[CertainlyPOIS]

Interesting post, john . Do you know how long it will take before paper published.

Closest i have to your question. 
During two day high- am basically recovering by being super hyper. 
My tesosterone was aroung 613ng/dl
three days after after orgasm it is 292 ng/dl

[CertainlyPOIS]

going with jjguy's post.  It seems the Rnase l activity is activated during virus infection.  And jjguy's symptoms were activated after getting lyme. It made me think, when i was younger i had measles, which i just found out is a virus infection, could this activated this  enzyme. Just wondering what other dieaseases we have contacted in this forum.

[JJGuy]

CCconfucius i dont have a date on this letter but as per my doctor there is some research going on right now and a paper will be published soon and she will send me the a copy as soon as its relaesed and i will post it, hopefully its sooner then later, there is more info to add on this new discovery that she told me a bit more about what the name of the findings were, but im not able to fully share all info as yet before its relaesed and it becomes avaliable to the public

i have been a super healthy person before lyme and never had any family history of serious genetic illness's that would trigger POIS, and POIS followed during my lyme episode, in the beginning stages of my lyme it wasnt a real bother, after 1 yr into my treatment i have developed POIS, im hoping when i rid myself of lyme this will go aswell, but i know that lyme was definetly a contributor for me in developing POIS , and yes it makes me also wonder if its triggered by a viral infection

CCconfucius when did you notice POIS started for you, was it during or after your bout with the measles? can you pinpoint a time when it started for you?

thanks for your reply inregards to the testoserone question,i will share that with my dr, she is very helpful,knowledgeable,and responds usually the same day, the more info we share especially with the medical field makes for more findings on what triggers POIS, so we can better treat ourselfs

the saying goes if we dont know what we are treating its like a wild goose chase of trial and error's, if we can established what triggers POIS or causes it then we have a target we can attack, hopefully these new findings can shed some new light on this matter

[neilep]

Hi All,

Demografx has given me permission to let you all know that he will be away for a little while.

He is actually having a quadruple bypass tomorrow and I am sure that with me, we all send him our fondest wishes and look forward to his speedy return.

Get well soon demo !

[Limejuice]

Good luck Demo.  I will pray for you.

[John21 (OP)]

We will miss you while you are away Demo, good luck getting the ticker tuned. 

I don't have any knowledge of being bitten by a tick but I was raised in a rural area and spent plenty time in the woods, I suppose Lyme is possible.

[neilep]

I'll update you all as soon I hear anything about Demo.

[JJGuy]

Thank you B_Jim

Also best wishes goes out to Demo as I did read many of his posts from the beginning of this group

I can say yes that Lyme did cause POIS with me, wondering if it is caused by a viral infection that triggers POIS, i do see there are a few on here that have ossociated Lyme with POIS,HMMMM!

Lyme D is very wide spread and it does mimmic alot of diffrent conditions , such as MS, Fibro,CFS, Depression, i know of many that have recieved diagnoses of MS later found out to have Lyme not MS, also CFS, LYME again, with me aswell i recieved the diagnose of  CFS,Depression, it turned out to be Lyme, Lyme is an epedemic in north america and around the world its the fastest growing disease and the largest more then aids and cancer, it is the most political aswell because of its long and very expensive antibiotic treatments some LYME suffers have been 10 yrs in treatments, so insurance companies are also involved in the political part of LYME and not being recognized as an epedemic, I am canadian and in Canada we have alot of Lyme cases that we know about more that we dont , but in the USA you guys are full of Lyme infected Ticks, whole familes have fallen ill to Lyme, many of whom are in my chat group, also they are now saying that Misquitos can also infect us with Lyme, sexual contact aswell,it is still being studied, and when you get bite by a tick you can get you to 4  strains bacterias infecting you at once so we treat all 4 together , its pretty messed up stuff when u go into it

B_Jim you have mentioned you have been bitten 10 times and John states he hads no knowledge of being bite, well I have Lyme and i dont recall a time that i have been bite over 50% of suffurers never recall a time of being bitten, so B_Jim you can recall on 10 occassions that you have been bitten,  but there might have been many more, dont want to freak anybody out but this is the truth,the size of this period .  is about the actual size of most adult ticks,very hard to spot
B_Jim do you ever recall a rash after being bitten? or feeling ill days later?have you any daily symptoms other then after orgasms? Lyme can go doormant for 2-5- 10- 20 or more yrs and come out in a trauma situation such as operation, car accident, bad flu, depression,etc, mine came out after a bad bout of food poisioning on vacation

there are good tests for it and only at 1 or 2 reputable labs in america , other ones will not detect lyme or your routine labs, I tested Negative in Canada and positive at Igenex the most reputal lab in the world for Tick bourne illness

[martin88]

Demo, I wish you a prompt recovery. I'm looking forward to see you back. 
Thanks a lot Neilep for your updates.

[neilep]

Hi All,

Demo is now out of surgery and is doing really well !

Thanks for all your kind wishes

It'll probably be a while before we hear from him directly but I thought I'd let you all know that he seems to have done really well.

Best Wishes

Neil

[Karen W.]

YAYYYYYYYYYYYYYYYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Good JOB DEMO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Get well soon!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[martin88]

Hi All,
Demo is now out of surgery and is doing really well !

Good to hear!

Closest i have to your question. 
During two day high- am basically recovering by being super hyper. 
My tesosterone was aroung 613ng/dl
three days after after orgasm it is 292 ng/dl

Confucius,
This makes me wonder if I should wait more time before doing the test. Amazing change in your results!

Lyme D is very wide spread and it does mimmic alot of diffrent conditions , such as MS, Fibro,CFS, Depression, i know of many that have recieved diagnoses of MS later found out to have Lyme not MS, also CFS, LYME again, with me aswell i recieved the diagnose of  CFS,Depression, it turned out to be Lyme, Lyme is an epedemic in north america and around the world its the fastest growing disease and the largest more then aids and cancer, it is the most political aswell because of its long and very expensive antibiotic treatments some LYME suffers have been 10 yrs in treatments, so insurance companies are also involved in the political part of LYME and not being recognized as an epedemic, I am canadian and in Canada we have alot of Lyme cases that we know about more that we dont , but in the USA you guys are full of Lyme infected Ticks, whole familes have fallen ill to Lyme, many of whom are in my chat group, also they are now saying that Misquitos can also infect us with Lyme

Hi JJ, I have never been bitten by a tick but a lot by mosquitoes. I'm surprised mosquitoes can give lyme. I had a dog bitten by a tick... Also I'm wondering why the tests were negative for you. I tend to think there are many causes for POIS. (Ex. A lot of different diseases are causing fatigue.). So Lyme D can definitely be one of them.

[mellivora]

Demo,
Really happy to read you are doing well after the surgery. All the best in your recovery!

[John21 (OP)]

Good news, thanks Neil!

[Pablo445]

All the best to you Demo!

Looking forward to have you back here with your well balanced posts.

Thank you for all you support.

[Limejuice]

[8D]

http://img121.imageshack.us/img121/7784/pois.jpg

(not sure it's serious)

"It's rare but last year I've had 8 patients (5 women + 3 men) who came to me suffering from similar symptoms." says physician and researcher Donald Gibbs, of the Perth institute of Disease studies.

"they all came to me complaining of extreme fatigue, painfull eyes, swelling, sore throat, rashes and achy muscles."

What they had in common besides they flu-like symptoms stunned Gibbs,
"they all reported feeling like this almost immediately after experiencing orgasms. The symptoms last for as long as a week and the condition doesn't respond to any medications that I have found . Only time and abstinence seem to relieve their conditions."

Comments :

- This is the SAME analyse than M.Waldinger made.
- I need to know the list of meds he tried.
- When symptoms begin soon after orgasm, the symptoms are more powerful and long lasting, as we supposed.

Yes.  It's in our best interest to contact him, as well...let him know there are hundreds of us suffering from POIS.

[martin88]

B_Jim,
The article is from Weekly World News, september 17 2002, maybe helpful.
http://books.google.com.au/books?id=wPIDAAAAMBAJ&pg=PA43&lpg=PA43&dq=perth+institute+disease+studies&source=bl&ots=7_Bjc1rGez&sig=C8X-eC6Ep2Qj0NNm9PP6ebGxfGc&hl=fr&ei=4S8kS6C7EsnklAePnfTzCQ&sa=X&oi=book_result&ct=result&resnum=8&ved=0CC0Q6AEwBzgK#v=onepage&q=perth%20institute%20disease%20studies&f=true

I couldn't find this institute in the australian phone book...

In the POIS publication (Dr Waldinger paper) there is a small list of unsuccessful treatments:
Antihistamines,prednison. SSRI,benzo helped for the mental state but not for somatic symptoms.

[Pablo445]

B_Jim,
The article is from Weekly World News, september 17 2002, maybe helpful.
http://books.google.com.au/books?id=wPIDAAAAMBAJ&pg=PA43&lpg=PA43&dq=perth+institute+disease+studies&source=bl&ots=7_Bjc1rGez&sig=C8X-eC6Ep2Qj0NNm9PP6ebGxfGc&hl=fr&ei=4S8kS6C7EsnklAePnfTzCQ&sa=X&oi=book_result&ct=result&resnum=8&ved=0CC0Q6AEwBzgK#v=onepage&q=perth%20institute%20disease%20studies&f=true

I couldn't find this institute in the australian phone book...

In the POIS publication (Dr Waldinger paper) there is a small list of unsuccessful treatments:
Antihistamines,prednison. SSRI,benzo helped for the mental state but not for somatic symptoms.

Let's not forget this text seems to be from September 2002 and from Weekly World News (not exactly a Scientific Journal) ... and it is from a paper that also delivers articles such as  "Dead Sea scroll foresaw the internet", "woman sells hubby's organs in on-line auction", "cow poop tea - miracle cold medicine", "ghost hookers haunting sex shop", "aliens coming back home - to Earth!", "how to flash freeze your relatives for just pennies a day" (we could try that while someone discovers a cure), "Giant lobster attacks diver", "Robot ape terrorizes India" etc.   So if there is any validity at all in the "POIS" article it is probably not using the right name for the doctor or the right Institute. It is just another freak story in their "entertaining" but ridiculous paper...

[Finally]

I was bitten by a bug on the nose in 1976 and felt very ill almost immediately.  Not sure if it was a tick but it seemed too large to be a deer tick. Since I reacted to swat it away I never found the bug. I was not far  from East Lyme CT at the time. 
It was right after that the POIS symptoms appeared.

[martin88]

What do you think ? Has the Institute closed ? Is the article a fake ?

I agree with Pablo but it's so important that we must verify. Eventually the institute has an other name or it's a fake. In an other article they are writing about an "institute for paranormal studies in belgium" I couldn't find it but there is a center for unexplained phenomenon in belgium..