[B_Daniel]

WHY dont you solve my problem golbudev? yes there are not many tests availble in pakistan,but there must be some way

Gondal4 - I'm going to send you a PM that will address this and many of your other posts.

[B_Daniel]

I am being very brief with the explaining of my issue as it is very deep because I don't want to flood the page with myself. It would take some explaining to fully get someone to understand where I am at.

If you have the energy to type it, I'd be interested in reading your story.  We could all then collaborate and give you some things to think about.  It sounds like you're at a bit of a dead-end in terms of idea generation and perhaps we can help.  If you have a lot of testing that's already done (or are willing to order a hair test for ~$130 bucks), Herman would be a good person to start a dialogue with too. 

Just by the fact that Kurtosis' supplements helped you indicates that your issues are treatable.  In your heart I know you know that.  It's just all about finding the right balance, which is the most difficult thing you'll ever do.  I've got constant pois, same as you, so you're not alone in this.  Think about all the things you've learned about pois since you joined the forum a couple years back and realize you've just got to keep finding more pieces to the puzzle before it can be solved.  A former doctor of mine once told me "my experience is that people have an easy time taking pills but a hard time journaling and making time to learn and grow".  It's so easy to take the next herb and cross our fingers, but as Andrea pointed to, we need to stop trying random things and instead get in touch with understanding our symptoms.  That'll help light the path towards relief.  My heart goes out to you in this period of frustration and struggle.  Try to keep up the positive attitude.

[EDS]

someone else get blurred vision during pois like when we see far it gets blurry

Yes, I have blurred distance vision for a couple of days after "O".

[B_Daniel]

Nathan - What's your status these days?

[johanstefansson]

We should join forces and try to set up a chain of events to get healthy. Start with the most effecient relief and then try to decide whats nr 2 and 3 etc on the "get healthy" list is.

Suggestion:

1. Stop masturbating
2. Stop consuming porn
3. Do mild daily exercise
4. Limit sex to once a month for 6 months
5. Take clarityn and niacin before and after orgasm
6. ...

This could be set up scientifically for us to help each other.

[happy2]

Welcome Happy2. Happy to read such a post
7-8 days is considered as a severe Pois form. Now it could be a good thing to see if both claritin and benadryl are effective (and niacine too) and to see if you can improve your symptoms by taking meds some hours before orgasm.

Thanks B_Jim,

7-8 days was the maximum amount I had last year.  I also had some 5-6 day symptoms also sometimes.  The Benadryl and Claritin have worked really well immediately following orgasm.  I don't know if I have the cohoneys to try to alter that system.  I will definitely try to take some of the above medications before orgasm however, and see if I can maximize the effect even greater.  Thanks for the post.

[happy2]

We should join forces and try to set up a chain of events to get healthy. Start with the most effecient relief and then try to decide whats nr 2 and 3 etc on the "get healthy" list is.

Suggestion:

1. Stop masturbating
2. Stop consuming porn
3. Do mild daily exercise
4. Limit sex to once a month for 6 months
5. Take clarityn and niacin before and after orgasm
6. ...

This could be set up scientifically for us to help each other.

johanstefansson,

I agree with you 100%.  I think we would figure more out and solve this problem faster if we joined together.  All of your 1-5 points are valid.  We could even add benadryl to the list for number 6, immediately following orgasm.  I know it's saved me.  I had pois terrible for many years, then last September, I discovered this site and Claritin, benadryl, and niacin (flush free).  Now it's only mild symptoms for 3 days and 8 hours maximum every time.  Day 1 is the worst because of the benadryl hangover, but it's nothing compared to full blown pois.  Thanks for the post.

happy2

[curedone2013]

Hi guys, I am new to this forum. I really think I am on to something here. It is very different from what I have believed before regarding my symptoms.
I wanted to share my struggle and recent success with fighting POIS. From my experience with it, I believe that POIS is a form of a lipid disorder that leads to the other downstream effects we all have experienced.
I have been struggling with the effects of this syndrome for about 7 years until the last few weeks. Previously after ejaculation, within 1/2 hour I would start feeling brain fog, really tired, sore eyes, complete lack of focus/retention of anything new, general sickness, complete lack of sex drive, muscle weakness, and soreness in my joints which increased for about 2 days and then would begin to subside and I would feel normal again after about 6 days.
These symptoms began during my undergraduate years and I'm now in my doctorate to become a health care professional. These symptoms have basically ruined my life especially when it come to trying to treat patients on days where I can't even remember how to do basic things I have learned because of the disorder.
I recently started drinking olive oil, increased the amount of fat in my diet, and take fenugreek and I noticed that I would feel a LOT better. Then it made me start thinking about why that may be. I know that one thing that I changed around the time I began feeling POIS symptoms 7 years ago was that, I completely eliminate most fats from my diet. I would not eat anything fried or heavy/ etc. After sometime, I realized that when I would eat something fatty, I would get headaches and it would exacerbate my symptoms if I had recently ejaculated. Therefore as a result, I would continue to completely avoid fats/ oily food. So as to propose a mechanism of action for the disorder, I know a lot about physiological science but this explanation to me doesn't make sure sense for now but its what I believe from what I have experienced. I believe that after ejaculation, something is happening with our lipids. Perhaps they are being used as an energy source for the ejaculation and if the lipid levels are too low, our bodies are getting the energy sources from somewhere else that it is not suppose to be. Maybe proteins and as a result your body is breaking down specific proteins for energy that it shouldn't be so our bodies ellicit an antibody mediate response against our own proteins which leads to the symptoms that seem like an autoimmune disease. I find that when I increased the amount of oils/ lipids in my body via eating a higher fat diet, drinking olive oil, and fenugreek my symptoms seem like they are going to come on but then are COMPLETELY GONE WITHIN A FEW HOURS!!! Within the last 2-3 weeks, I haven't felt more than 10% of the original POIS symtoms at any time. I have had sex probably 20 times during that time period because it has been almost a decade since I could enjoy sex and not feel my impending doom afterwards. I never in my life to say this after all the doctors I have seen who didn't know what to tell me. In addition, I have been taking a test booster (Kiazen PM) but I don't know if that has anything to do with the results, I was just taking that for my loss of libido/ low test symptoms from the POIS. Guys, I really hope this is something that will help everyone. If you guys could try this and let me know, that will be great. I am almost in tears while writing this post because POIS has ruined a large period of time in my life that I will never get back. Now, I have been having sex and feeling great for almost 3 weeks now. I will provide an update on how I feel in a couple weeks and let you know if anything has changed. I hope this can be a new beginning for everyone.

[Prancer]

Hey welcome curedone2013, and thanks so much for sharing that information with us.

As a POISer myself, what you said seems totally plausible and I'm going to give it a try and see what happens. That the body might be struggling with replenishing something lost and using an energy source it's not supposed to might even explain why people like animus that have stopped all semen production have been cured. I'm glad you're finally feeling better after those 7 years of agony. I look forward to trying this out and also seeing if it helps any other people.

[Limejuice]

Hi 'Curedone2013',

It's exciting to hear from people who've suffered from POIS and have found a cure.  Congrats to you feeling better and sharing your cure with us to help others.

I can relate to your previous eating lifestyle - eating very low fat foods. I too was raised on a strict low fat diet because of the perceived benefits of a diet without fats.  This was during the 80's when popular anti-fat dieting programs were hyped.  I adopted these negative beliefs about fats and rarely ate lipids of any type until 20 years later (after learning about their nutritional value)

Now I take fish oil regularly in the morning before food and that's when I physically and mentally feel best.

Your cure/regime seems intriguing but coming from background where fats were unhealthy the quantity of olive oil you appear to consume is almost standoff-ish.  Could you share approximately how much oil you drink?

Here's a link to the nutritional benefits and side effects of olive oil as well as recommended dosages for certain ailments:

http://www.webmd.com/vitamins-supplements/ingredientmono-233-olive.aspx?activeIngredientId=233&activeIngredientName=olive

Excerpt from WebMD - 'Olive oil can be used safely as 14% of total daily calories. This is about 2 tablespoons (28 grams) daily.'

Edit - there are several POIS sufferers that have benefited from increasing testosterone levels (Demographics is proponent of T).  It seems plausible that the Kiazen PM you take could be reason for your feeling better too.

[littledragon]

an update of my present situation
since last year I felt stabbing in the bladder/prostate area half an hour after arousal without an 'O'
this happens only 3 times max
it's like if the prostate wants to get rid of the pre-fluid because there was no 'O'
last week I decided to take olive oil extract and I seem to got rid of the stabbing
unfortunately the next day when I was on my way to work, I had pre-fluid followed by mild P.O.I.S. symptoms just by looking at someone attractive
I never had any symptoms before when only having pre-fluid, so I became very anxious
I stopped taking olive leave extract because I thought this might be the cause (strange thoughts)
3 days later I got very nervous by seeing someone attractive and P.O.I.S. symptoms suddenly appeared and ruined my day
now I'm avoiding attractive women when walking outside, because I'm scared it might happen again, crazy isn't it?
so I decided to take a test for a bladder infection but all was ok
I also feel my bladder bloated after this incident, but no pain in any form

does anyone have had a similar experience, did I harm my bladder/prostate or is it a muscle nerve problem?

[urano75]

About fats and olive oil.
I live in Italy and have always consumed lots of olive oil. Though my total cholesterol was constantly low, typically about 150.
To increase it to more healthy values (about 200), I had to raise saturated fats consumption (butter, fat dairy, coconut oil), besides using olive oil.
As pointed out, cholesterol makes the raw material of all steroids (adrenal and sex hormones), besides the building block of nervous cells, membranes, vit D etc.
Based on this, I've learned a diet low in good fats (not hydrogenated, processed, omega 6, heated PUFAs etc) is not a good idea for our hormonal balance.
Moreover, fats will hardly make you fat, excess or wrong carbs will probably do.

That said, I've found that alone wasn't enough to make me feel better, because it's not only (and not mainly) how many sex-steroid hormones are produced, but how they are balanced with each other. And I'm having some direct experience that this balance is strongly determined by mineral status, plus adequate vitamins intake.

[Kima]

This is an interesting I recommend reading .
 http://www.actionlove.com/#Semen%20contains%20human%20growth%20hormone,%20Insulin-like%20growth%20factor-I,%20%20alpha2-macroglobulin,%20testosterone,%20and%20other%20therapeutic%20and%20pharmaceutical%20proteins

2.  http://www.actionlove.com/cases/case16665.htm

Artem .

[acronym]

Hi,

I have  chronic Lyme disease and I think that cause my POIS.  Nature's Antibiotic (example Carlic,  Olive Leaf
Extract ) usually will help with POIS symptoms. Is there anyone tested mycoplasma fermentans what is one co-infection with Lyme. POIS-people are borne with   low immune system and after ejaculation your body is under attack by different bacterias and viruses.  When you get older then all is getting worse.

Hi and Welcome IceFloe.
I quote your post some months later because it make me thing to the new study of the 3 egyptian doctors.
Indeed this is a different view of comprehension of Pois.
Pois might be an hypersensitivity an exacerbation of a secondary health problem which might be different from a case to another or simply an atopic syndrome. Lyme in your case.

I agree with your thoughts on this as well Jim. I got diagnosed with Lyme disease earlier this year. My POIS has improved recently, though I am on crap load of drugs/supps. Hard to be certain if its the lyme protocol taking a load off my immune system or another med I am on. In my case I am reluctant to blame lyme for POIS though. I have been unwell for quite a number of years, but I don't think I had lyme back in puberty when I first got POIS, though something happened to my health back then (got diagnosed with CFS). When I think I came down with lyme, I can't say my POIS came screaming back, but it did get worse.

[acronym]

Curedone2013 - Its wonderful to read a post from someone who thinks they have finally come back to life from the shrouded life of POIS. Its a huge deal, like someone who has had serious depression for years and has suddenly waked up happy and the misery is gone, and they are jumping in the air when they walk, even if its cloudy & rainy and they have no money in their pocket. Please come back on here in a months time to let us know if it is still going good for you.

Interesting protocol. For me I don't care understanding the exact science behind any cure (well sort of), I just want to get back to living life. I have had a bit of an olive oil kick before and cant say I noticed a significant improvement. I never drank it, but just got heavy handed with it on my meals. How much are you taking when you say 'drink'?  I have been taking Wild Salmon Oil capsules for a number of years, as well as sardine/borage oil (not in high doses though).
 have been on evening primrose oil caps before a few times and never noticed anything. I have recently started taking flaxseed oil to get my omega 6s (needed for pyroluria treatment which I have been diagnosed with), and have seen an improvement in my pois but as I posted before I am taking a lot of stuff and flaxseed may have no impact. I just remembered I have also been taking ghee this year (slap it on toast)
I have taken coconut oil before but actually felt worse on it. I also tried olive leaf extract a few times because it gets raved about but did not notice any benefit (it was oily but its not quite the same as the oil from the fruit).

[Vincent M]

Hi everybody, I'm new to the forum.  I have been dealing with POIS syndrome since I was in high school.  I'm now 32.  As of last year, September of 2012, I found this forum and it was only then I knew I had this disorder all these years.

Great post, happy2. I love reading about which supplements/treatments members have found to be of benefit. Definitely try the claritin at least an hour before orgasm; benadryl should work a little faster. It seems to me that a lot of the benefit I gained from those two antihistamines was due to better quality and longer sleep. I have a question for you. What exactly are your POIS symptoms? For instance I have burning eyes and joint pain after orgasm, which not many of us experience.

Also you said that you take flush free niacin; just want to make sure you're aware that most members have required the flush in order to experience the full effect of niacin.

[Vincent M]

I'm going to try benadryl soon, will be getting a prescription the upcoming days

After reading jferr's post I have can empathize as this came out of nowhere, been experiencing this before I took SSRI-s but after taking them my symptoms have fulfilled and exaggarated to the point of getting bedridden. Just masturbated yesterday after 7 days without O because I'm put under too much pressure right now and needed to feel that mental calmness.
Today I can barely walk. My legs,thighs hurt so much(for no reason) that I'm going to have to take a painkiller. When I stand up my legs are shaking and have all around muscle weakness over my body.

I'm taking the methylated forms of B complex and it doesn't help me. I should be studying for my exam but I can't even finish a simple math exam while abstaining a week makes me become a genius. If there was an 'end life' button in my room I would press it right now. Can't study, can't walk, can't think.  :-'(

Have you tried loratadine(Claritin) yet? More members have had better improvement with it than with benadryl. Also if you live in the states you don't need a prescription for benadryl. I bought of bottle of like 400 tablets online for only about $16.

Your symptoms really hit home with me as I've had to deal with a lot of disabling physical pain due to POIS over the years as well. However in my case the pain is more in my joints and my eyes, but I can't walk very far if I've had an orgasm earlier the same day due to the knee pain. Also SSRIs have increased the severity of my POIS symptoms to a great level in the past. Effexor actually permanently worsened my knee pain.

How long have you been taking the methylated b complex for?

[Vincent M]

since last year I felt stabbing in the bladder/prostate area half an hour after arousal without an 'O'
this happens only 3 times max

does anyone have had a similar experience, did I harm my bladder/prostate or is it a muscle nerve problem?

I've never had pain or POIS symptoms from sexual activity that doesn't end in orgasm.

Rarely if I have two orgasms quickly in a row within only a few minutes I get an intense, unbearable, burning pain that I suspect is originating from my prostate. The pain is so strong that I'll need to drink 3-5 beers in order to make it disappear and it usually lasts for about an hour or maybe 2. I've noticed that this pain is also more likely to occur if I have an ejaculation soon after drinking alcohol. It has only been happening the last 2-3 years so it started 3-4 years after my POIS developed.

[Vincent M]

someone else get blurred vision during pois like when we see far it gets blurry

My vision always seems fine besides the burning sensation in my eyes and maybe a slight loss of peripheral vision.

Chris18 posted this at poiscenter: "I can feel that my IQ and my intelligence and generally my brain sharpness has been reduced a lot due to long PC usage..I have terrible headaches and blurry eyes.."
http://poiscenter.com/forums/index.php?topic=1078.msg9795#msg9795

When I searched this thread here at the Naked Science Forum for "blurry" I found more members who've reported blurry vision. You can search this thread by typing this into google. The spacing is important I think:

blurry(or whatever you want to search) pois site:http://www.thenakedscientists.com/

Here are only the first two results from this search. I saw more results, but don't have the time to post them all here.

ejactrouble: "Vision is the least of my problems, but I can't even look at the computer because my vision is so blurry I can barely focus on anything (very annoying).  Trying to see if my blurriness is due to POIS or something else."
"I'm asking because last week I had been a week without ejaculation (mentally clear) and went into a weight lifting session (mentally clear).  After doing some heavy deadlifts I immediately felt the typical symptoms I feel after ejaculation (extreme brain fog, blurry vision, physical and mental fatigue, etc.)."
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg388052#msg388052

Dean93: "To everyone who talks about blurry vision and "stuff" in your eyes, is there any physical substance that you can touch, or does it feel like it's actually in your eyes. For me, I can't touch it or anything, but when I rub my eyes, I can see everything a little bit clearer, and then it sets back in..."
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg271212#msg271212

[gondal4]

I'm going to try benadryl soon, will be getting a prescription the upcoming days

After reading jferr's post I have can empathize as this came out of nowhere, been experiencing this before I took SSRI-s but after taking them my symptoms have fulfilled and exaggarated to the point of getting bedridden. Just masturbated yesterday after 7 days without O because I'm put under too much pressure right now and needed to feel that mental calmness.
Today I can barely walk. My legs,thighs hurt so much(for no reason) that I'm going to have to take a painkiller. When I stand up my legs are shaking and have all around muscle weakness over my body.

I'm taking the methylated forms of B complex and it doesn't help me. I should be studying for my exam but I can't even finish a simple math exam while abstaining a week makes me become a genius. If there was an 'end life' button in my room I would press it right now. Can't study, can't walk, can't think.  :-'(

Have you tried loratadine(Claritin) yet? More members have had better improvement with it than with benadryl. Also if you live in the states you don't need a prescription for benadryl. I bought of bottle of like 400 tablets online for only about $16.

Your symptoms really hit home with me as I've had to deal with a lot of disabling physical pain due to POIS over the years as well. However in my case the pain is more in my joints and my eyes, but I can't walk very far if I've had an orgasm earlier the same day due to the knee pain. Also SSRIs have increased the severity of my POIS symptoms to a great level in the past. Effexor actually permanently worsened my knee pain.

How long have you been taking the methylated b complex for?

that exactly was my symtoms before 2009 fir first three years and it lasted only 1 dat and second day t was far better
but now my symptoms changed completly and i dont expiereince knee pain what so ever like it was never existed.knee pain replaced by abdomen pain