[thedoc (OP)]

Keith Diplock asked the Naked Scientists:
   My son has two strains of rickettsia and mycoplasma which the tropical disease specialist he is seeing has said has caused chronic fatigue syndrome.  We have been on the treatment of the tropical disease specialist for three years now and my son just isn't getting any better.  Is CFS treatable?
What do you think?

[exothermic]

CFS is a factitious syndrome that is commonly applied when the modality of the symptoms are unknown. I'd argue that your son's chronic exhaustion is primarily due to the hemotrophic bacteria's effects on his immune system. Have you had a metabolic panel performed? What are his WBC/RBC values? How's his liver function?

[exothermic]

Keith Diplock asked the Naked Scientists:
We have been on the treatment of the tropical disease specialist for three years now and my son just isn't getting any better.

What method of treatment is being utilized? Which medications?

[chris]

This interview on Chronic Fatigue Syndrome / ME with Bergen's Olav Mella might provide insightful for you, Keith.

[exothermic]

my son just isn't getting any better.  Is CFS treatable?

You'd be surprised at what OTC supplements can do when the right ones are chosen in relation to the symptoms.

More than likely, the symptoms are not only the result of the bacteria itself, but the treatment as well. If you look at the research on patients who have been "diagnosed" with "CFS", you'll see that the majority of cases have a compromised antioxidant/immune status - which is usually accompanied by marked decrements of intracellular glutathione levels.

Here's an excellent link in relation: http://phoenixrising.me/research-2/glutathione-depletionmethylation-blockades-in-chronic-fatigue-syndrome/is-glutathione-depletion-an-important-part-of-the-pathogenesis-of-chronic-fatigue-syndrome-by-richard-van-konynenburg-independent-researcher

[exothermic]

Keith Diplock asked the Naked Scientists:
   My son has two strains of rickettsia and mycoplasma which the tropical disease specialist he is seeing has said has caused chronic fatigue syndrome.  We have been on the treatment of the tropical disease specialist for three years now and my son just isn't getting any better.  Is CFS treatable?
What do you think?

Pardon my ignorance moderators, but I'm new to this forum. Was this an actual question by a real person? If so, why isn't this person a member of the forum, so he can open the dialogue himself?

[Colin2B]

Pardon my ignorance moderators, but I'm new to this forum. Was this an actual question by a real person? If so, why isn't this person a member of the forum, so he can open the dialogue himself?

Do moderators typically not respond around here?

Are these just fictitious characters & scenarios?

Is there a point to this?
[/quote]
We do but there are a lot of posts to go through and we have other duties on the site.

Yes these are real people asking real questions, but they may have been emailed or appear over social media. The Doc is just the admin function that reposts them here.

[exothermic]

We do but there are a lot of posts to go through and we have other duties on the site.

Understood. Thank you for the response.

[IAMREALITY]

CFS is a factitious syndrome that is commonly applied when the modality of the symptoms are unknown. I'd argue that your son's chronic exhaustion is primarily due to the hemotrophic bacteria's effects on his immune system. Have you had a metabolic panel performed? What are his WBC/RBC values? How's his liver function?

CFS is most definitely real friend.  Your thinking is so kinda two decades ago...

And furthermore, your line of thinking is very hurtful to those who suffer, who have been stigmatized, who have many times had to deal with doctors or the public claiming it was in their heads, or not taking the condition seriously.  But thankfully, those ignorant days are now behind us, since we've now discovered for FACT that it is indeed quite real and indeed quite debilitating.  So I would ask you to do some research on the topic and educate yourself on the realities, prior to answering questions on it as if you know what you're talking about; when it's quite clear you don't.

But there are many sources available online for you to begin your search and education, so it wouldn't take you very long at all to become a bit more current with your information.

[exothermic]

CFS is most definitely real friend.  Your thinking is so kinda two decades ago...

And furthermore, your line of thinking is very hurtful to those who suffer, who have been stigmatized, who have many times had to deal with doctors or the public claiming it was in their heads, or not taking the condition seriously.  But thankfully, those ignorant days are now behind us, since we've now discovered for FACT that it is indeed quite real and indeed quite debilitating.  So I would ask you to do some research on the topic and educate yourself on the realities, prior to answering questions on it as if you know what you're talking about; when it's quite clear you don't.

But there are many sources available online for you to begin your search and education, so it wouldn't take you very long at all to become a bit more current with your information.

Isn't it interesting how the following comments apply to both "CFS" and "fibromyalgia".....

Fibromyalgia is a 'disease' of exclusion, which means its diagnosis is made when all others are ruled out. There is no definite serology, histology, pathology, hematology exc., defined for the disease, and it generally responds well to behavioral therapy, antidepressants, and anxiolytics. An individual with fibromyalgia may complain of neuralgia, but if given a neurological exam testing sensory dermatomes, and motor function, the results will come back inconsistent - although consistent with hypochondriasis.

[exothermic]

So I would ask you to do some research on the topic and educate yourself on the realities, prior to answering questions on it as if you know what you're talking about; when it's quite clear you don't.

Oh really now?

Would you care to critique my comments regarding the marked decrements of intracellular glutathione levels then?

How about giving us a treatment modality and we'll compare it to mine.... then we'll see if you still feel the same?

[exothermic]

as if you know what you're talking about; when it's quite clear you don't.

Try me.... go ahead.

[exothermic]

It's truly sad how the "tropical disease specialist" in question conveniently took the focus off of the actual culprit of his patient's symptoms -- the hemotrophic bacteria [and possibly the treatment protocol], and shifted it to a "disease" with no etiology and no cure.

How convenient!

What a joke.

[exothermic]

Still think I don't know what I'm talking about?

[exothermic]

CFS is most definitely real friend.  Your thinking is so kinda two decades ago.

Let me guess.... you believe in "adrenal fatigue" too?

How about the Tooth Fairy?

[exothermic]

So then what's the point of reposting questions that the author can't and/or doesn't respond to?

If we're not actually responding to anyone.... then none of this makes any sense.

Still looking for an answer to this.

Can anyone explain the premise here?

[exothermic]

This interview on Chronic Fatigue Syndrome / ME with Bergen's Olav Mella might provide insightful for you, Keith.

I think this thread could prove insightful for him..... but I guess that's not how it works around here.

[IAMREALITY]

CFS is most definitely real friend.  Your thinking is so kinda two decades ago.

Let me guess.... you believe in "adrenal fatigue" too?

How about the Tooth Fairy?

Your ignorance on this topic is astounding, and I'd wager to most readers you're making yourself look like a fool.  Again, your thinking is so two decades ago.  CFS has since been proven as real.  That's a medical fact.  So I implore you, lest you continue to make yourself the fool, please actually research the subject, using information and fact from the current day, not from 2 decades ago, so that you may more intelligently engage in this topic.

[chris]

So then what's the point of reposting questions that the author can't and/or doesn't respond to?

If we're not actually responding to anyone.... then none of this makes any sense.

When people email questions to us, or submit them via the feedback form on the front page of the website, the questions are processed and marshalled and then published, on behalf of the submitter, into this forum under the correct category.

48h after the question appears here, the sender automatically receives an email alerting them to the relevant thread containing their question (and hopefully our answers) as well as presenting them with a link to register for the forum.

Some are content just to read the answers; others do indeed join up.

I hope that explains the system to your satisfaction.

[chris]

hemotrophic bacteria

Can you please tell me more about these "hemotrophic bacteria"? I'm intrigued because, as a medical microbiologist, I've never come across such an entity.