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  1. Naked Science Forum
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  4. Post Orgasmic Illness Syndrome (POIS)
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Post Orgasmic Illness Syndrome (POIS)

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Offline jivetalk

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14240 on: 09/08/2011 04:49:19 »
Quote from: victor.kons on 09/08/2011 03:45:03
Quote from: Kingkong on 09/08/2011 01:48:45
I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.
Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?
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Offline Kingkong

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14241 on: 09/08/2011 05:03:26 »
Quote from: jivetalk on 09/08/2011 04:44:30
Quote from: Kingkong on 09/08/2011 01:48:45
I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi King Kong, that is FANTASTIC News. I am very glad Niacin is working well for you - As Victor noted, one of the key things which we need to try and do is to reduce the amount of Niacin being taken.

Having said that, I also feel I need to take Niacin for the following couple of days in order to avoid going deeper into POIS. If I take Additional Niacin I feel POIS around 5-10% like yourself, if I don't I can sometimes feel it a lot stronger 30%-40%

It is obviously VERY Early days in the Niacin testing - But your results and reporting is very very exciting.

JT
Victor and Jivetalk, thank you for your good advice. I will follow your advice.For all these year I suffered of this desease and after everything that I have tried to fight POIS, it's the first time that I have a result. Also, I have clothe allergy and I think that NIACIN is helping me. I don't undestand why but it's seems to help. Maybe it's placebo effect but I will see in the futur if it's that so.
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Offline jivetalk

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14242 on: 09/08/2011 05:47:47 »
Quote from: Kingkong on 09/08/2011 05:03:26
Quote from: jivetalk on 09/08/2011 04:44:30
Quote from: Kingkong on 09/08/2011 01:48:45
I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.

Hi King Kong, that is FANTASTIC News. I am very glad Niacin is working well for you - As Victor noted, one of the key things which we need to try and do is to reduce the amount of Niacin being taken.

Having said that, I also feel I need to take Niacin for the following couple of days in order to avoid going deeper into POIS. If I take Additional Niacin I feel POIS around 5-10% like yourself, if I don't I can sometimes feel it a lot stronger 30%-40%

It is obviously VERY Early days in the Niacin testing - But your results and reporting is very very exciting.

JT
Victor and Jivetalk, thank you for your good advice. I will follow your advice.For all these year I suffered of this desease and after everything that I have tried to fight POIS, it's the first time that I have a result. Also, I have clothe allergy and I think that NIACIN is helping me. I don't undestand why but it's seems to help. Maybe it's placebo effect but I will see in the futur if it's that so.

KingKong, I know the feeling. I have also been a long time POIS sufferer so the relief that comes from Niacin is AMAZING. I'm on day 1 now and took 100mg of Niacin earlier when I felt POIS was coming on, and I'm only feeling POIS about 5% now.

Because Niacin as a defence against POIS is new to us at the moment, one of the things I will be doing is talking to my doctor about how Much Niacin I'm taking. Even if he is not convinced about POIS, I will ask him to monitor the effects of NIACIN on my body, especially my liver. I would certainly suggest doing the same.

I'm convinced that this is NOT Placebo, I've tried many other things with nothing like what I am getting from Niacin.

Please keep us posted on your progress, especially when you're convinced its not a Placebo.

JT
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14243 on: 09/08/2011 05:57:14 »
Quote from: Kingkong on 09/08/2011 04:46:15

Hi Demographx,

I'M talking about the mail that you post the 3/08/2011.
Posts: 6255
View Profile Personal Message (Offline)
Link to this post 364044
03/08/2011 07:11:08 »
IF YOU DID NOT RECEIVE THIS IN YOUR EMAIL RECENTLY, KINDLY LET ME OR DAVEMAN KNOW. THANX!!



Kingkong, sorry for the confusion. The link below is what was mailed, and I will notify daveman that you did not receive it and we will make certain that you are included on future emails.

Quote from: daveman on 03/08/2011 19:16:53

For those who did not receive the last newsletter, you can read it at
http://poiscenter.com/newsletters/NL-2.htm

I will be posting them there as they also go out by mail. this way if we find anything of value that we can pass on to others, they will be available on the WEB.


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Offline victor.kons

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14244 on: 09/08/2011 06:11:21 »
Quote from: jivetalk on 09/08/2011 04:49:19
Quote from: victor.kons on 09/08/2011 03:45:03
Quote from: Kingkong on 09/08/2011 01:48:45
I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.
Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?
I still feel some flush, but it is much less stronger than before. And I ensure that I have first O at least 60 minutes after Niacin.

Victor
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Offline demografx

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« Reply #14245 on: 09/08/2011 06:37:55 »


I'm in POIS too, so I could only come up with this idea for a T-shirt:






If you're curious about the above, see the discussion which starts with B_Daniel's post at:
http://poiscenter.com/forums/index.php?topic=125.msg2156#msg2156   [:)]
« Last Edit: 09/08/2011 07:05:43 by demografx »
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Offline jivetalk

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« Reply #14246 on: 09/08/2011 07:13:08 »
Quote from: victor.kons on 09/08/2011 06:11:21
Quote from: jivetalk on 09/08/2011 04:49:19
Quote from: victor.kons on 09/08/2011 03:45:03
Quote from: Kingkong on 09/08/2011 01:48:45
I'M reading each of you since almost 2 1/2 years from now. I'M 51 years old and I'M a pois sufferer since 12 years now. But like some of you, I tried NIACIN recently and the result are very very good for me.

1) The day of O, I'M taking 300 mg 30 minutes before O.
2) If I don't sleep about one hour after O, I'M 50-60% POIS free, IF I sleep for maximum 1 hour after O' when I wake up, Im 90% free.
3) The day after O (day 1), I'm taking 100 mg when I wake up in the morning. During the day, I take other 100 mg when I feel that POIS is coming back. I can take maximum 900 mg the day of O and maximum 500 mg the day after.
4) Day 2, I'M taking 100 mg in the morning, an another 100 mg in the afternoon and I'M still 90 % POIS free.
5) Day 3, 100 mg and I'M 95% POIS free.
6) DAy 4, 100 mg, 100% POIS free.
I must say that I'M very happy whith this result and my girl friend too!

Demografx, I didn't receive your mail that every one must receive from you. Tank you.
Hi Kingkong,

Thank you for your report! I'm glad that Niacin helps you too.

From what you write it looks like you are taking too much Niacin after O, whereas the point is to take the minimum _necessary_ dose of Niacin _prior_ to O so that you don't have to take any Niacin after O, because taking Niacin after O has far less effect. You said that you wait 30 minutes, sounds like too short time before O. After taking niacin pills we usually wait 60 minutes, you should feel the flush and let it starting go away before you have the O.

Victor

Hi Victor, As you know I've been taking 300mg for a little while now - and I can barely feel the Flush anymore if I take it at night (after dinner). (I can feel it if I take it on an empty stomach in the morning)

When you take 150mg especially after food - Do you still feel the Flush at all? or do you Just time it, and ensure that you O at least 60 minutes after Niacin?
I still feel some flush, but it is much less stronger than before. And I ensure that I have first O at least 60 minutes after Niacin.

Victor

Thanks Victor
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Offline daveman

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« Reply #14247 on: 09/08/2011 14:15:00 »
Quote from: demografx on 09/08/2011 06:37:55


I'm in POIS too, so I could only come up with this idea for a T-shirt:






If you're curious about the above, see the discussion which starts with B_Daniel's post at:
http://poiscenter.com/forums/index.php?topic=125.msg2156#msg2156   [:)]

Can someone look up what it costs to print 100 T-Shirts, let's say just one color, this one above as an example?

I'm in Chile, a quote here wouldn't make sense. One from the US maybe.
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Offline Quasar

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« Reply #14248 on: 09/08/2011 14:45:26 »
Hi,

I'm very happy some of you have had success with Niacin. Definitely I'm going to try it myself soon. But as i'm also interested in a long-term cure, i still have some questions about the allergy theory.

Basically i'd like to know if any of you tried the standard method some clinics offer in case of semen allergy:

"At the University of Cincinnati, we treat semen allergy by desensitizing women to their sexual partner's semen with injections similar to regular allergy shots. We take ejaculate from the woman's sexual partner and separate the large and small proteins. The woman is skin tested to these proteins to determine which ones she react to. She is then desensitized over several hours to the proteins she reacted to in the skin test. The injections are given every 10 to 15 minutes at increasing concentrations. After the desensitization has been completed, ejaculate is instilled into the woman's vagina. If she has no symptoms, then the treatment has been successful."

It does not sound very different to Dr. Waldinger methods. And it can be done in a lot of clinics...
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Offline TIMRIL

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« Reply #14249 on: 09/08/2011 15:57:57 »
Hello everyone,

A friend of mine has been suffering on a daily basis from physical symptoms identical to those of POIS, for about ten years already. He was diagnozed with Fibromyalgia (which has no treatment as far as I know. At least he didn't find one).

Yesterday he told me that he has been sufferring from the symptoms (I guess more than usual, he didn't elaborate) also after ejaculating, and that he believes he has POIS.

Through out the years he has had lots of tests and turned to lots of specialists who took his money and didn't really help him. When he discovered that POIS existed and that he was not alone or crazy, he turned to his doctors who dismissed his claims explaining that its all psychological and that he should see a psychologist (which he does!).

From what I read untill now, I strongly believe that there is a connection between the POIS and the Fibromyalgia.

My question is that (and thank you for reading so far! [;)]):
Does any of you suffer from those symptoms (especially physical, but not only) also without having ejaculated? even for only a period?

TNX a lot!

Timri.
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Offline daveman

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« Reply #14250 on: 09/08/2011 16:54:46 »
Quote from: Quasar on 09/08/2011 14:45:26
Hi,

I'm very happy some of you have had success with Niacin. Definitely I'm going to try it myself soon. But as i'm also interested in a long-term cure, i still have some questions about the allergy theory.

Basically i'd like to know if any of you tried the standard method some clinics offer in case of semen allergy:

"At the University of Cincinnati, we treat semen allergy by desensitizing women to their sexual partner's semen with injections similar to regular allergy shots. We take ejaculate from the woman's sexual partner and separate the large and small proteins. The woman is skin tested to these proteins to determine which ones she react to. She is then desensitized over several hours to the proteins she reacted to in the skin test. The injections are given every 10 to 15 minutes at increasing concentrations. After the desensitization has been completed, ejaculate is instilled into the woman's vagina. If she has no symptoms, then the treatment has been successful."

It does not sound very different to Dr. Waldinger methods. And it can be done in a lot of clinics...

There are several methods of desensitization that can be considered, and that have been talked about here, among which are sub-lingual, skin-***** (both superficial and sub-dermal), and intra-lymphatic. Any of these procedures can be quite dangerous if practiced without supervision becasue of the danger of shock. It may appear that this danger is low, but the consequences can easily be deadly.

The process you mention is directed more at the semen protein components than at the sperm component, and up to now, it is still not sure which is the culprit. It could be one, the other or both, or different for each person.

I don't remember now, but one of our friendly doctors is dedicated more closely to the desensitization that you mention. Can someone refresh my memory as to which one it is?

This seems to be a rush desensitization, as some of the others that I mentioned can take months, sometimes years.

We are enthiused about the possibility for desensitization, but it is still a new potential and there have been very few cases among men with POIS that have actually had positive results, not enough to be assured that it is a real cure for all yet.

Results in women are very difficult to translate to results in men with POIS, BUT there is hope.

We have started a fund for a more in depth investigation by THE industry's experts through the National Organization for Rare Diseases. For this fund we need to rais a minimum of $33,500. In the first few weeks we raised $2500. Find more information about this at http://poiscenter.com/forums/index.php?topic=125.0

This is our parallel forum with its very own HOME http://poiscenter.com/forums/index.php We also have desensitization discussions.


« Last Edit: 09/08/2011 17:09:45 by daveman »
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Offline Quasar

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« Reply #14251 on: 09/08/2011 17:54:24 »
Thanks a lot Daveman for the answer. I suppose the results are slower with this method than with Waldinger's, but the good part is that this method can be tried in hospitals with medic supervision. I mean, not everyone can travel to Germany...Anyway, i'm going to check the new Forums! Thanks again
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« Reply #14252 on: 09/08/2011 19:41:13 »

TIMRIL, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggests one possible avenue of treatment.

First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, i.e., "demografx", or "daveman".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus over 1,300,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.


« Last Edit: 09/08/2011 19:43:33 by demografx »
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14253 on: 09/08/2011 21:23:15 »
Quote from: daveman on 09/08/2011 14:15:00
Quote from: demografx on 09/08/2011 06:37:55


I'm in POIS too, so I could only come up with this idea for a T-shirt:






If you're curious about the above, see the discussion which starts with B_Daniel's post at:
http://poiscenter.com/forums/index.php?topic=125.msg2156#msg2156   [:)]


Can someone look up what it costs to print 100 T-Shirts, let's say just one color, this one above as an example?

I'm in Chile, a quote here wouldn't make sense. One from the US maybe.


I sent you 2 quotes (from 2 different T-shirt printers), for quantity 100 x 1-color. First one is $6.85 each, has a nice shirt pocket.
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14254 on: 09/08/2011 21:39:59 »
Is Levitra still a POIS treatment contender?

Quote from: Limejuice on 08/07/2011 19:16:43

I think it's interesting that XN is a vasodilator just like Levitra.  Demo, what are your thoughts?


Quote from: demografx on 08/07/2011 19:41:44

Limejuice, I'm really no longer certain what to think about Levitra and POIS.


This morning, I awoke at 5:30 AM at "the tail end of POIS". I felt better, but not out-of-POIS.

I wanted to cancel my 10:30 AM appointment, but first I thought I'd try 2 things:


(1) Forced sleep. I took 2 Benadryl.

(2) I took 5 mg. Levitra (no sex, just the Rx) -
              (Limejuice's question-post above helped to make me think about it)

I awoke at 10:00 AM. Felt VERY refreshed (unusually so, considering the yukky-POIS-feeling  just a few short hours ago!) .

It worked!

I felt "stimulated" from the Levitra and the dreamy sleep (who knows what the heck I was dreaming about? [;D])

This got me thinking once again about my semen regeneration theory...is THAT what was hastening my POIS cure today??

Or was it vasodilation as Limejuice suggested??

Tune in next episode for "The Mysterious Multiple Cures Of Demografx"!… [:)]
« Last Edit: 09/08/2011 21:45:33 by demografx »
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Offline Quasar

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« Reply #14255 on: 09/08/2011 22:06:25 »
Demografx,

What you say makes sense to me. I believe POIS makes some kind of change to the circulatory system. One of my main symptoms is that after O, i feel a change in my scalp, heart, and abdominal veins. I don't know if POIS makes them to contract or dilate. It feels like a migraine to the whole body.

Also, under POIS, i loose my sexual potency, and become some kind of impotent. So, it makes a lot of sense that Levitra helps. It would be very nice to know if POIS either makes our blood vessels to dilatee or contract.

Then we could think of an strategy. I mean, maybe aborting that dilation, or that contraction in the first place.

If we take a look at this page: http://www.relieve-migraine-headache.com/abdominal-migraine.html

we can see beta-blockers are proposed for abdominal migraines.
« Last Edit: 09/08/2011 22:18:24 by Quasar »
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Offline Vincent M

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« Reply #14256 on: 09/08/2011 22:33:56 »
Quote from: TIMRIL on 09/08/2011 15:57:57
Hello everyone,

A friend of mine has been suffering on a daily basis from physical symptoms identical to those of POIS, for about ten years already. He was diagnozed with Fibromyalgia (which has no treatment as far as I know. At least he didn't find one).

My question is that (and thank you for reading so far! [;)]):
Does any of you suffer from those symptoms (especially physical, but not only) also without having ejaculated? even for only a period?

Timri.

To answer your question, pois is certainly very similar to fibromyalgia for me. After I orgasm my sensitivity to pain is so high that even walking hurts for a while. It feels like almost every nerve in my body is inflamed. Fenugreek helps this a lot, however, and allows me to recover almost fully from this dramatic sensitivity to pain within 30 min if I spend that time laying down after orgasm. My brainfog & general exhaustion take longer to recover from.
« Last Edit: 09/08/2011 22:38:52 by Vincent Marcus »
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Taking ginger tea, fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.
 



Offline FinalPanic

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« Reply #14257 on: 09/08/2011 22:41:50 »
Quote from: TIMRIL on 09/08/2011 15:57:57
Hello everyone,

A friend of mine has been suffering on a daily basis from physical symptoms identical to those of POIS, for about ten years already. He was diagnozed with Fibromyalgia (which has no treatment as far as I know. At least he didn't find one).

Yesterday he told me that he has been sufferring from the symptoms (I guess more than usual, he didn't elaborate) also after ejaculating, and that he believes he has POIS.

Through out the years he has had lots of tests and turned to lots of specialists who took his money and didn't really help him. When he discovered that POIS existed and that he was not alone or crazy, he turned to his doctors who dismissed his claims explaining that its all psychological and that he should see a psychologist (which he does!).

From what I read untill now, I strongly believe that there is a connection between the POIS and the Fibromyalgia.

My question is that (and thank you for reading so far! [;)]):
Does any of you suffer from those symptoms (especially physical, but not only) also without having ejaculated? even for only a period?

TNX a lot!

Timri.

If it helps I have been a lousy sleeper for nearly 30 years and often have feelings of being out of sorts on a daily basis - the various feelings are identifiable and worryingly I have pet names for them to describe to myself how I feel. It sounds obsessive but it is something I just put up with and as such generally get on with my life. I have blamed these uncomfortable feelings of being 'under the weather' on my poor sleep - hence Nytol on occasion can really help me. I had recently stated that I felt my POIS was improving - but here I am, day three and it has been the worst day. Days one and two were not too bad at all - but today has floored me somewhat - the disappointment at how I feel serves to make things worse too. I still have nagging thoughts that as I seem to run at a constant energy low and that my POIS was just further depletion of 'resources'. But the more I read here I now think I am just unlucky and have two conditions that are possibly not related but complement each other very well - bad luck for me.

So in answer to your question - yes it could be said that I have do have an underlying and continual feeling of POIS also - but I have no idea why and after 30 years I have not been taken seriously ill, died or been seriously incapacitated through this - it is just an inconvenience I have to manage. Buy by god I want rid of it.

Dr. David Goldmeier's team in the UK have written to me to tell me they are very busy and will write to me again in about 6 weeks - hopefully with an appointment - I will update as this progresses.

I just feel like something 'tripped' one day and I just need to press that big ol' reset button to put me all back square - trouble is just don't know how!!
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Offline FinalPanic

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« Reply #14258 on: 09/08/2011 22:46:55 »
Quote from: Quasar on 09/08/2011 22:06:25
Demografx,

What you say makes sense to me. I believe POIS makes some kind of change to the circulatory system. One of my main symptoms is that after O, i feel a change in my scalp, heart, and abdominal veins. I don't know if POIS makes them to contract or dilate. It feels like a migraine to the whole body.

Also, under POIS, i loose my sexual potency, and become some kind of impotent. So, it makes a lot of sense that Levitra helps. It would be very nice to know if POIS either makes our blood vessels to dilatee or contract.

Then we could think of an strategy. I mean, maybe aborting that dilation, or that contraction in the first place.

If we take a look at this page: http://www.relieve-migraine-headache.com/abdominal-migraine.html [nofollow]

we can see beta-blockers are proposed for abdominal migraines.

Was just reading about Niacin flushes - seems to be related to what you suggest and hence reversal of effect?

"Niacin causes flushing by dilating (expanding) the blood vessels on the surface of the skin. Although this side effect of niacin is harmless, it is often severe enough for people to stop taking niacin."
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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #14259 on: 09/08/2011 22:47:18 »
Quote from: B_Daniel on 31/07/2011 06:18:57
Quote from: bitu8489 on 30/07/2011 17:29:42

i wish some billionaire in this world already has POIS and he reads this forum and donates all the money needed for the NORD research in 1 shot....


Haha that would be great!  But there are about 1,000 billionaires in the world.  So what's that?  About .00001% if my math is right.  And then about 1% or less of the population has POIS.  So the odds of someone with pois ALSO being a billionaire... not so high  :P.  

Nope, I think we're gonna have to all pull together and fund this research ourselves.  The good news is that the goal is very attainable!  With everyone giving what they can, we can totally do this!



Guys! You're shooting too high!!

We don't need a DonaldWarrenTrumpGatesBillBuffett!!!!

ALL WE NEED IS ONE AFFLUENT POISer WHO CAN WRITE A CHECK FOR $30,000!!!!!

So..................we only need - NOT a billionaire - - - - but a "$100,000aire" with POIS!!!!!

About 15% of all US households earn over $100,000 per year.

That's roughly 15 MILLION US MEN EARNING OVER $100,000 PER YEAR.

IF 1% HAVE POIS................

THAT REPRESENTS 150,000 AFFLUENT POISERS IN THE US ALONE!!!

OK YOU SAY IT'S ONLY 1/2 OF 1% WITH POIS?

THAT STILL REPRESENTS 75,000 AFFLUENT POISers  OUT THERE WHO COULD WRITE THAT CHECK!!!!

LET'S GO FIND 'EM!!!!!!!!!!!

BUT.....................to hedge our bet, let's do what B_Daniel suggests and let's bet on ourselves first!!! :) :) :) :) :)
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