[demografx]

Maybe a larger dose would move that number higher.... I don't know yet. I'm just thrilled that something has helped, because for the last 30 years I had to just wait four days for the symptoms to subside.

10mg/daily brought me into normal T range. I asked for and received a 50% increase, to 15mg/daily, and THAT was a major POIS strike.

"I'm just thrilled that something has helped, because for the last 30 years I had to just wait four days for the symptoms to subside." Describes me exactly, down to the 30 years and the four days! []

Once again, EDS, congratulations!

[lauracostis]

demo, have a question for you. what medications to do you know of to help prevent NE's. on the case study, they talked about hormone manipulation to reduce ne's.

[GoingCrazy]

Goingcrazy - so your derealization lasted 24/7 for a year?

Yes, I remember just sitting at my desk in college just thinking what the heck was wrong with me.  I felt like I wasn't there, had blurry vision, etc. all the symptoms of derealization.  I'd sleep about 14 hours a day, wake up and still feel not alive.  It wasn't 24/7, but it was more there than not.  Idk , the whole symptom is really weird and can result from a lot of stress which I did experience for about a 2 year duration. 

If I were to describe my derealization it would be like an actual cloud sitting in the front of my head, frontal lobe.  Like I actually felt something behind my eyes that I thought needed to come out.

[demografx]

demo, have a question for you. what medications to do you know of to help prevent NE's. on the case study, they talked about hormone manipulation to reduce ne's.

Laurac, the only thing I recall is a mention here and there of antidepressants possibly slowing down/curtailing desire, which in turn would affect NE's.

According to wikipedia, "Although purported treatments to help prevent or diminish nocturnal emissions are available in abundance, none are known to have undergone any kind of rigorous experimentation or approval process"

Personally, they have plagued my POIS life, and the only NE subsiding that I found was (1) depression and (2) aging!

I POIS forum-googled "medication NE", hopefully there might be something useful there?
http://www.google.com/search?hl=en&q=medication+NE+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=&aqi=
 

[demografx]

EDS, with your new POIS treatment, do you find that some episodes are inexplicably...not so good?

This one right now is that way for me. And it's inexplicable because I thought if I did this...did that...well, this time, I thought I allowed enough time to lapse between episodes. But it's now Day 2 and it's lingering. Most of the time, it's 90% - 95% POIS-free, but now and then....

Mood-and-events might be an explanation. I might have to go back to the ol' diary.

Strange!

[POIS-SUFFERER]

I have a question - does anyone's symptoms actually become worse as the days progress, until the day they finally disappear?

Oh yes.... sometimes I think I am not going to get symptoms, and then, pow, got them bad and for days, typcially 10 till it starts to lessen....

Where do you hale from MR_C? I am a "frost bitten Canadian boy" too and if your around 45 you might get the reference to that term in song....

PS.

[POIS-SUFFERER]

I have another question for everyone - does anyone experience "derealization" during a POIS episode?

Again bingo.... altered state, de-realization, massive anxiety, headaches, brain fog, you name it..... I get it.... and it gets worse each time, starting to get scary.

PS.

[POIS-SUFFERER]

FORUM DECORUM - Please read.

Yep, thats us! :-)

[Mr_Canadian]

Pois-Sufferer -

I'm from Southern Ontario, and definitely frost-bitten.

To everyone -

1) During POIS, if you release again, do you feel a weird chemical feeling in your head, and/or an instant sickness in the bowels?

2) During POIS, when you listen to powerful music that really arouses the emotions, do you feel any strange chemical feelings in your head, as if the music is overloading the brain?

[demografx]

Z_one, if you want to see more testing data from my pre-and-post-POIS-treatment results, just let me know. I got lazy on my last post, but I now have more energy since this is Day 2 []

[POIS-SUFFERER]

Pois-Sufferer -

I'm from Southern Ontario, and definitely frost-bitten.

To everyone -

1) During POIS, if you release again, do you feel a weird chemical feeling in your head, and/or an instant sickness in the bowels?

2) During POIS, when you listen to powerful music that really arouses the emotions, do you feel any strange chemical feelings in your head, as if the music is overloading the brain?

I think this is all part of the surreal feelings I think a lot of us get... I listen to loud music and really get into it, and sometimes it a little almost exhausting....

I do not get any bowel issues typcially..... would not say never but its maybe 1-2% if any.

Now that said I just O'd 24hrs ago... and very little POIS, odd, I need to see what vitamin cocktail I have been on as of late!

PS.

MR CAD... I am southern too think they call it south-east, in the "valley" as they say around here.....

[prism]

Hi everyone,
im 30 & suffered from pois since my teens - all the familar symptons.

I have never gone down the drugs route but have had some success with the Alexander Technique. I've going for about 2 years and it HASNT cured it but things just keep getting better and better.

Alexander Technique definitely alleviates pois symptoms.

Its not massage or physio -its pretty unique really, all the instant effects are the opposite of pois symptoms, costs about £30 a go.
it releases your neck/ muscles/nervous system. I would try a couple of different people first, they're some better than others, then if you like carry on.

After about 4 months of going to Alexander technique (and some reflexology too), I managed to figure out the root psychological reason for my problems. When I was a child I had to have an undescended testicle lowered. Obviously at the time the raw pain went away but, unknown to me for all thoses years, the 'fear of pain' never went away. I was subconciously 'gripping', holding and flinching all thoses muscles around that area. Sort of over-protecting myself. This had a long time effect on my posture and muscle strength/health. I was always uneasy when in bed with a girl, esp when she went to touch them. (effecting sexual performance too). I would even wince a bit when i touched them, not that i would anyway. fear of any zap of pain. Unbelievably looking back, I though it was normal! Its definitely not normal, theres no reason why I should tense up at ALL like that. As I was tight, when I had an orgasm all of thoses muscles contractions would send my body 'skew-riff' for a few days causing pois symptoms.
I realise I had to learn to relax- to release those muscles.
Its taken a long time, its hasnt been easy for me emotional facing that fear, & changing my longterm postural habits, but the difference its made my life is marvelous, effecting happiness, posture, muscles and sexual performance. It is my opinion that you only need very little bit of flinching during an orgasm to cause pois type symptons.

I read Mantak Chia 'Multiple orgasmic man' book. to be honest even when theres no ejaculation there still will be some tightness if your muscles arent released(obviously not as much as when you ejaculate), which is why i think about the alexander technique more.

Also read about what Wilhelm Reich said about childhood hangups, orgasms and muscle rigidity. google 'orgasm reflex'

Thanks for listening. I would be very, very interested if anyone out there can relate to my testicle/fear of pain problem
can everyone out there totally relax when someone is about to touch your testicles lol

Cheers
dave

[Limejuice]

Here's an old case that sounds like POIS.  The doctor tried prescribing OTC supplements.  The first supplement looks like a standard vitamin with to much vitamin E (it's fat soluable).  The second is 5-HTP.

http://www.herballove.com/article.asp?art=191

[Limejuice]

Hi John,

Several months back you reported success from POIS symptoms.  Are you still successful?

[demografx]

Here's an old case that sounds like POIS.  The doctor tried prescribing OTC supplements.  The first supplement looks like a standard vitamin with to much vitamin E (it's fat soluable).  The second is 5-HTP.

http://www.herballove.com/article.asp?art=191

LJ, I've heard so many warnings about herballove and Dr Lin over the 3 years here, that I would be very, very careful about "the doctor" and his "prescribing".

[John21 (OP)]

LJ,

Hi John,
Several months back you reported success from POIS symptoms.  Are you still successful?

I certainly did have POIS-free NEs back in the spring, but then later I did experience mild symptoms on one occasion. Since then I have not had any further NEs and I am still chaste. I still can not explain any of it, but I am intrigued by the possibility of low magnesium, as suggested by Mr Canadian.

I have noticed that both cranberries and yogurt are good sources of this mineral. I have taken a couple of supplements this week and it has made an effect on my quality of sleep in that I am sleeping deeper, although I still wake in the middle of the night. The day after I took the first pill I thought that my double vision had improved. That is not the case now but still I am hopeful that this mineral might do me some good. I am not going to take it on a steady basis as I felt slightly drugged after taking the two @ 100mg. Maybe every week I will take a half tab or two. Another reason why I suspect I could be deficient in this is that I have always had pronounced PE, and there are claims that low magnesium levels can do this. It would be great to kick that problem too.  []

[Mr_Canadian]

LJ,

Hi John,
Several months back you reported success from POIS symptoms.  Are you still successful?

I certainly did have POIS-free NEs back in the spring, but then later I did experience mild symptoms on one occasion. Since then I have not had any further NEs and I am still chaste. I still can not explain any of it, but I am intrigued by the possibility of low magnesium, as suggested by Mr Canadian.

I have noticed that both cranberries and yogurt are good sources of this mineral. I have taken a couple of supplements this week and it has made an effect on my quality of sleep in that I am sleeping deeper, although I still wake in the middle of the night. The day after I took the first pill I thought that my double vision had improved. That is not the case now but still I am hopeful that this mineral might do me some good. I am not going to take it on a steady basis as I felt slightly drugged after taking the two @ 100mg. Maybe every week I will take a half tab or two. Another reason why I suspect I could be deficient in this is that I have always had pronounced PE, and there are claims that low magnesium levels can do this. It would be great to kick that problem too.  []

John21 - did you have a stressful life prior to your development of POIS?

[prism]

yeah, but Alexander Technique definitely isnt a massage. I describe it as the physio Ive always dreamt about. Its an postural re-education technique which is great for instant relief during an pois episode AND a long term solution.

Ive gone from 2-3 days of post orgasm hell,
to a few hours recovery, with very mild discomfort-

it's something I am now, finally, in control over.
and as things continue to get better too, I feel in 2010 I will use the 'cured' word-but I'll keep you posted on that one!

Learning the Alexander Technique has been the most rewarding thing Ive ever got into.
I strongly recommend everybody on this thread dedicate themselves in becoming an expert in the Alexander Technique. It will change your life.

I fear that most on this thread are on a wild goose chase to find the magic cure-all pill or combination to solve their pois.

Unfortunately, there will never be a pill that can stop long term bad muscular habits. However, I still say try everything- pills, therapies, never stop the search to change, find out as much as you can about your bodies & if you're going to look into the Alexander Technique book 2/3 different teachers to find the best one.

all the best,
daveyboy
 

[demografx]

daveyboy, welcome to the POIS thread of The Naked Science Forum.



That was very interesting to read your post, because I had the same procedure done in childhood, but I don't remember at what age. I also am not aware of any conscious "fear" in that part of the body, probably because I was too young. But very recently, (what a coincidence!), after putting it off for many months, I finally made a special visit to my urologist because I noticed and was concerned that during sex, my left side would 'move upward' - and my imagination was starting to take over, feeling that it might one day "go ALL the way up and through"...if you can understand what I mean. The urologist assured me it was all normal; because of physical tension, testicles do move up during sex, then they go back to normal afterwards. I think it was the opposite side from the childhood problem. The doc said it had nothing to do with my childhood procedure. So, no more worries, now or from before.

For the last year, I found a 90% POIS cure: daily testosterone patches (the main cure component), plus, immediately at POIS onset, take "extra" (double the normal, non-POIS dose, but only once, at POIS onset: Adderall (prescribed for ADHD), and coffee. The latter two are minor players, but they do contribute. There are limitations: frequency has to be monitored and within certain limits, and mood + external events can affect a particular episode. So it ranges from 80% to 95%. Usually symptoms are mild now for the first 6 - 12 hours vs. severe, agonizing symptoms for 4 days for the last 30+ years! I look forward to reading more about your experiences. Thank you for coming forward and sharing them!


Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!

[demografx]

daveyboy, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.