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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2080 on: 23/11/2008 17:58:10 »
Quote from: CCconfucius on 23/11/2008 05:04:05
Like Whoa when i use relora, i tend to get sleepy. When i started using it, all i did was sleep. But now i don't fall asleep as easily but when i go to sleep, it is scarily deep.  3 hrs of sleep feels like i have slept for days in terms of intense dreaming.

This is so strange! According to my pharmacology-lawyer friend, (I posted it) Relora (the brand name I believe is Relora), as per the manufacturer, "causes trouble sleeping".
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2081 on: 23/11/2008 18:03:36 »
Quote from: martin88 on 23/11/2008 03:55:12
It's written "more than 140 cases of pois" in the front of the forum but there is only a few filled forms for now.

Martin, sad to say, most of them have left the forum. I have written to a dozen or so, I don't know if they came back or not (unless a returnee posts it or emails me I have no way of knowing).

To those of you who stay and post: THANK YOU!
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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2082 on: 23/11/2008 18:14:14 »
Quote from: demografx on 23/11/2008 17:52:48
Can someone suggest a good, short definition of POIS that I can give to my endocrinologist?

Why don't you just use the definition that's on my YouTube video. I put that together based on how people described and
defined POIS on this forum. The first few panels answer that question.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2083 on: 23/11/2008 18:39:17 »
Quote from: girlwind on 23/11/2008 18:14:14
Why don't you just use the [POIS] definition that's on my YouTube video...

You're psychic! I was just thinking of that...
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2084 on: 23/11/2008 18:47:39 »
Quote from: martin88 on 23/11/2008 03:41:19
Also if someone has a good article concerning SSRI or SNRI and cortisol..

I asked a psychiatrist friend. Awaiting reply.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2085 on: 23/11/2008 19:02:38 »
Quote from: Andreas_F on 20/11/2008 00:54:55
I am a 24 year old healthy male with no health problems whatsoever.

Funny, I used to think I was healthy, too. But POIS is a MAJOR health problem, in my opinion! We just happen to be people with an illness that's mostly in remission! Of course, I also class cognitive impairment as unhealthy.
« Last Edit: 23/11/2008 19:27:25 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2086 on: 23/11/2008 19:25:35 »
Quote from: Finally on 20/11/2008 06:30:46
My mother died in a hospital because the epinephrine they gave in the ER wouldn't work because her doctor had upped the dose of high blood pressure medicine.

FINALLY, I'M SORRY THAT I MISSED THIS BEFORE. THAT IS ABSOLUTELY HORRIBLE! MY SINCEREST CONDOLENCES.
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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2087 on: 23/11/2008 20:23:31 »
Quote from: demografx on 23/11/2008 18:47:39
Quote from: martin88 on 23/11/2008 03:41:19
Also if someone has a good article concerning SSRI or SNRI and cortisol..

I asked a psychiatrist friend. Awaiting reply.
How many friends like that do you hide ! Thanks.
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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2088 on: 23/11/2008 20:32:21 »
Quote from: demografx on 23/11/2008 17:30:47
Martin ,FYI, I found this by "advanced googling":
Levitra site:http://www.thenakedscientists.com

A chance it was not too far.

Sorry Whoa, I have too much e-mails to read. It would be great to know if you took other meds with Levitra.
 
« Last Edit: 27/11/2008 13:19:38 by martin88 »
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2089 on: 24/11/2008 00:38:34 »
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?
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Offline Whoa

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2090 on: 24/11/2008 04:02:14 »
Quote from: martin88 on 23/11/2008 20:32:21
Quote from: demografx on 23/11/2008 17:30:47
Martin ,FYI, I found this by "advanced googling":
Levitra site:http://www.thenakedscientists.com

A chance it was not too far.

Sorry Whoa, I have too much e-mails to treat, my memory is full. It would be great to know if you took other meds with Levitra.


No, nothing else with Levitra. Although, I can't help but think that perhaps it was a placebo effect. At the time, I was just starting to date my girlfriend and I couldn't wipe the smile off my face if you know what I mean. It may have negated the effects of POIS.

I've tried again, more recently, only I had about 3 orgasms in a three hour period. It did not prevent POIS.

All times, it was a 10MG dose, and all times I had dry sinuses as the main side effect.



Quote from: John21 on 24/11/2008 00:38:34
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

Geez, well now that you mention it. Both my folks worked swing shifts, which left me at home alone at night with the Playboy channel, for several years - starting at age 9. I would watch for an hour or more every evening, and I recall frequently having wood, but not really knowing what to do with it. It wasn't until my 14th birthday(onset of puberty) that I had an actual orgasm.
« Last Edit: 24/11/2008 04:13:03 by Whoa »
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Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2091 on: 24/11/2008 04:26:44 »
Has anyone here done the ZRT III complete male hormone profile test after orgasm. i know a few of you took the ZRT tests, but did you do it after sex/orgasm?

Think i might take one.....after sex. Though....god damn are they expensive. Are there any cheaper home hormone testing alternatives that are as reliable as ZRT? Anyone?

Anyone wanna join me. They are only a couple hundred bucks:( Though I'm willing to spend that kind of cash just for the opportuinity to see whats going on with my hormones. Unless someone knows of a cheaper alternative.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2092 on: 24/11/2008 16:05:44 »
Quote from: martin88 on 23/11/2008 20:23:31
[Is there] a good article concerning SSRI or SNRI and cortisol[?]...

Martin, my psychiatrist-friend's reply:
Hi [demografx],
 
Not really.  There is a general association between depression and increased cortisol levels and PTSD and low cortisols.  If you Google cortisol and either SSRI or depression, there are many many hits.
 
[signed]
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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2093 on: 24/11/2008 17:27:54 »
Quote from: John21 on 24/11/2008 00:38:34
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

I began at a very young age too, around 11.  I would orgasm and not even ejaculate.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2094 on: 24/11/2008 17:46:50 »
Quote from: John21 on 24/11/2008 00:38:34
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

John, I've racked my brain over questions like this. But then I ask myself "to what avail"? Just speaking for myself, John, if I can either (1) increase the Levitra dose or (2) augment or replace Levitra with something [Relora? Fenugreek? Garlic?] and my POIS is gone...well, I won't care anymore "why". We have enough mental agony just coping with the symptoms!

Again, John, I'm just "talking out loud" - - for myself mainly.
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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2095 on: 24/11/2008 19:08:51 »
Yeah, there appears to be three different levels of scope to look at our research

- Broad (society level)- finding the cause, a cure, and help preventing additional cases of POIS

- Intimidate (POIS community level) - find the cause and a cure or temporary relief for POIS

- Narrow (individual level) - finding temporary relief

From my observation, the forum people that have been around the longest are primarily looking at the intermediate level and touching on the broad level (by seeking professional medical advice).  Others have had tremendous success at the individual level with OTC supplements.  IMO we need both chiefs and Indians researching and pooling our information to give us the best chance for success at any level (which we seem to be doing).
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2096 on: 24/11/2008 22:05:53 »
Girlwind,

Quote
I agree with you Demografx. Whether it's regarding POIS or CFS, I don't feel it's helpful to look back at our childhood years with an attitude of blame for an adult onset medical condition. First of all, I don't thing there's anything wrong with children experimenting with their bodies sexually, as many, if not most, healthy curious children do. Child orgasms can begin as early as 5 months of age. (Read the Kinsey research from the 1950's, the report from Life Planning Education in Washington DC or Sigmund Freud's "Infant Pleasure Potentials.") Secondly, if childhood or teenage sexual activity doesn't become consistently excessive, then it's most likely a NON-issue as a contributor to POIS. Even if it is excessive... who knows IF that might be factor.

If the majority of us POIS sufferers were to fit into this category of prepubescent sexual activity I think this would be valuable data. It might give ourselves or researchers a cue to what mechanism might be causing our suffering, perhaps leading to a remedy.  For most of us this problem has been very destructive in our lives and it is understandable that we would hate the thought of personally having a hand in it (pun intended). Believe me, I have agonized about this possibility as well. Hopefully it is not true, but I don't think we should cover our eyes to keep from seeing something unpleasant. 
« Last Edit: 25/11/2008 00:15:51 by John21 »
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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2097 on: 24/11/2008 22:06:41 »
Quote from: Limejuice on 24/11/2008 17:27:54
Quote from: John21 on 24/11/2008 00:38:34
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

I began at a very young age too, around 11.  I would orgasm and not even ejaculate.

Make that four, sort of.  I didn't orgasm, but I was very sexually active between 11-13. I had my first orgasm at 13.5.  This probably doesn't mean anything, but it's definitely something I've thought about before -- in fact, I think I asked a question like this on the forum, a long time ago.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2098 on: 24/11/2008 23:18:39 »
POIS DIARY

OK, guys and gals, two hours ago I took  [:o]20mg of Levitra (my pharmacology-lawyer friend said if I didn't go blind with 10mg I should be ok with 20!) - oh, man, what I risk in the name of science!

So far, as always, my fingertips are "dried up" (hard to describe) - but not as bad as usual.

For those of you who didn't read my last posts, I wanted to up the dose to 20mg to see if it would increase the cure %. Also, my previous 2 times were not great POIS-wise. One reason I wonder is if the recent expiration date had something to do with it. So..........fresh batch [:)] - which makes my POIS Dealer happy.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2099 on: 24/11/2008 23:32:40 »
Quote from: Limejuice on 24/11/2008 19:08:51
Yeah, there appears to be three different levels of scope to look at our research
- Broad (society level)- finding the cause, a cure, and help preventing additional cases of POIS
- Intimidate (POIS community level) - find the cause and a cure or temporary relief for POIS
- Narrow (individual level) - finding temporary relief

From my observation, the forum people that have been around the longest are primarily looking at the intermediate level and touching on the broad level (by seeking professional medical advice).  Others have had tremendous success at the individual level with OTC supplements.  IMO we need both chiefs and Indians researching and pooling our information to give us the best chance for success at any level (which we seem to be doing).

Interesting, Limejuice. Along those lines, I'd like to recommend to all of us to put our heads together and see what we can do for broader outreach to POIS sufferers worldwide.

I, for one, know what it's like to be "out there in the wilderness" with POIS agony for 30+ years, no one to talk to, and worse, dismissal from the "helping" community of doctors, clergy, therapists, and other medical practitioners!

We can't afford to advertise on the Super Bowl, but the Internet is an incredible, free "advertising" vehicle if it's used creatively. We already attract a sizable audience just from Google searches.

But worldwide, not every POIS sufferer is sophisticated enough to find us.

ANY IDEAS?
« Last Edit: 24/11/2008 23:50:12 by demografx »
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