[demografx]

I said I would drop in periodically.

I simply wish to convey my best wishes to all my fellow POISers!

Be well! Remember, there are good people everywhere.

Seek them out, avoid those who cause you discomfort.

Demo

[LAPOISSE2]

I had some blood tests done a few days ago.  The results are still coming in one by one, but there are already a few things of note: My ceruloplasmin went up from 23 to 30 between my test in January and my test yesterday.  So that's a positive sign.
 
My serum copper levels are 130 ug/dL on a (40-140) scale.  So I'm still copper toxic in the blood, which indicates the the minerals I'm taking are removing copper from my tissues into my blood and I'm having a tough time clearing the copper out of the blood.  Herman has recommended add more coffee enemas and vitamin c to my protocol.
 
My progesterone level is 0.2 ng/mL on a scale of (.02 to .2).  In my hair test, my Potassium is also on the upper bound of normal, so the high progesterone seems to match that. 

In terms of my symptoms, my recovery after orgasms, which was zero as of even 2 months ago, continues to improve.  Additionally my overall health is improved too.  I went out for dinner last night, to a 3 hour dinner at a table full of people where i didn't know a single person.  And I had a pretty good time.  Two months ago I could not have done that.  No way, no how.

http://en.m.wikipedia.org/wiki/Coffee_enema

Not sure I wanna do this..."can cause death from severe electrolyte imbalance"!

[urano75]

Daniel, thanks for your kind message, and keep up with the good job in improving your conditions. Whatever it will be.

CertainlyPOIS, once again and for the last time (really, I won't be reading here anymore and delete the link from my bookmarks). My recent posts reflect my personal direct experience working with Herman, which has been invaluable for my progress. While most of those who criticize him, haven't really had a chance to interact with him directly. For what it's worth, I initially judged his stataments arrogant, aggressive and dogmatic before having a chance to know him better. Then I changed my mind, even I still disagree with some of his aggressive attitudes and am skeptical on some of his ideas.
I thought it was due to share my experience before leaving. I'm not here to defend anyone who is very able to do it himself.

I have never stated that what has worked for me will necessarily work for others. I believe in fact that it's our attitude and being open to change our views that makes the difference, not just some external recipe coming from the above. Besides the things I have seen here in these few months, Herman's approach was the only one which factively helped me. If you still believe that Herman's approach=ceruloplasmin, I'm sorry but you got 1% of what he says.

One of the reasons I leave this forum is that I find exhausting, energy draining and time consuming to defend and justify my statements everytime, especially now that I feel better. And explain things I am not able to explain myself 100% from a "scientific" perspective.

If Herman's approach won't work for me in the long run (and this sounds like a spell: that day will come when you will need us again...), this is probably not the place where I will find real answers.

Take care,
Andrea

[B_Daniel]

You can believe in [enemas] all you want. They're dumb and very dangerous. But of course, you're a lot smarter than the U.S. Food and Drug Administration and nearly every medical and scientific source known to mankind.

http://en.m.wikipedia.org/wiki/Coffee_enema

Not sure I wanna do this..."can cause death from severe electrolyte imbalance"!

"Proponents of coffee enema claim that cafestol palmitate in coffee promotes glutathione S-transferase, which detoxifies the products of tumor cell metabolism, and that the enema fluid stimulates peristalsis and drainage of toxic bile from the gut. Although none of these hypotheses are proven, coffee enema has been used as an alternative therapy for various diseases, including cancer and constipation. Complications associated with coffee enema have rarely been reported. There were two cases of death related to coffee enemas that were associated with electrolyte imbalance caused by frequent enemas. In addition, one case of polymicrobial enteric septicemia from coffee enema in an advanced breast cancer patient was reported."  http://www.nature.com/ajg/journal/v105/n1/full/ajg2009505a.html 

Also discussed in this report is coffee enema-induced proctocolitis, which is basically inflammation.  In my mind this is the greatest risk.  The report discusses a woman who had 9 days of severe anal pain and 3 months of total symptoms.  There have been 3 reported cases of this in the world.
 
Everyone's got his own risk tolerance.  So if this is beyond your threshold, feel free to refrain.
The only reason I post the above, is that I don't see this as a basis upon which Herman should be attacked.  It's not like he's recommending cadmium or anything.   

[B_Daniel]

I was chatting with Herman on Skype yesterday.  I had just gotten in another blood test, this one for Manganese.  I told him my result was 2.2 mg/100mL.  He responded back a second later saying that that figure didn't look right and was more representative of a typical Magnesium reading. 

Sure enough the lab had it wrong and they tested my magnesium instead of the manganese I requested.  Since the results were given to me in Spanish I didn't recognize their mistake either.

I just give this story because many people are saying all types of things about Herman, but it shouldn't be said that he's not knowledgeable within this field. 

[ajs]

I'm going to throw another weird symptom that I have that out and wondered by any chance someone has had it....I have a very limited time on the computer because the light from the screen either causes me to throw up or causes pain throughout my body or gives me a really bad headache....anyone??

could be that the screen reminds your subconsious mind about the porn you have witnessed on it.. true?

[ajs]

What!!? I don't even know how to respond to that!! Next person please!

[B_Daniel]

Hahahahaha

[abdullah]

What!!? I don't even know how to respond to that!! Next person please!

with all respect to johanstefansson
thats why we need Herman he's knowledgeable and knows what he's talking about.
Daniel how do we get in touch with Herman i have some questions about minerals ratio im taking
and what tests Herman required for copper toxicity?
thanks

[RD]

.... how do we get in touch with Herman ...

Gbolduev was unwise enough to post their email in this public forum (he must love spam).
Search for posts by user "Gbolduev" which include the word "email",
 or better still consult qualified medical personnel instead.

[littledragon]

I'm going to throw another weird symptom that I have that out and wondered by any chance someone has had it....I have a very limited time on the computer because the light from the screen either causes me to throw up or causes pain throughout my body or gives me a really bad headache....anyone??

could be that the screen reminds your subconsious mind about the porn you have witnessed on it.. true?

If you're having an old box monitor (no flatscreen), it could be that you're sensitive to the low 50 hertz frequency. The screen of old box monitors and box TV's is less calm to watch for the eyes than those of 100 Hertz. Also the sound of this frequency is audible and unpleasant when you're sensitive. I had this problem and bought a flatscreen monitor, no more headaches.

[ajs]

It happens on my iPad so it's not an old screen...It seems to be like a migrain or seizure like cuz it happens whith flickering lights or on a tv screen with black background and white lettering like credits from a movie

[CertainlyPOIS]

It happens on my iPad so it's not an old screen...It seems to be like a migrain or seizure like cuz it happens whith flickering lights or on a tv screen with black background and white lettering like credits from a movie

I get migraines from looking at my laptop when i go over board with O's. I noticed it like five years ago when i was playing a game after way to many. After sleeping overnight the migraines from looking at the screen disappeared.
I think someone else has brought this up before.

[GDRTW]

Yes AJS. It could be that you suffer with EHS which I do as well. I found it much better when I changed to a flatscreen TV. The old TVs would affect me if I stuck my head anywhere bear the back. I am 99% sure my POIS and EHS are inter-webbed. Similar symptoms.

[CertainlyPOIS]

I found this article fairly useful and explanatory for many hypothesis people here have proposed, after tons of search here n there I found this article to be the most cohesive in regard to relation between thyroid, disabilities, and POIS "Conclusion".

Learning Disabilities in Patients with Autoimmune Thyroid Disease and Their Families

http://www.thyroid.ca/e1b.php

I think it summarizes my case with POIS, and other problems.

Thanks for the 1st post, maradona, and welcome if you're new! 

i read through the article and nothing in it struck a chord with me.  i definitely don't have developmental dyslexia, white spots on the skin, prematurely graying hair, etc.

Thanks for your attention : ) I've got tested for thyroid anti-bodies, and it returned negative. : P Now I'm confused for the underlying cause of my POIS. If it's autoimmune then what's getting attacked?

Information:
- I'm left handed


I've symptoms of mysterious illness that gets worsen by POIS:

1)Chronic 24/7 lightheadedness (like I'm not in reality) [Worsen without reaching orgasm, and become severe if reached]
2)Chronic dizziness (feeling off balance), very rare vertigo attacks (room spinning, not alleviated by laying down [By laying down headache like state persist, and gets relief by sleep] )
3)Overwhelmed by lights, people [Talking without appropriate thinking specially if information is extracted from memory], driving [Slow in taking action], movement, mental activity [Problem solving n puzzle like activities]
4)Physical activity (working out) makes me feel more lightheaded, more dizzy [ Dreamy state "Day Dreaming"]
5)Exhausted, burning eyes, light sensitivity "Photophobia" [Specially when using computers or cell phones], Drooping eyelid, Visual problems focusing [Specially when reading either a book, or from an screen monitor of any device]
7) Memory problems [Short term specially keeping up with high pace conversations arguing like conversations], and processing speed specially with math, and calculations. [Severe slow down occurs by POIS to a mental retardation level, and very low energy]
Depression for prolonged time



Others have it too
http://www.medhelp.org/posts/Ear--Nose--Throat/Chronic-Lightheaded-Dizziness-Vertigo-Sensitivity-to-light-and-movement-Vestibular-Rehab/show/1001434

if you look through this ajs, there is a reference to photophobia

[CertainlyPOIS]

That's how my POIS comes about.  It's delayed by a day or two.  Mostly anyways, one time I started shivering and had the flu at the exact moment I had the O.

I've not had fever in POIS for quite a while, but runny nose and weak vision always occurs, I also get speech issues such as stuttering and stammering whilst in POIS and my normally deep voice becomes that of a prepubescent teen lol. POIS is very strange like the gentleman in the latest POIS paper by Dr. Waldinger, I too have a photo phobia I get very depressed and my throat tightens up upon someone taking a photo of me, and it becomes difficult to breathe, must be psychosomatic, it's pretty extreme. Apart from hiding under pseudonyms and avatars, I personally, genuinely don't have any photo's of myself anywhere, I burnt all of them some time ago, I never had this problem when I was younger and before POIS.

I don't have very many pictures either and get annoyed when people take them.  I don't know why. 

Very interesting. I should clarify that "photophobia" is hypersensitivity to light, not hypersensitivity to photographs.
I've noticed that I have extreme cases of photophobia while in POIS. I can hardly open my eyes on a sunny day. It's even true on somewhat cloudy days. It's literally painful.
I believe Waldinger also mentions acousticophobia, or hypersensitivity to noise. This also happens while I'm in POIS. Hearing my cellphone beep or ring makes me want to smash it with a hammer. I get very angry very quickly, which NEVER happens while I'm out of POIS.

this is another one.

[ajs]

Thanks for posting all of those!! I should have known it wasn't that weird of a symptom :-)  I feel it's like being in a constant mild migraine..blood vessel issues I guess

[Over it]

My recent posts reflect my personal direct experience working with Herman, which has been invaluable for my progress. While most of those who criticize him, haven't really had a chance to interact with him directly. For what it's worth, I initially judged his stataments arrogant, aggressive and dogmatic before having a chance to know him better. Then I changed my mind, even I still disagree with some of his aggressive attitudes and am skeptical on some of his ideas.
I thought it was due to share my experience before leaving. I'm not here to defend anyone who is very able to do it himself.

I have never stated that what has worked for me will necessarily work for others. I believe in fact that it's our attitude and being open to change our views that makes the difference, not just some external recipe coming from the above. Besides the things I have seen here in these few months, Herman's approach was the only one which factively helped me. If you still believe that Herman's approach=ceruloplasmin, I'm sorry but you got 1% of what he says.

One of the reasons I leave this forum is that I find exhausting, energy draining and time consuming to defend and justify my statements everytime, especially now that I feel better. And explain things I am not able to explain myself 100% from a "scientific" perspective.

If Herman's approach won't work for me in the long run (and this sounds like a spell: that day will come when you will need us again...), this is probably not the place where I will find real answers.

Call me a cynical asshole, but I'm inclined to believe that your two weeks holiday play a bigger role in your recovery than you are prepared to admit. You almost partially admit this in one of the above paragraphs.

I recall someone else reporting alleviation of symptoms whilst on vacation and attributing it to altitude.

At risk of offending the Herminions & Herman himself,  I have to say I am very sceptical of Herman's alchemic recipes. Firstly because his earliest posts were very unclear, contradictory, and seem to evolve with the topics/remedies being discussed at the time; even allowing for the fact that english is not his native language.

POIS came on very abruptly for me during an episode of severe panic and depersonalization/derealization - Like a switch in the brain. Not because I forgot to take my vitiman C in the morning.

I also recall someone stating that their symptoms were lessened by socializing, and during an extreme hangover. I personally experience the same, particularly with extreme hangover. I speculate that this is due to the fact that the with extreme hangover the body/mind drops its defences and simply gives in & the persistant, nagging, subconcious, racing train of thought is silenced. I also find that my symptoms are lessoned when sick or in pain. Pain especially. A lot of people that experience DP/DR cut themselves because it makes them feel better.

Just some thoughts. I am happy to take criticism/mockery.

[Kima]

With all due respect, OverIT, Urano  stated many times  that his recovery has
happened  way before  he went on the vacation.I assume you missted those posts. He was completely off his supplements during his  vacation and it was a proof that it worked for him for the overall condition and not  only for the symptoms relief. Many people including me couldn't socialize during  POIS since we had constant POIS.  Staying in public was like a torture.

[acronym]

I'm going to throw another weird symptom that I have that out and wondered by any chance someone has had it....I have a very limited time on the computer because the light from the screen either causes me to throw up or causes pain throughout my body or gives me a really bad headache....anyone??

could be that the screen reminds your subconsious mind about the porn you have witnessed on it.. true?

lol. Are you sure that's not your mind projecting your perspective on porn.
AJS - that's a pretty radical reaction. You cant turn down the brightness and contrast on your monitor to get a better outcome. I find the monitor hurts my eyes less when I am in a bright room, much more so than when its night and only ambient lighting. As for PCs effecting me, yes they have in the past but it was from the EMR. I would noticeably feel worse when ever I had to work in the computer lab at university or at work when I was surrounded by lots of PCs.