehow reduce any stress that may creep in just after ejaculation when my body is most vulnerable to it. In addition I've been snorting salt water to clear my sinuses before I exercise and it seems to help me breath easier and after exercising around 3pm today I took a one hour nap combined with meditation, which I intend to continue every day from now on. At bedtime to help myself fall asleep I allow my mind to enter a fantasy world of my creation instead of trying to clear my mind completely as I've attempted in the past. Entering this fantasy world works well to reach sleep quickly and as I've taken up writing I've now begun writing a story based on elements of my fantasy world. Working on this story helps me achieve some sense of accomplishment and is a better use of my time than playing videogames and watching tv.

It's too early to tell what new treatments are actually helping me, but certainly either some of them are helping or the time I spent off my feet helped and just the time I spent healing from the damage that I now believe was due to either the effexor, betain hcl, or klonopin.

Oh I forgot I also keep my body as warm as possible at all times especially at the time of orgasm, which involves wearing extra warm clothing. And also the summer weather seems to have helped me. So many variables...

[demografx]

Please do not try any of the listed medications on yourself without consulting with your doctor first. Eglonil is a med with huge side effects, it is really dangerous to take it without doctor's prescription.

Thank you for the caveats, Victor!

[jferr]

Very interesting, GoingCrazy. When do you take the sea salt?

Guys, I often have a burning sensation in my head which seems to coincide with a sort of dizziness and weakness. Does anyone else have these symptoms?