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Post Orgasmic Illness Syndrome (POIS)

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11540 on: 08/02/2011 02:25:19 »
I also went to the allergist and the skin test was negative ! But i guess it is only due to the wrong method to make it... [:)]
Does anyone know exactly how to do? I saw Vandemolen lives in Holland, does he plan to go to Dr Waldiner's hospital?
I live at 475 km from Utrecht, so i guess I could manage to go all by myself... but i guess Dr Waldinger is currently busy to explain his fantastic breakthrough!

To finish, Please, tell me what helpt you the most for the brain fog?  [;D] it is the only thing I can't manage at all  [:(]
Thank you!  [:)]
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11541 on: 08/02/2011 03:53:23 »
Quote from: Hazeywtf on 07/02/2011 18:54:45
Quote
Quote from: Zoop on 19/01/2011 19:59:28
Quote from: hazey on 19/01/2011 10:46:04

Hi Everyone

mod edit - deleted as spam

Haha let me laugh what's this crappy website you repeat so many times in your post, made to send your useless expensive oils ? I think we suffer enough and don't need that some people try to draw our money.
Zoop, thank you for exposing this!

Why Did my post get deleted as spam?? and More importantly why was I banned! No where in my post was I trying to sell a product only sharing my experience to help others. If you check my post history you will see I am actually a genuine pois sufferer. I would appreciate if this gets lifted and perhaps the moderator contact me and explain, or is that what goes on here, someone actually has some useful information and then they get shutdown and members dont get to benefit from it.

OK, Hazey, we moderators are human and I will allow that this could have been a mistake. But please don't use this current obscenity-spiked username and I will lift the ban. Thank you for understanding. We do get many disruptive people, including spammers, and every now and then a mistake is made. I hope this is the case with you.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11542 on: 08/02/2011 04:01:19 »
Hazey, I am PM'ing you the Forum Rules.
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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11543 on: 08/02/2011 04:16:22 »


Daveman, many thanks for your posting support for Forum Rules! They are meant for an enjoyable experience for everyone and not for special agendas, such as evangelizing only one point of view.
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11544 on: 08/02/2011 04:25:28 »
Quote from: Nightingale on 06/02/2011 18:33:25
Quote from: Green on 06/02/2011 17:27:47
I couldn't imagine this being the best time to test for a semen allergy, you're body is already in a state of POIS, perhaps the body is already using some defenses to eradicate POIS so a little skin ***** might at that time might not give the trigger response of an allergy, but using the analogy of having a pollen test done whilst the body is already exposed to pollen should still give a positive reaction if the host is allergic?

I'm taking injection for test/HCG and so far it's been good no abscess or anything, taking transdermal testosterone increases DHT (there's lots of reading materials on that subject) which boils down to loss of hair, amongst other side effects in comparison to injections. Injections of testosterone and HCG whilst in POIS, have been considerably painful sometimes but out of POIS they've ALWAYS been painless and the site is not sore for days just hours, I've used that as a marker also when I'm out of POIS.

I have no idea what you mean, about this not being the right time to test.  Are you trying to put a bad light on my results because they aren't what you'd like them to be?  Seriously, it's what it seems like, or I'm very confused.

Second person already who is telling me that I'm in the wrong state to be checking for allergic reactions, and with what evidence?  Some personal hypothesis?

They are just trying to make sure years down the road you dont find out you actually react to your sperm but because you didnt do the right test you are finding out much later when you could have started you treatment regimen. 
But do you know what test your doctor did, there are different types of allergy test. Webmd source.

The procedure varies depending on what type of allergy skin test you are having. The three main types of skin tests are the scratch test, intradermal test, and the patch test.

Scratch test (also known as a puncture or ***** test). First, a doctor or nurse will examine the skin on your forearm and clean it with alcohol. (Sometimes, the skin test is performed on an area of your back.) Areas on your skin are then marked with a pen to identify each allergen that will be tested. A drop of extract for each potential allergen -- such as pollen, animal dander, or insect venom -- is placed on the corresponding mark. A small disposable pricking device is then used so the extract can enter into the outer layer of the skin, called the epidermis. The skin ***** is not a shot and doesn't cause bleeding.

Intradermal test. After examining and cleaning the skin, a small amount of the allergen is injected just under the skin, similar to a tuberculosis test.
Patch test.

Another method is to apply an allergen to a patch which is then placed on the skin. This may be done to pinpoint a trigger of allergic contact dermatitis. If there are allergic antibodies in your system, your skin will become irritated and may itch, much like a mosquito bite. This reaction means you are allergic to that substance.

I believe dr waldinger did intradermal because he said intracutaneous which is same as intradermal. according to the websites below intracutaeneous is more accurate.
http://www.aafa.org/display.cfm?id=9&sub=16&cont=67
http://www.drweil.com/drw/u/QAA400553/Best-Allergy-Test.html

So guys inracutaneous not just basic skin "p.r.i.c.k" test.
good job catching that daveman.
« Last Edit: 08/02/2011 04:28:43 by CCconfucius »
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Offline gabin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11545 on: 08/02/2011 13:32:03 »
http://www.jiaci.org/issues/vol19s1/7.pdf  here's an interesting link about connection of allergy and stress. I want to resurrect an old topic about the origin of our symptoms.
I think that for summarizing our experience we can create a google docs online spreadsheet where everyone from here may insert his nickname and fill in 3-4 columns with the following titles (for instance):
1. How POIS appeared?
2. Mental symptoms
3. Physical symptoms
4. Used treatment
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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11546 on: 08/02/2011 14:06:19 »
Thank you Confucious! Patch and Scratch tests were both negative for me  [:)] So I guess I can still have the hopeness I become positive to the intradermal test... now the question is where to do it and follow Dr Waldinger's method perfectly.

Still no answer to "cure" the brain fog, what helpt the most ?  [:)] thank you!
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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11547 on: 08/02/2011 15:47:52 »
Quote from: horizon on 05/02/2011 12:01:47
Quote from: Vandemolen3 on 05/02/2011 01:07:54
Quote from: Nightingale on 04/02/2011 19:50:20
Ok guys,  I have a report from this week's doctor's visits.  First my endocrinologist.
  • He read our studies and has agreed to let me try using Androgel, which is the cream form of testosterone suplementation.  I like him a lot because he is bright and willing to give me a chance.
  • Second, my urologist (a new one).   His reaction was basically "wat? I dunno."   [::)]
  • Third, my allergist (new one as well.  She was a little incredulous, but she decided to do a pinprick test.  So today I just got the test done, and... it was negative

I got the pinprick done around 35 minutes after I had produced the semen, and by that time the sperm had gone from its fresh state (white-milky color) to mostly clear and yellow-tinged.  I felt that despite the negative result, I'd like to try a fresher sample for the pinprick.  The allergist was looking at me funny, but she said that she'd humor me.  I'll have to wait til Monday to do it again

But in the meanwhile, I told the allergist I'd do an "environmental panel" to see what other stuff I'm allergic to.  So I got pricked 75 TIMES  [:o] on my back, then 25 DEEPER ones on my arms.  I found out what I already knew (I'm allergic to various tree pollens) but that dust mites, cockroaches, and even cats cause me allergies.  I grew up with a cat, never found problems.  But I'll be purchasing special dustmite pillow and mattress covers

Sigh, I'm disappointed...  but on I go

OH P.S.:  I"ll be starting the testosterone cream after I do the sperm pinprick again, dont want more variables
Did she read the latest paper of dr. Waldinger? There is the protocol of the treatment.

Since the test didnt work 35 minutes after orgasm, then I would try it on Day 2/3+ after instead, if possible. This would involving freezing a sample in your freezer which is mentioned in Waldingers study.

I have thought about this. Lets say hypothetically that you are allergic to your semen.
Then everytime you have an orgasm it triggers a massive autoimmune system response.
I wonder if testing a minuscule pinprick of semen 30 minutes later is worthless since the first response still well underway and your body has nowhere near recovered anyway..
..the skinprick maybe wont trigger another minor response from the body ....

(Surely...) its like if you take a river which has dam, at the top there maybe gates which allow a bits of water here and there, in and out, but if the whole dam breaks and the whole area is flooded then thoses small gates are irrelevant until everythings recovered and gone back to normal.

I think this is an issue Dr.Waldinger has to clear up pronto.
I would like to ask if instant tests are valid why did Dr.W ask the patients to bring pre-frozen samples?

To be quite honest, I think the skin-***** test is completely unreliable in determining whether a person has POIS. People with POIS may also have semen allergy, but considering the severe mental dysfunction that results in POIS, the idea that skin ***** test would work doesnt make sense to me. Im glad for the attention Dr. Waldinger's work is bringing to this condition, but I think we are still a long ways off from getting any of the answers we were hoping for. I think research is going to need to be done using functional MRIs, spinal taps, neurochemical transmission, antigen monitoring, glandular function during O's, etc. Of course, this kind of research is going to take a huge amount of money and resources, but I dont think we're going to have any real answers until this type of research is done.
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11548 on: 08/02/2011 18:51:51 »
Quote from: Defsync on 08/02/2011 15:47:52

To be quite honest, I think the skin-***** test is completely unreliable in determining whether a person has POIS. People with POIS may also have semen allergy, but considering the severe mental dysfunction that results in POIS, the idea that skin ***** test would work doesnt make sense to me. Im glad for the attention Dr. Waldinger's work is bringing to this condition, but I think we are still a long ways off from getting any of the answers we were hoping for. I think research is going to need to be done using functional MRIs, spinal taps, neurochemical transmission, antigen monitoring, glandular function during O's, etc. Of course, this kind of research is going to take a huge amount of money and resources, but I dont think we're going to have any real answers until this type of research is done.

Defsync,
Don't be so quick to write off the skinprick test just because the reaction to it doesn't produce adverse mental reactions.

There are two reactions involved in POIS, Type I and Type IV. Type I reactions are mediated by IgE immunoglobins, and are more superficioal. These produce runny nose and eyes, itching, and redness. Type I reacts quickly and gives immediate evidence in the skinprick test. This test is too mild to go on to produce the Type IV reactions, which however the subject of the second report did at times perceive.

Type IV reactions are cell-mediated and take 2 to 3 days to appear. Type IV reactions involve the activation of macrophages, natural killer cells (NK), antigen-specific cytotoxic T-lymphocytes, and the release of various cytokines in response to an antigen.

These reactions can easily produce mental disfuntion. They are system wide and can effect soft tissues like joints and the nervous system protective tissues, and produce digestion problems for instance.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11549 on: 08/02/2011 18:59:58 »
Quote from: Habibou on 08/02/2011 14:06:19
Thank you Confucious! Patch and Scratch tests were both negative for me  [:)] So I guess I can still have the hopeness I become positive to the intradermal test... now the question is where to do it and follow Dr Waldinger's method perfectly.

Still no answer to "cure" the brain fog, what helpt the most ?  [:)] thank you!

For me, the main "cure" for brainfog is "time". My brain fog is light generally and doesn't last too long, usually day 2 to day 5 at most, Heaviest day 2 and 3. On rare and extreme cases I have experienced depression, lasting 1 to 1.5 days.

Some seem to suffer much more, to the point that it can be disabilitating. Perhaps in those cases an anti-depressive may work. I don't know, haven't had to resort to that, but from what I've read here, the result of medication for depression are 50/50. They'd have to speak for that though.....

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11550 on: 08/02/2011 19:22:12 »
Quote from: daveman on 08/02/2011 18:59:58
Quote from: Habibou on 08/02/2011 14:06:19
Thank you Confucious! Patch and Scratch tests were both negative for me  [:)] So I guess I can still have the hopeness I become positive to the intradermal test... now the question is where to do it and follow Dr Waldinger's method perfectly.

Still no answer to "cure" the brain fog, what helpt the most ?  [:)] thank you!

For me, the main "cure" for brainfog is "time". My brain fog is light generally and doesn't last too long, usually day 2 to day 5 at most, Heaviest day 2 and 3. On rare and extreme cases I have experienced depression, lasting 1 to 1.5 days.

Some seem to suffer much more, to the point that it can be disabilitating. Perhaps in those cases an anti-depressive may work. I don't know, haven't had to resort to that, but from what I've read here, the result of medication for depression are 50/50. They'd have to speak for that though.....



brain fog is the hardest thing to solve.  You can google brain fog and you will what different people have tried some of them also have allergic problems.
One buzz on the sites on brain fog is coconut oil, supposedly the fats provide alternate energy (ketones) for body and help brain fog, i started it but i was gaining weight on it so i am stopping untill i loose weight.

A guy here tried 5hr energy + sulbutiamine(a nootropic) and helped
I have tried stimulants and oxiracetam and piracetam(nootropics) and helped nothing.
my only fear with nootropics are no one really know how they work.
« Last Edit: 08/02/2011 19:27:34 by CCconfucius »
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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11551 on: 08/02/2011 20:42:31 »
Thank you all :)
My doctor advised me Dopastim :
Ingrédients:
Taurine, Rhodiola roséa, Tyrosine, Magnésium, Zinc, Vitamine C, Vitamines B1, B2, B3, B5, B6, B8, B9, B12

It is expensive but used for Chronical Tirness Syndrom with great success !  [:)] I guess i could try it, waiting for a real treatment... to help the brain fog.
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Offline dbfd588

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11552 on: 08/02/2011 21:06:39 »
Quote from: Habibou on 08/02/2011 20:42:31
Thank you all :)
My doctor advised me Dopastim :
Ingrédients:
Taurine, Rhodiola roséa, Tyrosine, Magnésium, Zinc, Vitamine C, Vitamines B1, B2, B3, B5, B6, B8, B9, B12

It is expensive but used for Chronical Tirness Syndrom with great success !  [:)] I guess i could try it, waiting for a real treatment... to help the brain fog.

Keep us posted.
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Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11553 on: 08/02/2011 22:20:47 »
Quote from: GoingCrazy on 23/12/2010 00:54:29
Also another weird thing... I've said in my past about POIS being accompanied by a short lasting "good feeling" and than a longer lasting "bad feeling"  like a surge of good hormones every minute followed by down time the rest of the minute.  I've found out that I can partially control this just by not thinking about it.  Usually when I am in that "low", i look for something that will get me back to normal, another adrenaline surge or whatever in my brain, I find that if I try not to concentrate on that and how I feel, I actually feel a lot better.  Without the surge of "good feelings" I look for in my head the bad feelings aren't their.  Or maybe I'm just goingcrazy  [;D]

I get this sensation too, I feel great for a minute or two...
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Offline masochist

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11554 on: 09/02/2011 00:35:36 »
Quote from: horizon on 05/02/2011 12:01:47
Since the test didnt work 35 minutes after orgasm, then I would try it on Day 2/3+ after instead, if possible. This would involving freezing a sample in your freezer which is mentioned in Waldingers study.

I have thought about this. Lets say hypothetically that you are allergic to your semen.
Then everytime you have an orgasm it triggers a massive autoimmune system response.
I wonder if testing a minuscule pinprick of semen 30 minutes later is worthless since the first response still well underway and your body has nowhere near recovered anyway..
..the skinprick maybe wont trigger another minor response from the body ....

(Surely...) its like if you take a river which has dam, at the top there maybe gates which allow a bits of water here and there, in and out, but if the whole dam breaks and the whole area is flooded then thoses small gates are irrelevant until everythings recovered and gone back to normal.

I think this is an issue Dr.Waldinger has to clear up pronto.
I would like to ask if instant tests are valid why did Dr.W ask the patients to bring pre-frozen samples?
didn't see any quotes on on this. thoughts? might not have all the info, but, horizon, this seems valid to me. I'd freeze the semen immediately, then, for the most 'sensitive' allergic response, have the skin-***** test administered a week or two into strict abstinence. The wall of the 'dam' should be fully constructed by then. seems results, Type I or Type IV, would be more reflective of the actual post orgasmic 'illness' if done in this way.
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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11555 on: 09/02/2011 03:11:35 »
Quote from: demografx on 03/02/2011 21:08:29
CCconfucius, which anti-inflammatory did he prescribe? And thanks for reporting your latest news!
He prescribed diclofena an nsaid. 1 tablet an hour to two before big o. 1 tablet every 12 hours for two days.
crazy sideffects with these if used for long term.
« Last Edit: 09/02/2011 03:14:10 by CCconfucius »
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Offline Vandemolen3

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11556 on: 09/02/2011 11:27:47 »
I told my physiotherapist about my allergy's (I didn't said it is POIS). Because this brings me painfull joints.
My physiotherapist said that maybe it's wise to excersise when having this allergy's. She said that the immune is more selective when you are in motion. If I am in POIS I don't go to the gym because I have to sneeze a lot. She said that this is only in the beginning. Then tha immune system is not so strong anymore. How do you do this? Do you sport in POIS? Or not?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11557 on: 09/02/2011 11:45:34 »
Van, very interesting! I tend to "shut down" in POIS!
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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11558 on: 09/02/2011 11:56:04 »
Quote from: Vandemolen3 on 09/02/2011 11:27:47
I told my physiotherapist about my allergy's (I didn't said it is POIS). Because this brings me painfull joints.
My physiotherapist said that maybe it's wise to excersise when having this allergy's. She said that the immune is more selective when you are in motion. If I am in POIS I don't go to the gym because I have to sneeze a lot. She said that this is only in the beginning. Then tha immune system is not so strong anymore. How do you do this? Do you sport in POIS? Or not?



My joints are probably the worst affected by POIS. The rest of POIS clears up in a few days, but the joint take a good 2 wks.

I'm like Demo.... I close down in POIS as far as exercise goes, but it might not be too difficult to do flexing exercises, stuff that doesn't drain me otherwise. Could work.
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Offline Vandemolen3

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #11559 on: 09/02/2011 12:09:00 »
Yes I normally do nothing in POIS. I once went on day 1 of POIS to the gym. And I sneezed a lot, my eyes get red. I told his too my physiotherapist. She said that this is only in the first minutes. Afterwards the immune systems slows down.

I think I do some exercise on my hometrainer when in POIS. She said you can sport a little bit less intensive when you are sick. I used to be afraid because I read that when you have the flu and you sport you can have an hart attack. But she said that this not the case with the pseudo flu. Only if you have heavy flu.
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