[ragnarlind]

I have POIS and also a condition called Empty Sella Syndrome, which means that the pituitary gland is pressed flat in its cavity by Cranial Fluid that builds pressure due to an "incompetent diaphragm". This was revealed by a CT scan and I wonder if the compromised pituitary gland plays a role in POIS ? Has anyone else done a CT scan and found any irregularity with the pituitary gland ?
My headache gets much worse a day after orgasm or even hot sex (along with the other usual POIS symptoms).

[ragnarlind]

I should also add that my POIS episodes feel like a dramatic drop in dopamine (sharp loss of desire and joy in general and that I have compensated with prescription codeine, which is risky business since it can lead to addiction ... never to be taken for more than 3 days in a row but that tends to be my POIS episode duration).

[bognoy08]

First of all my apology to the forum for not posting the 15 minute exercise, I have used. The intention behind this is I thought, whether can I able to add any add-ons to that exercise and I tried many and finally today comes to a conclusion that 15 minute of yoga mentioned in earlier version to be posed and I am posting the. The same is below as follows.
a)   For the first five minutes – pls do the body lossening exercises i.e. to legs, shoulders, hands, neck, - search in google you find many………
b)   For next five minutes – Pls do the dynamic warmup exercises.
The above two steps are the preppatroy steps for the yoga posute.
c)   Now pls do the yoga posture Ardha Matsyendrasana (Only Three rounds – Pls not do more than this, as you are not practicing under the trainer). It may take five minutes.  Pls do not this exercise in full stomach. Your stomach should be empty. Otherwise there may be some other problems. Suggested timings is morning and in the evening before food.  Also, person with knee injury, spinal cord problems should not perform this exercise as it would severe the problem.
Compare the POIS at the beginning of this exercise and now. If you find decrease in the POIS symptoms, my POIS is equal to your POIS and God has finally helped us….We won. 
Update on me:
a)   In my last post, I mentioned that presently my POIS attached reduced to 30% as I am practicing on hour yoga exercise daily. Now, I find even slight reduction can say 25% attack and this attack is tolerable and this 15 minutes.
b)   You may know, from last three years, I tried so many experiments and in yoga I tried one. That is to have Sex after that one hour exercise ( I compare taking of Nicain and have sex and accordingly I tried this).  So, out of past 15 days, 6 times I had Sex & big O immediately after the one hour yoga exercise and the results are amazing. After big O, now there is no POIS, it is 0%, further I am experiencing opposite to POIS i.e. relaxation of mind and peace can say, it is POST ORGASMIC HAPPINESS SYNDROME (not a syndrome). Yes, if I do, O after one hour exercise, I am experimenting, full of joy, happiness, its like heaven to me…. But, if I had O not after exercise, then again that 25% POIS symptoms. My yoga thereapist told this 25% would come to 0% in just two months.
Logic behind my solution:
c)   As explained earlier, it was the problem in nervous system. Now because of yoga, my nervous system is strengthening. So, presently, I am having three solutions.
a)   15 minutes exercise to recover from POIS attack if I had O in the night
b)   One hour yoga to reduce the attack from 25% to 0% in next few months
c)   Had O immediately after yoga (i.e. like niacin experiment) to enjoy 0% POIS & especially happiness.
Way forward:
a)   At presently, I shared only the macro level of the solution which I got. If any one of you find reduction is POIS symtoms, and if this theory is apply to all, then I am ready to share full one hour yoga exercise (containing many i.e. loosening exercise, dynamic exercise, pranayama, various types of breathing, yoga posture, relaxation technique). Waiting for your reply.
 
 

Hi nathan123. thanks for sharing the 15 minute yoga posture. i'm beginning to apply this Ardha Matsyendrasana. though I felt awkward doing this but by the 3rd day i begin to appreciate this exercise. i felt something good inside me. it makes me relax. i think yoga is a good form of exercise since it's not impact exercise. it is soft and gentle to the body. by now im in my first day after O. i'll try to feel the difference by doing this 15 minute exercise but i know it will take a month before i feel the big difference. the way you write your post about your new found cure there is a lot of enthusiasm and that's enough for me to believe. i prefer natural cures or remedies over taking prescription drugs. i'll update you with my developments. thanks a lot. God bless you more. []

[goosewort]

Update: It seems that my symptoms were caused by poisoning! I have been poisoning myself regularly by eating raw honey. For some reason, raw honey gives me terrible neurological symptoms, which are compounded by orgasm. Lack of coordination, brain fog, social anxiety, depression. Raw honey also caused hot flushes all over the body and involuntary orgasms during the night. I found this after a strict elimination diet when I noticed that adding a bit of honey to my regular meals caused hell on earth. I still don't eat after 2 pm which I find has many health benefits and was the propeller of going on an elimination diet and finding the offending ingredient.

So my advice to everyone here is to go on a strict diet (e.g. only fruit, morning and lunch, skip dinner) and pay attention to how you feel after introducing every other ingredient.

[Kima]

Finally begin medical research January 27. Komissaruk professor told me.

[vinred]

Hi,

I have been facing the POIS symptoms for past 7 years or so. I am 31 years old and have been reading this naked scientists forum and POIScenter forums from past 2 months and they have been very helpful to me. I was trying niacin after an O (NE), but it made my symptoms worse (I have almost all the POIS symptoms listed on these forums and probably a few additional  [] ). I know I should use it before 'O', I will try that next time . I tried claritin and advil after an O, they had very good effect on me, my POIS was about 75% reduced.  only tried it once, i will see if the effect continues. But i was feeling good after many years after an 'O'. My symptoms will usually last for 2 to 3 weeks. As time is passing more symptoms are arising and I really hope that professor Komissaruk will find an answer for this beast.

[dolphinenergy]

I have POIS and also a condition called Empty Sella Syndrome, which means that the pituitary gland is pressed flat in its cavity by Cranial Fluid that builds pressure due to an "incompetent diaphragm". This was revealed by a CT scan and I wonder if the compromised pituitary gland plays a role in POIS ? Has anyone else done a CT scan and found any irregularity with the pituitary gland ?
My headache gets much worse a day after orgasm or even hot sex (along with the other usual POIS symptoms).

This is my first post here, but I have read much of this thread carefully.   Yes, many others, including myself, have pituitary abnormalities.  The best scan to detect these is a contrast enhanced dedicated pituitary MRI. I have a pituitary microadenoma.  I have read about other POIS sufferers with pituitary adenomas and partially empty sellas.  My microadenoma was not picked up on a standard MRI brain scan, only a contrast enhanced scan, with an emphasis on the pituitary. 

It seems everyone with POIS who has the contrast enhanced MRI pituitary scan discovers an abnormality.  Since about 20% of the population has a pituitary abnormality of some kind, these results, in isolation, are not seen as significant and are dismissed.  However, if 5 POIS sufferers are scanned, and each has a pituitary abnormality (none does not), then this result is highly statistically significant, when considered as a group.  This result is suggested by postings on this and other forums.

I really hope the pituitary is investigated, including contrast pituitary MRIs, in Dr. Komisaruk's upcoming research study, and other future research on POIS.

[aWife]

Hello,

I am a 32-year old girl from Ukraine, living in Germany. I have the symptoms described throughout this thread for about 10 years, although I understand you are focusing on men here. Until very recently I was not aware that other people also suffer from this and there is actually a name for it.

Years ago I underwent some tests and analysis related to my symptoms in Ukraine, but nothing helpful was found.

I was wondering if anybody knows about research or doctors focusing on women suffering from POIS?

Specifically I also wanted to ask if there is any information available on whether POIS is likely to be inherited? My husband and I are planning to have children and this causes great concern to me.

Many thanks to everybody who has contributed to this thread so far and provided valuable information. I would appreciate any advice concerning my situation.

Tatyana

[Kima]

Hello,

I am a 32-year old girl from Ukraine, living in Germany. I have the symptoms described throughout this thread for about 10 years, although I understand you are focusing on men here. Until very recently I was not aware that other people also suffer from this and there is actually a name for it.

Years ago I underwent some tests and analysis related to my symptoms in Ukraine, but nothing helpful was found.

I was wondering if anybody knows about research or doctors focusing on women suffering from POIS?

Specifically I also wanted to ask if there is any information available on whether POIS is likely to be inherited? My husband and I are planning to have children and this causes great concern to me.

Many thanks to everybody who has contributed to this thread so far and provided valuable information. I would appreciate any advice concerning my situation.

Tatyana

Hi  Татьяна , зарегистрируйтесь на нашем форуме, здесь наши http://zdoroforum.com/viewtopic.php?f=9&t=2&start=4710

[maurice]

Dear Folks,

First of all it is great this forum exists and good to see how people tries to help each other, sharing their experiences.

The experiences I have are almost 7 years old now, as my POAS started around in 2007. Since then the sickness became worse so I tried lot of things, some of the treatments were the same like you had. Now, I'll summarize all I know about it, maybe it will help for some of you.

Symptoms after ejaculation (doesn't matter the form):
- breathing difficulties
- pale skin
- change of the heart rythm
- dizziness
- extreme tiredness, especially the next 2 days
- feeling cold
- feeling weak
- fearing from death
- whispering or avoiding the speaking
- loss of hair
- back pain, especially middle back and lower
- kidney pain
- stitch in the side
- pain under the nipples
- changing colour of the urine
- long sleeping, but still fatigue

If more than 3 of these symptoms you feel after sex or masturbation, probably you suffer a kind of POAS.

The symptoms will be stronger and longer so it is not recommended to wait with the treatment for long time. First, I recovered in 1 day, later I needed 3-4 days.

Western treatment
You can go with this problem to GP or urology. Probably they will make a blood test and in case of urology, an ultrasound/ ultrasonic test. If they not find any major, like tumor or blood cell disease, they will send you home to have rest, or they make hormon test. In my case, testosteron level was low, so I got hormon theraphy. But for me it didn't help ( maybe in other cases, it helps). Then they told they cannot do anything with it and sent me to alternative therapist.

Eastern treatment
 I went to acupuncture doctor who told me my chi level is low and my kidney function has been damaged and suffering underperformance. It means this causing many symptoms I already wrote above. He started to treat me which made faster the recivery process, but it didn't help to stop the disease, so I had to visit him regularly. He also advised to take the following stuff often:
- licium (goji berry)
- cranberry
- drink lot of liquid, especially hot (tea, soup)
- ginzeng
- ginger

Actually, all of these stuff helped me a lot, and made quicker the recovery process.
However the disease was still with me. Since then, I found many things which were helpful. One of them was the nail bed. It may sounds strange, but I can confirm, it really helps to energetize you and makes you sleep better. You can find them as acupressure matrasses too. This only helps if you use regularly. Sometimes it stopped all the symptoms, but after I got up, they came back, until I "recovered".

I would add couple of things, which were helpful to reduce the strength of POAS:
- avoid sugar and sweets
- avoid citrus, like lime, lemon or orange and such juices, they all cools you
- avoid alcohol
- avoid spicy food
- avoid being awaken during night time
- taking food and drinks hot, so you body will not use energy to heat them up
- put on enough clothes, keep your legs and waist all time warm
- have hot shower, but not stay long time in hot water
- do physical activity, which not makes you too tired - for me the thai-chi and chi-kung were helpful, but yoga is great too or something which energetize you
- try not ejaculate in sex (I know it is not easy)
- eat vegetables which help your kidney staying healthy (like beans, cinamon, etc).
- learn some acupuncture point you can press if your chi is low - the first kidney point, which is at the middle of sole of the feet you could press it by your finger.

Most of the POAS symptoms connected to kidney problems and the weakness of nerves and kidney. You can strengthen them and it may helps you to recover better and faster. But - as I mentioned - it will not stop completely the POAS. If I manage to find the root of this sickness, I will add here for sure.

Take care guys and keep warm your waist all the time

[acronym]

Hello,

I am a 32-year old girl from Ukraine, living in Germany. I have the symptoms described throughout this thread for about 10 years, although I understand you are focusing on men here. Until very recently I was not aware that other people also suffer from this and there is actually a name for it.

Years ago I underwent some tests and analysis related to my symptoms in Ukraine, but nothing helpful was found.

I was wondering if anybody knows about research or doctors focusing on women suffering from POIS?

Specifically I also wanted to ask if there is any information available on whether POIS is likely to be inherited? My husband and I are planning to have children and this causes great concern to me.

Many thanks to everybody who has contributed to this thread so far and provided valuable information. I would appreciate any advice concerning my situation.

Tatyana

Hi Tatyana. I see you seem to have acquired POIS around age 22. A bit later than puberty. Can you remember anything that happened to your life around that time that you suspect may have triggered it?
Does it make any difference for you if its sex or masturbation? I assume it doesn't. For many here it is worse with the latter. I thought there have been a few stories of women being allergic to their husbands semen.
How many days does it take for you to recover?
Has it got worse or better for you over the decade?

From the posts I have read on and off over the last 3 years, I have not seen any mention of a hereditary factor. I suspect many guys here are embarrassed by the condition and have keep quiet about it with their friends let alone discussed the condition (which did not have a name until a few yrs ago) with their parents. Mine thought I ended up with chronic fatigue syndrome (which I probably did at one stage) but early on they thought I was just lazy. Personally I suspect there is a hereditary element,,,not that any offspring will necessarily acquire it for sure, but just that there is a genetic weakness in the dna that makes us susceptible. (just my theory)

[RhythmSpring]

Hi,
A guy named Scott sent me a PM through an email, and I have no idea how to respond to it (I got an error message back when I replied to the email address). So I figured I'd post the response here in hopes that he sees it.
Regards,
Dan

~~~

Hi Scott,
Thanks for getting in touch! It's so cool to get an email from a message board I rarely visit anymore. My approach to POIS has changed so many times over the years, and even within the past couple months, it has changed drastically.

The way I see POIS now is this: It is not an affliction caused by orgasm. It is depression, anxiety, lethargy, etc., from deeper issues... and orgasm is just a trigger. More specifically, sexual abstinence allows a build-up of energy--hormones, neurotransmitters, what have you--that help with coping with these issues; abstinence provides a surplus of energy with which we use to cope, and perhaps feed into egoic structures that help us feel safe and secure. And then, when we release this energy, these structures fall apart, and we are left with our emotional pain and fear again.

Therefore, I have resolved to be sexually active (within reason), and deal with my issues at the base level. Abstinence was a very effective band-aid for me until I gave in to sexual activity.

Anyway, I use this maca: http://www.amazon.com/HealthWorks-Wild-Organic-Peruvian-Wildcrafted-Superfood/dp/B0015P54R8/ref=sr_1_1?ie=UTF8&qid=1422403755&sr=8-1&keywords=maca+powder

which is a HUGE improvement from the maca I was using previously. They were both raw maca flour, but for some reason this one is so much better. Richer taste, texture, and effects. The previous one just made me horny. This one makes me feel physically stronger, among other positive mental effects. I find that, if I take it liberally, it reduces my recovery time from about 1-2 months to 3-7 days.

Chuchuhuasi is interesting--some people don't feel anything from it. And most people don't know about it.

Syrian rue is quite psychoactive. It is quite relaxing, relaxes the ego and the thinking mind and allows for a kind of trance if you take enough. It reduces cravings for unnecessary foods, and ... yeah, it actually has a lot of positive benefits. I use it for the aforementioned reasons as well as reducing inflammatory arthritis pain and inflammation. It's even been shown to induce bone cell and cartilage growth, and I swear, it's having that effect on me, too. As for addressing POIS symptoms, I find it just allows me to be more grounded and in-touch with my emotions.

There's no mistake, syrian rue is a powerful psychoactive and therapeutic tool if used with intention. Some people combine it with other plants to make an Ayahuasca analog. If you haven't heard of that, I recommend looking it up.

The bottom line is, I have found it much more worthwhile to seek the reasons for which I'm experiencing depression, anxiety, etc., and resolve them, rather than seek to cover up symptoms and chalk POIS up to an unlucky roll of the biological dice.

Hope this helped,
Dan / RS

[aWife]

Hi Tatyana. I see you seem to have acquired POIS around age 22. A bit later than puberty. Can you remember anything that happened to your life around that time that you suspect may have triggered it?
Does it make any difference for you if its sex or masturbation? I assume it doesn't. For many here it is worse with the latter. I thought there have been a few stories of women being allergic to their husbands semen.
How many days does it take for you to recover?
Has it got worse or better for you over the decade?

From the posts I have read on and off over the last 3 years, I have not seen any mention of a hereditary factor. I suspect many guys here are embarrassed by the condition and have keep quiet about it with their friends let alone discussed the condition (which did not have a name until a few yrs ago) with their parents. Mine thought I ended up with chronic fatigue syndrome (which I probably did at one stage) but early on they thought I was just lazy. Personally I suspect there is a hereditary element,,,not that any offspring will necessarily acquire it for sure, but just that there is a genetic weakness in the dna that makes us susceptible. (just my theory)

Dear acronym,

thank you very much for your reply, which I really appreciate!

My assumption is, that my problems started because I was too stressed back then (I graduated from the University and after that I was looking for the job).

I try to think positive and hope for the best regarding my future children. Thank you for sharing with me your ideas on that topic, this helped me a lot.

Best regards,
Tatyana

 

[Colin2B]

Does this get the record for the greatest number of posts on one topic?
If so it must have hit the sweet spot!  []

[stevenoc]

Yeah this is great. Nearly 4million views. I live in hope for some sort of treatment soon. [] []

[kn]

Hi there,

I don't know if anyone is using this forum anymore but I hope they are.
I am a researcher who happens to have pois and I'm incredibly frustrated and scared by the chronic immune issue/extreme fatigue/cognitive issues (not being able to find the right word, short-term and long-term memory issues, facial recognition issues)/social issues and weird reactions to anxiety I've never had before/raynauds syndrome, skin reactions etc. I've experienced...I have found something that has helped me regain my cognition. Abstinence and The Wahls Protocol. The cornerstone of this approach is coconut oil, around 5tbsp/day. It will give your brain cells enough energy to do their daily tasks and repair the damage that has been done. Hugely improved energy. When I follow the diet religiously + coconut oil - my memory and cognition improves significantly. Still don't know how to prevent the immune reaction but it's giving me my life back.

Good luck everyone

[Limejuice]

Kn, here's another community of pois suffers that are more active - http://www.poiscenter.com/forums/index.php

[ozmoses]

How many of you have low testosterone levels? Ignore the conventional reference ranges, and check your levels against what is considered normal for your age. 
Check out this link. http://www.artofmanliness.com/2013/01/16/normal-testosterone-levels/ [nofollow]

I'm curious to know if most or all of you have total testosterone level of 400 or lower. 

[duke0knight]

POIS NATURAL HEALING:
I was lucky that I suffered from Post Orgasm Illness Syndrome for only 6 months until I found a natural way to heal myself on my own. I have searched everywhere online and have heard that POIS is not curable at the moment and that the only solution so far is to inject people with their own semen because doctors think that we are allergic to our own semen (I dont think that is the case or at least not in my case).

 I AM NOT A DOCTOR so please do not rely on my advice 100%. Many of my statements probably arent 100% accurate but roughly I think they are correct and they did cure me from POIS. I have only been POIS free for the past 20 days (but I had orgasm every night and worked in my office 6 days a week, 11 hours a day - pretty tough on a body and yet NO POIS SYMPTOMS) so Im still not 100% sure that all of these things that Im naming here below work but I just really want to hurry and not wait longer and help people out there who still suffer. In case I do discover some more relevant knowledge about beating the POIS I will write back here or on some other blog UNDER MY BLOG NAME "DUKE0KNIGHT."

From what I have learned after trying for months to cure myself is that all my troubles originated in my stomach and my Adrenal Glands. The CURE was to REDUCE the amount of CORTISOL AND ADRENALIN in my body throughout the day and especially in the seconds immediately after my orgasm:
- too much stress raises the levels of cortisol and adrenalin
- if you are stressed all day long your levels of cortisol and adrenalin are high and your Adrenal Glands keep producing cortisol and adrenalin even during night (because they are used to producing it and just cant stop producing it that easily) so that is why many of us cant sleep well during night. I had NO IDEA that I had stress and I never believed in it. It just sound stupid to me but I learned that STRESS is very present in our lives and really damages our bodies.
- YOGA helped me a lot. I go to yoga 3 times a week. At first I didnt want to go to Yoga because its boring but after doing it 5 times I started recognizing how bad my breathing was and how stressed I actually was during the day. I believe that through correct breathing we reduce stress and therefore we REDUCE CORTISOL AND ADRENALIN which are the MAIN REASON FOR POIS. I also did Infra Red Sauna 20 times but I dont think it helped me that much.
- if you think about it the symptoms that you get after an orgasm (or at least thats  how I feel) are very similar to the body feeling after a big stressful moment in life and/or very low immunity and/or getting a flu. THIS IS WHAT helped me realize that CORTISOL AND ADRENALIN are the main reasons for my POIS. Cortisol and Adrenalin are being excreted DURING ORGASM.
- the only natural ways of reducing Cortisol and Adrenalin I could google online that worked for me were:
- Yoga
- A bunch of herbs that REDUCE Cortisol and Adrenalin and INCREASE MELATONIN (Melatonin is very important because it fights agains Cortisol and Adrenalin): HOLY BASIL LEAF, ST JOHS WORT, ASHWAGANDHA, MACA ROOT, KAVA, VALERIAN ROOT, REISHI MUSHROOM.
- make your room PITCH BLACK DARK when you sleep because that helps elevate the levels of MELATONIN. Melatonin is great and you need a lot of it to fight away Cortisol and Adrenalin. The sunlight or indoor light (bulbs, computers, cellphones, etc.) reduces Melatonin in our bodies and that is why we need to keep our bedrooms very dark (cover windows, cover door holes, and take out computers and cellphones or at least put them further away from your bed).
- try having 8-9 hours of sleep and try falling asleep BEFORE 12AM because Melatonin is being produced I think starting at 10pm so you dont want to miss those hours being awake.
- Immediately after orgasm (literally a second after you have an orgasm start doing heavy Yoga style breathing to reduce the excretion of Cortisol and Adrenalin. Try to relax your entire body by breathing and reducing the Cortisol and Adrenalin excretion. During orgasm Cortisol and Adrenalin are being excreted and that is BAD. Im not sure about this breathing thing but I think that it does help me. The thing is that the moment I realized that it is Cortisol and Adrenalin what causes my POIS I hit Cortisol and Adrenalin from all sides with multiple approaches (Yoga, herbs, sleeping on time and for 8-9 hours, breathing after orgasm, etc.) so now I dont know which one of them are actually working and which ones arent that important.

Final thing that I did was get a nutritionist to help me. Im not sure how instrumental she was but she definitely helped me with my stomach issues. Bad stomach issues can also lead to STRESS in your body and we all know now that STRESS EQUALS CORTISOL AND ADRENALIN.
After doing hair mineral test, blood micronutrient test and blood spot test (this is the list of those tests but I think you can do it through any other company that does the same thing: arlok dot com, greatplainslaboratory dot com/home/ , spectracell dot com)  she has shown me that there were multiple imbalances in my body (for example I had too much copper, aluminum and mercury, lack of zinc, etc.) and taught me how to eat well. Her website is: nourishholisticnutrition dot com but you can also go to any other legit natural healing nutritionist and Im sure they will be helpful.

I REALLY hope that some of you will be cured from POIS by following my advice.
Please, email me at duke0knight AT gmail DOT com if you have any questions and I will do my best to answer them.

Thanks,
DUKE0KNIGHT

[POIS-SUFFERER]

Interesting as I too have bad stomach and WAY too much stress.....

When I eat and digestion kicks in I have much anxiety as the feeling of the digesting makes me very very weak... I have been trying apple cider vinegar and digestive enzymes and HCL pills and these are helping me to digest better, which helps a lot....

I have many panic attaches and I think its all related, the stress, adrenaline and cortisol.

Good post!

PS.