[4everfogged]

For those of you taking regular (flushing niacin) how many milligrams are you taking at a time and how many times per day? 

I usually take a minimum of 500 and a max of 1000 at a time.  I like the flushing so it doesn't bother me.

I don't think you supposed to take it on a daily basis. As far as I'm concerned some seem to think that your system gets used to it and eventually stops working if u use it too much/often.

Rather try it on empty stomach: For example wake up at 3:00 AM (best) or dont eat anything in the evening.(Let's say minimum 7 or 8 hours after the last time you had food)

Swallow minimum 108mg/125mg (If it did not work; next time try max +/-160mg)

The flushing should occur

Then wait at least 1 hour (rather 1,5 hour)

Then have O (the less excited the better)

-----------------------------------------------------------------------------------------------------------------

The first time I tried it this method. On the first day I had up to 85% improvement with concentration and all symptoms in forehead. But the 2nd day was a bit less effective by lunchtime (but still way better off than I'd normally be). The days thereafter were easier and easier.

At night-time when trying to go to sleep I can still feel that my upper body is still under inflammation though

------------------------------------------------------------------------------------------------------------------

I think the whole idea of using niacin is to rather abstain for a while afterwards though. Nobody seems to know what are the effects of this niacin flush on us on long term basis.

Sticking to a healthy diet (especially no bad fats, junk food, sugar, etc....) also plays an important factor in managing POIS. Though a healthy diet will probably help with almost any illness one could have.

[4everfogged]

Ozmoses,

A tip: When you want to search something in old posts try the following

niacin pois site:http://thenakedscientists.com
or
niacin site:http://poiscenter.com
replace niacin with any word

This has already been mentioned somewhere though

Take care,

[4everfogged]

I was wondering if anybody ever tried slow release (timed release) niacin, rather know as nialipin?

[4everfogged]

Detox supplement called "permufor"

Probably worthwhile for us to have a look at

http://www.nutrifor.be/en/produit/nutricament/permufor

Does any POIS sufferer know about this product?

[kitkat58]

    Hello,
       I am new to the group. I always put off talking about this subject to anyone. These headaches started for me when I was 19, I am a old grandmother now at the age of 56 each time the headaches get worse and worse and last longer and longer. I am always worried I have popped a vessel in my head it hurts so bad but I am still not ready to give it up. Sometimes the headaches will last up to a week. Talking with the Dr today wasn't as bad and embarrassing as I thought it would be, she didn't make me uncomfortable about it at all. They are going scheduled me for a MRI to see if I have any brain left after doing this for so many years,lol Its good to have someplace to come to talk about such things. Thanks for listening.
kit

[4everfogged]

    Hello,
       I am new to the group. I always put off talking about this subject to anyone. These headaches started for me when I was 19, I am a old grandmother now at the age of 56 each time the headaches get worse and worse and last longer and longer. I am always worried I have popped a vessel in my head it hurts so bad but I am still not ready to give it up. Sometimes the headaches will last up to a week. Talking with the Dr today wasn't as bad and embarrassing as I thought it would be, she didn't make me uncomfortable about it at all. They are going scheduled me for a MRI to see if I have any brain left after doing this for so many years,lol Its good to have someplace to come to talk about such things. Thanks for listening.
kit

Hello Kitkat58,

Welcome to our "POIS club". If you don't mind me asking you, could you tell me if any of your children or grandchildren have or you suspect have POIS or do they have any other illness (allergies)?
The fact that I always knew/suspected I was suffering from this illness, and by the time I was almost 30 I pretty much decided that I did not want children. I simply decided that I did not want to put a kid on the world facing the same faith. I got to admit though that my thinking pattern was very different in my 20's and could well have ended up having a kid(s). But today even though I kind-of wish I'd have kids I think it would exhaust me too much.

-----"Respect for those partners living and putting up with a POIS sufferer"-----

As far as I know there's also a small forum on reddit.com where woman are sometimes in dialog about POIS.
More than likely, and as far as I know, if you have POIS they will find nothing with a standard MRI scan.

[desperate man]

Long time no speak. Things got worse. Actually, things are pretty life-threatening at the moment. I have been complaining with blood sugar issues for the past 2-3 years. I actually decided to buy a glucose meter and it turned out my morning fasting BS is 220, that is double the normal. But by the end of the day it gets to 400.
I'm in my late 20s and pretty much scared to death. I have thought of everything else, but diabetes... and it could actually explain every symptom I'm experiencing. I'll try my best to get a diagnosis this week. I hope this will be the answer for my POIS. Since low testosterone is linked to T2D it could explain POIS by pushing an already high BS to even higher. Ejaculation > rise in prolactin > decrease in T. But sadly I'm likely to be either T1 or LADA.  [V] Will keep you guys updated.

[Habibou]

Gbodulev, I am very interested by your theory about the POIS roots, dealing with digestive enzymes deficiency.
I am myself lactose and casein intolerant, with some digestive issues.
I just bought "Digestive Enzymes" 100 tablets from Solgar today and noticed it was 65 mg of Betain HCL and 30 mg of Pepsine per tablet.

What is the level Betain HCL and Pepsine you would recommend (according to your experience with it) for a normal meal, please?

Thank you very much!

[4everfogged]

From Poiscenter

http://www.poiscenter.com/forums/index.php?topic=2074.0

REMINDER

Hello POIS readers and POIS members,

If you believe you have POIS, I ask you please to do the survey which is still currently running. I personally believe that it’s crucially important to all of us including you that we all complete this survey. As much as I believe that we are slowly moving in the right direction to have this illness properly understood, recognized, diagnosed, finding a cure, etc. it is still very important that as many of us as possible collaborate together on this.
The reality is that for any illness to be fully understood and recognized we need 1000’s of participants to come forward on this, because only this can make a true difference in finding true momentum.
I completely understand that sometimes for some with POIS we feel completely messed up in our heads and body that we barely find strength to bother completing such surveys. But you just need to do this.

The survey is easy to complete and has ample space (including the last page number 4) to write your own words/theory that you might want to include

One for all, all for one.

Thanks

[4everfogged]

This spam has been removed.

Hi Savannah & John (Pois Remedy Staff)

On how many people have you tested your product on?
Do you have a recognized clinical research report that proves it works?
What does the ingredients and nutritional values contain?
How do you know that there are millions that suffer POIS?

Thanks

-------------------------------------------------------------------------------------------
I'm glad to see this add has been removed!!!

[John21 (OP)]

Every day before breakfast and lunch, 1x57g capsule of Taurine and magnesium 900mg with a bit of water (room temp),

Taurine is the KEY of my Pois. It makes a HUGE difference.
It's like if taurine is "pumped" after ejaclation to "regenerate" something (testosterone ? semen ?).

But you made a mistake in dose, 1x57g is not correct

Interesting. I recently tried Taurine, I had an NE and using Fenugreek and Taurine I had no symptoms. I forget now why I even tried Taurine, but it could be a keeper.

[B_Jim]

Happy to read that, John !
I take it since one year now. I reject all possible placebo effect, it simply works against Pois.
I don't know how does it work. I just made a bloodtest this week and maybe I will have some info soon.
At the start I had a strong anti-anxiety effect, anti-muscle tremors and even... anti-premature ejaculation. Does taurine help with magnesium or boost testosterone or avoid dopamine drop after ejaculation ? But something is working that is clear.
Now, I take only 500mg before ejaculation. I have a very little fear that excess of taurine can affect testicles.

[4everfogged]

Hi everyone,

The fact that the naked scientists forum and poiscenter has helped me a lot to combat my POIS. I thought it’s my duty to also add some further details regarding what I’ve been doing to fight this monster.  It’s almost been a year now since I’ve discovered POIS and I think that I’ve finally moved a big step forward. Though I still feel there is a lot of work that needs/must be done. Something that I don’t think  I’ve  mentioned yet in earlier posts is that one of the first things I did in the first months is I had a professional blood test done and based on the results I was recommended a range of supplements and vitamins. This was carried out by a doctor that pretty much only does this and accordingly to what his patients explain him about their health complaints. Although I am currently living in Europe where I have done this, his system is based on Linus Pauling system (USA). So I presume it was a quality option. After about 3 months of taking the recommended supplements my blood was tested again. According to the new results, on paper I was supposed to be well above average in terms of health.  Although I did feel stronger and reducing stabbing pains (to a certain degree) in my chest (felt like a knife cutting through my heart at times) against combating POIS there was obviously still something very wrong. That’s when I started searching more intensely in whatever remedies I could try find on the forums. Nothing was working exactly the way I wanted it to because sometimes they work sometimes they don’t, etc… Things just never seem reliable I even tried a custom made testosterone (mentioned in earlier post) where the positive effects seemed short lived to my disappointment. I’ve spoken to a whole list of specialists and the greater majority could sadly not help me at all except for maybe 1 or 2 tips that usually did not really help me anyway. One of the most frustrating things is that although most appointments could be done quite quickly with some, I had to wait months before I could see others. And in the last 2 months quite a lot has happened shortly after one another and I currently feel like the last weeks seem to be paying off (I just hope I finally found stability because I’ve had many short lived situations.
 
So here I explain what my most recent events are.  I had a 1,2/1,5 hour embolization treatment/ operation for varicocelle.  A Dr/Prof.  endocrinologist recommended me to first  get this sorted, after I asked him to look into my POIS.  I obviously need to wait a few weeks to see in what way this will have a positive impact on me but in the meanwhile within a week after this I also had appointment planned with a biologist/nutrition-expert as I wanted to find someone advising me on a system to support me with inflammatory gut issues. This guy put me on an additional 3 supplements with a diet plan to clean my digestive system (flora/pro biotic). He also asked me to temporarily try completely stop eating all starches (bread/pasta/potatoes/rice/French fries/etc…). Interestingly enough before all this I again had blood taken because I insisted to get allergy testing done on it. The fact that in Waldinger’s papers it mentions that the greater majority of POISers are “Atopy” I thought it’s important to keep insisting in allergy tests. With time I will try get more allergy tests done but so far I’ve just received confirmation in the meanwhile that I am allergic to wheat and other. So to cut out all starch was also a good plan of action in my case.(Takes a bit of getting used to/feeling rather hungry at times now/ losing weight).  On top of all this to confuse things further I also take 2 daily flat table spoons of a supplement that supports intestinal function (mentioned in previous post). Don’t forget I also take L-Tyroxine.

Normally I currently only have an O every month or so as the suffering is just not worth it. And if I don’t have O I’d just end up with frustrating emission’(s). I most recently had O and this time my symptoms were barely noticeable (Best ever). I touch wood and hope that I manage to keep this under control as I currently stand and also hope that it wasn’t just a one time off. I feel a bit like I have to follow a daily agenda now and need to be careful in maintaining this and prevent any abuse whether it’s a diet treat or O. Time will tell.

I personally think that the combination of stopping with eating starch (certainly my case) and promoting healthy gut/digestive tract which was recommended to me by the biologist/nutrition-expert is probably the biggest contributor in reducing the symptoms after everything that I’ve recently done. After O, I had no feelings of depression (which I sometimes get), I did not get that feeling of exhaustion or tiredness, I did not get any stabbing pains, and my concentration had up to 90% improvement.
 
Sometimes I was thinking that I need to wait a bit longer before I say all this but even if I lose control I still think it’s probably interesting from a scientific point of view that playing around with these options confirms that something must be changing in a positive sense. My overall sleeping also seem to improve, which is obviously also important.
--------------------------------------------------------------------------------------------------------
Besides POIS with it’s subsequent symptoms another personal issue I have is that I generally feel very sensitive regarding  mental clarity, it’s like as if I am ultra-sensitive when it comes to this depending when I eat, feeling hungry or simply from a change in using energy, etc…. I don’t see much on the forums about members mentioning complaints regarding this outside their POIS recovery days. Or am I missing something here???. The fact that the greater majority of doctors/Prof I’ve spoken to barely have any knowledge of POIS, they obviously don’t know where my complaint is coming from. This is obviously also something that is generally not regarded as to be recognized although there must be an underlying issue I have.  Sometimes I’m wondering if years of suffering of POIS without finding a true remedy is a contributing factor to this!!! I got to admit though that as I stand at the moment, the recent steps I’ve taken seem to have helped me to partly address this. Any advice on this will be appreciated!!!!!!!!!!!!!!!!!!!!!!!!???
--------------------------------------------------------------------------------------------------------------
Anyways I’d also like to say that so far all this has cost me a lot of time and money; without mentioning what it’s all done to me in the previous years!!! Perhaps I should still count myself lucky cause I don’t know how some youngsters would be able to afford going through all this. It’s a cruel world we live in. May the strongest survive as some say!!!
Lets hope the researches find a true solution and I'd like to thank once again all participants on the forums especially Demo, Dave, Stef, G-Man, Outsider, Colm, Pianist, FB, Habibou, Quantum,and loads more...
---------------------------------------------------------------------------------------------------------------
Tip: don't just start taking things I've mentioned here, talk about it to your doctor first.

[4everfogged]

Adding to my above post it’s probably also important I mention again that I do at least 3/4hour to 2 hours a day of fast walking (deep breathing). This combined helps me keep control of my situation.

[4everfogged]

***TESTOSTERONE***

Want to report something extra here cause some are always considering testosterone (TST). I Don't want to discourage anybody but something to think about here.

In November last year I got a new and pretty complete blood test. The weeks before this I took no supplements whatsoever to start once again from a clean "bill". My readings for the TST part were as follows:

SHBG        39.0     ref. 18.3-54.1 nmol/L
TST total   472             280-1100  ng/dL
TST free    7.90           6.00-18.00 ng/dL

Then as mentioned in previous post I started taking TST gel (custom lab made; supplied by reliable source; therefore not over the counter version)

New results from late Feb this year (clearly shows I'm on TST gel)

SHBG        25.1      ref. 18.3-54.1 nmol/L
TST total    782             280-1100  ng/dL
TST free    18.41           6.00-18.00 ng/dL

As mentioned in previous post, effects felt short lived even though I was initially and temporarily "over the moon" etc. (you can search old posts on this site)..... so I stopped using TST

In the meanwhile I got new results again including TST taken mid-June this year.

SHBG         37.2      ref. 18.3-54.1 nmol/L
TST total    343             280-1100  ng/dL
TST free     5.93            6.00-18.00 ng/dL

As you can see these last results show a considerable drop has occurred according to this blood test. BUT at the moment on average I still feel that i am feeling better off with my current new regimen. So in my case TST gel supplement obviously was nothing for me. Perhaps it has caused nothing else than damage in my case!!! At this present time and as time passes I want to further fine tune my current strategy that I mentioned in previous post(s).

I know I'm only one example but hope this gives POISers something to think about. Waldinger obtained my 1st results mentioned here on paper.

I still keep my fingers crossed that the research finds the ultimate solution for us.

-----------------------------------------------------------------------------------------------------------------------------
Extra info: All these blood tests were done in the morning approx 3,5 hours (max 4 hours) after I woke up in the       
               morning. I can unfortunately not recall how long before I had O.

[4everfogged]

It's been rather quiet here on this forum lately I hope you all still fighting this monster!!!

[Bulbo]

Hello everyone
I have been following Gcrisp's (NSF Forum) advice of eating eggs for POIS . I have been eating 2 eggs daily for 7 months. My POIS duration has reduced from 5 days to 3.5 days. Duration of Pois after notcturnal emission has also reduced

[4everfogged]

Hello everyone
I have been following Gcrisp's (NSF Forum) advice of eating eggs for POIS . I have been eating 2 eggs daily for 7 months. My POIS duration has reduced from 5 days to 3.5 days. Duration of Pois after notcturnal emission has also reduced

Lately I've been mainly focused on which foods are more suitable to eat since I discovered some foods I'm allergic too,etc... But noticed in the meanwhile that a meal with several eggs in one go (+tomatoes+cheese+...) give me a more overall feel good factor in comparison with other meals. Perhaps they work hand in hand to help us with IBS,SIBO, leaky gut syndrome,etc...

One of my favourites have always been salmon (cooked/half raw on inside), especially during POIS faze.

I KNOW.....POIS'ers food choices are often of the most expensive. LOL

------------------------------------------------------------------------------------------------------------------------------
Done a lot of travels in my life due to father's career,etc.....I think if would've stayed in 1 country (EU) all my life I would've had easier time to discover my allergies.... (countries medical system is important)
 

[Habibou]

Here are my hair test which represents the average of the last 3 months standards:
I run out of calcium, zinc, magnesium and selenium and the ration Calcium/Potassium is very low.
I will then take supplements and tell you if my POIS gets better.

[4everfogged]

Here are my hair test which represents the average of the last 3 months standards:
I run out of calcium, zinc, magnesium and selenium and the ration Calcium/Potassium is very low.
I will then take supplements and tell you if my POIS gets better.

My daily intake of recommended supplements partly contains what you mention here, with extra selenium taken separately.
From my understanding, selenium can partly help the thyroid gland that is overworked.
After every O my thyroid gland is always under a lot of pressure.

I've noticed thyroid gland issues have been on the radar since quiet a while according to old posts concerning some POISers.