[demografx]

I found this from a different website. I wonder if it helps . . .

http://www.actionlove.com/cases/case15879.htm

strawberryman, "Dr" Lin and his website have been invalidated here.

[demografx]

strawberryman, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:


Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For for over 3 years, our POIS forum has attracted over 150 POIS sufferers worldwide who have posted here, plus over 600,000 page visits. Not bad for a rare malady!

[demografx]

strawberryman, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: 3 years' worth of posts (over 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[prism]

Medical Certificate - used for getting time off work.
You could just buy a cheap blood pressure monitor of ebay for only about $15.
Then you'd a get good understanding of whether it changes over the days of POIS. 

[daveman]

I've had a big setback in my confidence level!! Had a pretty bad night in what would be day 0. As I have mentioned, I only have sex at night so I can sleep off the day 0 effects, but even that didn't work very well last night.

Blood pressure shot up, not much of the usual hot flush, just direct into the heavy stuff. I felt as though I was close to loosing my mind there for a bit. Lots of nightmares, tossing and turning, wishing it would all go away!

I did the forced ejection too, but even then I felt like something wasn't right. Even though I was forcing, I didn't feel the usual clean flow. Besides the orgasm sort of crept up on me so I wasn't in synch with the flow.

What I mean by the flow, is that there's usually like a double contraction on each pulsation, using my imagination, as though the first one, milder, loads the chamber and the second one shoots the load. This time it was like the first half was missing. I was forcing and ejecting, but as though I was shooting blanks.

But I had been having pretty good sex, and feeling as tough things were looking up, now I remember why I wasn't having sex for more than 6 weeks at a time.

Today is passing in waves, right now I'm not too bad, but if I move around too much it gets a little uncomfortable. Think it's blood pressure related, if I sit still the BP returns closer to normal, if I move around, it goes up.

As many of us are saying here, this POIS can really make the BP borderline.

We'll see how it goes.....

[daveman]

Other factors that may have contributed to my setback are: last weekend I took the vaccination for AH1-N1 (swine flue), independantly there's been a flue going around in our house, I just had mild symptoms a wk ago(non-POISlike and not related to the vaccine) and two days ago started multi-vitamins and 1000mg of vitamin C. I hadn't had any noticable effects positive or negative with the vitamins. Any comments?

Anyways, today I'm a lot better! Hoping that it will stay that way. But I wouldn't want to relive last night again any time soon!!

[omerbasket]

Anyone who knows the answer: Other than what's described by a doctor in the first page of this thread, did any of you try drugs that increases the dopamine levels in the brain (I think such a drug is Wellbutrin)? For how long have you tried it? did it help?

Also - did any of you tried drugs that increases levels of noradrenaline (also known as norepinephrine)? For how long? Did it help?
On that matter I have to say that I'm taking Cymbalta (which is an Serotonin Norepinephrine re-uptake inhibitor, and therefore should elevate levels of norepinephrine in the brain), 60 mg a day for about 7-8 months now, and it doesn't really seem to help.

I have my eyes on especially on dopamine, and want to see if you had some experience with it.

[demografx]

Cymbalta, SNRI's and SSRI's: 20 years' experience, none helped my POIS.

[demografx]

URINE "THERAPY" considerations:

1. The American Cancer Society (among others) warns that urine can contain toxic levels of medications, minerals and bacteria from the urethra. Drinking excessive levels could cause renal failure

2. Realize that drinking one's urine involves consuming some elements the body determined were in excess.

3. Know that a common side effect of urine "therapy" is diarrhea.

4. Understand that vomiting is a common side effect of urine "therapy", especially in the beginning.

5. Prepare for other possible side effects of urine "therapy", including pain, itching, fever and soreness in the body.


Urine "therapy" is not part of any scientific medical convention. This forum represents a scientific approach to medicine. Any claims should be backed up by studies that have been peer-reviewed and published in acceptable journals.

This is not to invalidate any one individual's success. This is posted as a consideration to others who might not be as fortunate in avoiding the pitfalls.

[demografx]

daveman, glad you're feeling better!

[demografx]

Mmmmmmmmmmmmm..................  this is not funny, this is a serious problem, I hope u are not some random person trying to get a laugh off a random website u randomly found.[/i][/size]

I concur with CCconfucius.  [above emphasis mine]
[/quote]

UTDave, I'm sorry if you were judged prematurely. The reason for the retraction is that you are limiting this to your own experience and not proselytizing as others have. Please understand that there are people here who are desperate for a solution, some very young and vulnerable, and will try anything. So the potential dangers need to be pointed out. Lastly, this is not a forum for alternative medicine, but part of a science forum, although "science" is interpreted very liberally. Many thanks for understanding.

[demografx]

Medical Certificate - used for getting time off work.
You could just buy a cheap blood pressure monitor of ebay for only about $15.
Then you'd a get good understanding of whether it changes over the days of POIS. 

I just bought a $90 device, tested it here (I'm in cardiac rehab typing this), and it's worthless. Cardiac trainers have confirmed this here repeatedly with many many patients. Sadly, some docs keep recommending it.  2nd time returning one.

[daveman]

I just bought a $90 device, tested it here (I'm in cardiac rehab typing this), and it's worthless. Cardiac trainers have confirmed this here repeatedly with many many patients. Sadly, some docs keep recommending it.  2nd time returning one.

I use a decent but not expensive manual device with an old fashioned manometro, hand pump and stethoscope. Take at least two readings, usually three. Usually replace it once every 12 or 15 months.

[demografx]

That's what the cardiac trainer told me, take 2-3 readings, then average. That advice plus the inaccuracy of the 2 readings stretched my tolerance so I just returned it. Top brand, recommended by many docs, but it's all too iffy for me, especially after open heart surgery.

daveman, the manual one sounds more trustworthy!

[daveman]

daveman, the manual one sounds more trustworthy!

Yeah, after open heart you don't want to fool around!

I've had a few electronic ones, and they seem great, no fuss, press a button and ready NOT!. Ideally the best, best is the manual one with mercury, the sensor can't be wrong ($60.00).

But the thing about the manual ones is that you replace the microprocessor and microphone. The electronic ones don't do all the diagnostics that we do. If the unit isn't placed exactly right, or there are external noises or one thing and another.... it's not going to catch it. With the manual, you hear the pulse with your own ears and can judge for yourself if it's right and where the thresholds are. Once it's calibrated, it's far more consistant.

You can actually buy the manometer separate, so if need be you can throw away a poorly calibrated one and fit your unit with a well calibrated one, and the cost is negligable.

Also with just about any manual unit. You can do a table calibration. that is, go somewhere where they have accurate pressure measurement and make notes of what yours says against the real measurement. Then you can create a conversion table. (There'd be a little bit of a protocol to follow to generate faithful conversions, but if anyone could be interested, PM me and I could provide details.) At home take your pressure, and use your conversion chart to come up with the correct values. Maybe a lot of fuss, but if  you don't have the $$, it's a good way to produce accurate readings with a low cost unit.

[demografx]

daveman, you have far more patience and knowledge than me. I'll just wait for the cardiac trainers and/or nurses and doctors to do mine!

[Finally]

Both for and against my best interest, I tried the berry binge and consumed 3 lbs of stawberrys.  I feel bloated and dazed - this can't be healthy.  No pun intended but I may be going crazy.

I love strawberries especialy when I pick them fresh but can't eat that much. I use a  concentrate powder(also including blackerries, Blueberries, raspberries, plums and cherries for vitamin C).   Also you might  try using a juicer w/strawberries and add in whatever else you want.

I have been drinking about 3x day for several years. seems to help with BP.  Yesterday in POIS(1st day)  had BP reading 139/102 drank a glass and retested at 132/79. 
2nd day pretty much recovered.

[demografx]

Finally, thanks for that report. Very interesting!!

[demografx]

I have my eyes on especially on dopamine, and want to see if you had some experience with it.

Omer, I hope the discussions we've had about dopamine in the past can help:
http://www.google.com/#hl=en&source=hp&q=dopamine+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&btnG=Google+Search&rlz=1W1DAUS_en&aq=f&aqi=&aql=&oq=dopamine+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&gs_rfai=&fp=9118ce00d2daff08

[martin88]

You're lucky guys to be better with vitamin C, I'm ok with small doses but more than 125mg a day it will be derealization, insomnia, for me.

Demo you said in the past you were severely depressed and that Prozac helped you a lot. Do you think your depression was caused by POIS ? Maybe SSRIs can help to reduce (not cure) POIS as Dr Waldinger and the Dr from the New York Times article are saying.

Also I was wondering, what are the positive effects of testosterone on your mental (memory, anxiety, optimism, other ?), and on feeling of physical fatigue.
Thanks in advance.