[poised]

I answered the questionaire and I want as many as possible of us to do it. Maybe it is a good chance to get attention to our condition from medical community.

[kurtosis]

Yes Daniel, we kind of have the same results...
OUT of POIS, it would be little better I guess but not a huge difference since I always have symptoms and brain fog, it because a CFS !

I believe the 2 conditions may be related.

[meteo74]

Hi all
I woud like to ask every body if pois affect body weight???

for me it does affect my body weight, I am 65kg with 174cm.

[acronym]

Hi all
I woud like to ask every body if pois affect body weight???
for me it does affect my body weight, I am 65kg with 174cm.

How do you know it accounts for your low body weight?
Do you eat a lot, to the level where you really should be putting on weight, but can't?
Have you ever gone a decent period of time without having an O, and have noticed you put on weight?

[acronym]

I have not seen too many posts lately with anyone reporting any sort of success with a new protocol/supplement, which is what I get excited about when viewing new posts, apart from the guy doing well with Neem. Actually I have been having pretty good recovery lately, with some supplements, but its early days. I really want to try for a number of months more before making emphatic claim, but I just thought I'd make a post, because I suspect most here like me, really hang out for posts were guy's are saying that are having some sort of success, even if its short term experience only, as it gives us hope, in the meantime before some sort of medical explanation eventuates.

I have been taking TongKat-Ali (hormones), Vital Greens (phyto-nutrients), Phytosome Curcumins (inflammation), Lipotropene (liver detox), Ammodine (iodine/thyroid), Colloidal Minerlas+Fulvic Acid (trace elements), Kefir (fermented milk), Herbal tonic (ginseng, licorice, golden seal, calendura, ginko). I suspect the TongKat-Ali, Vital Greens and herbal tonic are the main supplements that are helping me with pois, but I am unsure yet how much the other supps contribute. That will take time. I have also been diagnosed with CFS/infection, so they could be playing a role in boosting my health that has flow on effects by lessening the impact of pois. I'll report back in time if these are still helping me. I feel pretty good now just a day later, but the brain fog while not as bad, still lingers for 3-4 days, its just not as bad on day 1.

[meteo74]

I think I eat enough food to get the normal body weight ,so I thing pois is the problem!!
I wanted to know if any one have the same..

[kurtosis]

I have not seen too many posts lately with anyone reporting any sort of success with a new protocol/supplement, which is what I get excited about when viewing new posts, apart from the guy doing well with Neem. Actually I have been having pretty good recovery lately, with some supplements, but its early days. I really want to try for a number of months more before making emphatic claim, but I just thought I'd make a post, because I suspect most here like me, really hang out for posts were guy's are saying that are having some sort of success, even if its short term experience only, as it gives us hope, in the meantime before some sort of medical explanation eventuates.

I have been taking TongKat-Ali (hormones), Vital Greens (phyto-nutrients), Phytosome Curcumins (inflammation), Lipotropene (liver detox), Ammodine (iodine/thyroid), Colloidal Minerlas+Fulvic Acid (trace elements), Kefir (fermented milk), Herbal tonic (ginseng, licorice, golden seal, calendura, ginko). I suspect the TongKat-Ali, Vital Greens and herbal tonic are the main supplements that are helping me with pois, but I am unsure yet how much the other supps contribute. That will take time. I have also been diagnosed with CFS/infection, so they could be playing a role in boosting my health that has flow on effects by lessening the impact of pois. I'll report back in time if these are still helping me. I feel pretty good now just a day later, but the brain fog while not as bad, still lingers for 3-4 days, its just not as bad on day 1.

Who diagnosed the infection and what was diagnosed?

[acronym]

I have not seen too many posts lately with anyone reporting any sort of success with a new protocol/supplement, which is what I get excited about when viewing new posts, apart from the guy doing well with Neem. Actually I have been having pretty good recovery lately, with some supplements, but its early days. I really want to try for a number of months more before making emphatic claim, but I just thought I'd make a post, because I suspect most here like me, really hang out for posts were guy's are saying that are having some sort of success, even if its short term experience only, as it gives us hope, in the meantime before some sort of medical explanation eventuates.

I have been taking TongKat-Ali (hormones), Vital Greens (phyto-nutrients), Phytosome Curcumins (inflammation), Lipotropene (liver detox), Ammodine (iodine/thyroid), Colloidal Minerlas+Fulvic Acid (trace elements), Kefir (fermented milk), Herbal tonic (ginseng, licorice, golden seal, calendura, ginko). I suspect the TongKat-Ali, Vital Greens and herbal tonic are the main supplements that are helping me with pois, but I am unsure yet how much the other supps contribute. That will take time. I have also been diagnosed with CFS/infection, so they could be playing a role in boosting my health that has flow on effects by lessening the impact of pois. I'll report back in time if these are still helping me. I feel pretty good now just a day later, but the brain fog while not as bad, still lingers for 3-4 days, its just not as bad on day 1.

Who diagnosed the infection and what was diagnosed?

An infectious diseases specialist and also a doctor who specializes in chronic conditions/CFS. Basically infection of unknown origin, based on certain immunity markers having irregular readings. Pathology blood tests for the common infections come back with negative alas.

[fidalgo]

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments.

Do you still having sucess with herbalife?

[kurtosis]

I have not seen too many posts lately with anyone reporting any sort of success with a new protocol/supplement, which is what I get excited about when viewing new posts, apart from the guy doing well with Neem. Actually I have been having pretty good recovery lately, with some supplements, but its early days. I really want to try for a number of months more before making emphatic claim, but I just thought I'd make a post, because I suspect most here like me, really hang out for posts were guy's are saying that are having some sort of success, even if its short term experience only, as it gives us hope, in the meantime before some sort of medical explanation eventuates.

I have been taking TongKat-Ali (hormones), Vital Greens (phyto-nutrients), Phytosome Curcumins (inflammation), Lipotropene (liver detox), Ammodine (iodine/thyroid), Colloidal Minerlas+Fulvic Acid (trace elements), Kefir (fermented milk), Herbal tonic (ginseng, licorice, golden seal, calendura, ginko). I suspect the TongKat-Ali, Vital Greens and herbal tonic are the main supplements that are helping me with pois, but I am unsure yet how much the other supps contribute. That will take time. I have also been diagnosed with CFS/infection, so they could be playing a role in boosting my health that has flow on effects by lessening the impact of pois. I'll report back in time if these are still helping me. I feel pretty good now just a day later, but the brain fog while not as bad, still lingers for 3-4 days, its just not as bad on day 1.

Who diagnosed the infection and what was diagnosed?

An infectious diseases specialist and also a doctor who specializes in chronic conditions/CFS. Basically infection of unknown origin, based on certain immunity markers having irregular readings. Pathology blood tests for the common infections come back with negative alas.

Interesting. I suspect that most of our symptoms are caused by an inability to metabolise dopamine effectively, which leads to severe symptoms when catecholamines spike during an O or during a stressful situation.
I suspect either poisoning or inability to process acetaldehyde effectively such that POIS sufferers have low or normal dopamine but consistently low DOPAC.
Whether this is brought on by genetic disorder (mutation of ALDH genes) or poisoning environment or by parasites that increase acetaldehyde levels in the body, I don't know. Could be any of all of these. It's a rare disease so more than one causative factor is possible.

I have 2 confirmed fungal infections by my doctor. A yeast infection, you can guess where, and a fungal rash on my skin.

I'm currently taking niacinamide, methionine and a collection of anti-fungal and anti-parasitic agents. I felt ok the first few days, I've felt terrible for the past 2 days (constant POIS symptoms without an orgasm for a week) and I believe it will clear soon.
I'm also taking some piracetam today which takes the edge of the worst feelings of dizziness and confusion. So I'm still quite lucid but I developed the same headache, eye pain, dizziness and fatigue I get after an O, just by taking anti-fungals.

Just to reiterate that, I'm feeling all the symptoms of POIS without an orgasm. I've done this deliberately, I guess to test my hypothesis. I'm taking neem, doctor-prescribed nystatin and some garlic.

[nathan123]

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments.

Do you still having sucess with herbalife?

Hi, fidalgo, from last two or three week, I had 7 orgasm and I did not noticed any POIS symptoms.  But one night, I got disturbed sleep and next morning I got POIS symptoms.  But within one day, it disappeared. Presently feeling well and not as normal man.   I also had complete thyroid profile and all symtoms are normal.

I enquired with doctor and herbal life people, (nutrientist) what is my problem.  Another interesting is I browsed for symtoms of testerone deficiency and shocking to know that I had all the symtoms of testerone deficiency such as low muscle growth, breast enlargement, lack of hair on the body, not having deepen voice, high body mass index, disturbed sleep, low concentraion, memory problem.  Please see this link.  http://www.medscape.org/viewarticle/746602

So, I am thinking how herbal life product is helping in increase in testerone levels.  Can any one help what test I require to do for testing testerone levels.  At what time?

[Habibou]

My mother made a donation of 200$ and my father one of 300$ for a total of 500$ for NORD research 
Message for everypeople willing to donate : benefit from the SPONSOR so that we convert our pledges into real research and the 33.500 $ is reached this month !

[masochist]

 Have we tracked how many of us have either been labeled(or actually have) bipolar or some other mood-related disorder?
I've been searching the forum but not coming up with much discussion on the topic. If it's definitely 'out there,' will someone please direct me to it?

Also, is there a summary of ideas from this forum that's been collected and put in some sort of abstract that's easy to access and review over time? (i think this used to be sent out with every new member's Welcome package). My (and several others) participation here can be sporadic, spanning months at a time, and having such a link would be nice. -thanks!

[acronym]

So, I am thinking how herbal life product is helping in increase in testerone levels.  Can any one help what test I require to do for testing testerone levels.  At what time?
Nathan - when you see your doctor about blood test for your testosterone levels, double check he is going to test for your Free Test levels. (you want to check your bioavailable levels) Ask if he thinks its also worthwhile checking your estradiol levels as well since you mention breast enlargement (maybe mild gynecomastia). He might check your DHT levels as well. Blood test is required to be taken in the morning (when T levels are at their highest for the day) and not having eaten anything that morning. After you have your test, start taking a good zinc supplement.

[mat780]

People, this month (October) may be the biggest opportunity someone could give us to make a huge difference in our lives.
We could be closer than ever to start a serious and dedicated research to cure POIS.

Think on the following things for a minute:

What would you do to get rid of POIS?

What could you do if you were POIS free… forever?

Think on your family, your friends, your girlfriend, your job.

How much money and time have you wasted because POIS is present all the time?

This month someone is giving us the opportunity to research for a POIS free life by duplicating each dollar we donate.
Don’t wait any more, do yourself a favor and donate to NORD!

NORD Research Donations webpage:
https://www.rarediseases.org/about/support/research-donations/fg_base_view_p3 [nofollow]

You can find out more about this on the POIS New Forum:
http://poiscenter.com/forums/index.php?topic=125.150 [nofollow]


Kind Regards,
Mat

[fidalgo]

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments.

Do you still having sucess with herbalife?

Hi, fidalgo, from last two or three week, I had 7 orgasm and I did not noticed any POIS symptoms.  But one night, I got disturbed sleep and next morning I got POIS symptoms.  But within one day, it disappeared. Presently feeling well and not as normal man.   I also had complete thyroid profile and all symtoms are normal.

I enquired with doctor and herbal life people, (nutrientist) what is my problem.  Another interesting is I browsed for symtoms of testerone deficiency and shocking to know that I had all the symtoms of testerone deficiency such as low muscle growth, breast enlargement, lack of hair on the body, not having deepen voice, high body mass index, disturbed sleep, low concentraion, memory problem.  Please see this link.  http://www.medscape.org/viewarticle/746602

So, I am thinking how herbal life product is helping in increase in testerone levels.  Can any one help what test I require to do for testing testerone levels.  At what time?

Very intersting, I have breast enlargement too. Nithingale said one time that he had that too. My family is too thin, so I can't say that i have low muscle grow, but I am a weak boy. I don't have lack of hair, in the reality I have a lot. And, I had test my hormone level and it came normal.

You must do the testosterone exams...

Anyone more in the forum have breast enlargement? It may have some relation with POIS...

I think i will try the herbalife diet in the future...

[nathan123]

Hi, there is an interesting and good news for all the POIS suffers.  After my failure of Neem, I started searching for the product which contain Amino acids, Proteins and complete set of nutrients.   then I found Herbal life products.  After using this products for 20 days, now in POIS reduced by 80% and brain congnitive symptoms, difficulty in speaking, heaviness in head has reduced severely and started having a  normal life like every men.  I think I am near to find a solution for POIS.  I am taking following products of Herbal life.

a) Nutritional Shake : Formula 1:
Contents: Whey protein, soy Protein, Corn bran, stabilizer, INS 412, calcium, vitamins, potassium chloride, minerals, and other powders.

2) Protein powder containing  Soy & Whey Protein.

Please try this and provide your comments.

Do you still having sucess with herbalife?

Hi, fidalgo, from last two or three week, I had 7 orgasm and I did not noticed any POIS symptoms.  But one night, I got disturbed sleep and next morning I got POIS symptoms.  But within one day, it disappeared. Presently feeling well and not as normal man.   I also had complete thyroid profile and all symtoms are normal.

I enquired with doctor and herbal life people, (nutrientist) what is my problem.  Another interesting is I browsed for symtoms of testerone deficiency and shocking to know that I had all the symtoms of testerone deficiency such as low muscle growth, breast enlargement, lack of hair on the body, not having deepen voice, high body mass index, disturbed sleep, low concentraion, memory problem.  Please see this link.  http://www.medscape.org/viewarticle/746602

So, I am thinking how herbal life product is helping in increase in testerone levels.  Can any one help what test I require to do for testing testerone levels.  At what time?

Very intersting, I have breast enlargement too. Nithingale said one time that he had that too. My family is too thin, so I can't say that i have low muscle grow, but I am a weak boy. I don't have lack of hair, in the reality I have a lot. And, I had test my hormone level and it came normal.

You must do the testosterone exams...

Anyone more in the forum have breast enlargement? It may have some relation with POIS...

I think i will try the herbalife diet in the future...

My body mass index is very abnormal and my body is more in Fat and low muscle growth.  Thursday I am going to test my Testerone levels and see what will be the result.  Presently, I cannot say 100% normal.  But my symptoms would not increase / decrease with orgasm.  Say I need to improve a lot.  Updated my result in next week

[observercenter]

You hit the nail on the head Habibou. I encourage everyone of you: The silent readers who are suffering from POIS and are following this forum, to donate https://www.rarediseases.org/about/support/research-donations/fg_base_view_p3 to the Post Orgasmic Illness Syndrome fund. It does not matter the amount, probably you have saved some money - and this is the better investment you can do. 5$, 10$, 20$ can make a BIG difference. And 5$ now is 10$, and 40$ is 80$. I am sure that you want to get rid of this misery, so please do not ignore this message and do not waste this opportunity. A moment feeling POIS is a moment when all of your dreams and your life, just make no sense, so please, think again!

[JP]

Hi folks,

I'm speaking here as a moderator.  We do appreciate the good this thread has done for those suffering with POIS and the value of this forum for collecting and sharing information about POIS. 

However, we do not currently allow users to engage in fund raising via the forum.  Posts soliciting donations on this forum will be removed.  I know that poiscenter.com does allow donations, and you are free to refer members to that site so long as you are not asking for donations your referral post. 

Thank you for your understanding,
JP moderator

[Copperred]

To all of you out here - I am speechless...and in shock.

For over 10 years I have been trying to find OTHERS who are having the same "issues" I have been having immediately after ejaculation...that then last for up to 3 days....usually 2.5 days (two full nights of sleep) on average before I can safely re-emerge to society.  I just 10 minutes ago, through a fluke, came upon this site: newbielink:https://sites.google.com/site/poiswebsite/home [nonactive] AND FREAKED OUT.

I am a POIS sufferer (there's a name for it!) and have been looking for others for years....I am in shock - sorry if I may babble a bit here.  Here is the letter I just wrote to Dr. Waldinger:

----
Dear Doctor Waldinger,
All I CAN SAY IS O MY GOD …..for over 10 years I have been suffering from POIS…at times frantically trying to find others on the internet who have this issue – to no avail.  I am 37, male, 135lbs over all generally healthy.

I have never met ANYONE else who has this issue…and then…right now….2 minutes ago I came upon the Google POIS site which led me to you.  I am so incredibly happy I can't put effective words to it.

For years I have described what is happening to just a few of my closest friends and all of them are like I have never ever heard of that and know of no one else who does.  It appears though I AM NOT ALONE!!!! 

I have this infliction.  After orgasm…I AM EXTREMELY irritable and despicably tense (including muscle tension curling) and it lasts usually 2.5 days almost to a T.   I usually try to immediately go to sleep as I am convinced it has to do with my pituitary and that something in me needs to reset – the faster I am to sleep and in REM sleep creating GH the better.  I am terrified of any non-sexual intercourse ejaculation because of this – though I have found if I am having sex with a women…(no condom) I believe potentially this BALANCES me somehow lessening the effects due to her chemical interactions – though this maybe just in my mind - but that has tended to be the case.

I have taken GABA for years immediately after ejaculation and this often lessens the effects and am terrified of unintended masturbatory/dream related ejaculation due to all of this.

TO say I am flabbergasted to have found this site and community is an understatement.

That I have a community I can talk with about this makes me happy.

Please send me any questionnaire you need.
----END OF EMAIL----

Continuing on...I have found GABA works very very well for me in SPEEDING up my recovery time and I swear by it.  5-HTP also helps but not as much as GABA - I have taken 5-HTP for over 20 year for sleep - but GABA soothes my intense crankiness - if I take enough GABA I can often bounce back incredibly fast sometimes allowing me to get through the day without intense flashes anger/anxiety/tension.  FYI...I switched from GABA to PICAMILON about 1 year ago (Picamilon is GABA bonded with NIACIN) and I believe the Picamalon is effectively allot better than GABA alone as it does not make you sleepy like GABA alone does.  I am convinced this inflection has to do with my pituitary and related nervous system as deep sleep seems to be the only thing that allows me to fully restore myself...but at least two sleep cycles of such is required...making me think the large GH pulse you get from REM sleep helps to restore the balance. 

Note I have symptoms that are EXACTLY POIS...I could jump through hoops right now. I try my hardest to not go to any social function after as I have no ability to socialize normally.  I try to avoid all people for 2 to 3 days... ...friends who have known me for years will be like..."why are you so irritated"....and I have never had the gall to tell them cuz they would not understand...this has gone on for so many years now many know me to be moody....when I know its actually cause of what has been going on!!!!!

I would love to Skype with anyone who also has this just to talk to someone else.....who can be like..."..ya dude...i know what ur talking about..."

I am in shock....I am not alone.........