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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3140 on: 27/01/2009 15:57:09 »
Quote from: CCconfucius on 26/01/2009 02:32:18

message from pois sufferer who fixed problem sounds eerily similar to Demografx situation


CCconfucius, it would help if "anonymous sufferer" would come forward and help the forum. I think some of us know who he is, and my review of an earlier post shows that the testosterone he used initially was indeed the wrong one! I confirmed that with my endocrinologist.

As a first "proven POIS cure" it would be nice to "give back to the community" by offering more interaction with us so we can learn more, i.e., how his case differs, how his case is similar to the rest of us.


B_Jim makes very good points below which would be very helpful if he could address it to us directly. Emphasis mine:

Quote from: B_Jim on 27/01/2009 08:18:57

Congratulations to anonymous sufferer. I'm happy when some of us improve his condition.

But i'm worried because there are so many meds in this treatment.

Don't forget :

- A bloodtest must prove the deficiency is real.

- [medical professional cooperation] Only serious doctor take the decision to use these supplements.


- Adrenals should be cured before thryoid.

- Young Pois sufferers (under 30 years old) really should try natural therapy before hormones therapy. (diet ) . Young sufferers have a chance to self-restore their bodies. Sometime the organ is not ill but only tired by a bad lifestyle (diet, stress,...) Even if Pois may justify Dhea supplmenetation it shouldn't be taken under 35 years old.

- Hormones therapy side-effect :

When you use hormones the organ becomes "lazy" and stop to make his job. Remember the experience i posted with corticoids spray for allergic rhinitis. I prefer Agjchs approach  : he takes only 12mg Dhea after orgasm. Not every day.
But of course, some of us have a severe condition and Pois appears as a consequence of this.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3141 on: 27/01/2009 16:03:16 »
Quote from: mister_z on 27/01/2009 10:49:23

Quote from: CCconfucius on 26/01/2009 02:32:18

3rd: Hcg+Hmg+Toco-8 plus increase of protein and less carbs, more red meat, fish and lots of cruciferous vegetables ie broccoli (Successful)


at the risk of sounding ignorant what are Hcg, Hmg, and Toco 8?


mister_z, not ignorant at all! This is another reason it would be  nice for CCconfucius' "anonymous sufferer" to come forward.

I certainly would like to ask him, too! All I could find on hcg is, "Human chorionic gonadotropin (hCG) is a glycoprotein hormone produced in pregnancy that is made by the embryo soon after conception..."

???
« Last Edit: 27/01/2009 16:17:54 by demografx »
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Offline mister_z

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3142 on: 27/01/2009 16:24:42 »
would toco-8 be tocopherol aka vitamin E ?
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Offline deloun

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3143 on: 27/01/2009 16:27:41 »
Quote from: John21 on 26/01/2009 23:46:16
NE, day 1:

I am somewhat affected (with POIS) this time, as opposed to my previous NE episodes. What is different? I recently temporarily changed up my diet, giving up "goiterogenic" foods that I routinely eat: soy and broccoli. This could be relevant...but, soy is also high in choline....I just realized that fenugreek has choline in it.

I am wondering, has anyone tried choline as a supplement?

I haven't tried it as a supplement myself, but I've noticed that sometimes eating eggs seem to help a bit feeling a little bit better or recovering a little bit faster. Eggs contain choline too.

Several months ago I requested many laboratory blood and urine tests and went to an orthomolecular doctor and one of the things she diagnosed is that I have a poor methylation. Choline plays a vital role in methylation.

So maybe a poor methylation plays a role in our POIS?

Methylation is needed for many important processes in the body, including the synthesis of neurotransmitters.

Choline metabolism:


Methylation cycle:

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Offline deloun

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3144 on: 27/01/2009 16:31:31 »
Quote from: underwater on 27/01/2009 03:48:42
deloun---
Thanks for your response. Tension, Nervousness (anxiety), Depression, Insomnia are also some of my main symptoms during POIS; different I think from the dominant symptoms of Extreme, Debilitating Fatigue and Major Inability to Focus/Concentrate. My anxiety disorder (when I have an active episode) creates the same symptoms as POIS, but it is never defined in a 3-4 day time frame as is POIS. Since my symptoms are the same, when I rid myself of "anxiety disorder" this time around (whenever the hell that is), I hope that my strategies can be applied to POIS. If my neurotransmitter focus fails, then I will have to refocus with more attention probably paid to hormones.  I'm very reticent to discuss specific experiments, because I don't think it's beneficial unless I can say with confidence that something helps me. In general, I'm experimenting with vitamins, minerals, amino acids, plant extracts, body hydration, exercise, breathing, and topical creams. 

Sceletium Tortuosum is known to help with tension, anxiety and depression and I've noticed myself that it is effective for these symptoms, maybe it's worth a try for you.

Edit: fixed typo
« Last Edit: 27/01/2009 17:26:12 by deloun »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3145 on: 27/01/2009 16:35:50 »
TESTOSTERONE

I don't know if these patches will cure my POIS, but I certainly feel better daily!

It stands to reason that I would feel better since my free testosterone was tested as low.

Standard urology and GP (General Practitioner) testing showed my testosterone levels to be normal, so thanks again Girlwind, B_Jim and Counterpoints for your suggestions on more extensive testing!

The T-patches produce a steadier, more natural flow compared to the erratic jumps that depotestoerone produce (the latter prescribed previously - mine was cypionate testosterone).

This is tricky stuff, everybody! So please don't self-medicate!

Find a healthcare professional you are comfortable with, then make him/her your partner: lady and gentlemen, we are treading on brand new ground here!
« Last Edit: 27/01/2009 17:10:40 by demografx »
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Offline deloun

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3146 on: 27/01/2009 16:42:54 »
Other things that I've noticed that have helped reducing the POIS symptoms are taking a shower while alternating with very hot and very cold water and going to the sauna, including cooling down with each round in a cold water bath or cold shower.

Are there others that have noticed that this has helped a bit with their symptoms?

Taking the shower with alternating hot and cold water can easily be tried at home, maybe it's worth a try and I would be curious if others notice a positive effect too. So if you decide to try it out, would you be so kind to let it know? Maybe it can tell something useful about POIS. One of the things that seem to occur as a consequence of the hot and cold stress to the body are the increase of blood flow and energy to organs and the increase of dopamine and noradrenaline available in the brain.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3147 on: 27/01/2009 16:43:02 »
Quote from: mister_z on 27/01/2009 16:24:42

would toco-8 be tocopherol aka vitamin E ?


mister_z, your guess is as good as mine! Unless "anonymous sufferer" comes forward we won't know. But don't worry, mister_z, this is the first time in 2 years since the forum started that this type of anonymous posting has occurred.
 
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3148 on: 27/01/2009 16:55:22 »


               CAUTION!

Please be careful. Someone has been trying to sell
me on a "POIS cure" and also on my seeing a
particular doctor/healthcare practitioner via
Private Message.

At this forum, we encourage you to work with
healthcare practitioners of your own choosing.
And "POIS cures" are very, very individual matters
at this stage of our history. Thank you all.
« Last Edit: 27/01/2009 17:00:10 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3149 on: 27/01/2009 17:02:52 »
Quote from: deloun on 27/01/2009 16:42:54
Other things that I've noticed that have helped reducing the POIS symptoms are taking a shower while alternating with very hot and very cold water and going to the sauna, including cooling down with each round in a cold water bath or cold shower.

Are there others that have noticed that this has helped a bit with their symptoms?

Taking the shower with alternating hot and cold water can easily be tried at home, maybe it's worth a try and I would be curious if others notice a positive effect too. So if you decide to try it out, would you be so kind to let it know? Maybe it can tell something useful about POIS. One of the things that seem to occur as a consequence of the hot and cold stress to the body are the increase of blood flow and energy to organs and the increase of dopamine and noradrenaline available in the brain.

Very interesting, deloun. Thank you!
« Last Edit: 27/01/2009 17:04:58 by demografx »
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3150 on: 27/01/2009 17:15:29 »
Quote from: John21 on 26/01/2009 23:46:16

I am somewhat affected (with POIS) this time, as opposed to my previous NE episodes.


John, I don't have any suggestions, but I'm very sorry to hear that the NE "gotcha" this time out, and do wish you a very speedy POIS-recovery!!
« Last Edit: 27/01/2009 17:18:36 by demografx »
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3151 on: 27/01/2009 17:56:36 »
Quote from: demografx on 27/01/2009 16:03:16
Quote from: mister_z on 27/01/2009 10:49:23

Quote from: CCconfucius on 26/01/2009 02:32:18

3rd: Hcg+Hmg+Toco-8 plus increase of protein and less carbs, more red meat, fish and lots of cruciferous vegetables ie broccoli (Successful)


at the risk of sounding ignorant what are Hcg, Hmg, and Toco 8?


mister_z, not ignorant at all! This is another reason it would be  nice for CCconfucius' "anonymous sufferer" to come forward.

I certainly would like to ask him, too! All I could find on hcg is, "Human chorionic gonadotropin (hCG) is a glycoprotein hormone produced in pregnancy that is made by the embryo soon after conception..."

???

The point of me posting the response is to show that we all need to get our hormones checked and to proceed with our unique results. I was just giving clue about some of the things we should ask doctor. I was not using to suggest any treatment i was hoping your doctors will be the one making the best decision on that. 
Like B-jim said younger people might have to take a different route in using dhea and i agree i have seen the result of trying to take dhea without guidiance.
That post was a reference not the sure way.

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Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3152 on: 27/01/2009 18:18:10 »
"Anonymous sufferer" ?
I prefer dialogue !

Deloun--
I've read about and experimented with cold showers--Inconclusive for me.
I totally agree that hot/cold alternating water/showers will help circulation;
So will exercise and alternating breathing.
Thanks for your suggestion for anxiety.

Demo--
T Patches. If they continue to make you feel better, ipso facto they must strenthen your nervous system and immune system, part of a whole process of recovery even if not "the" bullet to kill POIS. That's why "anonymous" needs to show up. He referred to many bullets. We need to hear how he "felt" during the process. He mentioned he rebalanced his neurotransmitters; I'd like to know how!  Also,
I think it is very, very helpful to discuss other illnesses eg. (CFS GAD) if there is "relevancy" to POIS. Granted we want to stay on topic, but sensible hypotheses or connections made to POIS grounded in personal observation may be very helpful.  


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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3153 on: 27/01/2009 18:38:02 »
Quote from: demografx on 27/01/2009 15:38:55
Girlwind, you said that you haven't tested for prolactin, but maybe it could help you?

This new article states, similarly to the one below, "We found that CFS subjects show a higher prolactin response than controls..."
http://www.iop.kcl.ac.uk/iop/prt/cfs.htm

my original post to you (first article):
PROLACTIN AND CFS

Girlwind and other CFS-affected individuals here: this seemed like an intriguing link. It requires only simple registration, but here is the Google description:

"Baseline prolactin levels were the same in all three groups, but rose much faster and higher in the patients with CFS than in the other two groups after ..."   http://general-medicine.jwatch.org/cgi/content/full/1992/512/6


Thanks, Demo, I will check out the article.

I am approaching the hormonal issue cautiously. I am working on the thyroid and adrenals first, as they are my most
significant hormonal problems. I'm going to take BABY doses for thyroid, smaller than anything the doctor has given to
anyone else. I requested this and he agreed that I could do it my way. (I REALLY like that!) Most of his patients start with
10 mcg/day, for the thyroid. I will be taking only 1 mcg/day. For the adrenals, I will be taking cortisol at 2.5 mg/day,
half of the usual dose. He said my goal should be to try to raise the thyroid up to 10 mcg/day over time. He left it up to
me HOW to  do that, based on how I am feeling. I trust myself to take my time.

As for prolactin and testosterone (there is apparently a significant relationship btwn these two, as has been posted here
before), I am also deficient in testosterone, estrogen and DHEA, but I will wait until after I have done the thyroid and cortisol.
I don't want to overwhelm myself with so many hormonal changes all at once. In about 3 months I will retest my levels and
reassess what to do next.

« Last Edit: 27/01/2009 21:36:31 by girlwind »
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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3154 on: 27/01/2009 19:06:54 »
Quote from: CCconfucius on 27/01/2009 17:56:36
The point of me posting the response is to show that we all need to get our hormones checked and to proceed with our unique results.
I was just giving clue about some of the things we should ask doctor. I was not using to suggest any treatment i was hoping your doctors
will be the one making the best decision on that. 
Like B-jim said younger people might have to take a different route in using dhea and i agree i have seen the result of trying to take dhea without guidiance.

That post was a reference not the sure way.

YES! I agree with CConfucius-- This is the point of posting the anonymous poster's information (*without officially getting his
permission I might add). If he wants to come forward it's up to him. But it's the info that he has provided that should give us all
HOPE plus a clue about how important hormonal balance can be to someone who has POIS. We are DEFINITELY all different.
But hopefully it might motivate people here to at least consider investigating their hormone levels and finding out WHAT's UP.
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Offline John21 (OP)

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3155 on: 27/01/2009 21:50:50 »
Quote
Several months ago I requested many laboratory blood and urine tests and went to an orthomolecular doctor and one of the things she diagnosed is that I have a poor methylation. Choline plays a vital role in methylation.

Deloun, how did she determine that your methylation is poor?
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Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3156 on: 27/01/2009 21:55:08 »
Girlwind--
I totally agree that the "information" regarding possible POIS therapies is the key factor. I am now much more aware of the importance of hormones, not only for POIS, but for my GAD. In fact, I'm beginning to sense a connection that I did't make prior to my discussions here. For example, I now suspect that not only GABA (neurotransmitter) helps my anxiety condition by reducing stress (probable impact on adrenals generally), but that it may also help regulate serotonin and dopamine, with direct consequences for the balancing of prolactin and cortisol. Before, I didn't suspect that gaba might work in conjunction with the other two inhibitory neurotransmitters, all three of them then helping regulate the hormones cortisol and prolactin and visa versa; a complex dance indeed. And perhaps at the foundation of all of this, amino acids, enzymes etc. Since my POIS symptoms mirror those of GAD (during an anxiety flare up), I am now  studying GAD in a much broader context, and if I can fix GAD more comprehensively, then POIS may just follow. In my case, I've always felt that orgasm took my basic adrenal releases of epinephrine and kicked it up a notch to excessive cortisol and perhaps other (prolactin) releases. I didn't realize that there may be a continuous regular intervening activity of the neurotransmitters during the intitial phases of orgasm. That would mean that all hormones and neuotransmitters are constantly working together, not some drawn out sequential type of thing with "balancing the account" afterwards. So thanks for helping with my thinking on this. As far as a concrete contribution to POIS or GAD, I'll share it if I one of my experiments gets at least get to the "cautiously optimistic" point.
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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3157 on: 27/01/2009 22:28:38 »
Underwater--

Yes... The neurotransmitter/hormone opus is a very elaborate orchestra piece. It feels like we all have been trying to figure
out the notes by ear, one by one, for each of the many "instruments" involved. It would be SO NICE if someone just gave us
the music. But NO, unfortunately, it's up to us to figure it out.  [>:(] [>:(] [>:(] [>:(] [>:(]
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3158 on: 28/01/2009 00:09:59 »
Girlwind and all,

You're right. If it weren't for this forum, I wouldn't have dreamed of checking my hormones and/or seeing an endocrinologist! And I'm stubborn, so it's taken me 2 years of being here!
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3159 on: 28/01/2009 00:14:26 »
MY POSTING

I might not be able to post here for a while, fixing my laptop - and my cellphone doesn't have posting ability here.

But I can receive and send PM (Private Messages)on my cellphone.

And I WILL be reading your curative posts! [:)]
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