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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16620 on: 30/05/2012 00:34:22 »
Quote from: fidalgo on 28/05/2012 15:24:04
Dou you have something like that? Have some women told you that you ejaculate too high, far, strong?

I notice if I go 2, 3, or more days without ejaculating then my orgasm will be more powerful and my ejaculate will go much farther. I think that's how it works for most people though.
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Taking ginger tea, fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.
 



Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16621 on: 30/05/2012 02:21:09 »
macclosed, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
   


Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16622 on: 30/05/2012 02:32:52 »
Quote from: Habibou on 29/05/2012 22:56:26
Quote from: tatvamasi on 29/05/2012 17:01:22
Hey Friends .. I have been digging into this problem ... for quite sometime... I had Pois effects very
hard on me... brainfog,burning eye, couldnt speak fluently,lack of will power and confidence and cleared not until 4-5 days after o.... untill six months back. I have been trying
different stuff( niacin,xanithol...) but nothing worked. Finally by Gods grace, I found this Lady in florida, who worked on me and cleared over the phone for last six months .. symptoms would last only for one day( max) sometimes I used to get cleared immediately when I called her twice. I am not sure about indepth
what she does... but she is alternative medicine and intuitive energy healer, where she works with eav(electro acupuncture screening )  and
electro dermal screening ...I finally visited her yesterday ( I am from chicago) ... she said there was some
poison from pesticides that was causing all these hormonal and pois effects..She screened and removed that poison thru EAV ( I guess , didnt want to ask anything ) .... I was feeling very good since last two days. Today I ejaculated and noticed there is lot of difference in reduced(almost nothing ..except slight red eyes) degree of pois effects..

I wanted to share ... so that you guys can try and see .. she is not really expensive ( charges 3-5 dollars for a minute..which should be enough for most cases).. It worked and works for me ... am not guaranteeing anything here ... just trying to pass on my experience and information..
It is great for you that you found some relief ! BUT According to me, If we have to spend money somewhere, it is not in magic things "to try" but into real researches ! We could save lot of money if we stop trying things individually while we have the opportunity to have a scientific research.
THE ONLY WAY TO KNOW WHAT IS GOING WRONG IS : NORD RESEARCH

Excellent reply, Habibou!
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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16623 on: 30/05/2012 03:18:08 »
John21 and jferr (and everyone else!),

I was interested in your comments about prostatitis and a possible link to POIS.

There's been a lot of research over the past few years about autoimmune prostatitis, its causes, and how the permeability of the prostate tissue barrier can become disrupted from the resulting inflammation. 

There are several potential causes mentioned in these research papers, including (but not limited to) prior urologic surgery, prior bacterial infections, the mumps, certain environmental toxins -- even a family of genes is being suggested (the "claudins" -- a family of more than 25 genes). 

The research on this type of prostatitis -- the autoimmune type (not caused by bacterial infection) -- is abundant. There is also an abundance of autoimmune orchitis research (autoimmune inflammation of the testes).

You can all be certain that researchers who study these autoimmune disorders of the male urogenital tract are continuously being added to your ever-growing list of potential POIS researchers -- for that first research grant that you're on the way to funding.

That list also includes a host of other types of specialists (but not one psychiatrist is on that list!).

POIS is a mystery -- it's a condition that is wide-open for research!

The funding has to begin with you -- just as it does with all rare disease research. $10/month adds up amazingly! If enough of you could donate that amount -- via automatic monthly donations -- you'd meet your goal -- and probably go over the minimum!

There's an expression that goes something like this -- "Pray... but keep on rowing to shore!"

Research is your ticket out of POIS hell...so just keep rowing!!

Stef

 
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16624 on: 30/05/2012 03:34:41 »
<cracking my whip> c'mon, everybody, let's do what Stef says.

She is a WORLD CLASS AUTHORITY on rare disorders such as we agonizingly suffer from!

WE ARE THE ONLY ONES WHO CAN STOP THE MISERY!

I just recently gave $1,000. On top of earlier $250.

Why?

Because it hurt. So now I'm even MORE committed to help finding a cure for all.
« Last Edit: 30/05/2012 03:37:44 by demografx »
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Offline tatvamasi

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16625 on: 30/05/2012 03:55:00 »
Quote from: Habibou on 29/05/2012 22:56:26
Quote from: tatvamasi on 29/05/2012 17:01:22
Hey Friends .. I have been digging into this problem ... for quite sometime... I had Pois effects very
hard on me... brainfog,burning eye, couldnt speak fluently,lack of will power and confidence and cleared not until 4-5 days after o.... untill six months back. I have been trying
different stuff( niacin,xanithol...) but nothing worked. Finally by Gods grace, I found this Lady in florida, who worked on me and cleared over the phone for last six months .. symptoms would last only for one day( max) sometimes I used to get cleared immediately when I called her twice. I am not sure about indepth
what she does... but she is alternative medicine and intuitive energy healer, where she works with eav(electro acupuncture screening )  and
electro dermal screening ...I finally visited her yesterday ( I am from chicago) ... she said there was some
poison from pesticides that was causing all these hormonal and pois effects..She screened and removed that poison thru EAV ( I guess , didnt want to ask anything ) .... I was feeling very good since last two days. Today I ejaculated and noticed there is lot of difference in reduced(almost nothing ..except slight red eyes) degree of pois effects..

I wanted to share ... so that you guys can try and see .. she is not really expensive ( charges 3-5 dollars for a minute..which should be enough for most cases).. It worked and works for me ... am not guaranteeing anything here ... just trying to pass on my experience and information..
It is great for you that you found some relief ! BUT According to me, If we have to spend money somewhere, it is not in magic things "to try" but into real researches ! We could save lot of money if we stop trying things individually while we have the opportunity to have a scientific research.
THE ONLY WAY TO KNOW WHAT IS GOING WRONG IS : NORD RESEARCH

I agree ... on original scientific research.. but its not bad to get some genuine relief when the symptoms are high. I am telling you coz I know how important is to think clear especially when you have meetings daily ...and to be clear in them
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16626 on: 30/05/2012 04:45:01 »
Quote from: tatvamasi on 30/05/2012 03:55:00

...by Gods grace, I found this Lady... [an] alternative medicine and intuitive energy healer...who worked on me and cleared me over the phone for last six months...


tatvamasi, there are many forums on the internet that promote religious, spiritual and alternative medicine approaches such as you describe.

Unfortunately, we are not one of them.

And practicing "medicine" over the phone, with zero face-to-face doctor/patient interaction, diagnosis over the phone (????) is something we discourage here; we consider this behavior as irresponsible and dangerous (on the part of "the healer").

We established long ago that - as part of The Naked Scientists' (TNS) Naked Science Forum (NSF) -  and now with our related Smart Machines P.O.I.S. Forum (SMF) as well -  2 POIS Forums which we chose to make "home" - we will only follow established, conventional medical research models and approaches for POIS.

We simply don't have the time or money to explore every possible "alternate" idea under the sun; it would scatter and strain our very limited energy and resources.

tatvamasi, Welcome Back to the forums. And best wishes with whatever safe treatment you choose!

Best,
Demo





« Last Edit: 30/05/2012 16:22:00 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16627 on: 30/05/2012 05:33:46 »
Quote from: CCconfucius on 29/05/2012 18:33:58
I got hcv and hbv test results, were both negative.
hcv was antibody to see if i had it in the past.
hbv test was to see if i have it right now.

CC, thanks for reporting!
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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16628 on: 30/05/2012 06:04:56 »
Shows that in general ultrasound prostate? Who did?
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16629 on: 30/05/2012 10:54:23 »
Quote from: nordnurse on 30/05/2012 03:18:08
John21 and jferr (and everyone else!),

I was interested in your comments about prostatitis and a possible link to POIS.

There's been a lot of research over the past few years about autoimmune prostatitis, its causes, and how the permeability of the prostate tissue barrier can become disrupted from the resulting inflammation. 

There are several potential causes mentioned in these research papers, including (but not limited to) prior urologic surgery, prior bacterial infections, the mumps, certain environmental toxins -- even a family of genes is being suggested (the "claudins" -- a family of more than 25 genes). 

The research on this type of prostatitis -- the autoimmune type (not caused by bacterial infection) -- is abundant. There is also an abundance of autoimmune orchitis research (autoimmune inflammation of the testes).

You can all be certain that researchers who study these autoimmune disorders of the male urogenital tract are continuously being added to your ever-growing list of potential POIS researchers -- for that first research grant that you're on the way to funding.

That list also includes a host of other types of specialists (but not one psychiatrist is on that list!).

POIS is a mystery -- it's a condition that is wide-open for research!

The funding has to begin with you -- just as it does with all rare disease research. $10/month adds up amazingly! If enough of you could donate that amount -- via automatic monthly donations -- you'd meet your goal -- and probably go over the minimum!

There's an expression that goes something like this -- "Pray... but keep on rowing to shore!"

Research is your ticket out of POIS hell...so just keep rowing!!

Stef

 

Stef, thats very interesting, thanks for that. Can you tell me how it works when a reserach grant has the proper funding? How is it decided what path to take in research?
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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16630 on: 30/05/2012 17:12:35 »
Quote from: tatvamasi on 29/05/2012 17:01:22
Hey Friends .. I have been digging into this problem ... for quite sometime... I had Pois effects very
hard on me... brainfog,burning eye, couldnt speak fluently,lack of will power and confidence and cleared not until 4-5 days after o.... untill six months back. I have been trying
different stuff( niacin,xanithol...) but nothing worked. Finally by Gods grace, I found this Lady in florida, who worked on me and cleared over the phone for last six months .. symptoms would last only for one day( max) sometimes I used to get cleared immediately when I called her twice. I am not sure about indepth
what she does... but she is alternative medicine and intuitive energy healer, where she works with eav(electro acupuncture screening )  and
electro dermal screening ...I finally visited her yesterday ( I am from chicago) ... she said there was some
poison from pesticides that was causing all these hormonal and pois effects..She screened and removed that poison thru EAV ( I guess , didnt want to ask anything ) .... I was feeling very good since last two days. Today I ejaculated and noticed there is lot of difference in reduced(almost nothing ..except slight red eyes) degree of pois effects..

I wanted to share ... so that you guys can try and see .. she is not really expensive ( charges 3-5 dollars for a minute..which should be enough for most cases).. It worked and works for me ... am not guaranteeing anything here ... just trying to pass on my experience and information..
Yes, tatvamasi, same experience also faced by me.  I have taken Reikhi initiation two times  I degree & 2nd degree.  this process is only 6 min.  In just 6 min, entire pois symptoms cleared.  I was astonished by this.  I also posted this in my first post.  Reikhi master told me that there is some poisionous gas will start to produce in my body after ejaculation.  It will reach brain within half an hour to one hour after orgasm.  After it has reached brain, it will make imbalance in brain chemistry.  After taking initiation, for next fifteen days I was free from POIS even though I had many o at that period. 

@ Demo,
You are right sir, The only answer to clear POIS is only by NORD research.  But, I can tell to this forum that, in emergency cases, one can use the above alternative methods where the effects of POIS cleared within 5 to 6 min.  This spiritual treatment is not at all harmful & this can be when we thought it is difficult to tolerate POIS sympoms. 
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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16631 on: 30/05/2012 17:41:53 »
Nathan,
Is there any possibility to practice "Reikhi initiation" alone without paying someone?
How many times did you use it and how does it work?
Do you feel 100% out of POIS now?
It would be great if we had more details to know the path it is working on...

Even if I am cured one day, I still will give money to NORD for 2 simple reasons:

-I want everybody to go out of this situation because something like that should never exist
-I really want  to know exactly, by a scientific way, what caused my condition for such a long time so that I could explain to people "it was not in the head"
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16632 on: 30/05/2012 18:26:29 »
nathan123, you're of course right. Sorry I may have overreacted. Since 2007, you can only imagine what "alternative" has meant to some oddly intentioned adherents!

: - )
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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16633 on: 30/05/2012 19:12:20 »
Quote from: Habibou on 30/05/2012 17:41:53
Nathan,
Is there any possibility to practice "Reikhi initiation" alone without paying someone?
How many times did you use it and how does it work?
Do you feel 100% out of POIS now?
It would be great if we had more details to know the path it is working on...

Even if I am cured one day, I still will give money to NORD for 2 simple reasons:

-I want everybody to go out of this situation because something like that should never exist
-I really want  to know exactly, by a scientific way, what caused my condition for such a long time so that I could explain to people "it was not in the head"
Hi Habibou,

By Reikhi we can increase our energy. Rekhi healing can be done by ourselves alone by touching the our hand to various parts of the body & it will allow our body to get positive energy from the Universe..  But first to activate that force in our body, we require to take initiation from Reikhi master.  During Rekhi initiation, they also activate the life force  in our body , they will do healing without touching our body for 3 to 4 min.  They will draw some symbols on us without touching i.e. putting their hand 3 feet away from us.  Because of master's power, within 3 to 4 min, our body will be balanced.  There are 4 levels in rekhi. l have taken 2 initiation i.e. for first level and 2nd level.  After taking initiation for first level, we can start healing alone daily half an hour a day. 

When I gone for first level initiation, it took me only 4 min and my POIS symptoms gone 100%.  For next 15 days, I was free from POIS even though I had orgasm many times.  My rekhi teacher told me that my body cells will be fighting against the my body after o and it will create Poisionus gas in the body.  This will reach brain within 1 to 2 hour gradually.  When this will reach brain, there will be imbalance in the brain chemistry and it takes 10 to 20 days to clear this poisionus gas from the brain & all hormones to be balanced.   He accepted that it is not in the head.
But, after 15 days from initiation, my pois gradually started.  Daily, I am doing rekhi healing, it reduced the worst symptoms and I can find a peace in my head.  That means during POIS days, if I do Rekhi in morning for half an hour, there will be reduction in POIS symptoms up to 4.00 clock or 6.00 clock in the evening.  Then again I require to do healing for 20 to 30 min.  Hence, I can say that Rekhi healing which can be done by ourself alone without paying any one will reduce symptoms so that we can do our normal woks easily.  Rekhi initiation which can be done by only Rekhi masters i.e. after learning upto 4th stage. Presently, I am not able to rekhi initiation alone as I am still in 2nd stage.  Rekhi 4th degree initiation they will give only to trustworthy persons, and they will test us whether we are competent to handle it, whether we will use that only for a positive works.  So, I require to wait for one more year I need to get 4th level initiation. 
After 3 months of my first initiation, I took 2nd degree initiation.  This is also same case as first one where for 15 days, I was free from POIS.  But this initiation, improves my healing power.  I can say that if I earlier require 20 min to achiever some % in reduciton of POIS symptoms, after 2nd degreee I can achiever by in 10 min. 

I asked my teacher whether it is possible to remove the source 100%.  He tried and told that it is not possible to remove from him as he never saw a imbalance in body like this.  He told that he is capable for completely removing migraine headches, fears, low confidence, stammering, wet dreams etc.   But once he tried on me to remove POIS, he told this is very stroger where our blood cells i.e. immune system will be fighting against our own body.  He is astonished after meeting with me.   So he has referred me to a very senior Rekhi master who has the ability solve this high complexity problems.  May be in next 2 months, I will get appointment

Further, this is a very cheaper alternative therapy.   For initiation they will take only 5$.  Further in case of emergencies where I want to be completley free from POIS i.e. when I require to attend meetings, seminars, public speaking, I will go to my rekhi teacher.  He will completely reduce the symptoms within 3 to 4 min by way of healing.
So, Rekhi definitely help to reduce POIS symptoms for me.  As per him it is 100% clear that it is a Auto immune disease. .  I already made a promise to god that after my POIS cleared 100%, throughout my life, I will be helping others at my maximum capacity.

I also interested in to know what happen scientifically same like you.  Still I am trying various tests, taking various tablets, vitamins.  Out of many trials, I found one abnormality in my blood test report.  It is high absolute eosinophil count.  It is higher than 300% than normal levels during my POIS.  My doctor told me that High eosinophil count means allergice disease / auto immune disease and he also confirmed that it is a Auto Immune disease.  Two days back, I got my semen culture and tomorrow I know the results.

Once I tested my AEC count after Rekhi initiation i.e. where I completely free, at that time my AEC count was normal.
So, I want completely free from POIS by scientific way.  I want to tell people (who critised me during my POIS period that I am mentally ill) that it is not in the head. .  I am searching for a scientific answer & for reducing the symptoms i.e. to work better in POIS period I am using this alternative technique.   Initially I am against alternative medicine concept.  I tried many one & realized that they only loot the money by telling false things.  After trying many things, I lost interest in this alternative medicine.  But , only this Rekhi technique is helped me & I trusted it now & good thing is unlike other methods, here they not loot the money.  I spend only 20$ upto now for this. 
« Last Edit: 30/05/2012 19:21:07 by nathan123 »
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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16634 on: 30/05/2012 19:36:11 »
Quote from: Habibou on 30/05/2012 17:41:53
-I really want  to know exactly, by a scientific way, what caused my condition for such a long time so that I could explain to people "it was not in the head"
Amen to that. Apart from having POIS, the 2nd most infuriating thing is not having an accepted medical diagnosis.
There are no malingerers on this forum but I'm sure that some of us have been labelled as such by colleagues and friends who didn't understand what we're going through. That's a real tragedy.
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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16635 on: 30/05/2012 20:25:25 »
Quote from: kurtosis on 30/05/2012 19:36:11
Quote from: Habibou on 30/05/2012 17:41:53
-I really want  to know exactly, by a scientific way, what caused my condition for such a long time so that I could explain to people "it was not in the head"
Amen to that. Apart from having POIS, the 2nd most infuriating thing is not having an accepted medical diagnosis.
There are no malingerers on this forum but I'm sure that some of us have been labelled as such by colleagues and friends who didn't understand what we're going through. That's a real tragedy.

Amen to that, too.
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Offline tatvamasi

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16636 on: 30/05/2012 23:01:44 »
Quote from: demografx on 30/05/2012 04:45:01
Quote from: tatvamasi on 30/05/2012 03:55:00

...by Gods grace, I found this Lady... [an] alternative medicine and intuitive energy healer...who worked on me and cleared me over the phone for last six months...


tatvamasi, there are many forums on the internet that promote religious, spiritual and alternative medicine approaches such as you describe.

Unfortunately, we are not one of them.

And practicing "medicine" over the phone, with zero face-to-face doctor/patient interaction, diagnosis over the phone (????) is something we discourage here; we consider this behavior as irresponsible and dangerous (on the part of "the healer").

We established long ago that - as part of The Naked Scientists' (TNS) Naked Science Forum (NSF) -  and now with our related Smart Machines P.O.I.S. Forum (SMF) as well -  2 POIS Forums which we chose to make "home" - we will only follow established, conventional medical research models and approaches for POIS.

We simply don't have the time or money to explore every possible "alternate" idea under the sun; it would scatter and strain our very limited energy and resources.

tatvamasi, Welcome Back to the forums. And best wishes with whatever safe treatment you choose!

Best,
Demo








There are two aspects of medication... one is scientific and other is spiritual .. Every religion in this world believed in some form of spiritual aspect of mind and body where great scientists and doctors failed to comprehend . Its just an approach.. if one way is not working ....people tend to go spiritual way. The ultimate goal is to get some relief....
No one is pointed a gun to anyone here. Its just my experience as I already mentioned. 
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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16637 on: 30/05/2012 23:20:49 »
Thanks for the precisions Nathan !
If it is not expensive at all, I might try because alternative medicine worked for me when I was 5/6... but it would be a personal choice. Each $ I put in, I will put the same in the Nord research. My POIS started with an accident and an emotional shock that is why for my personal case It could be a solution.
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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16638 on: 31/05/2012 00:44:22 »
Quote from: John21 on 30/05/2012 10:54:23
Quote from: nordnurse on 30/05/2012 03:18:08
John21 and jferr (and everyone else!),

I was interested in your comments about prostatitis and a possible link to POIS.

There's been a lot of research over the past few years about autoimmune prostatitis, its causes, and how the permeability of the prostate tissue barrier can become disrupted from the resulting inflammation. 

There are several potential causes mentioned in these research papers, including (but not limited to) prior urologic surgery, prior bacterial infections, the mumps, certain environmental toxins -- even a family of genes is being suggested (the "claudins" -- a family of more than 25 genes). 

The research on this type of prostatitis -- the autoimmune type (not caused by bacterial infection) -- is abundant. There is also an abundance of autoimmune orchitis research (autoimmune inflammation of the testes).

You can all be certain that researchers who study these autoimmune disorders of the male urogenital tract are continuously being added to your ever-growing list of potential POIS researchers -- for that first research grant that you're on the way to funding.

That list also includes a host of other types of specialists (but not one psychiatrist is on that list!).

POIS is a mystery -- it's a condition that is wide-open for research!

The funding has to begin with you -- just as it does with all rare disease research. $10/month adds up amazingly! If enough of you could donate that amount -- via automatic monthly donations -- you'd meet your goal -- and probably go over the minimum!

There's an expression that goes something like this -- "Pray... but keep on rowing to shore!"

Research is your ticket out of POIS hell...so just keep rowing!!

Stef

 

Stef, thats very interesting, thanks for that. Can you tell me how it works when a reserach grant has the proper funding? How is it decided what path to take in research?

Hi John21,

Because POIS has so little basic scientific research (actually -- I've seen none), I have a sense that "What is POIS?" will be the direction of your first grant. It's absolutely not my decision, in any way, so this is only a hunch.

(As an aside, "POIS" may not be the correct name for this condition, as men have reported here that symptoms can occur without ejaculation, and can occur even during work-outs -- not related to sexual activity.  There is a lot to be learned!!!)

Your grant will be called "Post-Orgasmic Illness Syndrome," because that's how it is currently known. But just as a FYI, it is very standard for rare disorder names to change as research unfolds.

I know that this sounds like a very broad statement ("What is POIS?"), and may sound like it will take FOREVER to get the answers -- but that is not necessarily the case!!!  There have been some incredibly dramatic findings from first, very basic research grants that came from NORD's program.

It's a process that you men need to trust.  The absolute best will be done with your funds -- they will not be wasted in any way. There will be no shenanigans, no smoke and mirrors, and the award recipient(s) will be chosen based very strictly on the merit and potential of the study.

There's an entire page about the the research grant over at the SMF site -- http://poiscenter.com/forums/index.php?board=22.0.  Probably most of your questions are already addressed over there.
The link to the thread on that page that specifically describes the grant program is -- http://poiscenter.com/forums/index.php?topic=125.0

The most IMPORTANT thing that you should all know is this --> NORD's Medical Advisory Committee (MAC) -- the scientists who determine the award recipients -- are above board in every single way.  I wish that I had the proper words to describe the admiration that I have for them.  They do this service for NORD voluntarily -- they are not paid -- and are each full-time researchers and physicians with their own busy caseload of patients.  They are completely in keeping with NORD's mission to help find treatments and cures for rare disorders.

Also, generally-speaking, NORD posts it's grants ("RFPs" - Requests for Proposals) once/year in mid-March. The entire process is long -- it takes a good nine months. However, we have had occasions to undertake an extra grant cycle -- twice -- in the seven years that I've been doing this.  If a few funds meet their goals by July or August, and the groups/donors are anxious to get things moving -- we'll start a second cycle around August. 

We just completed (last week) a second grant cycle from 2011 -- from which I'm still recovering!!!!!

There's one last thing to mention that is completely specific to the POIS grant.  Since there is almost no formal POIS research published, our MAC will benefit from receiving input from the forum.  This won't sway them in any way -- the award will go to the best study. But -- it will serve to enlighten them about the symptoms of POIS, what has been helpful for some, what has been harmful, what some of the most miserable symptoms are, etc.  Daveman and Demo will put together a brief summary for our MAC when your fund becomes A GRANT.

I also want to state one thing about psychiatrists and your grant.  This will, without question, not be a study on the psychosexual aspects of POIS.  However, if an outstanding university-affiliated psychiatrist whose focus is  specific neurotransmitters, for example, or very specific neuro-imaging techniques that might pertain to POIS (just using examples here) appears in the databases that I use, they will be invited to apply.  I haven't put any focus on this yet, but will by the time the fund is ready.  There are some seriously REAL scientific researchers who are psychiatrists and I wouldn't want to leave them out of the mix.

But our MAC cannot be fooled -- so please try to trust the process.

Stef
 
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16639 on: 31/05/2012 07:15:53 »
Quote from: tatvamasi on 30/05/2012 23:01:44
Quote from: demografx on 30/05/2012 04:45:01
Quote from: tatvamasi on 30/05/2012 03:55:00

...by Gods grace, I found this Lady... [an] alternative medicine and intuitive energy healer...who worked on me and cleared me over the phone for last six months...


tatvamasi, there are many forums on the internet that promote religious, spiritual and alternative medicine approaches such as you describe.

Unfortunately, we are not one of them.

And practicing "medicine" over the phone, with zero face-to-face doctor/patient interaction, diagnosis over the phone (????) is something we discourage here; we consider this behavior as irresponsible and dangerous (on the part of "the healer").

We established long ago that - as part of The Naked Scientists' (TNS) Naked Science Forum (NSF) -  and now with our related Smart Machines P.O.I.S. Forum (SMF) as well -  2 POIS Forums which we chose to make "home" - we will only follow established, conventional medical research models and approaches for POIS.

We simply don't have the time or money to explore every possible "alternate" idea under the sun; it would scatter and strain our very limited energy and resources.

tatvamasi, Welcome Back to the forums. And best wishes with whatever safe treatment you choose!

Best,
Demo








There are two aspects of medication... one is scientific and other is spiritual .. Every religion in this world believed in some form of spiritual aspect of mind and body where great scientists and doctors failed to comprehend . Its just an approach.. if one way is not working ....people tend to go spiritual way. The ultimate goal is to get some relief....
No one is pointed a gun to anyone here. Its just my experience as I already mentioned. 

You're right, no one is pointing a gun. Once again, I apologize for overreacting.

We have had a number of situations here where the forum was "taken hostage" by various alternative medicine practitioners. We just want to keep the focus on science, yet not close too many doors that just might offer immediate relief.

The fact that we're having this discussion is positive.
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