[Hoping]

Observer wrote:

"I have no shame. Sex is another dimension of the human life and POIS is not our fault.  We deserve to be treated like every other human and we have the right to ask for a research."

You are so, totally correct, Observer!!!  POIS is slowly coming out of that dark closet -- because of people like Animus and you! You're a hero to a lot of people!!!!
 
Can't wait to read that article!!!  Perhaps NORD can include a link to it on our FB and Twitter pages -- and who knows what else. (We'd only do this with your and Hoping's consent.)  Anything that will raise awareness -- and maybe bring in more funds for your grant -- is the goal.

Just think of the countless men you'll be helping by coming forward!

Break a leg this weekend, Observer and Hoping!!!!!

Stef

Honestly, I'd like to have a look at the video/article before I commit to putting it on the page. I like the idea though. What do you think about contacting El Mundo and putting the NORD link up with the video and online article?? That could be great for getting people to donate. Unfortunately, I'm not going to be able to check the forum for the rest of the day (going to be at work). Observer, what do you think of the idea? Are you able to contact El Mundo and ask them to include the NORD link since I won't be around today?

[observercenter]

Observer wrote:

"I have no shame. Sex is another dimension of the human life and POIS is not our fault.  We deserve to be treated like every other human and we have the right to ask for a research."

You are so, totally correct, Observer!!!  POIS is slowly coming out of that dark closet -- because of people like Animus and you! You're a hero to a lot of people!!!!
 
Can't wait to read that article!!!  Perhaps NORD can include a link to it on our FB and Twitter pages -- and who knows what else. (We'd only do this with your and Hoping's consent.)  Anything that will raise awareness -- and maybe bring in more funds for your grant -- is the goal.

Just think of the countless men you'll be helping by coming forward!

Break a leg this weekend, Observer and Hoping!!!!!

Stef

Honestly, I'd like to have a look at the video/article before I commit to putting it on the page. I like the idea though. What do you think about contacting El Mundo and putting the NORD link up with the video and online article?? That could be great for getting people to donate. Unfortunately, I'm not going to be able to check the forum for the rest of the day (going to be at work). Observer, what do you think of the idea? Are you able to contact El Mundo and ask them to include the NORD link since I won't be around today?

Great Hoping! I am sure you did the interview very well. Thank you very much for joining me .

Don´t worry about the NORD link. I have made an appeal to the readers to contribute to the NORD to "end this nightmare"(In fact, they have chosen "The Orgasm nightmare" as the title of the article), and the link is embeded in the article. We have to wait and hope for the best!

Good luck!

[demografx]

The El Mundo article is now published! [click here]
 

Or you can click here for the El Mundo article Google-translated into English.

[demografx]

Hi everyone. Sorry I haven't been to the forum lately. I did the El Mundo phone interview for the article a couple days ago and also did a video/skype interview with them this morning which they are going to post on the website along with Victor's video on Saturday. My Spanish is a little rusty, but I felt pretty good about it afterwards. I mainly talked about symptoms and treatments I've tried. I also talked about the social stigma and how upsetting it is when doctors look at you like you're crazy. I stressed that I enjoy a healthy sex life and the condition is very physical (not some psychological complex). I was nervous to do the video, but I'm tired of being nervous about going public and putting a face to the disease!
Thanks observercenter for putting me in touch with them. El Mundo was very respectful. Can't wait to see the article tomorrow (Saturday).

HOPING: THANK YOU VERY MUCH FOR THIS!!!

[demografx]

[El Mundo] has chosen "The Orgasm nightmare" as the title of the article.

Excellent title!

"La pesadilla de un orgasmo" is the Google English-to-Spanish translation.

(Sorry, Observer, if that is poorly translated. Google is very "automated")

[demografx]

Thank you again, ObserverC! I see u and Demo as 2 ppl that have your pois under control, and also 2 ppl pulling the most strings and doing so much for us. It shows your true colors because now that youre better you dont have as much incentive to remain engaged with the forum, yet you stay to help. Also, it shows how much u can accomplish when pois is at bay.

Thank you, B_Daniel!

And thank you DAVEMAN for helping demografx to be more productive than he ever dreamed possible!!!!!

[demografx]

I re-posted the above plea for The POIS Fund,  in case we have some wonderful visitors here from Spain this weekend.

Muchas Gracias, España!

[demografx]

EL MUNDO.ES newspaper: 1.3 million readers per day.

To give you a comparable size newspaper, THE NEW YORK TIMES has a daily international circulation of 1.4 million.

[0002ppdnuos]

Unfortunately, too much of Vit-C caused me diarrhea, and too much of high-calcium milk caused me sleepy all day long.
So, I now cut down on Vit-C, only take it when I feel the need. Also, I'll only drink one glass of milk at night before I go to bed.

Besides, I took two doses of Relora, and it made me really feel bad.
I felt a kind of pressure/uneasiness in the stomach.
I'd decided to stop using it, at least for now.

Today, I started eating two cloves of crunched garlic in the morning, it helps as usual, not completely though. I chewed it in my mouth, and oh my god it's really hot. How does everyone bear with the heat? I'm not sure if I can handle another two cloves tomorrow.

I recalled when I was young, my mom cooked mushroom chicken with garlic, I felt much better after eating. Since then, garlic has become my favorite food. Then, I wasn't sure that it is the garlic.

I'll buy some fenugreek too, since many said it's better to pair fenugreek with garlic.
Way to go~ everybody.

[observercenter]

http://www.elmundo.es/elmundosalud/2012/05/18/noticias/1337359570.html

The article has been published and is in the top of the web-page!!

Muchas gracias a España y a los lectores de El Mundo por vuestra ayuda (Yo soy Víctor).

[victor.kons]

http://www.elmundo.es/elmundosalud/2012/05/18/noticias/1337359570.html

The article has been published and is in the top of the web-page!!

Muchas gracias a España y a los lectores de El Mundo por vuestra ayuda (Yo soy Víctor).

Congratulations, Victor, David and Michael! Another huge step forward for all the POIS community! Thank you so much!

[santi]

I just read the article in El mundo and let me say my opinion on the issue - I am not a psychologist nor an expert in anything, but like to speak out my opinion.
One of the biggest enemy for personal happiness is sexual frustration.
I believe sex is a much more delicate experience - we macho tend to think.
Paradoxically you can be frustrated both because you masturbate (somehow you can believe you are not able to get a woman) or even if you have sexual intercourse with a girl.
The hype coming out of this second case, can leave a sense of guilt which roots in having (finally) procreated - but abandoning the child. Unless she is your girlfriend, you trust each other and you would be willing to keep a child - which makes sex very pleasant.
If you have sex with a woman to have a baby - scary as it could be for many - this is simply recognising what you are doing. Most of us - I believe - cannot cheat our own judgement in this aspect.
Going for children fix many disturbs we are not even aware of - maybe POIS too
It does not make a better society, sending youngsters (and other) so much explicit stimulation as we nowadays have - but youngsters can protect themselves by finding good friends, love and dedicate most efforts to building their own future as parents and spouses

[observercenter]

We are the most read/popular article right now!!!

[kurtosis]

Unfortunately, too much of Vit-C caused me diarrhea, and too much of high-calcium milk caused me sleepy all day long.
So, I now cut down on Vit-C, only take it when I feel the need. Also, I'll only drink one glass of milk at night before I go to bed.

I found the diarrhoea went away after a while. I took a few days to flush out (literally) my system and then I could take more vit c.  I'm holding firm (no pun intended at around 2.5g / day with some effervescent electrolytes added and doing very well on it. The trick, I've found, is to take the 2-3g over 3 drinks during the day.  If I try to take it all at once it gives me stomach cramps but spreading it out helps keep me topped up and energetic. I take some spirulina capsules also and this gives another boost. It's difficult to describe how much better I'm feeling since I started doing this but a colleague commented that I've "come alive" which seems very positive!

Congrats to all on the El Mundo article. It helps give POIS legitimacy for other sufferers who'd like to explain what's happening to their doctors.

[demografx]

We are the most read/popular article right now!!!

!!!!!!!!! Yea!!!!!!!!

[demografx]

http://www.elmundo.es/elmundosalud/2012/05/18/noticias/1337359570.html

The article has been published and is in the top of the web-page!!

Muchas gracias a España y a los lectores de El Mundo por vuestra ayuda (Yo soy Víctor).

Congratulations, Victor, David and Michael! Another huge step forward for all the POIS community! Thank you so much!

Huge step forward, Victor K., yes!

Thank you, everyone.

[demografx]

http://www.elmundo.es/elmundosalud/2012/05/18/noticias/1337359570.html

The article has been published and is at the top of the web-page!!

Muchas gracias a España y a los lectores de El Mundo por vuestra ayuda (Yo soy Víctor).

Click here for the El Mundo article Google-translated into English! 

MANY THANKS TO SPAIN AND THE READERS OF EL MUNDO FOR YOUR HELP!

[Habibou]

Maravilloso, Viva España !!!

[demografx]

Si, Habibou!!

[0002ppdnuos]

I found the diarrhoea went away after a while. I took a few days to flush out (literally) my system and then I could take more vit c.  I'm holding firm (no pun intended at around 2.5g / day with some effervescent electrolytes added and doing very well on it. The trick, I've found, is to take the 2-3g over 3 drinks during the day.  If I try to take it all at once it gives me stomach cramps but spreading it out helps keep me topped up and energetic. I take some spirulina capsules also and this gives another boost. It's difficult to describe how much better I'm feeling since I started doing this but a colleague commented that I've "come alive" which seems very positive!

Thanks for the experience sharing, kurtosis.
But, could you tell what 'effervescent electrolytes' is?

Today, I topped my toast with margarine and garlic minces, the garlic cloves work really well for me, I mean whole day long, especially on my stomach.
Weird enough, when I feel good in my abdomen, I feel better in my brain, and sleep better at night. They seems all interrelated. Again, the symptoms do not disappear completely.